scholarly journals Protocol for developing a healthcare transition intervention for young people with spinal cord injuries using a participatory action research approach

BMJ Open ◽  
2021 ◽  
Vol 11 (7) ◽  
pp. e053212
Author(s):  
Emily Alice Bray ◽  
Ajesh George ◽  
Bronwyn Everett ◽  
Yenna Salamonson ◽  
Lucie Ramjan
Keyword(s):  
Spinal Cord ◽  
Action Research ◽  
Young People ◽  
Participatory Action Research ◽  
Spinal Cord Injuries ◽  
Study Phase ◽  
Structured Interviews ◽  
Participatory Action ◽  
Healthcare Transition ◽  
Parent Caregivers

IntroductionWhile healthcare transition (HCT) interventions are recognised as an important area in paediatric rehabilitation, there has been limited research focusing on young people with spinal cord injuries (SCI). In this study, researchers will collaborate with young people with SCI and their parents/caregivers to develop, implement and evaluate the feasibility and acceptability of a HCT intervention aimed at supporting young people with SCI during their transition from paediatric to adult healthcare services.Methods and analysisA participatory action research (PAR) approach will be used to co-develop the HCT intervention with young people with SCI aged 14–25 years and their parents/caregivers. Three phases will be conducted to address the five objectives of this study. Phase 1 will use semi-structured interviews to explore young people and parent/caregivers’ experiences of HCT. In Phase 2a, both young people and parent/caregivers will be co-researchers. They will be included in the analysis of the interviews and will be asked to participate in co-design workshops to inform the development of a prototype HCT intervention. In Phase 2b, using focus groups, feedback on the prototype HCT intervention will be collected. In Phase 3, the refined prototype HCT intervention will be implemented, and young people with SCI and parent/caregivers will evaluate the feasibility and acceptability of the HCT intervention in semi-structured interviews. A reference group, including stakeholders and end users, will be consulted at different time points.Ethics and disseminationThe study has received ethics approval from Western Sydney University Human Research and Ethics Committee (H14029). The researcher will use the results of this study as chapters in a thesis to obtain a Doctor of Philosophy degree. The findings will be disseminated via publication in peer-reviewed journals and will be presented at local, national or international conferences.Trial registration numberACTRN12621000500853

scholarly journals Growing Up with Expectations. Better Understanding the Expectations of Community Partners in Participatory Action Research Projects

2018 ◽  
Vol 4 (1) ◽  
pp. 127-139
Author(s):  
Doug Ragan ◽  
Clarissa Wilkinson
Keyword(s):  
Action Research ◽  
Young People ◽  
Participatory Action Research ◽  
Growing Up ◽  
Research Projects ◽  
Structured Interviews ◽  
Participatory Action ◽  
Community Partners ◽  
The One ◽  
The Relationship

This paper challenges the assumption that youth and youth agencies are in a condition of equality when entering a participatory action research (PAR). By asserting that it is not a state of equality that practitioners nor youth should assume nor be immediately striving for, but a consistently equitable process, this article draws from and reflects on the relationship between young people and researchers who have used a PAR methodology in action oriented projects. Using the UNESCO Growing up in Cities Canada project as a case example, this review extrapolates from and reflects on challenges faced by the project as a whole. Using semi-structured interviews to explore the roles of adults and youth, a number of strategies are highlighted as the techniques used to overcome these challenges. The discussion concludes with further reflection on the complexities of equality and equity, recommending a number of actions that have the potential to create an equitable environment in PAR projects similar to the one examined.

Allyship and solidarity, not therapy, in child and youth mental health: Lessons from a participatory action research project with psychiatrized youth

2020 ◽  
Vol 10 (1) ◽  
pp. 78-89 ◽  
Author(s):  
Maria Liegghio
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Action Research ◽  
Young People ◽  
Participatory Action Research ◽  
Youth Mental Health ◽  
Participatory Action ◽  
Action Research Project ◽  
Research Project ◽  
The Social

While globally advances have been made to recognize children as social actors in their own right, for psychiatrized young people their experiences of distress are often seen as a limitation and thus used as a justification for denying their meaningful participation in matters of concern to their lives. However, what would it mean if ‘mental illness’ was not seen as a ‘limitation’, but rather as an ‘epistemological position’ from which the social world is experienced, understood and acted upon? What would it mean if our theories about ‘distress’ and ‘helping’ were premised on the subjugated knowledges of psychiatrized children and youth? The consumer/survivor-led research movement has made significant gains in answering these questions for the adult, but not necessarily for the child and youth mental health field. The purpose of this article is to critically examine the significance of psychiatrized young people setting and executing their own research and, ultimately, practice agendas. Presented are the outcomes of an evaluation of a participatory action research project examining the stigma of mental illness conducted with seven psychiatrized youth, 14 to 17 years old. The outcomes suggest our roles as practitioners and researchers need to shift from being ‘agents’ working on behalf of to ‘allies’ working in solidarity with young people to change the social conditions of their marginalization. The article concludes with the limits of consumer/survivor-led research for addressing adultism and, instead, ends with a call for decolonizing children’s mental health.

scholarly journals Analysing participatory video through the capability approach – A case study in Quart de Poblet (Valencia, Spain)

2017 ◽  
Vol 18 (3) ◽  
pp. 282-301 ◽  
Author(s):  
Alejandra Boni ◽  
Aurora López-Fogués ◽  
Gynna Millán ◽  
Sergio Belda-Miquel
Keyword(s):  
Action Research ◽  
Young People ◽  
Participatory Action Research ◽  
Research Method ◽  
Capability Approach ◽  
Participatory Process ◽  
Participatory Action ◽  
Participatory Video ◽  
The Capability Approach

The aim of this paper is to analyse participatory video as a participatory action research method through the lenses of the capability approach. In order to do this, we used a participatory video experience that took place in the municipality of Quart de Poblet (Valencia, Spain) from February to March 2014. The participants were 11 young people between 16 and 24 years of age, severely affected by the economic crisis that has hit Spain in recent years. To develop our analysis, we introduced the participatory video as a technique and a process within the participatory action research methods. Then, we analysed the participatory process to verify the extent to which it had contributed to expanding the capabilities and agency of the participants. The evidence revealed a significant expansion of the awareness capability and, in some cases, of the capability for voice. In contrast, the capability to aspire and the agency of the participants were not expanded, due to contextual factors and the limitations of the process itself.

scholarly journals Action research with young people: possibilities and ‘messy realities’

2019 ◽  
Vol 14 (3-2019) ◽  
pp. 255-270 ◽  
Author(s):  
Barry Percy-Smith ◽  
Morena Cuconato ◽  
Christian Reutlinger ◽  
Nigel Patrick Thomas
Keyword(s):  
Action Research ◽  
Young People ◽  
Participatory Action Research ◽  
Critical Role ◽  
Power Relationships ◽  
Participatory Action ◽  
Youth Research ◽  
Funded Project ◽  
Informal Settings

This paper reflects on our experiences of using participatory action research (PAR) with young people as part of an EU H2020 project exploring the spaces and styles of youth participation in formal, nonformal and informal settings. The paper outlines key tenets of action research and provides a brief review of the literature concerning the use of PAR in youth research. Drawing on three case studies, we provide an honest account of some of the messy realities involved in realising the promise of participatory action research in practice. The central focus is on how the action research played out in practice, the challenges of undertaking PAR within the context of a funded project with predefined deliverables, the power relationships between researchers and young people and how agendas are negotiated in action research. We conclude with some critical reflections on lessons learnt, highlighting the importance of acknowledging the exploratory nature of PAR and the critical role of the researcher as facilitator.

scholarly journals Involving Children in Creating a Healthy Environment in Low Socioeconomic Position (SEP) Neighborhoods in The Netherlands: A Participatory Action Research (PAR) Project

2021 ◽  
Vol 18 (22) ◽  
pp. 12131
Author(s):  
Lisa Wilderink ◽  
Ingrid Bakker ◽  
Albertine J. Schuit ◽  
Jacob C. Seidell ◽  
Carry M. Renders
Keyword(s):  
Action Research ◽  
The Netherlands ◽  
Participatory Action Research ◽  
Socioeconomic Position ◽  
Research Process ◽  
Local Context ◽  
Structured Interviews ◽  
Participatory Action ◽  
Low Socioeconomic ◽  
Healthy Environment

To ensure that health behavior interventions for children living in low socioeconomic position (SEP) neighborhoods are in line with children’s wishes and needs, participation of the children in the development, implementation, and evaluation is crucial. In this paper, we show how children living in three low-SEP neighborhoods in the Netherlands can be involved in Participatory Action Research (PAR) by using the photovoice method, and what influences this research process. Observations, informal chats, semi-structured interviews, and focus group discussions with children and professionals were done to evaluate the research process. The photovoice method provided comprehensive information from the children’s perspectives. With the help of the community workers, the children identified feasible actions. We found that it is important to constantly discuss the research process with participants, start with a concrete question or problem, and adapt the project to the local context and skills of participants.

scholarly journals Can clinical coordination be improved through Participatory Action Research (PAR) interventions?

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
I Vargas ◽  
P Eguiguren ◽  
A S Mogollón-Pérez ◽  
I Samico ◽  
J López ◽  
...  
Keyword(s):  
Action Research ◽  
Participatory Action Research ◽  
Institutional Support ◽  
Steering Committee ◽  
Public Health Services ◽  
Structured Interviews ◽  
Participatory Action ◽  
Mutual Knowledge ◽  
Employment Conditions ◽  
Factors Influencing

Abstract Background Despite the effectiveness of Participatory Action Research (PAR) in reducing the gap between evidence and practice, its use to improve care integration is rare. The aim is to analyze the factors influencing the implementation of PAR interventions to improve clinical coordination in public health services networks of Brazil, Chile, Colombia, Mexico and Uruguay. Methods A qualitative, descriptive-interpretative study was conducted in participating healthcare networks of each country. Focus groups and individual semi-structured interviews were conducted to a criteria sample of participants: members of Local Steering Committee (LSC)(29), professionals’ platform (PP)(28), other professionals (49) and managers(28). Thematic content analysis was performed, segmented by country and themes. Results Findings reveal that contextual factors, the PAR process and interventions’ content were determinants in the implementation, interacting over time, and differing among experiences. On the one hand, institutional support (providing the necessary resources) together with the interest of professionals and managers in participating, emerged as influencing factors influenced by other factors related to: the system (alignment with policies; electoral cycle), networks (lack of time due to work overload; precarious employment conditions) and individuals (limited mutual knowledge and mistrust). On the other, some characteristics of the PAR process facilitated institutional support and motivation: professionals’ participation in all activities, design flexibility and shared decision-making - also present when interventions were based on mutual adjustment - the LSC’s leadership and the facilitating role of the research team. Conclusions Evidence is provided that when some contextual elements converge the implementation of interventions through PAR processes can turn into a factor of motivation and cohesion, determinant for the adoption of clinical coordination interventions. Key messages Contributes to fill the knowledge gap in factors influencing the implementation of PAR interventions in healthcare. Provides a framework for analysis and recommendations for their implementation.

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