scholarly journals Interactions among Ecological Factors That Explain the Psychosocial Quality of Life of Children with Complex Needs

2010 ◽  
Vol 2010 ◽  
pp. 1-10 ◽  
Author(s):  
Sandy Thurston ◽  
Louise Paul ◽  
Chenglin Ye ◽  
Patricia Loney ◽  
Gina Browne ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Real Life ◽  
Ecological Factors ◽  
Holistic Approach ◽  
Family Impact ◽  
Family Needs ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Complex Needs

Purpose. To explore the associations and interactions among ecological factors and explain the psychosocial quality of life of children with complex needs.Methods. In this cross-sectional survey consenting parents were identified by the Children's Treatment Network. Families were eligible if the child from 0 to 19 years, resided in Simcoe/York, and there were multiple family needs. Regression analysis was used to explore associations and interactions.n=429.Results. Younger children, without conduct disorder, without hostile and punitive parenting and with low adverse family impact demonstrated the highest levels of psychosocial quality of life. Statistically significant interactions between processes of care and parent variables highlight the complexity of real life situations.Conclusions. It is not possible to fully understand the child's psychosocial quality of life in complex needs families by considering only simple associations between ecological factors. A multitude of factors and interactions between these factors are simultaneously present and the care of these families requires a holistic approach.

scholarly journals The Quality of Life of a Multidiagnosis Group of Special Needs Children: Associations and Costs

2010 ◽  
Vol 2010 ◽  
pp. 1-13 ◽  
Author(s):  
Sandy Thurston ◽  
Louise Paul ◽  
Patricia Loney ◽  
Maria Wong ◽  
Gina Browne
Keyword(s):  
Quality Of Life ◽  
Special Needs ◽  
Well Being ◽  
Special Needs Children ◽  
Family Needs ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Complex Needs ◽  
Family Variables

Purpose. To determine the quality of life, associations, and costs of a multidiagnosis group of special needs children.Methods. In this cross-sectional survey families were identified from the Children's Treatment Network, a Canadian multisector program for children with special needs. Families were eligible if the child was aged 2–19 years, resided in Simcoe/York, and if there were multiple child/family needs. Quality of life was measured using the PedsQL (n=429).Results. Quality of life scores were lower in this group compared to published healthy and single disorder groups of children. Quality of life scores decreased with advancing age. Child psychosocial well-being was more strongly associated with child/family variables compared to physical well-being. Health Utilization costs were higher in children with greater physical challenges.Conclusions. Further research is needed in other complex needs child samples to confirm the decrease in quality of life found in these children into adolescence. Investigations into the interactions of child and family variables are needed.

scholarly journals System Integration and Its Influence on the Quality of Life of Children with Complex Needs

2010 ◽  
Vol 2010 ◽  
pp. 1-12 ◽  
Author(s):  
Sandy Thurston ◽  
Louise Paul ◽  
Chenglin Ye ◽  
Patricia Loney ◽  
Dillon Browne ◽  
...  
Keyword(s):  
Quality Of Life ◽  
System Integration ◽  
Real Life ◽  
Family Needs ◽  
Physical Quality ◽  
Complex Needs ◽  
Problematic Behaviors ◽  
Physical Limitations ◽  
Team Integration

Purpose. To explore the interactions between child and parents psychosocial factors and team integration variables that may explain improvements in physical dimensions of the PEDS QL quality of life of children with complex needs after 2 years.Methods. In this 2-year study, parents were identified by the Children's Treatment Network. Families were eligible if the child was aged 0–19 years, had physical limitations, resided in either Simcoe County or the Region of York, Ontario, and there were multiple other family needs. Regression analysis used to explore associations and interactions;n=110.Results. A child's physical quality of life was affected by interacting factors including child's behavior, parenting, and integrated care. Statistically significant interactions between team integration, processes of care, and child/parent variables highlight the complexity of the rehabilitation approach in real-life situations.Conclusions. Rehabilitation providers working with children with complex needs and their families should also address child and parent problematic behaviors. When this was the case in high integrated teams, the child's physical quality of life improved after two years.

scholarly journals A cross sectional study of quality of life in patients with enterostomy

2019 ◽  
Vol 6 (10) ◽  
pp. 3767
Author(s):  
Suchin S. Dhamnaskar ◽  
Gopinath Karamshi ◽  
Anil Baid ◽  
Nishant Gobbur ◽  
Dhaval Vasa ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Demographic Data ◽  
Holistic Approach ◽  
Cross Sectional Study ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Stoma Creation ◽  
Sexual Rehabilitation ◽  
Domains Of Life

Background: Enterostomy is one of the commonest surgeries performed in general surgical practise. It leads to considerable alteration in life style of patients after surgery in the form of physical, mental, social, spiritual, economic, educational, vocational, marital, sexual problems. We designed study to assess the extent of these affections on quality of life (QOL) and suggest measure to improve it.Methods: We conducted a cross sectional survey using validated City of Hope-quality of life-Ostomy questionnaire questionnaire which was administered to patients following up for routine stoma care in stoma clinic of our hospital. We included patients who have undergone stoma creation between 2 months to 1 year prior to taking the QOL questionnaire. Demographic data and data collected about four main domains of QOL namely, physical, psychological, social and spiritual was statistically analysed for significance, dependence and correlation.Results: Commonest stoma type in our study was temporary ileostomy done for perforative peritonitis. Presence of ostomy makes significant impact on patients clothing style, occupation and sexual activity and suffered depression. Majority of patients (82.5%) fell in fair to average when their scores of QOL were compared. All four domains of life correlated positively to each other.Conclusions: As all domains of life are related to each other intervention to improve any one of them will cause resultant improvement of all domains of QOL. We suggest holistic approach by pre and postoperative counselling, training by trained enterostomal therapists, psychiatrist, treating surgeons and economic and sexual rehabilitation.

Physician Perceptions on Quality of Life and Resuscitation Preferences for Extremely Early Newborns

2021 ◽  
Author(s):  
Danielle LoRe ◽  
Christopher Mattson ◽  
Dalia M. Feltman ◽  
Jessica T. Fry ◽  
Kathleen G. Brennan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Logistic Regression ◽  
Regression Models ◽  
Mixed Effects ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Comfort Care ◽  
Logistic Regression Models ◽  
Extremely Preterm

Objective The study aimed to explore physician views on whether extremely early newborns will have an acceptable quality of life (QOL), and if these views are associated with physician resuscitation preferences. Study Design We performed a cross-sectional survey of neonatologists and maternal fetal medicine (MFM) attendings, fellows, and residents at four U.S. medical centers exploring physician views on future QOL of extremely early newborns and physician resuscitation preferences. Mixed-effects logistic regression models examined association of perceived QOL and resuscitation preferences when adjusting for specialty, level of training, gender, and experience with ex-premature infants. Results A total of 254 of 544 (47%) physicians were responded. A minority of physicians had interacted with surviving extremely early newborns when they were ≥3 years old (23% of physicians in pediatrics/neonatology and 6% in obstetrics/MFM). The majority of physicians did not believe an extremely early newborn would have an acceptable QOL at the earliest gestational ages (11% at 22 and 23% at 23 weeks). The majority of physicians (73%) believed that having an extremely preterm infant would have negative effects on the family's QOL. Mixed-effects logistic regression models (odds ratio [OR], 95% confidence interval [CI]) revealed that physicians who believed infants would have an acceptable QOL were less likely to offer comfort care only at 22 (OR: 0.19, 95% CI: 0.05–0.65, p < 0.01) and 23 weeks (OR: 0.24, 95% CI: 0.07–0.78, p < 0.02). They were also more likely to offer active treatment only at 24 weeks (OR: 9.66, 95% CI: 2.56–38.87, p < 0.01) and 25 weeks (OR: 19.51, 95% CI: 3.33–126.72, p < 0.01). Conclusion Physician views of extremely early newborns' future QOL correlated with self-reported resuscitation preferences. Residents and obstetric physicians reported more pessimistic views on QOL. Key Points

Quality of Life in People Living With HIV: An Exploratory Cross-Sectional Survey in Belgium

2021 ◽  
Vol 33 (3) ◽  
pp. 249-264
Author(s):  
Gert Scheerder ◽  
Sandra Van den Eynde ◽  
Patrick Reyntiens ◽  
Ria Koeck ◽  
Jessika Deblonde ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Negative Impact ◽  
Sexual Life ◽  
People Living With Hiv ◽  
Cross Sectional Survey ◽  
Cross Sectional ◽  
Related Stigma ◽  
Living With Hiv ◽  
The Impact

This cross-sectional survey explored the quality of life in 505 people living with HIV in Belgium. Several domains of quality of life were impaired: 26% had been diagnosed with depression and 43% had weak social support. HIV-related stigma is still widespread, with 49% believing most people with HIV are rejected and 65% having experienced discrimination due to HIV. The impact of HIV was limited on professional life, but 40% experienced a negative impact on life satisfaction and 41% a negative impact on sexual life. For several domains, people with a recent diagnosis of HIV and long-term survivors had significantly worse scores. This survey also uncovered strengths of people living with HIV, such as positive coping and HIV self-image. Expanding the scope of quality of life in people living with HIV may provide a more complete picture of relevant life domains that may be impacted by living with HIV, but this needs further validation.

scholarly journals Quality of Life in Patients with Osteoporosis: A Us Cross-Sectional Survey

2018 ◽  
Vol 21 ◽  
pp. S199-S200 ◽  
Author(s):  
DT Gold ◽  
SA Williams ◽  
RJ Weiss ◽  
Y Wang ◽  
C Watkins ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cross Sectional Survey ◽  
Cross Sectional
Sign in / Sign up

Export Citation Format

Share Document