scholarly journals Associations between adolescent experiences, parent experiences and HbA1c: results following two surveys based on the Norwegian Childhood Diabetes Registry (NCDR)

BMJ Open ◽  
2019 ◽  
Vol 9 (11) ◽  
pp. e032201
Author(s):  
Hilde Hestad Iversen ◽  
Oyvind Bjertnaes ◽  
Torild Skrivarhaug
Keyword(s):  
Diabetes Care ◽  
Hba1c Level ◽  
Future Research ◽  
Childhood Diabetes ◽  
Diabetes Registry ◽  
Hospital Outpatient ◽  
Paediatric Diabetes ◽  
Outpatient Departments ◽  
Norwegian Childhood Diabetes Registry ◽  
Hba1c Levels

ObjectiveThe aim of the current study was to determine the association between the experiences of adolescents and their parents with paediatric diabetes care at hospital outpatient departments and the association between these experiences and the Hemoglobin A1c (HbA1c) levels of adolescents.DesignCross-sectional survey.SettingPaediatric diabetes care at hospital outpatient departments in Norway.ParticipantsParents of all outpatients registered in the Norwegian Childhood Diabetes Registry and patients in the same registry aged 12–17 years.Intervention1399 parents participated in a national pilot survey and 335 patients aged 12–17 years from the four largest paediatric outpatient departments in Norway responded in another pilot study. 181 paired parental and patient questionnaires were analysed.Main outcome measuresThe correlations between single items, indicator scores and overall scores were explored, as was that between indicator scores and HbA1c levels.ResultsThere was a moderate but significant correlation between the responses of the patients and parents. For 40 of the 42 associations the correlations were significant, ranging from 0.16 to 0.42. A weak but significant negative correlation was found between the indicator scores of parents and the HbA1c levels of the adolescents. The strongest correlations were between HbA1c level and nurse contact and organisation, both with a correlation coefficient of 0.21 (p<0.01). There was no significant correlation between HbA1c level and patient indicator scores.ConclusionsThese results highlight the need to obtain information from both parents and adolescents, and indicate that the views of adolescents are not always mirrored by their parents. Three of the seven parent experience indicators were significantly related to the HbA1c levels of adolescents, but replication in future research with larger sample sizes is warranted.

scholarly journals Norwegian Childhood Diabetes Registry: Childhood onset diabetes in Norway 1973-2012

2013 ◽  
Vol 23 (1) ◽  
Author(s):  
Torild Skrivarhaug
Keyword(s):  
Children And Adolescents ◽  
Diabetes Care ◽  
Population Based ◽  
Childhood Diabetes ◽  
Childhood Onset ◽  
Diabetes Registry ◽  
Onset Diabetes ◽  
Quality Of Diabetes Care ◽  
Norwegian Childhood Diabetes Registry ◽  
Incident Cases

The Norwegian Childhood Diabetes Registry (NCDR) is a prospective, population-based, nationwide registry which systematically register all incident cases of childhood diabetes, and systematically monitors the outcome of diabetes care in children and adolescents. NCDR includes data on childhood onset diabetes since 1973, and diabetes care outcome since 2001. NCDR was founded with the following objectives: To improve the diagnostics, classifications and treatment of childhood-onset diabetes, surveillance of incidence of diabetes in children and adolescents, surveillance of quality of diabetes care in Norwegian paediatric departments, and to stimulate to research in diabetes.

scholarly journals Prevalence of monogenic diabetes in the population-based Norwegian Childhood Diabetes Registry

Diabetologia ◽  
2013 ◽  
Vol 56 (7) ◽  
pp. 1512-1519 ◽  
Author(s):  
H. U. Irgens ◽  
J. Molnes ◽  
B. B. Johansson ◽  
M. Ringdal ◽  
T. Skrivarhaug ◽  
...  
Keyword(s):  
Population Based ◽  
Monogenic Diabetes ◽  
Childhood Diabetes ◽  
Diabetes Registry ◽  
Norwegian Childhood Diabetes Registry

190-LB: Exploring the Relationships between HbA1c Levels and Diabetes Care through NHANES Data, 2007–2016

Diabetes ◽  
2020 ◽  
Vol 69 (Supplement 1) ◽  
pp. 190-LB
Author(s):  
CLIPPER F. YOUNG ◽  
HECTOR E. VELASCO
Keyword(s):  
Diabetes Care ◽  
Hba1c Levels

Digital Diabetes Care System Observations from a market acceptance evaluation study in Vietnam (Preprint)

2019 ◽  
Author(s):  
Tran Quang Khanh ◽  
Pham Nhu Hao ◽  
Eytan Roitman ◽  
Baruch Marganitt ◽  
Avivit Cahn
Keyword(s):  
Health Care ◽  
Blood Glucose ◽  
Health Care Professional ◽  
Diabetes Care ◽  
Health Care Professionals ◽  
Mobile App ◽  
Physician Satisfaction ◽  
Diabetes Clinic ◽  
Blood Glucose Monitor ◽  
Hba1c Levels

BACKGROUND Digital technologies are gaining an important role in the management of patients with diabetes. The GlucoMe solution integrates multiple aspects of diabetes care: 1) Wireless blood glucose monitor - communicates glucose data automatically to any smartphone; 2) Mobile-app - securely transmits real-time blood glucose monitor data for cloud based analyses, and enables 2-way communication between patients and health care professionals; 3) Digital diabetes clinic – analyzes and presents data to the health care professional; and 4) Control tower software provides population management reports and sends individualized alerts. OBJECTIVE Assess clinical outcomes and user satisfaction of incorporating the GlucoMe digital solution in diabetes clinics of a developing country. METHODS Five hospital endocrinology clinics in Vietnam participated in a market acceptance evaluation pilot of the GlucoMe system. The clinics sequentially recruited all patients willing to join, so long as they had a smartphone and access to internet connectivity. Patients were provided with the GlucoMe app and blood glucose monitor and instructed in their use in individual or groups sessions. The digital diabetes clinic and control tower software were installed in the clinic computers. Face-to-face visits were conducted at baseline and at 12 weeks, with monthly digital visits scheduled in the interim and additional digital visits performed as needed. HbA1c levels were measured at baseline and at 12 weeks (±20 days). Treatment modification was at the discretion of the treating physician. Outcome measures included adherence to glucose monitoring, change in glycemic parameters and patient and physician satisfaction as assessed by questionnaires. Only patients completing the pilot were included in data analyses. RESULTS The study recruited 300 patients of whom 279 patients completed the evaluation. Dropout was due to change in internet access availability (18) or death (3). Adherence to glucose measurements gradually declined, yet, at study end 81% of the patients were measuring glucose at least once a week. Digital contact from the health care professional to the patient or vice-versa (excluding automated alerts) occurred in average every 6.2 days. Average glucose levels declined from 170.4±64.6 mg/dl in the first two weeks to 150.8±53.2 mg/dl in the last two weeks (P<0.001) (n=221). HbA1c levels at baseline and 12 weeks were available for only 126 of the patients and declined from 8.3±1.9% to 7.6±1.3 (P<0.001). Over 95% of the physicians and patients stated they would strongly support the broad usage of the GlucoMe platform in diabetes clinics across the country. CONCLUSIONS The GlucoMe digital solution was broadly accepted by both patients and health care professionals and improved glycemic outcomes. The digital platform yielded increased number of patient-health care professional interactions, yet of short duration, enabling judicious allocation of limited time resources. The durability, scalability and cost-effectiveness of this approach merit further study.

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