Pharmacological behaviour support for adults with intellectual disabilities: Frequency and predictors in a national cross-sectional survey

2018 ◽  
Vol 46 (3) ◽  
pp. 231-237 ◽  
Author(s):  
C. Mac Giolla Phadraig ◽  
C. Griffiths ◽  
P. McCallion ◽  
M. McCarron ◽  
E. Donnelly-Swift ◽  
...  
Keyword(s):  
Intellectual Disabilities ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Adults With Intellectual Disabilities

scholarly journals Role-related stress and perceptions of the keyworker role among professionals supporting adults with intellectual disabilities

2019 ◽  
Vol 12 (4) ◽  
pp. 228-246
Author(s):  
John Moriarty ◽  
Daniel Regan ◽  
Rita Honan
Keyword(s):  
Intellectual Disabilities ◽  
Well Being ◽  
Survey Study ◽  
Single Individual ◽  
Role Clarity ◽  
Cross Sectional Survey ◽  
Internal Reliability ◽  
Cross Sectional ◽  
Content Type ◽  
Adults With Intellectual Disabilities

Purpose Individuals with intellectual disabilities who are users of day and residential services will often be assigned at least one “keyworker”, a staff member who is expressly responsive to their needs and responsible for co-ordinating services with them. Keyworkers are often given their role because it is a norm in their organisation. However, given the emotionally intensive workload involved in co-ordinating care for a single individual, little attention is given to the potential stress burden of being a keyworker. The paper aims to discuss this issue. Design/methodology/approach A cross-sectional survey study was conducted of professionals’ perceptions of the keyworker role and of levels of workplace well-being. The authors first examine differences between keyworkers and their colleagues along measures of role perception and well-being. The authors then present a new measure of keyworkers’ duties and boundaries (Key-DAB) capturing perceptions of the keyworker role by keyworkers and other staff. The measure was administered to a sample of staff (n=69) from an Irish provider of services for adults with intellectual disabilities. Alongside the new scale, the authors administered established measures of workplace well-being and locus of control (LoC) to examine construct validity and assess if perception of keyworking could be related to stress. Findings Some differences were detected between keyworkers and non-keyworkers: keyworkers had more internally oriented LoC and experienced lower work pressure than non-keyworking colleagues. The Key-DAB measure possessed favourable psychometric properties, including high internal reliability. External validity was also shown as keyworkers’ scale scores were related to LoC and to role demands. Results suggested: that keyworkers who are clear about what is expected of the keyworker are more satisfied with their role and perceive keyworking as beneficial to them; that role ambiguity and role conflict can undo these potential benefits and render the keyworker’s role a potentially hazardous one. Originality/value The authors recommend that employers provide clear guidelines and explicit training to keyworkers and suggest that the measures may be effective tools for ongoing assessment of keyworkers’ role clarity.

scholarly journals Screening of Cognitive Changes in Adults with Intellectual Disabilities: A Systematic Review

2020 ◽  
Author(s):  
Andreia F. Paiva ◽  
Adam Nolan ◽  
Charlotte Thumser ◽  
Flavia H. Santos
Keyword(s):  
Systematic Review ◽  
Intellectual Disabilities ◽  
Best Practice ◽  
Web Of Science ◽  
Total Sample ◽  
Cognitive Changes ◽  
Cross Sectional ◽  
Age Related ◽  
Adults With Intellectual Disabilities ◽  
Practice Methods

Abstract: Background and Aims: Screening and assessment of cognitive changes in adults with Intellectual Disabilities, mainly Down Syndrome (DS), is crucial to offer appropriate services to their needs. We present a systematic review of the existing instruments assessing dementia, aiming to support researchers and clinicians’ best practice. Methods: Searches were carried out in the databases Web of Science; PubMed; PsycINFO in March 2019 and updated in May 2020. Studies were selected and examined if they: (1) focused on assessing age-related cognitive changes in person with ID; (2) included adults and/or older adults; (3) included scales and batteries for cognitive assessment. Results: Forty-eight cross-sectional studies and twenty-six longitudinal studies were selected representing a total sample of 5,851 participants (4,089 DS and 1,801 with other ID). In those studies, we found 38 scales, questionnaires, and inventories, and 13 batteries for assessing cognitive and behavioural changes in adults with DS and other ID. Conclusion: The most used instrument completed by an informant or carer was the Dementia Questionnaire for Learning Disabilities (DLD), and its previous versions. We discuss the strengths and limitations of the instruments and outline recommendations for future use.

Prevalence of pain in institutionalized adults with intellectual disabilities: A cross-sectional approach

2013 ◽  
Vol 34 (8) ◽  
pp. 2399-2406 ◽  
Author(s):  
Anneke A. Boerlage ◽  
Abraham J. Valkenburg ◽  
Erik J.A. Scherder ◽  
Gertrud Steenhof ◽  
Peter Effing ◽  
...  
Keyword(s):  
Intellectual Disabilities ◽  
Cross Sectional ◽  
Prevalence Of Pain ◽  
Adults With Intellectual Disabilities

scholarly journals Considerations for the Design of a Physical Fitness Battery to Assess Adults with Intellectual Disabilities: Preliminary Reference Values for the SAMU DIS-FIT Study

2020 ◽  
Vol 17 (24) ◽  
pp. 9280
Author(s):  
Ruth Cabeza-Ruiz
Keyword(s):  
Physical Fitness ◽  
Intellectual Disabilities ◽  
Selection Criteria ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Health Related ◽  
Baseline Values ◽  
Adults With Intellectual Disabilities ◽  
Individuals With Intellectual Disabilities

For the assessment of the health-related physical fitness (PF) of individuals with intellectual disabilities (ID), tools designed for people without disabilities have generally been used. Also, the results of these assessments have routinely been compared with the scores obtained by people without ID. The objectives of the present study are to present the rationale for the design of an assessment battery for PF, the so-called SAMU DIS-FIT battery, and to present the results obtained by the participants classified according to age, sex, and level of PF (physical fitness). The selection criteria for the tests that would make up the battery were: (i) utility, (ii) psychometric properties, (iii) easiness and diversity, (iv) simplicity of execution, (v) familiarity and motivation, and (vi) economy of resources. A cross-sectional study was designed to assess the PF of 261 individuals with ID. To interpret the results obtained by the participants, each of the quantitative variables of PF was categorized into three levels: lower-fit, mid-fit, and higher-fit. The findings of this study serve as a first step in establishing PF baseline values for individuals with ID.

Risk of Fall for Individuals With Intellectual Disability

2009 ◽  
Vol 114 (4) ◽  
pp. 225-236 ◽  
Author(s):  
Yoichi Chiba ◽  
Atsuyoshi Shimada ◽  
Futoshi Yoshida ◽  
Hiromi Keino ◽  
Mariko Hasegawa ◽  
...  
Keyword(s):  
Risk Factors ◽  
Cutoff Score ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Japanese Adults ◽  
Increased Risk ◽  
Independent Risk Factors ◽  
Adults With Intellectual Disabilities ◽  
Risk Of Fall ◽  
Risk Factors For Falling

Abstract Our aim was to identify risk factors for falling and establish a method to assess risk for falls in adults with intellectual disabilities. In a cross-sectional survey of 144 Japanese adults, we found that age, presence of epilepsy, and presence of paretic conditions were independent risk factors. The Tinetti balance and gait instrument was successfully administered to this population and resulted in high diagnostic accuracy (sensitivity 88.9%, specificity 91.9%) for identifying individuals at risk when the cutoff score was set at 25. Participants whose balance and gait deteriorated showed a decrease in the Tinetti score of at least 2 points per year. Thus, the Tinetti instrument may be an effective tool to detect an increased risk of fall in this population.

scholarly journals Screening of Cognitive Changes in Adults with Intellectual Disabilities: A Systematic Review

2020 ◽  
Author(s):  
Paiva A.F ◽  
Nolan A. ◽  
Thumser C. ◽  
Santos F.H.
Keyword(s):  
Systematic Review ◽  
Intellectual Disabilities ◽  
Best Practice ◽  
Web Of Science ◽  
Total Sample ◽  
Cognitive Changes ◽  
Cross Sectional ◽  
Age Related ◽  
Adults With Intellectual Disabilities ◽  
Practice Methods

Background and Aims: Screening and assessment of cognitive changes in adults with Intellectual Disabilities, mainly Down Syndrome (DS), is crucial to offer appropriate services to their needs. We present a systematic review of the existing instruments assessing dementia, aiming to support researchers and clinicians’ best practice. Methods: Searches were carried out in the databases Web of Science; PubMed; PsycINFO in March 2019 and updated in May 2020. Studies were selected and examined if they: (1) focused on assessing age-related cognitive changes in person with ID; (2) included adults and/or older adults; (3) included scales and batteries for cognitive assessment. Results: Forty-eight cross-sectional studies and twenty-six longitudinal studies were selected representing a total sample of 5,851 participants (4,089 DS and 1,801 with other ID). In those studies, we found 38 scales, questionnaires, and inventories, and 14 batteries for assessing cognitive and behavioural changes in adults with DS and other ID. Conclusion: The most used instrument completed by an informant or carer was the Dementia Questionnaire for Learning Disabilities (DLD), and its previous versions. We discuss the strengths and limitations of the instruments and outline recommendations for future use.

scholarly journals Screening of Cognitive Changes in Adults with Intellectual Disabilities: A Systematic Review

2020 ◽  
Vol 10 (11) ◽  
pp. 848
Author(s):  
Andreia F. Paiva ◽  
Adam Nolan ◽  
Charlotte Thumser ◽  
Flávia H. Santos
Keyword(s):  
Systematic Review ◽  
Intellectual Disabilities ◽  
Best Practice ◽  
Web Of Science ◽  
Total Sample ◽  
Cognitive Changes ◽  
Cross Sectional ◽  
Age Related ◽  
Adults With Intellectual Disabilities ◽  
Practice Methods

Background and Aims: Screening and assessment of cognitive changes in adults with Intellectual Disabilities (ID), mainly Down Syndrome (DS), is crucial to offer appropriate services to their needs. We present a systematic review of the existing instruments assessing dementia, aiming to support researchers and clinicians’ best practice. Methods: Searches were carried out in the databases Web of Science; PubMed; PsycINFO in March 2019 and updated in October 2020. Studies were selected and examined if they: (1) focused on assessing age-related cognitive changes in persons with ID; (2) included adults and/or older adults; (3) included scales and batteries for cognitive assessment. Results: Forty-eight cross-sectional studies and twenty-seven longitudinal studies were selected representing a total sample of 6451 participants (4650 DS and 1801 with other ID). In those studies, we found 39 scales, questionnaires, and inventories, and 13 batteries for assessing cognitive and behavioural changes in adults with DS and other ID. Conclusion: The most used instrument completed by an informant or carer was the Dementia Questionnaire for Learning Disabilities (DLD), and its previous versions. We discuss the strengths and limitations of the instruments and outline recommendations for future use.

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