scholarly journals Drug burden index to define the burden of medicines in older adults with intellectual disabilities: An observational cross-sectional study

2018 ◽  
Vol 84 (3) ◽  
pp. 553-567 ◽  
Author(s):  
Juliette O'Connell ◽  
Éilish Burke ◽  
Niamh Mulryan ◽  
Claire O'Dwyer ◽  
Clare Donegan ◽  
...  
Author(s):  
Ruth Cabeza-Ruiz

For the assessment of the health-related physical fitness (PF) of individuals with intellectual disabilities (ID), tools designed for people without disabilities have generally been used. Also, the results of these assessments have routinely been compared with the scores obtained by people without ID. The objectives of the present study are to present the rationale for the design of an assessment battery for PF, the so-called SAMU DIS-FIT battery, and to present the results obtained by the participants classified according to age, sex, and level of PF (physical fitness). The selection criteria for the tests that would make up the battery were: (i) utility, (ii) psychometric properties, (iii) easiness and diversity, (iv) simplicity of execution, (v) familiarity and motivation, and (vi) economy of resources. A cross-sectional study was designed to assess the PF of 261 individuals with ID. To interpret the results obtained by the participants, each of the quantitative variables of PF was categorized into three levels: lower-fit, mid-fit, and higher-fit. The findings of this study serve as a first step in establishing PF baseline values for individuals with ID.


Author(s):  
Amal Saki-Malehi ◽  
Gholamreza Seddiq-rad ◽  
Abdoulaziz Sayyahi ◽  
Fakhri Mousavi-Far ◽  
Mohammad Veysi ◽  
...  

AbstractA disability is a set of physical or mental disorders that personally or socially prohibit a person from having a normal and independent life. This study aimed to determine the prevalence of visual and hearing impairment in adults with intellectual disabilities in southwestern Iran. This cross-sectional study was conducted on people with disabilities in all rehabilitation centers of the Khuzestan state welfare organization in southwestern Iran from 1st January 2015 to 20th March 2016. The questionnaire was designed using the International Classification of Diseases-10 based criteria of intellectual disabilities diagnosis, in which it is referred to as a significantly sub-average intellectual functioning, slow development during the developmental period and a deficit in adaptive behavior. The questionnaire was field tested and validated before use. Visual and hearing impairment was defined based on the International Association for the Study of Intellectual and Developmental Disabilities (IASSID) international consensus statement. Two hundred cases were diagnosed to have either intellectual disabilities or visual and hearing impairment. Diagnoses of intellectual disabilities, visual and hearing impairment had been confirmed in the present screening in 79 (39.5%), 38 (19%) and 83 (41.5%) subjects, respectively. Considering the overall population of people with disabilities that refer to all rehabilitation centers of the Khuzestan state welfare organization (n=22483), the prevalence of intellectual disabilities, visual and hearing impairment in the present screening was 0.35, 0.27, and 0.37, respectively. Consanguineous marriage and history of consanguinity were the leading causes of intellectual disabilities, visual and hearing impairments in the southwestern region of Iran, most of which are avoidable. Design for the prevention of these disabilities is most recommended to decrease the proportion of avoidable disorders.


BMJ Open ◽  
2018 ◽  
Vol 8 (2) ◽  
pp. e018292 ◽  
Author(s):  
Deborah Kinnear ◽  
Jill Morrison ◽  
Linda Allan ◽  
Angela Henderson ◽  
Elita Smiley ◽  
...  

ObjectivesTo investigate the prevalence of multimorbidity in adults with intellectual disabilities with and without Down syndrome.DesignLarge, population-based cross-sectional study.SettingThe geographical area of one Health Board, Scotland.ParticipantsAll adults (aged 16+ years) known to general practitioners to have intellectual disabilities and adults receiving services provided or paid by intellectual disabilities health or social work services. 1023/1562 potential participants took part (65.5%); 562 (54.9%) men and 461 (45.1%) women, aged 43.9 years (16–83 years). 186 had Down syndrome and 837 did not.Main outcome measuresThe prevalence of International Statistical Classification of Diseases, 10th revision, physical health conditions and multimorbidity detected at a comprehensive health assessment.ResultsThe mean number of physical health conditions/participant was 11.04, and 98.7% had multimorbidity. The most prevalent conditions are painful and/or disabling and, in some cases, life threatening. The five most prevalent were visual impairment, obesity, epilepsy, constipation and ataxic/gait disorders. The pattern of multimorbidity differs from that seen in the general population and is spread across the entire adult life course. The extent of multimorbidity in the adults with Down syndrome was similar to that of the adults without Down syndrome, while the prevalence of individual conditions differed.ConclusionsThis robustly designed study with a large population found an extremely high prevalence of multimorbidity in adults with intellectual disabilities across the entire adult life course. This increases complexity of medical management that secondary healthcare services and medical education are not yet geared towards, as these tend to focus on single conditions. This is in addition to complexity due to limitations in communication and understanding. As the physical conditions within their multimorbidity also differ from that seen in the older general population, urgent attention is needed to develop the care pathways and guidelines that are required to inform and so improve their healthcare.


2020 ◽  
Author(s):  
Guillaume Sacco ◽  
Pauline Carliez ◽  
Frédéric Noublanche ◽  
Romain Simon ◽  
Anne Renaudin ◽  
...  

BACKGROUND Usability is the keystone in the evolution of tablet technology in healthcare. The Ardoiz® tablet has been designed with a simplified interface for older adults. OBJECTIVE To assess the perceived usability and satisfaction of the Ardoiz® tablet. METHODS We conducted a mixed methods with cross-sectional study using System Usability Scale (SUS), satisfaction score and workshops, including geriatric patients, healthcare professional and caregivers. RESULTS Between September 25, 2019 and March 11, 2020, 58 participants were included in a cross-sectional study (including 38 patients, mean ±SD 85±6 years, 66% women), 26 in workshops (including 5 patients, mean ±SD 86.4±2.9, 40% women). The SUS was 74±12/100, the satisfaction score was 2.8±0.9/4, with 59% of satisfied participants with the use of Ardoiz® pads. The intent to acquire remained low with 18% (n=6) of participants who would be interested in acquiring the tablet. This tablet computer seemed to be difficult to use by geriatric patients and healthcare professionals, mainly because of its complex homepage. Nevertheless, former caregivers and healthcare professionals thought that the tablet could be of great interest to hospitals for leisure and medical use. The main feedback in order to improve the tablet is to simplify the home page with fewer and more static icons (without switching). CONCLUSIONS Notwithstanding the usability of the tablet, the intent to acquire of Ardoiz® tablet remained low. The interface should be simplified for older adults in order to improve usability and adherence. CLINICALTRIAL NCT04091152


2021 ◽  
Vol 96 ◽  
pp. 104643
Author(s):  
Vivian F.C. Wilschut ◽  
Birgit Pianosi ◽  
Harmieke van Os-Medendorp ◽  
Henk W. Elzevier ◽  
Jan S. Jukema ◽  
...  

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