How can we support children, adolescents and young adults in managing chronic health challenges? A scoping review on the effects of patient education interventions

PURPOSE: Fertility is an important issue for adolescents and young adults with cancer facing potential infertility. Egg cryopreservation options exist, but information is sometimes overwhelming. We evaluated a fertility preservation educational video and assessed patient and family knowledge and impressions at pre- and post-video timepoints. METHODS: We developed a whiteboard video to explain egg cryopreservation to patients and families. The video was evaluated on the basis of patient education best practices (readability, understandability, actionability). Participants were recruited using convenience sampling in oncology clinics. They completed questionnaires before and after watching to assess knowledge and interest. Inclusion criteria were patients age 13-39 years and minimum 1 month from diagnosis. Descriptive statistics, correlation analyses, and mean comparisons were conducted. RESULTS: The video script read at a grade 8 reading level. Average understandability and actionability scores were below the acceptable standard. We recruited 108 patients (mean age, 27 years) and 39 caregivers/partners. Patients’ knowledge about fertility preservation increased after viewing the video. Interest was high before and after, and satisfaction was high for both patients and caregivers. Participants appreciated information on process, procedure, and delivery but desired more information on logistics, including cost. CONCLUSION: A targeted patient education video about fertility preservation options can build knowledge and encourage discussions about infertility. The video can be used as a model for videos on related topics to provide accurate information in a youth-friendly medium; however, following patient education best practices for readability, understandability, and actionability may increase video effectiveness. Future research should assess how audiovisual patient education material affects patient behavior.

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The relationship between chronic health conditions and cognitive deficits in children, adolescents, and young adults with down syndrome: A systematic review

PLoS ONE ◽

10.1371/journal.pone.0239040 ◽

2020 ◽

Vol 15 (9) ◽

pp. e0239040

Author(s):

Kellen C. Gandy ◽

Heidi A. Castillo ◽

Lara Ouellette ◽

Jonathan Castillo ◽

Philip J. Lupo ◽

...

Keyword(s):

Systematic Review ◽

Young Adults ◽

Down Syndrome ◽

Cognitive Deficits ◽

Chronic Health Conditions ◽

Adolescents And Young Adults ◽

Health Conditions ◽

Chronic Health ◽

The Relationship

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Validity of New Technologies That Measure Bone-Related Dietary and Physical Activity Risk Factors in Adolescents and Young Adults: A Scoping Review

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18115688 ◽

2021 ◽

Vol 18 (11) ◽

pp. 5688

Author(s):

Alyse Davies ◽

Yumeng Shi ◽

Adrian Bauman ◽

Margaret Allman-Farinelli

Keyword(s):

Physical Activity ◽

Risk Factors ◽

Young Adults ◽

Scoping Review ◽

New Technologies ◽

Adolescents And Young Adults ◽

Strong Correlations ◽

Qualitative Synthesis ◽

Activity Assessment ◽

Reaction Forces

New technologies may improve the validity of dietary and physical activity assessment and thereby associated findings for lifestyle-related bone health research. This scoping review mapped the evidence for the validity of new technologies that measure bone-related dietary and physical activity risk factors in adolescents and young adults. A systematic literature search was conducted using seven electronic databases for peer-reviewed studies published from January 2008 to 2021. Four studies from four countries were deemed eligible and included in the qualitative synthesis for this review. Two studies assessed diet, reporting the validity or usability of apps. Apps were shown to be a valid tool to measure the dietary intake of vitamin D (r = 0.84) and calcium (r = 0.63). Two studies assessed physical activity and reported the validity of wearable devices to measure impact loading. Hip-worn raw acceleration output correlated positively with ground reaction forces (GRF) for both studies (r range = 0.50–0.87), but wrist-worn accelerations and loading outcomes differed between studies, reporting poor to strong correlations (r range = 0.17–0.87). More research to provide robust evidence concerning validity, reliability, usability and engagement for the use of newer technologies is needed for future diet and physical activity bone research.

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Psychosocial Support Interventions for Improved Adherence and Retention in ART care for Young People Living with HIV: A Scoping Review

10.21203/rs.3.rs-26301/v2 ◽

2020 ◽

Author(s):

Emeka Francis Okonji ◽

Ferdinand C. Mukumbang ◽

Zaida Orth ◽

Shelley A. Vickerman-Delport ◽

Brian Van Wyk

Keyword(s):

Young Adults ◽

Medication Adherence ◽

Young People ◽

Scoping Review ◽

Psychosocial Support ◽

Retention In Care ◽

Adolescents And Young Adults ◽

People Living With Hiv ◽

Living With Hiv

Abstract Background: Mental health disorders such as high levels of anxiety, isolation, depression and suicide ideation reported among young people living with HIV (10-24; YPLWH) contribute significantly to poor medication adherence and retention in care. While there is evidence supporting the role of psychosocial support interventions in promoting adherence and retention in antiretroviral treatment (ART) among adults living with HIV, there is little evidence on the role of psychosocial support on medication adherence among YPLWH . This scoping review was designed to identify and classify the types and effects of psychosocial support interventions designed to improve adherence and retention in ART among adolescents and young people living with HIV globally. Method: We searched six electronic databases (i.e., Scopus, Pubmed and EBSCOHost (Academic Search Premier, CINAHL, Psycarticles and Medline). Six relevant articles published between 2011 and 2019 met our inclusion criteria. We extracted information relevant to the nature and outcomes of the reported interventions using thematic content analysis informed by the Population, Intervention, comparison, outcome, and time (PICOT) framework. Results: Four distinctive treatment modalities that focused on improving ART adherence and retention in care were identified: individual counselling, support groups, family-centered services, and treatment supporters. Conclusion: There is a dearth of psychosocial support interventions to improve adherence and retention in ART amongst adolescents and young adults living with HIV. Future research and programming should seek to address psychosocial support interventions or approaches specifically designed to address the needs of adolescents and young adults living with HIV.PROSPERO: Registration CRD42018105057

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Psychosocial Support Interventions for Improved Adherence and Retention in ART care for Adolescents and Young People Living with HIV: A Scoping Review

10.21203/rs.3.rs-26301/v1 ◽

2020 ◽

Author(s):

Emeka Francis Okonji ◽

Ferdinand C. Mukumbang ◽

Zaida Orth ◽

Shelley A. Vickerman-Delport ◽

Brian Van Wyk

Keyword(s):

Young Adults ◽

Medication Adherence ◽

Young People ◽

Scoping Review ◽

Psychosocial Support ◽

Retention In Care ◽

Adolescents And Young Adults ◽

People Living With Hiv ◽

Living With Hiv

Abstract Background: Mental health disorders such as high levels of anxiety, isolation, depression and suicide reported among adolescents and young people living with HIV contribute significantly to poor medication adherence and retention in care. While there is evidence supporting the role of psychosocial support interventions in promoting adherence and retention in antiretroviral treatment (ART) among adults living with HIV, there is little evidence on the role of psychosocial support on medication adherence among adolescents living with HIV. This scoping review was designed to identify and classify the types and effects of psychosocial support interventions designed to improve adherence and retention in ART among adolescents and young people living with HIV globally. Method: We searched six electronic databases (i.e., Scopus, Pubmed and EBSCOHost (Academic Search Premier, CINAHL, Psycarticles and Medline). Six relevant articles published between 2011 and 2019 met our inclusion criteria. We extracted information relevant to the nature and outcomes of the reported interventions using thematic content analysis informed by the Population, Intervention, comparison, outcome, and time (PICOT) framework. Results: Four distinctive treatment modalities that focused on improving ART adherence and retention in care were identified: individual counselling, support groups, family-centered services, and treatment supporters. Conclusion: There is a dearth of psychosocial support interventions to improve adherence and retention in ART amongst adolescents and young adults living with HIV. Future research and programming should seek to address psychosocial support interventions or approaches specifically designed to address the needs of adolescents and young adults living with HIV.

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