Child, Family, and Early Intervention Characteristics Related to Family Quality of Life in Spain

2018 ◽  
Vol 41 (1) ◽  
pp. 44-61 ◽  
Author(s):  
Pau García-Grau ◽  
R. A. McWilliam ◽  
Gabriel Martínez-Rico ◽  
Catalina P. Morales-Murillo
Keyword(s):  
Quality Of Life ◽  
Early Intervention ◽  
Implementation Process ◽  
Family Quality Of Life ◽  
Child Functioning ◽  
Individual Family ◽  
Family Centeredness ◽  
Families With Children ◽  
Family Centered

Family quality of life (FQoL) is considered one of the aims of early intervention (EI) services and a good indicator of service quality. Families were recruited from EI centers in 12 of 17 communities (states) in Spain. This study describes the FQoL of 250 Spanish families with children aged 0 to 6 years in EI services during a family-centered implementation process. We used an EI-specific FQoL scale that includes families’ perception of their child’s functioning as one factor. We also describe the relationships among individual, family, and service variables as well as FQoL. Type of disability, socioeconomic status, and family-centered practices impacted Child Functioning, Overall Life Situation, and Access to Information and Services factors, respectively. Fewer number of professionals involved was related with greater perception of child’s functionality. Family-centeredness, type of family, and type of disability were the most influencing variables for the Total score. Implications for practice are discussed.

scholarly journals The Spanish Family Quality of Life Scales under and over 18 Years Old: Psychometric Properties and Families’ Perceptions

2020 ◽  
Vol 17 (21) ◽  
pp. 7808
Author(s):  
Anna Balcells-Balcells ◽  
Joana M. Mas ◽  
Natasha Baqués ◽  
Cecilia Simón ◽  
Simón García-Ventura
Keyword(s):  
Quality Of Life ◽  
Factor Analysis ◽  
Psychometric Properties ◽  
Family Quality Of Life ◽  
Intellectual And Developmental Disabilities ◽  
Validity And Reliability ◽  
Confirmatory Factor ◽  
Spanish Family ◽  
Families With Children

Background: Family quality of life (FQoL), just like individual quality of life, has become a priority outcome in the policies and services received by persons with intellectual and developmental disabilities (IDD) and their families. Conceptualizing, measuring, and theorizing FQoL has been the object of investigation in recent decades. The goal of this paper is to present a revision of the Spanish Family Quality of Life Scales, the CdVF-E < 18 and the CdVF-E >18, and describe the FQoL of Spanish families with a member with IDD. Methods: The sample included a total of 548 families with a member under 18 years old and 657 families with a member over 18. Based on an Exploratory Factor Analysis (EFA) firstly and a Confirmatory Factor Analysis (CFA) secondly, the two scales’ psychometric properties were explored. Results: The CdVF-ER < 18 and the CdVF-ER > 18 comprise 5 dimensions, containing 35 and 32 items, respectively, and they show good validity and reliability. The families obtained a high FQoL score, although some differences exist between the dimensions on which families with children under and over 18 score highest and lowest. Conclusion: The characteristics of the revised scales facilitate their use by professionals, administrations, and services.

Perspectives of fathers and mothers of children in early intervention programmes in assessing family quality of life

2006 ◽  
Vol 50 (12) ◽  
pp. 977-988 ◽  
Author(s):  
M. Wang ◽  
J. A. Summers ◽  
T. Little ◽  
A. Turnbull ◽  
D. Poston ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Early Intervention ◽  
Family Quality Of Life

scholarly journals State of the Art of Family Quality of Life in Early Care and Disability: A Systematic Review

2020 ◽  
Vol 17 (19) ◽  
pp. 7220
Author(s):  
Carmen Francisco Mora ◽  
Alba Ibáñez ◽  
Anna Balcells-Balcells
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Family Relationships ◽  
Family Quality Of Life ◽  
Early Care ◽  
Quality Of Family Life ◽  
Bibliographic Search ◽  
Families With Children ◽  
Age Range

Background: In recent years, there has been a growing international interest in family quality of life The objective of this systematic review is to understand and analyze the conceptualization of the quality of life of families with children with disabilities between 0 and 6 years of age, the instruments for their measurement and the most relevant research results. Method: A bibliographic search was conducted in the Web of Science, Scopus and Eric databases of studies published in English and Spanish from 2000 to July 2019 focused on “family quality of life” or “quality of family life” in the disability field. A total of 63 studies were selected from a total of 1119 and analyzed for their theoretical and applied contributions to the field of early care. Results: The functional conceptualization of family quality of life predominates in this area, and a nascent and enriching holistic conceptualization is appreciated. There are three instruments that measure family quality of life in early care, although none of them is based on unified theory of FQoL; none of them focus exclusively on the age range 0–6 nor do they cover all disabilities. Conclusions: The need to deepen the dynamic interaction of family relationships and to understand the ethical requirement that the methods used to approach family quality of life respect the holistic nature of the research is noted.

Family Quality of Life for Families in Early Intervention in Spain

2016 ◽  
Vol 38 (1) ◽  
pp. 59-74 ◽  
Author(s):  
Joana M. Mas ◽  
Natasha Baqués ◽  
Anna Balcells-Balcells ◽  
Mariona Dalmau ◽  
Climent Giné ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Early Intervention ◽  
Family Quality Of Life

scholarly journals Cómo implementar el modelo centrado en la familia en atención temprana.

2017 ◽  
Vol 33 (3) ◽  
pp. 641 ◽  
Author(s):  
Mariona Dalmau-Montala ◽  
Anna Balcells-Balcells ◽  
Climent Giné Giné ◽  
Margarita Cañadas Pérez ◽  
Olga Casas Masjoan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Early Intervention ◽  
Early Childhood Intervention ◽  
Font Size ◽  
Black Line ◽  
The Family ◽  
Childhood Intervention ◽  
Family Centered ◽  
Qualitative Analyses

<p style="margin: 0cm 0cm 0pt; text-align: justify; line-height: 150%; -ms-text-justify: inter-ideograph;"><span style="color: black; line-height: 150%; font-family: 'Times New Roman',serif; font-size: 12pt; mso-ansi-language: EN-US;" lang="EN-US">From the results of a research aimed at improving the quality of life of families with a child with intellectual disability, the purpose of this paper is to provide a methodology for the implementation of the family-centered model in early childhood intervention centers in our country. Quantitative and qualitative analyses of the collected data allow us to systematize the steps or stages that would be necessary to provide professionals and families in early intervention centers with useful tools to empower the families and to enhance the children’s development. This article represents another step further from the proposals made by other researchers in other countries with different traditions and culture in the field of early intervention, and intends to reflect the characteristics of our country in terms of the history and the path of early intervention in recent decades.</span></p>

scholarly journals Satisfaction and Quality of Life of Families Participating in Two Different Early Intervention Models in the Same Context: A Mixed Methods Study

2021 ◽  
Vol 12 ◽  
Author(s):  
Sebastià Verger ◽  
Inmaculada Riquelme ◽  
Sara Bagur ◽  
Berta Paz-Lourido
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Early Intervention ◽  
Problem Solving ◽  
Three Dimensions ◽  
Service Organization ◽  
Family Quality Of Life ◽  
Quality Of Life Scale ◽  
Qualitative Phase

Early intervention is developed following different types of service organization, which in turn require different professional and family roles. The aim of this study was to compare the perceived satisfaction and family quality of life amongst families receiving early intervention developed at centers in comparison to those receiving the routines-based early intervention in families’ homes, that is a family centered intervention in ecological environments. Under a transformative paradigm, a mixed methods design was used, using the Consumer Report Effectiveness Scale (CRES-4) and the Beach Center Family Quality of Life Scale (FQOLS) and two focus groups as data collection instruments. The sample comprised 166 parents in the quantitative phase and 16 parents in the qualitative phase. Results showed that families receiving routines-based early intervention had greater satisfaction with the service although both groups showed similar scores for family quality of life in most of the analyzed domains. Three dimensions were identified throughout the qualitative phase: problem solving, professional team and service organization. Both the models analyzed have an impact on family quality of life and parents are in general satisfied. Strengths and weaknesses were found related to the problem-solving process, the role of the professional team, family empowerment and the service’s organization. The areas requiring further development are the effective training of professionals focused on family practices, the exchange of information with the family and a more participatory organization that takes parent’s perspectives into consideration. The value given to a combined model is another aspect highlighted in this study, as well as the need for a more agile assessment period to avoid unnecessary delays.

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