Provider Perspectives on Integrating Family Caregivers into Patient Care Encounters

2021 ◽  
Author(s):  
Joan M. Griffin ◽  
Catherine Riffin ◽  
Lauren R. Bangerter ◽  
Karen Schaepe ◽  
Rachel D. Havyer
Keyword(s):  
Patient Care ◽  
Family Caregivers ◽  
Provider Perspectives

The effect of the burden of patient care with cancer on family caregivers

2020 ◽  
Vol 10 (1) ◽  
pp. 102-107
Author(s):  
Ch Anterrioti ◽  
Victoria Alikari ◽  
M Kelesi
Keyword(s):  
Quality Of Life ◽  
Patient Care ◽  
Family Caregivers ◽  
Sleep Disturbances ◽  
Young Patients ◽  
Adjustment Disorder ◽  
Emotional Reactions ◽  
Medical Needs ◽  
The Family

Cancer is a major problem that affects today's society. Besides patients suffering from this disease, cancer has also a huge impact on the quality of life of the family. This study aimed to investigate the latest bibliography on the effect of the burden of patient care with cancer on family caregivers. Family caregivers face physical health problems such as physical pain, fatigue, sleep disturbances. Moreover, several psychological effects are shown, in which various disorders such as depression are included. Psychological disorders, also, include adjustment disorder, panic disorder, anxiety, and emotional reactions such as anger, frustration, and fear. In the financial sector, caregivers face several problems due to the coverage of medical needs which are reinforced by reducing or stopping their work because of the care burden. At the same time, they are confronted with social impacts in which loneliness and isolation are attributable to the limitation of their social activities. As far as the age group of the patient is concerned, the effects of caring for young patients are more psychological than physical in opposite to the older people. The burden experienced by the family of the cancer patient exhausts family and it becomes necessary to identify problems and assess their needs. Health professionals should strength caregivers with actions such as psychological support, training, and participation in social and supportive programs in order to improve their personal health and quality of life.

Comparison of Traditional Videos With Telenovelas for Hospice Family Caregivers Education

2021 ◽  
pp. 104990912199152
Author(s):  
Dulce M. Cruz-Oliver ◽  
Martha Abshire ◽  
Chakra Budhathoki ◽  
Melissa deCardi Hladek ◽  
Angelo Volandes ◽  
...  
Keyword(s):  
Patient Care ◽  
Family Caregivers ◽  
Support Group ◽  
Qualitative Interviews ◽  
Online Support ◽  
Online Support Group ◽  
Additional Information ◽  
Caucasian Race ◽  
Educational Videos

Background: While research has shown that hospice family caregivers (HFCG) seek additional information related to patient care, pain and symptom management, and self-care, it is unknown how the use of telenovela videos for education in hospice would be received by HFCG. Objective: To explore HFCG perceived benefits and challenges with the use of telenovelas as compared to traditional educational videos during online support group. Methods: A mixed methods study with a concurrent triangulated design that analyzed qualitative interviews and YouTube analytics report to identify how viewers responded (number of views and their feedback) to telenovela videos as compared to traditional educational videos. Results: Among 39 (n = 39) HFCGs, most participants were female (80%) of White/Caucasian race, with more than high school education (85%) and they were adult children of hospice cancer patient (49%). Comparing HFCG that viewed traditional videos with HFCG that viewed telenovela videos, the telenovela video was watched more (12% longer viewing duration) and caregivers reported better content recall with informative benefits, more follow up actions and reflection about their own hospice experience. Conclusion: Caregiver feedback indicated that watching the telenovela was engaging, acceptable and produced more conversations about patient care, than watching a non-telenovela format video. Further research is needed to test telenovela efficacy in enhancing HFCG outcomes.

scholarly journals Developing Consensus in the Assessment and Treatment Pathways for Autoimmune Encephalitis in Child and Adolescent Psychiatry

2021 ◽  
Vol 12 ◽  
Author(s):  
GenaLynne C. Mooneyham ◽  
Vladimir Ferrafiat ◽  
Erin Stolte ◽  
D. Catherine Fuchs ◽  
David Cohen
Keyword(s):  
Patient Care ◽  
Young Patients ◽  
Autoimmune Encephalitis ◽  
Symptom Burden ◽  
The United States ◽  
Current Treatment ◽  
Child And Adolescent Psychiatry ◽  
Treatment Pathways ◽  
Provider Perspectives ◽  
Assessment And Treatment

Children with a diagnosis of Autoimmune Encephalitis (AE) frequently require multi-disciplinary care in order to mobilize the assessment and treatment necessary for recovery. Institutional and provider practice differences often influence the diagnostic workup and treatment pathways made available to patients. There are a variety of provider coalitions in pediatric rheumatology, internal medicine, and neurology that have been making meaningful progress toward the development of consensus in assessment and treatment approaches to patient care. However, child psychiatry is currently underrepresented in this work in spite of the high psychiatric symptom burden seen in some young patients. The need for consensus is often made visible only with inter-institutional dialogue regarding patient care trajectories. We aim to review key updates in the assessment and treatment of children and adolescents with autoimmune encephalitis during the acute phase, with or without catatonia, and to outline provider perspectives by comparing current treatment models in the United States, Canada, and Europe.

scholarly journals Are orthopaedic providers willing to work overtime to address COVID-19-related patient backlogs and financial deficits?

2021 ◽  
Vol 2 (7) ◽  
pp. 562-568
Author(s):  
Zachary A. Montgomery ◽  
Nikhil R. Yedulla ◽  
Dylan Koolmees ◽  
Eric Battista ◽  
Theodore W. Parsons III ◽  
...  
Keyword(s):  
Patient Care ◽  
Ambulatory Surgery ◽  
Tertiary Care ◽  
Level Of Evidence ◽  
Provider Perspectives ◽  
Academic Medical ◽  
Recovery Strategies ◽  
Research Consortium ◽  
Financial Deficits ◽  
Financial Recovery

Aims COVID-19-related patient care delays have resulted in an unprecedented patient care backlog in the field of orthopaedics. The objective of this study is to examine orthopaedic provider preferences regarding the patient care backlog and financial recovery initiatives in response to the COVID-19 pandemic. Methods An orthopaedic research consortium at a multi-hospital tertiary care academic medical system developed a three-part survey examining provider perspectives on strategies to expand orthopaedic patient care and financial recovery. Section 1 asked for preferences regarding extending clinic hours, section 2 assessed surgeon opinions on expanding surgical opportunities, and section 3 questioned preferred strategies for departmental financial recovery. The survey was sent to the institution’s surgical and nonoperative orthopaedic providers. Results In all, 73 of 75 operative (n = 55) and nonoperative (n = 18) providers responded to the survey. A total of 92% of orthopaedic providers (n = 67) were willing to extend clinic hours. Most providers preferred extending clinic schedule until 6pm on weekdays. When asked about extending surgical block hours, 96% of the surgeons (n = 53) were willing to extend operating room (OR) block times. Most surgeons preferred block times to be extended until 7pm (63.6%, n = 35). A majority of surgeons (53%, n = 29) believe that over 50% of their surgical cases could be performed at an ambulatory surgery centre (ASC). Of the strategies to address departmental financial deficits, 85% of providers (n = 72) were willing to work extra hours without a pay cut. Conclusion Most orthopaedic providers are willing to help with patient care backlogs and revenue recovery by working extended hours instead of having their pay reduced. These findings provide insights that can be incorporated into COVID-19 recovery strategies. Level of Evidence: III Cite this article: Bone Jt Open 2021;2(7):562–568.

scholarly journals Differences in COPD Patient Care by Primary Family Caregivers: An Age-Based Study

PLoS ONE ◽  
2014 ◽  
Vol 9 (9) ◽  
pp. e107870 ◽  
Author(s):  
Peng-Ching Hsiao ◽  
Chi-Ming Chu ◽  
Pei-Yi Sung ◽  
Wann-Cherng Perng ◽  
Kwua-Yun Wang
Keyword(s):  
Patient Care ◽  
Family Caregivers ◽  
Primary Family

The Experience of Alzheimer's Disease Family Caregivers in a Latino Community: Expectations and incongruences in support services

2021 ◽  
Author(s):  
Iveris L Martinez ◽  
Elaine Acosta Gonzalez ◽  
Caroline Quintero ◽  
Marsha Jenakovich Vania
Keyword(s):  
Alzheimer’S Disease ◽  
Alzheimer's Disease ◽  
Family Caregivers ◽  
Service Providers ◽  
Social Systems ◽  
Support Network ◽  
Theory Approach ◽  
Caregiver Support ◽  
Provider Perspectives ◽  
Latino Caregivers

Abstract Objectives Current theoretical constructs on the utilization of formal support for Latino caregivers focus on familism and exclude the cultural values represented in the service system. The purpose of this paper is to highlight the experience of care for Latino family caregivers to persons with Alzheimer’s disease and related dementias (ADRD). We also examine the cultural congruence between provider perspectives with the expectations of Latino ADRD caregivers. Method We conducted extended interviews with 24 Latino ADRD caregivers and 10 service providers. Interview transcripts were coded and analyzed using a grounded theory approach. Results Our study provides a deeper understanding of Latino caregiving experiences and highlights some of the structural and systematic issues in current systems of caregiver support. While Latino families have very specific notions of care, by upholding notions of familism, there is a tendency to not look deeper into how they may be better supported in caregiving and fall into the “culture trap.” The assumption that family should be the natural support network for older adults may lead to health and social systems of care to ignore the specific needs of the Latino population. Discussion Services are being provided under a model that was established four decades ago and may not reflect current realities. The concept of “an ethics of care” allows us to move beyond familism and explain that underutilization of services may also be due in part to the cultural incongruence between what service providers offer and the perceived needs of Latino caregivers.

Family Caregiver Preferences and Contributions Related to Patient Care in the ICU

2021 ◽  
pp. 019394592110629
Author(s):  
Breanna D. Hetland ◽  
Natalie S. McAndrew ◽  
Kevin A. Kupzyk ◽  
Dustin C. Krutsinger ◽  
Bunny J. Pozehl ◽  
...  
Keyword(s):  
Patient Care ◽  
Family Member ◽  
Family Caregivers ◽  
Family Engagement ◽  
Cross Sectional Study ◽  
Management Theory ◽  
Self Management ◽  
Holistic Healing ◽  
Cross Sectional ◽  
Engagement Interventions

Guided by Individual and Family Self-Management Theory, the purpose of this cross-sectional study was to describe patient care activities that family caregivers endorsed and performed while visiting their family member in the ICU. We found that caregivers wanted to be involved in ICU patient care and had preferences for the care they wanted to perform with their critically ill family member. More than 80% preferred to perform tasks related to daily grooming, communication, and education. Of note, many caregivers expressed interest in holistic healing activities (i.e., music and art), and yet, less than 50% of caregivers reported participating in these activities. The discrepancy between the number of care activities that respondents desired to perform compared to the number of care activities they reported performing represents an important opportunity to shift research and practice improvement efforts toward more tailored family engagement interventions and recognition of family caregivers as essential partners in care.

Communications problems affecting patient care in hospitals

JAMA ◽  
1966 ◽  
Vol 195 (1) ◽  
pp. 36-37 ◽  
Author(s):  
J. C. Quint
Keyword(s):  
Patient Care
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