scholarly journals Satisfaction and Quality of Life of Families Participating in Two Different Early Intervention Models in the Same Context: A Mixed Methods Study

2021 ◽  
Vol 12 ◽  
Author(s):  
Sebastià Verger ◽  
Inmaculada Riquelme ◽  
Sara Bagur ◽  
Berta Paz-Lourido
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Early Intervention ◽  
Problem Solving ◽  
Three Dimensions ◽  
Service Organization ◽  
Family Quality Of Life ◽  
Quality Of Life Scale ◽  
Qualitative Phase

Early intervention is developed following different types of service organization, which in turn require different professional and family roles. The aim of this study was to compare the perceived satisfaction and family quality of life amongst families receiving early intervention developed at centers in comparison to those receiving the routines-based early intervention in families’ homes, that is a family centered intervention in ecological environments. Under a transformative paradigm, a mixed methods design was used, using the Consumer Report Effectiveness Scale (CRES-4) and the Beach Center Family Quality of Life Scale (FQOLS) and two focus groups as data collection instruments. The sample comprised 166 parents in the quantitative phase and 16 parents in the qualitative phase. Results showed that families receiving routines-based early intervention had greater satisfaction with the service although both groups showed similar scores for family quality of life in most of the analyzed domains. Three dimensions were identified throughout the qualitative phase: problem solving, professional team and service organization. Both the models analyzed have an impact on family quality of life and parents are in general satisfied. Strengths and weaknesses were found related to the problem-solving process, the role of the professional team, family empowerment and the service’s organization. The areas requiring further development are the effective training of professionals focused on family practices, the exchange of information with the family and a more participatory organization that takes parent’s perspectives into consideration. The value given to a combined model is another aspect highlighted in this study, as well as the need for a more agile assessment period to avoid unnecessary delays.

Child, Family, and Early Intervention Characteristics Related to Family Quality of Life in Spain

2018 ◽  
Vol 41 (1) ◽  
pp. 44-61 ◽  
Author(s):  
Pau García-Grau ◽  
R. A. McWilliam ◽  
Gabriel Martínez-Rico ◽  
Catalina P. Morales-Murillo
Keyword(s):  
Quality Of Life ◽  
Early Intervention ◽  
Implementation Process ◽  
Family Quality Of Life ◽  
Child Functioning ◽  
Individual Family ◽  
Family Centeredness ◽  
Families With Children ◽  
Family Centered

Family quality of life (FQoL) is considered one of the aims of early intervention (EI) services and a good indicator of service quality. Families were recruited from EI centers in 12 of 17 communities (states) in Spain. This study describes the FQoL of 250 Spanish families with children aged 0 to 6 years in EI services during a family-centered implementation process. We used an EI-specific FQoL scale that includes families’ perception of their child’s functioning as one factor. We also describe the relationships among individual, family, and service variables as well as FQoL. Type of disability, socioeconomic status, and family-centered practices impacted Child Functioning, Overall Life Situation, and Access to Information and Services factors, respectively. Fewer number of professionals involved was related with greater perception of child’s functionality. Family-centeredness, type of family, and type of disability were the most influencing variables for the Total score. Implications for practice are discussed.

Perspectives of fathers and mothers of children in early intervention programmes in assessing family quality of life

2006 ◽  
Vol 50 (12) ◽  
pp. 977-988 ◽  
Author(s):  
M. Wang ◽  
J. A. Summers ◽  
T. Little ◽  
A. Turnbull ◽  
D. Poston ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Early Intervention ◽  
Family Quality Of Life

Confirmatory Factor Analysis of a Family Quality of Life Scale for Taiwanese Families of Children With Intellectual Disability/Developmental Delay

2017 ◽  
Vol 55 (2) ◽  
pp. 57-71 ◽  
Author(s):  
Chun-Yu Chiu ◽  
Hyojeong Seo ◽  
Ann P. Turnbull ◽  
Jean Ann Summers
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Developmental Delay ◽  
Reliability And Validity ◽  
Family Quality Of Life ◽  
Family Outcomes ◽  
Quality Of Life Scale ◽  
Confirmatory Factor ◽  
Life Scale

Abstract The Beach Center Family Quality of Life Scale is an internationally validated instrument for measuring family outcomes. To revise the scale for better alignment with the Family Quality of Life theory, the authors excluded non-outcome items in this revision. In this study, we examined reliability and validity of the revised scale (i.e., the FQoL Scale-21) and its scores for Taiwanese families of children and youth with intellectual disability and developmental delay (age 0–18). Results from 400 Taiwanese respondents suggested that the FQoL Scale-21 has the potential to be used as an indicator of positive outcomes in intervention evaluation, policy making, and service delivery.

scholarly journals Postpartum Sexual Quality of Life: Scale Development and Psychometric Properties Assessment in Iran

2020 ◽  
Author(s):  
Azam Rahmani ◽  
Susanne Grylka-Baeschlin ◽  
Arezoo Fallahi ◽  
Sarah Abboud ◽  
Reza Ghanei Gheshlagh ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychometric Properties ◽  
Sexual Life ◽  
Validity And Reliability ◽  
Final Version ◽  
Sexual Quality Of Life ◽  
Quality Of Life Scale ◽  
Life Scale ◽  
Qualitative Phase

Abstract Background: To develop and assess the psychometric properties of the Postpartum Sexual Quality of Life Scale (PSQLS) in Iran.Methods: We employed a mixed-method approach. In the qualitative phase (17 interviews and two focus groups), we generated items for the scale. In the quantitative phase (n = 282), we assessed the psychometric properties of the pre-final version.Results: The final version contained 22 items. Exploratory factor analysis indicated a 5-factor solution that jointly accounted for 59.6 % of the variance. Cronbach’s alpha coefficient was 0.87.Conclusion: The PSQLS showed good validity and reliability and could be used to evaluate women’s postpartum sexual life.

scholarly journals Emotional well-being and social support as important factors affecting the quality of life of parents of a child with cerebral palsy

2019 ◽  
Vol 18 ◽  
pp. e019002
Author(s):  
Katarína Molnárová Letovancová ◽  
Miriam Slaná ◽  
Michaela Hromková
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Cerebral Palsy ◽  
Well Being ◽  
Average Score ◽  
Family Quality Of Life ◽  
Life Questionnaire ◽  
Quality Of Life Scale ◽  
Children With Cerebral Palsy

The birth of a child with cerebral palsy is an enormous challenge for the parents which has a direct impact on their quality of life. Therefore, we believe it is important to pay attention to this topic. To that end, we conducted research on the quality of life of parents of children with cerebral palsy in 2018. To achieve our goal, we applied quantitative research strategy and used a valid research tool, i.e. a standardized quality of life questionnaire – Family Quality of Life Scale ("FQOL"). The average score reached by respondents was 94.0918 points which indicates a higher quality of life in respondents than expected. The evaluation of the average score for each dimension of the scale showed that respondents scored the lowest in the "Emotional Well-Being" dimension (13.2551 points) and "Social Support" (15.6429 points). The research further confirmed that there were statistically significant differences in the quality of life of respondents depending on their age (t = -2.341, p = 0.021), marital status (F = 3.476, p = 0.019) and the territorial region (χ2 = 15.39, p = 0.031). A statistically significant relationship between the quality of life of respondents and the age of the child with cerebral palsy (0.288 **, p = 0.004) was confirmed. Despite a relatively high score that indicated a higher quality of life in respondents, the research identified two areas in which parents of children with cerebral palsy had a lower quality of life, namely, their emotional well-being and social support.

scholarly journals Parental Stress and Family Quality of Life: Surveying Family Members of Persons with Intellectual Disabilities

2020 ◽  
Vol 17 (23) ◽  
pp. 9007
Author(s):  
Cristina Jenaro ◽  
Noelia Flores ◽  
Belén Gutiérrez-Bermejo ◽  
Vanessa Vega ◽  
Carmen Pérez ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Parenting Stress ◽  
Parental Stress ◽  
Family Members ◽  
Family Quality Of Life ◽  
Quality Of Life Scale ◽  
The Family ◽  
The Impact

(1) Background. This study assesses the quality of life in families with a member with an intellectual disability using the Family Adjustment and Adaptation Response framework. (2) Methods. The study included 515 Spanish participants whose family members with disabilities range in age from infancy to adulthood. We hypothesized that it is possible to predict parenting stress by paying attention to the meaning families give to themselves and their circumstances while controlling for the impact of other variables such as family capabilities and characteristics of the family member with disabilities. We used the Beach Center Family Quality of Life Scale and the section on Exceptional needs of medical and behavioral support from the Supports Intensity Scale, together with other potential predictors. The subscale on parental stress from the Parenting Stress Index–Short Form was utilized as a criterion measure. (3) Results. Hierarchical multiple regression analysis revealed that 49% of parental stress was predicted by dysfunctional interaction, difficult behaviors, low emotional wellbeing, poor family interaction, as well as kinship as parents, and the severity of both the medical needs and intellectual disability. (4) Conclusions. The stress experienced by those families is mostly predicted by the meaning they give to themselves and their circumstances. Implications of these findings for service delivery are discussed.

Family Quality of Life Scale--Greek Version

2016 ◽  
Author(s):  
Efi Parpa ◽  
Nick Katsantonis ◽  
Eleni Tsilika ◽  
Antonis Galanos ◽  
Maria Sassari ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Family Quality Of Life ◽  
Greek Version ◽  
Quality Of Life Scale ◽  
Life Scale
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