scholarly journals How do health professionals translate evidence on early childhood allergy prevention into health literacy-responsive practice? A protocol for a mixed-method study on the views of German health professionals

BMJ Open ◽  
2021 ◽  
Vol 11 (11) ◽  
pp. e047733
Author(s):  
Janina Curbach ◽  
Jonas Lander ◽  
Marie Luise Dierks ◽  
Eva-Maria Grepmeier ◽  
Julia von Sommoggy

IntroductionPaediatricians, general practitioners (GPs) and midwives in primary care are important sources of information for parents on early childhood allergy prevention (ECAP). Research has shown that preventive counselling by health professionals can be effective in improving patients’ health literacy (HL) and health behaviour. Providing effective advice relies on two factors. First, health professionals need be up-to-date with research evidence on ECAP, to consider popular misconceptions and fears and to translate this knowledge into clear recommendations for parents (knowledge translation). Second, they need to know and apply counselling techniques and create a practice setting which accommodates parental HL needs (health literacy-responsive care). The objective of this study is to explore and assess how German health professionals take up and translate ECAP evidence into appropriate recommendations for parents, how they consider HL in counselling and practice organisation and what barriers and enablers they find in their performance of HL-responsive ECAP.Methods and analysisThe study has a sequential mixed-method design, in two phases. In the first phase, qualitative semi-structured expert interviews will be conducted with health professionals (paediatricians, GPs and midwives) at primary care level and professional policy level. Data collection is ongoing until January 2022. In the second phase, based on the qualitative results, a standardised questionnaire will be developed, and pilot-tested in a wider population of German health professionals. The findings of both phases will be integrated.Ethics and disseminationThe study has received ethical approval from the Ethics Committee of the University of Regensburg (18-1205-101). The results will be published in international peer-reviewed open access journals and via presentations at scientific conferences. The results will also be shared with German health professionals, decision-makers and potential funders of interventions.

Author(s):  
Andrew R. Riley ◽  
Bethany L. Walker ◽  
Krishnapriya Ramanujam ◽  
Wendy M. Gaultney ◽  
Deborah J. Cohen

2020 ◽  
Author(s):  
Jonas Lander ◽  
Janina Curbach ◽  
Julia von Sommoggy ◽  
Eva Maria Bitzer ◽  
Marie-Luise Dierks

BACKGROUND In early childhood allergy prevention (ECAP) parents act on behalf of their children. Parental health literacy as well as the availability of high-quality information – both online and ‘offline’ – are crucial for effective ECAP. Recent research highlights three main points: First, parents need sufficient HL to discriminate between high-quality and low-quality information. Second, ECAP information behaviors may vary between phases of childhood development and according to individual circumstances. Third, to strengthen user-centeredness of available services, a better overview of parents’ information practices and needs, but also insights into how they handle uncertainties and changing recommendations is required. OBJECTIVE This study aims to explore why, how and when parents search for and apply ECAP-specific health information; which individual (e.g. understanding of advice) and organizational challenges (e.g. information services, information complexity, changing recommendations) they perceive and how they handle them; and which needs and preferences they express for (future) information formats and contents. The findings should inform the practical design of ECAP information, as well as formats and channels specific to different parent groups. METHODS The above-named issues will be explored with parents in four German cities as one element in our efforts to cover the spectrum of perspectives. Based on a mixed methods design including qualitative and quantitative parts, the first year serves to prepare focus groups, a piloted focus group guide, a short, standardized survey adapted from The European Health Literacy Project (HLS-EU), recruitment channels and the recruitment of participants. After conducting the n=20 focus groups in year two, data will be analysed (constant comparison method) in year three. We will then derive practice implications on channels (where?), formats (how?) and contents (what?) of ECAP-specific information, and discuss and consent them with parents and associated project partners before its dissemination to relevant ECAP actors, e.g. child care institutions and paediatrics. RESULTS We began by pre-selecting recruitment channels, drafting of recruitment and study information for potential participants, and agreed on a first full version of the guideline. We then compiled a detailed contact list (n=386) of health professionals, administrative and social institutions, and relevant social media channels to be approached for assistance in contacting parents. The recruitment was postponed due to COVID-19 and will start in November 2020. CONCLUSIONS ECAP is a relevant example for assessing how users (parents) handle not only health information as such, but moreover the various and continuous changes, uncertainties and controversies attached to them. So far, it is unclear how parents implement respective scientific recommendations and expert advice, which is why we aim to inform those who communicate ECAP messages to parents.


2020 ◽  
Vol 8 (3) ◽  
pp. 288-297
Author(s):  
Tyanna C. Snider ◽  
Whitney J. Raglin Bignall ◽  
Cody A. Hostutler ◽  
Ariana C. Hoet ◽  
Bethany L. Walker ◽  
...  

1998 ◽  
Vol 37 (02) ◽  
pp. 171-178 ◽  
Author(s):  
B. Glassman ◽  
B. K. Rimer

AbstractIn more and more medical settings, physicians have less and less time to be effective communicators. To be effective, they need accurate, current information about their patients. Tailored health communications can facilitate positive patient-provider communications and foster behavioral changes conducive to health. Tailored communications (TCs) are produced for an individual based on information about that person. The focus of this report is on tailored print communications (TPCs). TPCs also enhance the process of evaluation, because they require a database and the collection of patient-specific information. We present a Tailoring Model for Primary Care that describes the steps involved in creating TPCs. We also provide examples from three ongoing studies in which TPCs are being used in order to illustrate the kinds of variables used for tailoring the products that are developed and how evaluation is conducted. TPCs offer opportunities to expand the reach of health professionals and to give personalized, individualized massages in an era of shrinking professional contact time.


2018 ◽  
Vol 2 (1) ◽  
pp. 35
Author(s):  
Jacquie Kidd

These three poems re-present the findings from a research project that took place in 2013 (Kidd et al. 2018, Kidd et al. 2014). The research explored what health literacy meant for Māori patients and whānau when they accessed palliative care. Through face-to-face interviews and focus groups we engaged with 81 people including patients, whānau, bereaved loved ones, support workers and health professionals. The poems are composite, written to bring some of our themes to life. The first poem is titled Aue. This is a Māori lament that aligns to English words such as ‘oh no’, or ‘arrgh’, or ‘awww’. Each stanza of the poem re-presents some of the stories we heard throughout the research. The second poem is called Tikanga. This is a Māori concept that encompasses customs, traditions and protocols. There are tikanga rituals and processes that guide all aspects of life, death, and relationships. This poem was inspired by an elderly man who explained that he would avoid seeking help from a hospice because ‘they leave tikanga at the door at those places’. His choice was to bear his pain bravely, with pride, within his cultural identity. The third poem is called ‘People Like Me’. This is an autoethnographical reflection of what I experienced as a researcher which draws on the work of scholars such as bell hooks (1984), Laurel Richardson (1997) and Ruth Behar (1996). These and many other authors encourage researchers to use frustration and anger to inform our writing; to use our tears to fuel our need to publish our research.


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