scholarly journals What do people with lung cancer and stroke expect from patient navigation? A qualitative study in Germany

BMJ Open ◽  
2021 ◽  
Vol 11 (12) ◽  
pp. e050601
Author(s):  
Hella Fügemann ◽  
Ute Goerling ◽  
Kathrin Gödde ◽  
Anke Kristin Desch ◽  
Jacqueline Müller-Nordhorn ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Qualitative Study ◽  
Emotional Support ◽  
Patient Navigation ◽  
Qualitative Interview ◽  
University Hospitals ◽  
Patient Navigators ◽  
Self Help ◽  
Qualitative Interview Study ◽  
Depth Interviews

ObjectiveThis qualitative study investigated patients’ needs and wishes in relation to patient navigation.DesignA qualitative interview study was conducted. Participants were invited to take part in three in-depth interviews over a period of 6–12 months. Thematic analysis was used.SettingInterviewees were sought in the Berlin metropolitan area of Germany in academic university hospitals, in rehabilitation clinics and through self-help organisations.ParticipantsThe sample consisted of individuals diagnosed with lung cancer (n=20) or stroke (n=20).ResultsFrom the perspective of interviewees, patient navigators should function as consistent contact persons, present during the whole care trajectory. Their role would be to guide patients through an often confusing healthcare landscape, offering practical, advisory and emotional assistance corresponding to patients’ needs. The study shows that—independent of the disease—participants had similar expectations and needs regarding support from navigators.ConclusionFor chronic and complex diseases—as is the case with lung cancer and stroke—it appears less important for navigators to fulfil disease-specific tasks. Rather, they should ensure that patients’ more general needs, in relation to social, practical and emotional support, are met in a way that suits their individual wishes. Following these results, patient navigation programmes might be designed to include generic elements, which should then be adapted to the infrastructure in a particular healthcare region and to the particularities of a specific healthcare system.

scholarly journals Understanding barriers to the introduction of precision medicines in non-small cell lung cancer: A qualitative interview protocol

2018 ◽  
Vol 3 ◽  
pp. 24 ◽  
Author(s):  
Stuart Wright ◽  
Gavin Daker-White ◽  
William Newman ◽  
Katherine Payne
Keyword(s):  
Lung Cancer ◽  
Small Cell Lung Cancer ◽  
Cell Lung Cancer ◽  
Qualitative Interview ◽  
Small Cell ◽  
Barriers And Facilitators ◽  
Small Cell Lung ◽  
Framework Analysis ◽  
Qualitative Interview Study ◽  
The Impact

Background: While precision medicines targeting genetic mutations and alterations in non-small cell lung cancer (NSCLC) have been available since 2010, their adoption into clinical practice has been slow. Evidence suggests that a number of barriers, such as insufficient clinician knowledge, a need for training of test providers, or a lack of specific clinical guidelines, may slow the implementation of precision in general. However, little attention has been given to the barriers to providing precision medicines in NSCLC. The purpose of this protocol is to outline the design for a qualitative interview study to identify the barriers and facilitators to the provision of precision medicines for NSCLC. Methods: This study will use semi-structured interviews with clinicians (n=10), test providers (n=10), and service commissioners (n=10) to identify the perceived barriers and facilitators to providing historical, current, and future precision medicines in NSCLC. Participants will be identified through mailing list advertisements and snowball sampling. Recruitment will continue until data saturation, indicated by no new themes arising from the data. Interviews will be conducted by telephone to facilitate geographical diversity. The qualitative data will be analysed using a framework analysis with themes anticipated to relate to; relevant barriers to providing precision medicines, the impact of different barriers on medicine provision, changes in the ability to provide precision medicines over time, and strategies to facilitate the provision of precision medicines. Ethics: This study has been approved by the University of Manchester Proportionate Review Research Ethics Committee (Reference number: 2017-1885-3619). Written consent will be obtained from all participants. Conclusion: This study is the first to explore the barriers and facilitators to providing precision medicines for NSCLC in the English NHS. The findings will inform strategies to improve the implementation of future precision medicines. These findings will be disseminated in peer-reviewed publications and national and international conferences.

scholarly journals Postnatal consultations with an obstetrician after critical perinatal events: a qualitative study of what women and their partners experience

BMJ Open ◽  
2020 ◽  
Vol 10 (9) ◽  
pp. e037933
Author(s):  
Stinne Høgh ◽  
Laura Emdal Navne ◽  
Marianne Johansen ◽  
Mette Nordahl Svendsen ◽  
Jette Led Sorensen
Keyword(s):  
Qualitative Study ◽  
Lived Experiences ◽  
Phenomenological Approach ◽  
Qualitative Interview ◽  
Birth Experience ◽  
Large Hospital ◽  
Relational Continuity ◽  
Qualitative Interview Study ◽  
Birth Story ◽  
Emotional Effects

ObjectiveThe objective of this study was to explore women’s and their partners’ experiences with attending postnatal consultations with an obstetrician after critical perinatal events.DesignQualitative interview study. We did semi-structured individual narrative interviews exploring the lived experiences. Interviews were analysed using a phenomenological approach and the thematic analysis was validated by a transdisciplinary group of anthropologists, obstetricians and a midwife.SettingDepartment of obstetrics at a large hospital in Denmark.ParticipantsWe did a qualitative study with 17 participants (10 women and 7 partners) who had experienced critical perinatal events.ResultsFive major themes were identified: (1) a need to gain understanding and make sense of the critical perinatal events, (2) a need for relational continuity, (3) the importance of discussing emotional effects as well as physical aspects of occurred events, (4) preparing for future pregnancies and (5) closure of the story.Most of the participants emphasised the importance of knowing the obstetrician undertaking the postnatal consultation. The majority of the participants described a need to discuss the emotional effects of the experience as well as the physical aspects of occurred events. The postnatal consultation served as an approach to obtain a positive closure of their birth story and to feel confident about potential future pregnancies.ConclusionsThis interview-based study suggests that postnatal consultation with an obstetrician might be an important tool for women and their partners in understanding the course of events during the critical birth experience and in processing it and preparing for future pregnancies. It appears to be important to assign an obstetrician whom they already know and to encourage them to discuss not only physical aspects of what happened but also the emotional effects of the experience.

scholarly journals Responding to symptoms suggestive of lung cancer: a qualitative interview study

2014 ◽  
Vol 1 (1) ◽  
pp. e000067 ◽  
Author(s):  
Linda Birt ◽  
Nicky Hall ◽  
Jon Emery ◽  
Jon Banks ◽  
Katie Mills ◽  
...  
Keyword(s):  
Lung Cancer ◽  
Qualitative Interview ◽  
Interview Study ◽  
Qualitative Interview Study

scholarly journals Persepsi Keluarga terhadap Partisipasi Keluarga dalam Merawat Pasien di Ruang ICU: Studi Kualitatif

2019 ◽  
Vol 3 (3) ◽  
pp. 197
Author(s):  
Muhamad Makmun ◽  
Suhartini Ismail ◽  
Reni Sulung Utami
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Qualitative Study ◽  
Emotional Support ◽  
Anxiety And Depression ◽  
Family Participation ◽  
Trigger Factors ◽  
The Family ◽  
Family Perceptions ◽  
Depth Interviews

Pasien di Intensive Care Unit (ICU) memberikan dampak kecemasan dan depresi pada pasien dan keluarga. Keluarga tidak dapat menemani selama pasien di ICU salah satu faktor pemicu, disisi lain keluarga mempunyai peran untuk merawat pasien. Partisipasi keluarga dalam perawatan memberikan dukungan psikologis dan emosional kepada pasien. Penelitian ini bertujuan untuk mengetahui persepsi keluarga terkait partisipasi dalam perawatan di ICU. Penelitian studi kualitatif ini dilaksankan dengan cara indepth interview dengan 5 subjek anggota keluarga terdekat yang menunggu pasien selama menjalani perawatan di ICU. Tema penelitian ini adalah keluarga membutuhkan kedekatan dengan pasien sehingga mampu membantu untuk memenuhi kebutuhan pasien. Hasil penenilitian ini adalah keluarga untuk selalu menjalin hubungan yang baik dengan petugas. Penelitian ini bermanfaat bagi keluarga untuk selalu menjalin hubungan yang baik dengan petugas sehingga dapat berpartisipasi dalam perawatan. Kata kunci: ICU, keluarga, partisipasi, persepsi Abstract Family Perception Of Family Participation Caring For Patients In ICU Room: Qualitative Study. Patients in the Intensive Care Unit (ICU) have an impact on anxiety and depression in patients and families. Families cannot accompany as long as the patient in the ICU is one of the trigger factors, on the other hand the family has a role to care for the patient. Family participation in care provides psychological and emotional support to patients. This study aims to determine family perceptions regarding participation in ICU care. This qualitative study was conducted by way of in-depth interviews with 5 closest family member participants who waited for patients during ICU care. The theme of this research is that families need closeness to patients so they can help meet patients' needs. The results of this research are families to always establish good relationships with officers. This research is beneficial for families to always have good relationships with officers so they can participate in care Keywords: ICU, family, participation, perception

scholarly journals Dealing with taste and smell alterations—A qualitative interview study of people treated for lung cancer

PLoS ONE ◽  
2018 ◽  
Vol 13 (1) ◽  
pp. e0191117 ◽  
Author(s):  
Kerstin Belqaid ◽  
Carol Tishelman ◽  
Ylva Orrevall ◽  
Eva Månsson-Brahme ◽  
Britt-Marie Bernhardson
Keyword(s):  
Lung Cancer ◽  
Qualitative Interview ◽  
Interview Study ◽  
Qualitative Interview Study ◽  
Taste And Smell

scholarly journals Patients' experience of dangerous and severe personality disorder services: qualitative interview study

2012 ◽  
Vol 200 (3) ◽  
pp. 252-253 ◽  
Author(s):  
Julia Sinclair ◽  
Lucy Willmott ◽  
Ray Fitzpatrick ◽  
Tom Burns ◽  
Jenny Yiend ◽  
...  
Keyword(s):  
Personality Disorder ◽  
Government Policy ◽  
Policy Decision ◽  
Qualitative Interview ◽  
Prison System ◽  
Hospital Units ◽  
Qualitative Interview Study ◽  
Patients Experience ◽  
Depth Interviews ◽  
Severe Personality Disorder

SummaryAs part of an evaluation of the Dangerous and Severe Personality Disorder (DSPD) Programme, we conducted in-depth interviews with 60 participants purposely sampled across four pilot DSPD units. This report is limited to the finding with potential ‘conceptual generalisability’: namely the unanticipated finding of negative and hostile attitudes of participants being managed in hospital units compared with the prison system. The recent UK government policy decision to concentrate this programme in prisons may, in part, reflect the significance of these findings.

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