Perspectives of fathers and mothers of children in early intervention programmes in assessing family quality of life

Family quality of life (FQoL) is considered one of the aims of early intervention (EI) services and a good indicator of service quality. Families were recruited from EI centers in 12 of 17 communities (states) in Spain. This study describes the FQoL of 250 Spanish families with children aged 0 to 6 years in EI services during a family-centered implementation process. We used an EI-specific FQoL scale that includes families’ perception of their child’s functioning as one factor. We also describe the relationships among individual, family, and service variables as well as FQoL. Type of disability, socioeconomic status, and family-centered practices impacted Child Functioning, Overall Life Situation, and Access to Information and Services factors, respectively. Fewer number of professionals involved was related with greater perception of child’s functionality. Family-centeredness, type of family, and type of disability were the most influencing variables for the Total score. Implications for practice are discussed.

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Family Quality of Life for Families in Early Intervention Centers in Jordan

Advances in Social Sciences Research Journal ◽

10.14738/assrj.55.4625 ◽

2018 ◽

Vol 5 (5) ◽

Author(s):

Amani Mohamed Mahmoud

Keyword(s):

Quality Of Life ◽

Early Intervention ◽

Family Quality Of Life

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Family quality of life among Taiwanese children with developmental delay before and after early intervention

Journal of Intellectual Disability Research ◽

10.1111/jir.12754 ◽

2020 ◽

Vol 64 (8) ◽

pp. 589-601

Author(s):

S.‐J. Chiu ◽

I.‐F. Lin ◽

Y.‐T. Chou ◽

L.‐Y. Chien

Keyword(s):

Quality Of Life ◽

Early Intervention ◽

Developmental Delay ◽

Family Quality Of Life ◽

Before And After

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Family Quality of Life for Families in Early Intervention in Spain

Journal of Early Intervention ◽

10.1177/1053815116636885 ◽

2016 ◽

Vol 38 (1) ◽

pp. 59-74 ◽

Cited By ~ 15

Author(s):

Joana M. Mas ◽

Natasha Baqués ◽

Anna Balcells-Balcells ◽

Mariona Dalmau ◽

Climent Giné ◽

...

Keyword(s):

Quality Of Life ◽

Early Intervention ◽

Family Quality Of Life

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Satisfaction and Quality of Life of Families Participating in Two Different Early Intervention Models in the Same Context: A Mixed Methods Study

Frontiers in Psychology ◽

10.3389/fpsyg.2021.650736 ◽

2021 ◽

Vol 12 ◽

Author(s):

Sebastià Verger ◽

Inmaculada Riquelme ◽

Sara Bagur ◽

Berta Paz-Lourido

Keyword(s):

Quality Of Life ◽

Mixed Methods ◽

Early Intervention ◽

Problem Solving ◽

Three Dimensions ◽

Service Organization ◽

Family Quality Of Life ◽

Quality Of Life Scale ◽

Qualitative Phase

Early intervention is developed following different types of service organization, which in turn require different professional and family roles. The aim of this study was to compare the perceived satisfaction and family quality of life amongst families receiving early intervention developed at centers in comparison to those receiving the routines-based early intervention in families’ homes, that is a family centered intervention in ecological environments. Under a transformative paradigm, a mixed methods design was used, using the Consumer Report Effectiveness Scale (CRES-4) and the Beach Center Family Quality of Life Scale (FQOLS) and two focus groups as data collection instruments. The sample comprised 166 parents in the quantitative phase and 16 parents in the qualitative phase. Results showed that families receiving routines-based early intervention had greater satisfaction with the service although both groups showed similar scores for family quality of life in most of the analyzed domains. Three dimensions were identified throughout the qualitative phase: problem solving, professional team and service organization. Both the models analyzed have an impact on family quality of life and parents are in general satisfied. Strengths and weaknesses were found related to the problem-solving process, the role of the professional team, family empowerment and the service’s organization. The areas requiring further development are the effective training of professionals focused on family practices, the exchange of information with the family and a more participatory organization that takes parent’s perspectives into consideration. The value given to a combined model is another aspect highlighted in this study, as well as the need for a more agile assessment period to avoid unnecessary delays.

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Service Quality in Early Intervention Centres: An Analysis of Its Influence on Satisfaction and Family Quality of Life

Children ◽

10.3390/children8080716 ◽

2021 ◽

Vol 8 (8) ◽

pp. 716

Author(s):

Inmaculada-Concepción Jemes-Campaña ◽

Rita-Pilar Romero-Galisteo ◽

Pablo Gálvez-Ruiz ◽

Maria-Teresa Labajos-Manzanares ◽

Noelia Moreno-Morales

Keyword(s):

Quality Of Life ◽

Quality Of Service ◽

Early Intervention ◽

Service Quality ◽

Structural Model ◽

Perceived Quality ◽

Family Quality Of Life ◽

Developmental Problems ◽

Probabilistic Sample

Early Intervention (EI) is a set of interventions focused on responding to the needs of children with or at risk of developmental problems. This study aimed to investigate the relationships between the perceived quality of service, satisfaction and family quality of life. Methods: to conduct a multi-centre, transversal study with a non-probabilistic sample. The participants (N = 1551) were families from 24 Early Intervention Centres (EICs) located in Spain. Results: The results indicated an adequate fit of the measurement and structural models, with the latter showing a capacity of 73% to predict the family quality of life. The structural model established that the perceived service quality was a positive and significant predictor of satisfaction (β = 0.85; p < 0.001). Both the perceived quality of service (β = 0.28; p < 0.001) and satisfaction (β = 0.33; p < 0.001) obtained a similar positive and significant relationship with family quality of life, which was slightly stronger than satisfaction. Conclusions: This study provided a better understanding of the importance of the services offered in EICs and their influence on the satisfaction and family quality of life of their users. Thus, delving into these relationships was highly relevant for decision-making in the context of EI.

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Family Environment, Sibling Relationship and Rivalry towards Quality of Life

Environment-Behaviour Proceedings Journal ◽

10.21834/e-bpj.v1i3.300 ◽

2016 ◽

Vol 1 (3) ◽

Author(s):

Rugayah Hashim ◽

Hashim Ahmad

Keyword(s):

Quality Of Life ◽

Family Environment ◽

Quantitative Research ◽

Publishing House ◽

Sibling Rivalry ◽

Sibling Relationship ◽

Family Quality Of Life ◽

Research Approach ◽

Economic Developments

Kinship, family composition and household dynamics among siblings are developed positively or negatively in early life right through adulthood. Hence, the purpose of this paper is highlight the importance of family environment in influencing sibling relationship, with emphasis on sibling rivalry. Determining the factors that contribute towards sibling competition is important in counselling and assisting individuals with family issues. From a quantitative research approach, the findings showed that sibling relationships are problematic and has led to jealousies and prejudices especially if parents take sides. Family ties depend on happy sibling interactions which indirectly affects socio-economic developments as social ills are resolved. In ameliorating these private and sensitive issues among family members, the holistic society will benefit psychologically and happiness as well as a better quality of life will be attained.© 2016. The Authors. Published for AMER ABRA by e-International Publishing House, Ltd., UK. Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians) and cE-Bs (Centre for Environment-Behaviour Studies, Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia.Keywords: Sibling rivalry; family; quality of life; socio-economic impact

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Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature

Health and Quality of Life Outcomes ◽

10.1186/s12955-021-01819-4 ◽

2021 ◽

Vol 19 (1) ◽

Author(s):

R. Shah ◽

F. M. Ali ◽

A. Y. Finlay ◽

M. S. Salek

Keyword(s):

Quality Of Life ◽

Family Members ◽

Unmet Need ◽

Reliability And Validity ◽

Chronic Health Condition ◽

Family Quality Of Life ◽

Good Reliability ◽

Huge Impact ◽

The Impact

Abstract Background A person’s chronic health condition or disability can have a huge impact on the quality of life (QoL) of the whole family, but this important impact is often ignored. This literature review aims to understand the impact of patients' disease on family members across all medical specialities, and appraise existing generic and disease-specific family quality of life (QoL) measures. Methods The databases Medline, EMBASE, CINHAL, ASSIA, PsycINFO and Scopus were searched for original articles in English measuring the impact of health conditions on patients' family members/partner using a valid instrument. Results Of 114 articles screened, 86 met the inclusion criteria. They explored the impact of a relative's disease on 14,661 family members, mostly 'parents' or 'mothers', using 50 different instruments across 18 specialities including neurology, oncology and dermatology, in 33 countries including the USA, China and Australia. These studies revealed a huge impact of patients' illness on family members. An appraisal of family QoL instruments identified 48 instruments, 42 disease/speciality specific and six generic measures. Five of the six generics are aimed at carers of children, people with disability or restricted to chronic disease. The only generic instrument that measures the impact of any condition on family members across all specialities is the Family Reported Outcome Measure (FROM-16). Although most instruments demonstrated good reliability and validity, only 11 reported responsiveness and only one reported the minimal clinically important difference. Conclusions Family members' QoL is greatly impacted by a relative's condition. To support family members, there is a need for a generic tool that offers flexibility and brevity for use in clinical settings across all areas of medicine. FROM-16 could be the tool of choice, provided its robustness is demonstrated with further validation of its psychometric properties.

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