Abstract PO-032: Cancer supportive care needs and resource use among Asian American cancer patients: Preliminary findings from a pilot patient navigation intervention, “Patient COUNTS”

11620 Background: Cancer experiences are mediated by host and disease factors and affected by social and cultural determinants of health. We sought to characterize perceived supportive care needs and domains of psychosocial functioning among a diverse group of women attending routine appointments for treatment or follow-up of breast and gynecologic cancers. Methods: From July 2018 until January 2019, all patients seen at the Stanford Women’s Cancers Program (serving women treated for breast and gynecologic cancers) were approached to participate. 220 cancer patients (78% breast and 22% gynecologic), mean age 54 (SD = 12) completed an online survey on their supportive care needs assessment (The Short-form Supportive Care Needs Survey Questionnaire) which contains physical, social, information, sexual and psychological scales, anxiety and depression (Patient Health Questionnaire-4) and mindsets about illness and the body mindset (Brief Illness Mindset Inventory). Only 14% of patients refused to take part in the survey. Results: T-test showed that Asian/Asian-American cancer patients (n = 57, 26%) reported fewer needs related to coping with physical symptoms, side effects of treatment and performing usual tasks and activities compared to Caucasian patients (n = 137, 62%), p = .038. Moreover, Asian/Asian-American cancer patients reported fewer depression symptoms (p = .049). Chi-square analyses showed that Asian/Asian-American patients reported less use of psychotherapy over their lifetimes (24.6% vs. 54.0%, p < .001), but significantly higher utilization of Chinese Medicine for cancer symptom management (24.6% vs. 5.8%; p < . 001) compared to the Caucasian patients. T-tests showed that Asian/Asian American patients reported significantly greater agreement with the mindsets that ‘cancer is a catastrophe’ (p = .006) and that their ‘body is an adversary’ (p = .047). Conclusions: In this population of breast and gynecologic patients and survivors we found differences in cancer mindsets, coping and use of mental health and complementary therapies between Asian and Asian-American and Caucasian women. Further analysis to understand the cultural differences are ongoing.

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Psychometric validation of the Turkish version of the Supportive Care Needs Survey for Partners and Caregivers (SCNS‐P&C‐T) of cancer patients

European Journal of Cancer Care ◽

10.1111/ecc.13177 ◽

2019 ◽

Vol 29 (1) ◽

Author(s):

Mevlüde Ergen ◽

Fatma Arikan

Keyword(s):

Supportive Care ◽

Cancer Patients ◽

Supportive Care Needs ◽

Psychometric Validation ◽

Turkish Version ◽

Care Needs

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A qualitative approach in determining the patient-centered information and supportive care needs of cancer patients in Singapore

BMJ Open ◽

10.1136/bmjopen-2019-034178 ◽

2020 ◽

Vol 10 (2) ◽

pp. e034178

Author(s):

Gek Phin Chua ◽

Hiang Khoon Tan

Keyword(s):

Supportive Care ◽

Cancer Patients ◽

Quantitative Study ◽

Information Needs ◽

Supportive Care Needs ◽

Research Approach ◽

Detailed Knowledge ◽

Care Needs ◽

Treatment Unit ◽

Ambulatory Treatment

ObjectivesTo qualitatively interpret the information and supportive care needs perceived by cancer patients undergoing treatment in order to get a deeper appreciation of patients’ needs and concerns. The intended outcome is to provide baseline knowledge for improving patient-centred strategies to better meet the information and supportive needs of patients.DesignA qualitative research approach, based on conventional content analysis, was used throughout the research process. The three open-ended questions obtained from a previous quantitative study guided the researchers to explore the information and supportive care needs of patients. Data from patients’ responses were analysed and coded in themes.Participants and settingPatients attending the Ambulatory Treatment Unit of the National Cancer Centre Singapore were invited to participate in the study. We determined from these subjects the type of information that cancer patients need, and to measure the extent to which these information needs are met by measuring patients’ level of satisfaction. Included in the quantitative study were three open-ended questions designed to gain a deeper understanding of their needs and concerns. All subjects were aged 21 years and above and able to understand and communicate in English/Mandarin. They were also aware of their diagnosis, they were not cognitively impaired and were not at the end-of-life situation.ResultsA variety of information and supportive care needs were identified, and three specific areas of concerns were identified: (1) psychosocial and supportive care needs, (2) information needs and (3) information delivery by professionals.ConclusionThe information and supportive care needs expressed were consistent with issues of cancer patients undergoing treatment. The strategies to improve patients’ coping abilities through patient-centred care are discussed. Further studies assessing the barriers of information provision by healthcare professionals should provide more detailed knowledge about unmet information needs.

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Cancer patients' supportive care needs: Strategies for assessment and intervention

New South Wales Public Health Bulletin ◽

10.1071/nb01090 ◽

2001 ◽

Vol 12 (10) ◽

pp. 269 ◽

Cited By ~ 3

Author(s):

Afaf Girgis ◽

Louise Burton

Keyword(s):

Supportive Care ◽

Cancer Patients ◽

Supportive Care Needs ◽

Care Needs

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Course and predictors of supportive care needs among Mexican breast cancer patients: A longitudinal study

Psycho-Oncology ◽

10.1002/pon.4778 ◽

2018 ◽

Vol 27 (9) ◽

pp. 2132-2140 ◽

Cited By ~ 3

Author(s):

Adriana Pérez-Fortis ◽

Joke Fleer ◽

Maya J. Schroevers ◽

Patricia Alanís López ◽

Juan José Sánchez Sosa ◽

...

Keyword(s):

Breast Cancer ◽

Longitudinal Study ◽

Supportive Care ◽

Cancer Patients ◽

Supportive Care Needs ◽

Breast Cancer Patients ◽

Care Needs

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Unmet supportive care needs and predictor of breast cancer patients in Bangladesh: A cross-sectional study

Journal of Oncology Pharmacy Practice ◽

10.1177/10781552211039114 ◽

2021 ◽

pp. 107815522110391

Author(s):

Sujana H Chowdhury ◽

Bilkis Banu ◽

Nasrin Akter ◽

Sarder M Hossain

Keyword(s):

Breast Cancer ◽

Supportive Care ◽

Cancer Patients ◽

Unmet Needs ◽

Cross Sectional Study ◽

Supportive Care Needs ◽

Breast Cancer Patients ◽

Sectional Study ◽

Care Needs ◽

Cross Sectional

Background Breast cancer survivor goes through a period of needs in their post-treatment daily life. Relatively few studies have been conducted to understand the unmet needs among breast cancer survivors in Bangladesh. Recognize and measure patterns and predictors of unmet needs of breast cancer patients was the aim of the study. Objective To identify and measure patterns and predictors of unmet needs of breast cancer patients in Bangladesh. Method A cross-sectional study among 138 breast cancer patients; conveniently selected from two public and two private cancer institutes. Face-to-face interview for data collection and medical record review for checklist was done. Unmet needs have been determined by the supportive care needs survey short form 34 scale. Logistic regression analyses were performed to identify the predictors of unmet needs. Results The study indicated the top 10 moderate-to-high needs; among which the top five needs were from the information need domain. Surprisingly, private cancer treatment centers were identified as a significant predictor for unmet needs. Patients from private cancer institutes reported more explanation needs as well as needs with their physical and daily living and sexuality. Furthermore, the type of treatment like patient receiving combine treatment therapy reported more need for help compared to the patient receiving chemotherapy alone. Moreover, housewives reported the low need for patient care and support systems as a result of their reluctant behavior towards their health. Conclusion Individual’s unmet need assessment should be a part of every treatment protocol of breast cancer for a better treatment outcome.

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‘Haematological cancers, they’re a funny bunch’: A qualitative study of non-Hodgkin’s lymphoma patient experiences of unmet supportive care needs

Journal of Health Psychology ◽

10.1177/1359105316660179 ◽

2016 ◽

Vol 23 (11) ◽

pp. 1464-1475 ◽

Cited By ~ 4

Author(s):

Brooke Swash ◽

Nick Hulbert-Williams ◽

Ros Bramwell

Keyword(s):

Qualitative Study ◽

Supportive Care ◽

Cancer Patients ◽

Hodgkin’S Lymphoma ◽

Information Needs ◽

Supportive Care Needs ◽

Hodgkin's Lymphoma ◽

Care Needs ◽

Non Hodgkin’S Lymphoma ◽

Non Hodgkin's Lymphoma

Despite high levels of psychological distress, there is a scarcity of research on unmet supportive care needs in haematological cancer patients. This qualitative study used an in-depth interpretative phenomenological approach to investigate the needs reported by six non-Hodgkin’s lymphoma patients and explored how these needs consequently shaped the patient experience. Emergent themes included the following: concerns for family, information needs and the need for psychological support. Participants reported feeling different to other cancer patients. Lack of understanding of their diagnosis by friends and family and lack of access to relevant support services are notable unmet needs that differ from previous findings.

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