scholarly journals Generic preference‐based health‐related quality of life in children with neurodevelopmental disorders: a scoping review

2019 ◽  
Vol 62 (2) ◽  
pp. 169-177 ◽  
Author(s):  
Ramesh Lamsal ◽  
Brittany Finlay ◽  
David G T Whitehurst ◽  
Jennifer D Zwicker
Keyword(s):  
Quality Of Life ◽  
Scoping Review ◽  
Neurodevelopmental Disorders ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Impact of Treatment with Conventional Complete Dentures on (Oral) Health-Related Quality of Life: A Scoping Review

2019 ◽  
Vol 32 (3) ◽  
pp. 257-262 ◽  
Author(s):  
Sarah Reis ◽  
Janice de Paula ◽  
Morgana de Morais ◽  
Raquel Ferreira ◽  
Viviane Gomes
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Scoping Review ◽  
Complete Dentures ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Quality Appraisal of Child Oral Health–Related Quality of Life Measures: A Scoping Review

2019 ◽  
Vol 5 (2) ◽  
pp. 109-117
Author(s):  
C. Yang ◽  
Y.O. Crystal ◽  
R.R. Ruff ◽  
A. Veitz-Keenan ◽  
R.C. McGowan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Health ◽  
Scoping Review ◽  
English Abstract ◽  
Health Related Quality ◽  
Quality Appraisal ◽  
Minimum Standards ◽  
Related Quality ◽  
Health Related

Background: Children’s oral health–related quality of life (COHQoL) measures are well known and widely used. However, rigorous systematic reviews of these measures and analyses of their quality are in absence. Objectives: To systematically review and quantitatively assess the quality of COHQoL measures through a scoping review. Data Sources: Systematic literature search of PubMed, CINAHL (Cumulative Index to Nursing and Allied Health Literature), EMBASE (Excerpta Medica database), HaPI (Health and Psychosocial Instruments), and DOSS (Dentistry and Oral Sciences Source). Study Eligibility: The measure’s focus was COHQoL; the child age ranged from 5 to 14 years; the publication was either a research article or a systematic review and related to caries; and it was written in English or had an English abstract. Two authors independently selected the studies. Disagreements were reconciled by group discussions with a third author. Appraisal: The International Society for Quality of Life Research minimum standards for patient-reported outcome measures were used for quality appraisal. Synthesis: Descriptive analysis. Results: We identified 18 measures. Their quality scores ranged from 9.5 to 15.0 on a scale of 16. The quality appeared to bear no relationship to the citation and use of these measures. However, elements of these measures might be more useful than others, depending on the age-specific use and primary quality concerns. Limitations: Some of the information on the minimum standards of the 18 measures cannot be found in the existing literature. Measures published without English abstract were not searched. Conclusions: The quality of these measures is suboptimal. Researchers and practitioners in this field should exercise caution when choosing and using these measures. Efforts at improving the quality of the COHQoL measures, such as refining existing ones or developing new measures, are warranted. Knowledge Transfer Statement: Researchers, clinician scientists, and clinicians can use the results of this study when deciding which oral health–related quality of life measure they wish to use in children.

scholarly journals Use of health-related quality-of-life measures for Indigenous child and youth populations: a scoping review protocol

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e043973
Author(s):  
Georgia McCarty ◽  
Sarah Derrett ◽  
Trudy Sullivan ◽  
Sue Crengle ◽  
Emma Wyeth
Keyword(s):  
Quality Of Life ◽  
Scoping Review ◽  
Indigenous Populations ◽  
Health Related Quality ◽  
Indigenous Child ◽  
Hrqol Measure ◽  
Scoping Reviews ◽  
Related Quality ◽  
Health Related

IntroductionMeasures of health-related quality-of-life (HRQoL) are increasingly important for evaluating healthcare interventions and treatments, understanding the burden of disease, identifying health inequities, allocating health resources and for use in epidemiological studies. Although many HRQoL measures developed for use in adult populations are robust, they are not necessarily designed, or appropriate, to measure HRQoL for children/youth. Furthermore, the appropriateness of HRQoL measures for use with Indigenous child/youth populations has not been closely examined. The aims of this scoping review are to (1) identify and describe empirical studies using HRQoL measures among children/youth (aged 8–17 years) from Indigenous populations within the Pacific Rim, (2) summarise the study designs and modes of HRQoL measure administration, (3) describe the key dimensions of the identified HRQoL measures used among Indigenous populations, including specifically among Māori and (4) map the HRQoL measure dimensions to commonly used Māori models of health.Methods and analysisThe scoping review framework developed by Arksey and O’Malley and the Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for scoping reviews guidelines will be followed for best practice and reporting. An iterative search of peer-reviewed published empirical research reporting the use of child/youth HRQoL measures among Indigenous populations will be conducted. This literature will be identified across the following five databases: Ovid (Medline), PubMed, Scopus, Web of Science and CINHAL. The search will be restricted to papers published in English between January 1990 and June 2020. Two reviewers will independently review the papers in two stages. A third reviewer will resolve any discrepancies that arise. A data charting form will be completed using data extracted from each paper.Ethics and disseminationEthical approval was not required for this scoping review. Dissemination will include publication of the scoping review in a peer-reviewed journal. This scoping review will inform a larger research project (HRC 20/166).

scholarly journals SF-36 total score as a single measure of health-related quality of life: Scoping review

2016 ◽  
Vol 4 ◽  
pp. 205031211667172 ◽  
Author(s):  
Liliane Lins ◽  
Fernando Martins Carvalho
Keyword(s):  
Quality Of Life ◽  
Scoping Review ◽  
Scientific Literature ◽  
Cochrane Library ◽  
Health Related Quality ◽  
Single Measure ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related

According to the 36-Item Short Form Health Survey questionnaire developers, a global measure of health-related quality of life such as the “SF-36 Total/Global/Overall Score” cannot be generated from the questionnaire. However, studies keep on reporting such measure. This study aimed to evaluate the frequency and to describe some characteristics of articles reporting the SF-36 Total/Global/Overall Score in the scientific literature. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses method was adapted to a scoping review. We performed searches in PubMed, Web of Science, SCOPUS, BVS, and Cochrane Library databases for articles using such scores. We found 172 articles published between 1997 and 2015; 110 (64.0%) of them were published from 2010 onwards; 30.0% appeared in journals with Impact Factor 3.00 or greater. Overall, 129 (75.0%) out of the 172 studies did not specify the method for calculating the “SF-36 Total Score”; 13 studies did not specify their methods but referred to the SF-36 developers’ studies or others; and 30 articles used different strategies for calculating such score, the most frequent being arithmetic averaging of the eight SF-36 domains scores. We concluded that the “SF-36 Total/Global/Overall Score” has been increasingly reported in the scientific literature. Researchers should be aware of this procedure and of its possible impacts upon human health.

Abstract 260: Coping and Health Related Quality of Life in Patients With Heart Failure: A Scoping Review

2020 ◽  
Vol 13 (Suppl_1) ◽  
Author(s):  
Mohammed O Alanazi ◽  
Gwen Wyatt ◽  
Ann Annis ◽  
Rebecca Lehto
Keyword(s):  
Quality Of Life ◽  
Heart Failure ◽  
Coping Strategies ◽  
Scoping Review ◽  
Health Related Quality ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Purpose: Heart failure (HF) is associated with poor health-related quality of life (HRQoL) secondary to decrements in functional status. Patients’ adoption of coping strategies may affect their HRQoL. The review purpose was to characterize what is known about factors that impact selection of coping strategies that contribute to HRQoL among HF patients. Research Question/Hypothesis: What is known about: 1) the impact of coping strategies on HRQoL among patients with HF; and 2) factors affecting the adoption of coping strategies? Theoretical framework/rationale: This review was guided by Lazarus and Folkman’s stress and coping theory. Methods: A scoping review was conducted using the Arksey and O’Malley framework and a modified Preferred Reporting Items for Systematic Reviews and Meta-Analyses. Databases searched included PubMed, Web of Science, Cochrane, CINAHL, and PsycINFO. Keywords included: cope, coping, HF, congestive HF, HRQoL, coping strategies. Two investigators came to consensus on publications meeting eligibility criteria. Results: 674 articles were identified of which 471 articles were screened by title and abstract after duplicates were removed, with 27 meeting eligibility. 25 studies were quantitative and 2 qualitative. Six studies were randomized controlled trials, 18 were cross-sectional, and one was longitudinal. Participants’ ages ranged in age from 49-79. Most studies (n=18) reported a significant impact of coping strategies on HRQoL in HF patients, and six studies reported minimum to no impact. Factors that influenced the adoption of coping strategies were reported (n=7 studies): age, gender, religious belief, culture, depression and illness severity. Four of the seven studies reported depression as a significant factor in adopting coping strategies. Conclusion: Most studies found a significant impact on HRQoL through coping among HF patients. However, the majority of studies were cross-sectional in design, highlighting difficulties in determining causal relationships and changes over time. While only seven studies addressed factors that led to the use of coping strategies in HF, the leading contributors were sociodemographics along with depression. This review provides an overview of the state of science; lack of experimental studies suggests a gap in the literature and a need to explore this area of research.

Basic Principles of Health-Related Quality of Life in Parents and Caregivers of Pediatric Surgical Patients with Rare Congenital Malformations—A Scoping Review

2020 ◽  
Vol 30 (03) ◽  
pp. 225-231
Author(s):  
Stefanie Witt ◽  
Janika Blömeke ◽  
Monika Bullinger ◽  
Jens Dingemann ◽  
Julia Quitmann
Keyword(s):  
Quality Of Life ◽  
Congenital Malformation ◽  
Scoping Review ◽  
Congenital Malformations ◽  
Surgical Patients ◽  
Health Related Quality ◽  
Sample Sizes ◽  
Related Quality ◽  
Health Related

Abstract Introduction The diagnosis of a rare congenital malformation with necessary surgical treatment is an emotionally stressful event in a parent's life and may impact parental health-related quality of life (HrQoL). We aimed to review the literature on HrQoL in parents and caregivers of pediatric surgical patients with rare congenital malformations and summarize the results. Materials and Methods For this scoping review, a literature search in PubMed was conducted from inception to November 21, 2019. Inclusion and exclusion criteria to select articles were defined a priori. Results Four articles (published 2014–2018) describing HrQoL in parents of pediatric surgical patients with rare congenital malformations in comparison to population-based references or healthy control groups were identified. Only European studies were found, and sample sizes varied between 15 and 87 participants. Results for parental HrQoL yielded inconsistencies. Conclusion So far, only a few studies with small sample sizes focus on parental HrQoL in pediatric surgical patients with rare congenital malformations. To gain a comprehensive understanding of the impact of a rare congenital malformation on HrQoL of all family members, it is necessary to consider three main aspects: (1) to use both generic- and disease-specific instruments measuring HrQoL of the young patient as well as his/her parents and siblings in larger sample sizes, (2) to collect longitudinal data, and (3) to consider a mixed-method approach.

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