scholarly journals Pilot for the Australian Breast Device Registry (ABDR): a national opt-out clinical quality registry for breast device surgery

BMJ Open ◽  
2017 ◽  
Vol 7 (12) ◽  
pp. e017778 ◽  
Author(s):  
Ingrid Hopper ◽  
Renee L Best ◽  
John J McNeil ◽  
Catherine M Mulvany ◽  
Colin C M Moore ◽  
...  
Keyword(s):  
Quality Indicators ◽  
Data Entry ◽  
Steering Committee ◽  
Population Based ◽  
Scientific Validity ◽  
Validity Data ◽  
Clinical Quality ◽  
Quality Registry ◽  
Opt Out ◽  
Minimum Dataset

PurposeTo establish a pilot clinical quality registry (CQR) to monitor the quality of care and device performance for breast device surgery in Australia.ParticipantsAll patients having breast device surgery from contributing hospitals in Australia. A literature review was performed which identified quality indicators for breast device surgery.Findings to dateA pilot CQR was established in 2011 to capture prospective data on breast device surgery. An interim Steering Committee and Management Committee were established to provide clinical governance, and guide quality indicator selection. The registry’s minimum dataset was formulated in consultation with stakeholder groups; potential quality indicators were assessed in terms of (1) importance and relevance, (2) usability, (3) feasibility to collect and (4) scientific validity. Data collection was by a two-sided paper-based form with manual data entry. Seven sites were recruited, including one public hospital, four private hospitals and two day surgeries. Patients were recruited and opt-out consent used.Future plansThe pilot breast device registry provides high-quality population-based data. It provides a model for developing a national CQR for breast devices; its minimum dataset and quality indicators reflect the opinions of the broad range of stakeholders. It is easily scalable, and has formed the basis for other international surgical groups establishing similar registries.

scholarly journals Development of a binational thyroid cancer clinical quality registry: a protocol paper

BMJ Open ◽  
2019 ◽  
Vol 9 (1) ◽  
pp. e023723
Author(s):  
Liane J Ioannou ◽  
Jonathan Serpell ◽  
Joanne Dean ◽  
Cino Bendinelli ◽  
Jenny Gough ◽  
...  
Keyword(s):  
Thyroid Cancer ◽  
New Zealand ◽  
South Australia ◽  
Steering Committee ◽  
Population Based ◽  
Outcome Data ◽  
Term Outcome ◽  
Data Set ◽  
Clinical Quality ◽  
Quality Registry

IntroductionThe occurrence of thyroid cancer is increasing throughout the developed world and since the 1990s has become the fastest increasing malignancy. In 2014, a total of 2693 Australians and 302 New Zealanders were diagnosed with thyroid cancer, with this number projected to rise to 3650 in 2018. The purpose of this protocol is to establish a binational population-based clinical quality registry with the aim of monitoring and improving the quality of care provided to patients diagnosed with thyroid cancer in Australia and New Zealand.Methods and analysisThe Australian and New Zealand Thyroid Cancer Registry (ANZTCR) aims to capture clinical data for all patients over the age of 16 years with thyroid cancer, confirmed by histopathology report, who have been diagnosed, assessed or treated at a contributing hospital. A multidisciplinary steering committee was formed which, with operational support from Monash University, established the ANZTCR in early 2017. The pilot phase of the registry is currently operating in Victoria, New South Wales, Queensland, Western Australia and South Australia, with over 20 sites expected to come on board across Australia in 2018. A modified Delphi process was undertaken to determine the clinical quality indicators to be reported by the registry, and a minimum data set was developed comprising information regarding thyroid cancer diagnosis, pathology, surgery and 90-day follow-up.Future plansThe establishment of the ANZTCR provides the opportunity for Australia and New Zealand to further understand current practice in the treatment of thyroid cancer and identify variation in outcomes. The engagement of endocrine surgeons in supporting this initiative is crucial. While the pilot registry has a focus on early clinical outcomes, it is anticipated that future collection of longer term outcome data particularly for patients with poor prognostic disease will add significant further value to the registry.

Measuring The Quality Of Cancer Care In The Barwon South Western Region, Victoria, Australia

2020 ◽  
Author(s):  
Leigh M Matheson ◽  
Graham Pitson ◽  
Cheng Hon Yap ◽  
Madhu Singh ◽  
Ian Collins ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Health Services ◽  
Quality Indicators ◽  
Cancer Care ◽  
Population Based ◽  
Western Region ◽  
Clinical Indicators ◽  
Clinical Quality ◽  
Quality Registry

ABSTRACT Objective The implementation of clinical quality indicators for monitoring cancer care in regional, rural and remote areas. Design Retrospective data from a population-based Clinical Quality Registry for lung, colorectal, and breast cancer. Setting All major Health Services in the Barwon South Western Region, Victoria, Australia. Participants All patients diagnosed with cancer presenting to a Health Service Intervention(s) Main Outcome Measures(s) Clinical Quality Indicators for Lung, Colorectal and Breast Cancer Results Clinical indicators included the following: discussion at multidisciplinary meetings, timeliness of care provided, type of care for different stages of the disease and survival outcomes. Many of the derived clinical indicator targets were reached. However, variation led to improvement in tumour stage being recorded in the medical record; improved awareness of the need for adjuvant chemotherapy for colorectal cancer; a reduction in time to treatment for lung cancer; reduced time to surgery for breast cancer; and highlighted the 30 day mortality post treatment for all of the tumour streams. Conclusions Clinical quality indicators allow for valuable insights into patterns of care, driving improvement in the quality of cancer care. These indicators are easily reproduced and may be of use to other cancer centres and health services.

scholarly journals The protocol of a clinical quality registry for dementia and mild cognitive impairment (MCI): the Australian dementia network (ADNeT) Registry

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Xiaoping Lin ◽  
Kasey Wallis ◽  
Stephanie A. Ward ◽  
Henry Brodaty ◽  
Perminder S. Sachdev ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Clinical Practice ◽  
Mild Cognitive Impairment ◽  
Patient Outcomes ◽  
Steering Committee ◽  
Primary Objective ◽  
Clinical Quality ◽  
Quality Registry ◽  
People With Dementia ◽  
Diagnosis Of Dementia

Abstract Background Dementia was identified as a priority area for the development of a Clinical Quality Registry (CQR) in Australia in 2016. The Australian Dementia Network (ADNeT) Registry is being established as part of the ADNeT initiative, with the primary objective of collecting data to monitor and enhance the quality of care and patient outcomes for people diagnosed with either dementia or Mild Cognitive Impairment (MCI). A secondary aim is to facilitate the recruitment of participants into dementia research and trials. This paper describes the Registry protocol. Methods The ADNeT Registry is a prospective CQR of patients newly diagnosed with either dementia or MCI. Eligible patients will be identified initially from memory clinics and individual medical specialists (e.g., geriatricians, psychiatrists and neurologists) involved in the diagnosis of dementia. Participants will be recruited using either an opt-out approach or waiver of consent based on three key determinants (capacity, person responsible, and communication of diagnosis). Data will be collected from four sources: participating sites, registry participants, carers, and linkage with administrative datasets. It is anticipated that the Registry will recruit approximately 10,000 participants by the end of 2023. The ADNeT registry will be developed and implemented to comply with the national operating principles for CQRs and governed by the ADNeT Registry Steering Committee. Discussion The ADNeT Registry will provide important data on current clinical practice in the diagnosis, treatment and care of people with dementia and MCI in Australia as well as long-term outcomes among these people. These data will help to identify variations in clinical practice and patient outcomes and reasons underlying these variations, which in turn, will inform the development of interventions to improve care and outcomes for people with dementia and MCI.

scholarly journals Manual on the creation of quality indicators for population based cancer screening programs in Italy

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
S Rivolta ◽  
A Ponti ◽  
S Deandrea ◽  
C Campari ◽  
M Zorzi ◽  
...  
Keyword(s):  
Cancer Screening ◽  
Quality Indicators ◽  
Local Level ◽  
Steering Committee ◽  
Population Based ◽  
Evaluation Framework ◽  
Process Of Care ◽  
Screening Programs ◽  
Multidisciplinary Working ◽  
The Creation

Abstract Issue In many countries the organized screening programs have been in the frontline in developing and implementing the evaluation of the quality of screening and of the entire process of care following a positive test. Over the years, the three Italian Screening Groups (GIS) have separately published indicators and standards concerning the programs for breast, cervical and colorectal cancers they were responsible for, thus hampering coherence, homogeneity. In addition, at local level, an increasing number of indicators have been observed with difficult to monitor all of them. Description of the Problem The Screening Indicators Manual, prepared by a multidisciplinary working group, represents the guidance agreed upon by the Italian Screening Network (ONS) and the three GIS on how to develop, implement, communicate and maintain a set of quality indicators for the evaluation of cancer screening programs. Results The Manual indicates that the three GIS must first constitute, with ONS, the common steering committee made of six-nine experts. The involvement of the public and the management of the conflicts of interests are foreseen. The conceptual framework distinguishes indicators of context, coverage and process. It is based on six dimensions: efficacy, efficiency, security, appropriateness, person centeredness, equity. There are four macro-processes: invitation; test, further assessment and diagnosis; treatment and follow-up; evaluation. The methods include: a survey of the existent indicators, their selection with the Delphi method, the evaluation of the completeness of the resulting indicators set, its integration, when needed, by means of a public call, and finally a new Delphi round. Appropriate standards, empirical or evidence based, are then identified. Last, indicators are assigned to core or library list based on priority. Lessons Select, define and measure an indicator is a way to understand what we are aiming at even more than provide the measure of how we do it. Key messages The creation of the Manual allows to build a coherent evaluation framework for the three screening programs. The Manual promotes the adoption of rigorous methods and make feasible the monitoring activity according to its purpose, level of observation and detail of information needed.

40 INTRODUCING AN INTERACTIVE ONLINE-REPORT FROM THE SWEDISH NATIONAL QUALITY REGISTER FOR ESOPHAGEAL AND GASTRIC CANCER—OPEN NREV

2020 ◽  
Vol 33 (Supplement_1) ◽  
Author(s):  
G Linder ◽  
M Lindblad ◽  
J Johansson ◽  
F Lindberg ◽  
U Smedh ◽  
...  
Keyword(s):  
Gastric Cancer ◽  
Quality Indicators ◽  
Hospital Staff ◽  
Population Based ◽  
Decision Makers ◽  
Quality Registry ◽  
Quality Register ◽  
National Quality ◽  
Time Changes ◽  
National Quality Register

Abstract   The Swedish National Quality Register for Esophageal and Gastric Cancer (NREV) was introduced in 2007 and is the sole quality registry in Sweden for patients with esophageal and gastric cancer. Previously, selected variables from the registry was made available to both caregivers and the public through a downloadable annual report. We aimed to make quality indicators readily available to all interested parties; caregivers, patient groups, hospital staff, researchers, administrators and health-political decision-makers. Methods A database was compiled with registry data presented for all years since 2007 and updated every six months. Several graphical and numeric presentations were implemented. Both medical expertise and a patient representative were involved in choosing relevant quality indicator variables as well as designing the web interface. Results Registry Coverage, Quality indicators/lead times, Treatment and Outcomes were the four main focus areas. All areas contained selectable sub-variables and the user was given the choice to present data on a national or regional level. Alterations in chosen variables or selection-base resulted in real time changes in the online report. Thus, a variable national or regional report could be tailored to the users’ needs. All data could be presented as comparative diagrams, crude tables or as time-trend analysis, as exemplified by figure 1. Conclusion An interactive online platform to display population based results and time-trends for important quality indicators in the diagnosis and treatment of esophageal and gastric cancer is now available for all. The main purpose, to make anonymized data available, was achieved by OPEN-NREV. We propose that presenting data in this manner is of interest to patients, caregivers, scientists and decision makers.

Quality Indicators for Older Persons’ Transitions in Care: A Systematic Review and Delphi Process

2021 ◽  
pp. 1-15
Author(s):  
Kaitlyn Tate ◽  
Sarah Lee ◽  
Brian H Rowe ◽  
Garnet E Cummings ◽  
Jayna Holroyd-Leduc ◽  
...  
Keyword(s):  
Quality Indicators ◽  
Older Persons ◽  
Steering Committee ◽  
Administrative Databases ◽  
Continuing Care ◽  
Free Text ◽  
Institute Of Medicine ◽  
Outcome Indicators ◽  
Transitions In Care ◽  
Documentation Systems

Abstract We identified quality indicators (QIs) for care during transitions of older persons (≥ 65 years of age). Through systematic literature review, we catalogued QIs related to older persons’ transitions in care among continuing care settings and between continuing care and acute care settings and back. Through two Delphi survey rounds, experts ranked relevance, feasibility, and scientific soundness of QIs. A steering committee reviewed QIs for their feasible capture in Canadian administrative databases. Our search yielded 326 QIs from 53 sources. A final set of 38 feasible indicators to measure in current practice was included. The highest proportions of indicators were for the emergency department (47%) and the Institute of Medicine (IOM) quality domain of effectiveness (39.5%). Most feasible indicators were outcome indicators. Our work highlights a lack of standardized transition QI development in practice, and the limitations of current free-text documentation systems in capturing relevant and consistent data.

scholarly journals Development of Standard Indicators to Assess Use of Electronic Health Record Systems Implemented in Low- and Medium-Income Countries

2020 ◽  
Author(s):  
Philomena Njeri Ngugi ◽  
Ankica Babic ◽  
James Kariuki ◽  
Xenophon Santas ◽  
Violet Naanyu ◽  
...  
Keyword(s):  
Electronic Health Record ◽  
Quality Indicators ◽  
Nominal Group Technique ◽  
Data Entry ◽  
Nominal Group ◽  
Health Record ◽  
Actual System ◽  
Middle Income ◽  
Actual Usage ◽  
Electronic Health

Abstract BackgroundElectronic Health Record Systems (EHRs) are being rolled out nationally in many low- and middle-income countries (LMICs) yet assessing actual system usage remains a challenge. We employed a nominal group technique (NGT) process to systematically develop high-quality indicators for evaluating actual usage of EHRs in LMICs.Methods An initial set of 14 candidate indicators were developed by the study team adapting the HIV Monitoring, Evaluation, and Reporting indicators format. A multidisciplinary team of 10 experts was convened in a two-day NGT workshop in Kenya to systematically evaluate, rate (using Specific, Measurable, Achievable, Relevant, and Time-Bound (SMART) criteria), prioritize, refine, and identify new indicators. NGT steps included introduction to candidate indicators, silent indicator ranking, round-robin indicator rating, and silent generation of new indicators. Results: Candidate indicators were rated highly on SMART criteria (4.05/5). NGT participants settled on 15 final indicators, categorized as system use (4); data quality (3), system interoperability (3), and reporting (5). Data entry statistics, systems uptime, and EHRs variable concordance indicators were rated highest. ConclusionThis study describes a systematic approach to develop and validate quality indicators for determining EHRs use and provides LMICs with a multidimensional tool for assessing success of EHRs implementations.

scholarly journals Assessment of potential process quality indicators for systemic treatment of breast cancer in Belgium: a population-based study

ESMO Open ◽  
2021 ◽  
Vol 6 (4) ◽  
pp. 100207
Author(s):  
L. van Walle ◽  
K. Punie ◽  
E. Van Eycken ◽  
E. de Azambuja ◽  
H. Wildiers ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Quality Indicators ◽  
Systemic Treatment ◽  
Population Based ◽  
Process Quality ◽  
Population Based Study

Rationale, development and implementation of the ReACanROC registry for out-of-hospital cardiac arrests in France and Canada

2021 ◽  
pp. emermed-2020-211073
Author(s):  
Matthieu Heidet ◽  
Hervé Hubert ◽  
Brian E Grunau ◽  
Sheldon Cheskes ◽  
Valentine Baert ◽  
...  
Keyword(s):  
North America ◽  
Emergency Medical Services ◽  
Care Delivery ◽  
Steering Committee ◽  
Population Based ◽  
Research Network ◽  
Medical Services ◽  
Emergency Medical ◽  
Utstein Style ◽  
Wide Population

France and Canada prehospital systems and care delivery in out-of-hospital cardiac arrests (OHCAs) show substantial differences. This article aims to describe the rationale, design, implementation and expected research implications of the international, population-based, France-Canada registry for OHCAs, namely ReACanROC, which is built from the merging of two nation-wide, population-based, Utstein-style prospectively implemented registries for OHCAs attended to by emergency medical services. Under the supervision of an international steering committee and research network, the ReACanROC dataset will be used to run in-depth analyses on the differences in organisational, practical and geographic predictors of survival after OHCA between France and Canada. ReACanROC is the first Europe-North America registry ever created to meet this goal. To date, it covers close to 80 million people over the two countries, and includes approximately 200 000 cases over a 10-year period.

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