Influence of transition readiness from paediatric to adult health care on quality of life in child–parent dyads with long‐term conditions

2021 ◽  
Author(s):  
Jiali Ma ◽  
Geyan Gong ◽  
Taomei Zhang ◽  
Ying Zhang
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Adult Health ◽  
Long Term Conditions ◽  
Transition Readiness ◽  
Adult Health Care

Family management affecting transition readiness and quality of life of Chinese children and young people with chronic diseases

2018 ◽  
Vol 22 (3) ◽  
pp. 470-485 ◽  
Author(s):  
Nan Sheng ◽  
Jiali Ma ◽  
Wenwen Ding ◽  
Ying Zhang
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Young People ◽  
Self Management ◽  
Family Management ◽  
Adult Health ◽  
Children And Young People ◽  
Transition Readiness ◽  
Adult Health Care

Transition from pediatric to adult health care is a key milestone for children and young people (CYP) with chronic conditions. Family management (FM) and self-management are two important concepts during the process. This study aimed to explore the relationships between FM, self-management and transition readiness, and quality of life (QoL), and identify the potential CYP or family factors influencing the relationships. Data about FM, self-management and transition readiness, QoL, and various contextual factors were collected from 268 caregiver–child pairs. Structural equation modeling was used to examine the relationships between all variables. Results revealed that the easy aspects of FM mediated the relationships between the challenging aspects of FM, self-management and transition readiness, and QoL of CYP. Self-management and transition readiness mediated the relationship between the easy aspects of FM and QoL. Contextual factors indirectly influenced CYP’s transition readiness and QoL through different aspects of FM. The results imply that to ensure the smooth transition from pediatric to adult health care and improve the CYP’s QoL, strengthening CYP’s independence and self-management competencies, combined with the support of the easy aspects of FM, seem to be useful strategies to increase CYP’s readiness for transfer.

scholarly journals Predictors of quality of life of medical students and a comparison with quality of life of adult health care workers in Thailand

SpringerPlus ◽  
2016 ◽  
Vol 5 (1) ◽  
Author(s):  
Chaisiri Angkurawaranon ◽  
Wichuda Jiraporncharoen ◽  
Arty Sachdev ◽  
Anawat Wisetborisut ◽  
Withita Jangiam ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Medical Students ◽  
Health Care Workers ◽  
Adult Health ◽  
Care Workers ◽  
Adult Health Care

Health Care Utilization, Transition Readiness, and Quality of Life: A Latent Class Analysis

2020 ◽  
Author(s):  
Katherine A Traino ◽  
Christina M Sharkey ◽  
Megan N Perez ◽  
Dana M Bakula ◽  
Caroline M Roberts ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Health Care Utilization ◽  
Latent Class Analysis ◽  
Latent Class ◽  
Care Utilization ◽  
Class Membership ◽  
Transition Readiness ◽  
High Utilization

Abstract Objective To identify possible subgroups of health care utilization (HCU) patterns among adolescents and young adults (AYAs) with a chronic medical condition (CMC), and examine how these patterns relate to transition readiness and health-related quality of life (HRQoL). Methods Undergraduates (N = 359; Mage=19.51 years, SD = 1.31) with a self-reported CMC (e.g., asthma, allergies, irritable bowel syndrome) completed measures of demographics, HCU (e.g., presence of specialty or adult providers, recent medical visits), transition readiness, and mental HRQoL (MHC) and physical HRQoL (PHC). Latent class analysis identified four distinct patterns of HCU. The BCH procedure evaluated how these patterns related to transition readiness and HRQoL outcomes. Results Based on seven indicators of HCU, a four-class model was found to have optimal fit. Classes were termed High Utilization (n = 95), Adult Primary Care Physician (PCP)-Moderate Utilization (n = 107), Family PCP-Moderate Utilization (n = 81), and Low Utilization (n = 76). Age, family income, and illness controllability predicted class membership. Class membership predicted transition readiness and PHC, but not MHC. The High Utilization group reported the highest transition readiness and the lowest HRQoL, while the Low Utilization group reported the lowest transition readiness and highest HRQoL. Conclusions The present study characterizes the varying degrees to which AYAs with CMCs utilize health care. Our findings suggest poorer PHC may result in higher HCU, and that greater skills and health care engagement may not be sufficient for optimizing HRQoL. Future research should examine the High Utilization subgroup and their risk for poorer HRQoL.

scholarly journals COVID-19 pandemic. Effects of stress

2020 ◽  
Vol 1 (2) ◽  
pp. 16-24
Author(s):  
Elena S. Akarachkova ◽  
◽  
Anton A. Beliaev ◽  
Dmitrii V. Blinov ◽  
Evgenii V. Bugorskii ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Preventive Health Care ◽  
Preventive Health ◽  
World Health ◽  
Social Stability ◽  
Short Term ◽  
Health Organization

World Health Organization declared COVID-19 outbreak a pandemic on March 11, 2020. Fear of illness, self-isolation/quarantine, and reduced quality of life dramatically increased the prevalence of stress-related disorders in the population. Therefore, it is necessary to implement the preventive health-care measures aimed at short-term and long-term COVID-19 pandemic consequences reduction and promotion of social stability.

A systematic review of transition readiness and transfer satisfaction measures for adolescents with chronic illness

2014 ◽  
Vol 26 (2) ◽  
pp. 159-174 ◽  
Author(s):  
Jennifer Stinson ◽  
Sara Ahola Kohut ◽  
Lynn Spiegel ◽  
Meghan White ◽  
Navreet Gill ◽  
...  
Keyword(s):  
Health Care ◽  
Transitional Care ◽  
Chronic Illnesses ◽  
Future Research ◽  
Adult Health ◽  
Transition Readiness ◽  
Cosmin Checklist ◽  
Validated Questionnaire ◽  
Satisfaction Measures ◽  
Adult Health Care

Abstract Background: The transition from pediatric to adult health care can be challenging for adolescents with chronic illnesses. As a result, many adolescents are unable to transfer to adult health care successfully. Adequate measurement of transition readiness and transfer satisfaction with disease management is necessary in order to determine areas to target for intervention towards improving transfer outcomes. Objectives: This study aims to systematically review and critically appraise research on transition readiness and transfer satisfaction measures for adolescents with chronic illnesses as well as to assess the psychometric quality of these measures. Methods: Electronic searches were conducted in MEDLINE, EMBASE, CINAHL, PsychINFO, ERIC, and ISI Web of Knowledge for transition readiness and transfer satisfaction measures for adolescents with chronic health conditions. Two reviewers independently selected articles for review and assessed methodological quality. Results: In all, eight readiness and six satisfaction measures met the inclusion criteria, for a total of 14 studies, which were included in the final analysis. None of these measures have well-established evidence of reliability and validity. Most of the measures were developed ad hoc by the study investigators, with minimal to no evidence of reliability and/or validity using the Cohen criteria and COSMIN checklist. Conclusion: This research indicates a major gap in our knowledge of transitional care in this population, because there is currently no well-validated questionnaire that measures readiness for transfer to adult health care. Future research must focus on the development of well-validated transition readiness questionnaires, the validation of existing measures, and reaching consensus on outcomes of successful transfer.

Patients' experiences of nurse case management in primary care: a meta-synthesis

2017 ◽  
Vol 23 (5) ◽  
pp. 420 ◽  
Author(s):  
Anna Askerud ◽  
Jenny Conder
Keyword(s):  
Health Care ◽  
Primary Health Care ◽  
Case Management ◽  
Research Question ◽  
Health Conditions ◽  
Long Term Conditions ◽  
Nurse Case Management ◽  
Primary Health

The health system in New Zealand and Australia requires health practitioners to prepare for the challenge of long-term conditions. Wagner’s 1998 Chronic Care Model advocates a move away from the traditional acute model of primary health care to a model that addresses the long-term episodic nature of chronic disease. Nurse case management has been developed over the last 2 decades as a means to coordinate health services for people with long-term conditions. This meta-synthesis combines the results of 15 qualitative research studies that have a similar research question regarding peoples’ perceptions of nurse case management. The research synthesises the experiences of people with long-term conditions on the quality of care under a nurse case management model of primary health care. Over 1000 people were represented across the studies, and the results suggest that people had a high degree of confidence and trust in their nurse case manager, were better able to manage their health conditions with nurse case management support, and had better access to appropriate health care. This research suggests that nurse case management is an effective model of care and may contribute to improved quality of life and better health care for those with long-term health conditions.

scholarly journals Effects of participating in community assets on quality of life and costs of care: longitudinal cohort study of older people in England

BMJ Open ◽  
2020 ◽  
Vol 10 (2) ◽  
pp. e033186 ◽  
Author(s):  
Luke Aaron Munford ◽  
Anna Wilding ◽  
Peter Bower ◽  
Matt Sutton
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
Secondary Outcome ◽  
Long Term Conditions ◽  
Community Assets ◽  
Costs Of Care ◽  
Life Years ◽  
Double Robust

ObjectivesImproving outcomes for older people with long-term conditions and multimorbidity is a priority. Current policy commits to substantial expansion of social prescribing to community assets, such as charity, voluntary or community groups. We use longitudinal data to add to the limited evidence on whether this is associated with better quality of life or lower costs of care.DesignProspective 18-month cohort survey of self-reported participation in community assets and quality of life linked to administrative care records. Effects of starting and stopping participation estimated using double-robust estimation.SettingParticipation in community asset facilities. Costs of primary and secondary care.Participants4377 older people with long-term conditions.InterventionParticipation in community assets.Primary and secondary outcome measuresQuality-adjusted life years (QALYs), healthcare costs and social value estimated using net benefits.ResultsStarting to participate in community assets was associated with a 0.017 (95% CI 0.002 to 0.032) gain in QALYs after 6 months, 0.030 (95% CI 0.005 to 0.054) after 12 months and 0.056 (95% CI 0.017 to 0.094) after 18 months. Cumulative effects on care costs were negative in each time period: £−96 (95% CI £−512 to £321) at 6 months; £−283 (95% CI £−926 to £359) at 12 months; and £−453 (95% CI £−1366 to £461) at 18 months. The net benefit of starting to participate was £1956 (95% CI £209 to £3703) per participant at 18 months. Stopping participation was associated with larger negative impacts of −0.102 (95% CI −0.173 to −0.031) QALYs and £1335.33 (95% CI £112.85 to £2557.81) higher costs after 18 months.ConclusionsParticipation in community assets by older people with long-term conditions is associated with improved quality of life and reduced costs of care. Sustaining that participation is important because there are considerable health changes associated with stopping. The results support the inclusion of community assets as part of an integrated care model for older patients.

Providing dignified continence care to older people at end of life

2019 ◽  
Vol 25 (10) ◽  
pp. 504-512 ◽  
Author(s):  
Linda Nazarko
Keyword(s):  
Quality Of Life ◽  
Older People ◽  
End Of Life ◽  
Older Person ◽  
Entire Family ◽  
Long Term Conditions ◽  
Age Related ◽  
Age Related Changes

The prevalence of urinary incontinence increases as a person ages, as age-related changes make it more difficult to maintain continence. Long-term conditions and treatments prescribed to treat conditions, such as heart failure, can lead to an urgency to void the bladder. Frailty can make it difficult for an older person to respond this need. At end of life, mobility is often compromised and people can experience extreme fatigue. Caregivers can obtain support to manage an individual's incontinence during the day but often struggle alone at night. Caregivers can become exhausted and a situation can reach breaking point. Working with the older person and caregivers to determine the goals of care and how to meet them can make a huge difference. It can take the pressure off the entire family, meet a person's needs and enable the person to stay at home. This article aims to enable nurses to understand the problems older people may experience and how to work with the older person and caregivers to develop solutions that maintain dignity and enhance quality of life.

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