scholarly journals What makes for a ‘good’ or ‘bad’ paediatric diabetes service from the viewpoint of children, young people, carers and clinicians? A synthesis of qualitative findings

2015 ◽  
Vol 100 (9) ◽  
pp. 826-833 ◽  
Author(s):  
Katherine Curtis-Tyler ◽  
Lisa Arai ◽  
Terence Stephenson ◽  
Helen Roberts
Keyword(s):  
Young People ◽  
Physical Health ◽  
Age Groups ◽  
Long Term Conditions ◽  
Children And Young People ◽  
Paediatric Diabetes ◽  
Experience Of Care ◽  
Crucial Part ◽  
Selection Of

BackgroundThere is mounting evidence that experience of care is a crucial part of the pathway for successful management of long-term conditions.Design and objectivesTo carry out (1) a systematic mapping of qualitative evidence to inform selection of studies for the second stage of the review; and (2) a narrative synthesis addressing the question, What makes for a ‘good’ or a ‘bad’ paediatric diabetes service from the viewpoint of children, young people, carers and clinicians?ResultsThe initial mapping identified 38 papers. From these, the findings of 20 diabetes-focused papers on the views on care of ≥650 children, parents and clinicians were synthesised. Only five studies included children under 11 years. Children and young people across all age groups valued positive, non-judgemental and relationship-based care that engaged with their social, as well as physical, health. Parents valued provision responsive to the circumstances of family life and coordinated across services. Clinicians wanting to engage with families beyond a child's immediate physical health described finding this hard to achieve in practice.LimitationsSocioeconomic status and ethnicity were poorly reported in the included studies.ConclusionsIn dealing with diabetes, and engaging with social health in a way valued by children, parents and clinicians, not only structural change, such as more time for consultation, but new skills for reworking relations in the consultation may be required.

scholarly journals M.I.C.E—Mental Health Intervention for Children with Epilepsy: a randomised controlled, multi-centre clinical trial evaluating the clinical and cost-effectiveness of MATCH-ADTC in addition to usual care compared to usual care alone for children and young people with common mental health disorders and epilepsy—study protocol

Trials ◽  
2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Sophie D. Bennett ◽  
◽  
J. Helen Cross ◽  
Anna E. Coughtrey ◽  
Isobel Heyman ◽  
...  
Keyword(s):  
Mental Health ◽  
Young People ◽  
Usual Care ◽  
Psychological Intervention ◽  
Mental Health Disorders ◽  
Long Term Conditions ◽  
Children And Young People ◽  
Health Disorders ◽  
Randomised Controlled

Abstract Background Mental health disorders in the context of long-term conditions in children and young people are currently overlooked and undertreated. Evidence-based psychological treatments for common childhood mental health disorders (anxiety, depression and disruptive behaviour disorders) have not been systematically evaluated in young people with epilepsy despite their high prevalence in this population. The aim of this multi-site randomised controlled trial is to determine the clinical and cost-effectiveness of adding a modular psychological intervention to usual care for the mental health disorders in comparison to assessment-enhanced usual care alone. Methods In total, 334 participants aged 3–18 years attending epilepsy services will be screened for mental health disorders with the Strengths and Difficulties Questionnaire (SDQ) and the diagnostic Development and Wellbeing Assessment (DAWBA). Those identified as having a mental health disorder and consenting to the trial will be randomised to either receive up to 22 sessions of the modular psychological intervention (MATCH-ADTC) delivered over the telephone over 6 months by non-mental health professionals in addition to usual care or to assessment-enhanced usual care alone. Outcomes will be measured at baseline, 6 months and 12 months post-randomisation. It is hypothesised that MATCH-ADTC plus usual care will be superior to assessment-enhanced usual care in improving emotional and behavioural symptoms. The primary outcome is the SDQ reported by parents at 6 months. Secondary outcomes include parent-reported mental health measures such as the Revised Children’s Anxiety and Depression Scale, quality of life measures such as the Paediatric Quality of Life Inventory and physical health measures such as the Hague Seizure Severity Scale. Outcome assessors will be blinded to group assignment. Qualitative process evaluations and a health economic evaluation will also be completed. Discussion This trial aims to determine whether a systematic and integrated approach to the identification and treatment of mental health disorders in children and young people with epilepsy is clinically and cost-effective. The findings will contribute to policies and practice with regard to addressing mental health needs in children and young people with other long-term conditions. Trial registration ISRCTN ISRCTN57823197. Registered on 25 February 2019.

scholarly journals Community pharmacy advanced adherence services for children and young people with long-term conditions: A cross-sectional survey study

2020 ◽  
Vol 18 (1) ◽  
pp. 1720
Author(s):  
Zahra Alsairafi ◽  
Julie Mason ◽  
Natasha Davies ◽  
Molly Dennis ◽  
Gabrielle Pilgrim ◽  
...  
Keyword(s):  
Young People ◽  
Community Pharmacy ◽  
Survey Study ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Long Term Conditions ◽  
Children And Young People

scholarly journals Children and young people’s concerns and needs relating to their use of health technology to self-manage long-term conditions: a scoping review

2020 ◽  
Vol 105 (11) ◽  
pp. 1093-1104
Author(s):  
Sarah Blower ◽  
Veronica Swallow ◽  
Camila Maturana ◽  
Simon Stones ◽  
Robert Phillips ◽  
...  
Keyword(s):  
Young People ◽  
Scoping Review ◽  
Health Technology ◽  
Future Research ◽  
Journal Articles ◽  
Long Term Conditions ◽  
Children And Young People ◽  
Health Technologies ◽  
Online Treatment

BackgroundThe use of patient-facing health technologies to manage long-term conditions is increasing; however, children and young people may have particular concerns or needs before deciding to use different health technologies.AimsTo identify children and young people’s reported concerns or needs in relation to using health technologies to self-manage long-term conditions.MethodsA scoping review was conducted. We searched MEDLINE, PsycINFO and CINAHL in February 2019. Searches were limited to papers published between January 2008 and February 2019. We included any health technology used to manage long-term conditions. A thematic synthesis of the data from the included studies was undertaken. We engaged children with long-term conditions (and parents) to support review design, interpretation of findings and development of recommendations.ResultsThirty-eight journal articles were included, describing concerns or needs expressed by n=970 children and/or young people aged 5–18 years. Most included studies were undertaken in high-income countries with children aged 11 years and older. Studies examined concerns with mobile applications (n=14), internet (n=9), social media (n=3), interactive online treatment programmes (n=3), telehealth (n=1), devices (n=3) or a combination (n=5). Children and young people’s main concerns were labelling and identity; accessibility; privacy and reliability; and trustworthiness of information.DiscussionThis review highlights important concerns that children and young people may have before using technology to self-manage their long-term condition. In future, research should involve children and young people throughout the development of technology, from identifying their unmet needs through to design and evaluation of interventions.

scholarly journals Perceptions of effective self-care support for children and young people with long-term conditions

2012 ◽  
Vol 21 (13-14) ◽  
pp. 1974-1987 ◽  
Author(s):  
Susan Kirk ◽  
Susan Beatty ◽  
Peter Callery ◽  
Linda Milnes ◽  
Steven Pryjmachuk
Keyword(s):  
Young People ◽  
Self Care ◽  
Long Term Conditions ◽  
Children And Young People ◽  
Care Support

Exploring school nurses' role in supporting mental and emotional health needs in Wales

2019 ◽  
Vol 14 (8) ◽  
pp. 398-402
Author(s):  
Sally Star
Keyword(s):  
Young People ◽  
Physical Health ◽  
Emotional Health ◽  
School Nurses ◽  
Health Needs ◽  
Short Term ◽  
Children And Young People ◽  
Health Implications ◽  
Nurses Role

The short-term effects of mental and emotional health problems are distressing and damaging to children and young people and can have long-term physical health implications. pressures. Sally Star comments on school nurses' role in supporting children and young people with mental and emotional health needs, and discusses some of the barriers and areas that could be improved.

scholarly journals A systematic evidence synthesis of interventions to engage children and young people in consultations about their long-term conditions

2017 ◽  
Vol 22 (1) ◽  
pp. 122-146 ◽  
Author(s):  
Lucy Bray ◽  
Michelle Maden ◽  
Toni Bewley ◽  
Bernie Carter
Keyword(s):  
Young People ◽  
Evidence Synthesis ◽  
Grey Literature ◽  
Long Term Conditions ◽  
Children And Young People ◽  
Face To Face ◽  
Related Information ◽  
Systematic Development

Children and young people with long-term conditions are not always provided with opportunities to engage fully in consultations. This systematic review examined the effectiveness or worth of methods used to engage children and young people with long-term conditions in their consultations. Searches were undertaken in October 2016 in eight databases and of the grey literature. Two reviewers independently screened the results, extracted data and assessed the quality of the studies using a validated and reliable checklist. A narrative synthesis of mixed method data was undertaken. Twelve studies were included in the review. Interventions used to engage children and young people mainly focused on face-to-face outpatient consultations, with an emphasis on diabetes and asthma. Most of the interventions focused on either improving health professionals’ communication skills or encouraging children’s and young people’s engagement through providing condition-related information or a structured way to be included in consultations. Fewer interventions were child-led or directed towards developing children’s and young people’s skills to become key reporters of their condition. This review has demonstrated that interventions targeted at children and young people with long-term conditions can improve their levels of engagement in consultations. There is a need for more systematic development and robust evaluation of interventions to improve children’s active participation in consultations.

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