Citizen experts in participatory governance: Democratic and epistemic assets of service user involvement, local knowledge and citizen science

2021 ◽  
pp. 001139212110592
Author(s):  
Eva Krick

Initiatives that attribute expert status to ‘ordinary citizens’ proliferate in a range of societal realms and are generally celebrated for ‘democratising expertise’. By tapping new sources of knowledge and participation simultaneously, such ‘citizen expertise’ practices seem to provide responses to the contemporary decline of trust in political elites and traditional experts that seriously challenges the legitimacy of democratic policy-making. This study distinguishes between three quintessential types of citizen expertise (‘local knowledge’, ‘service user involvement’ and ‘citizen science’) and, from an integrated perspective, critically discusses the value of citizen expertise for public knowledge production and democratic governance. Drawing on empirical insights and on theories of democracy and of expertise and knowledge, the concepts of expertise and participation are refined and quality conditions of citizen expertise are developed. The study argues that citizen expertise is epistemically particularly valuable when it is based on distinct, non-ubiquitous experiences and on collective, not just individual, insights. It contends that representativeness is key to the democratic legitimacy of citizen experts in the policy context and points to the key role of organised civil society in establishing the required accountability relationships.

2017 ◽  
Author(s):  
Clare Killikelly ◽  
Til Wykes

BACKGROUND In their letter the authors state that a) our claim that there is little effect of symptom severity on drop-out was not clearly supported and b) our discussion of service user involvement does not include ‘User Experience/User Interface (UXUI)’. We respond to each of these comments. OBJECTIVE NA METHODS NA RESULTS NA CONCLUSIONS NA


2014 ◽  
Vol 31 (4) ◽  
pp. 233-243
Author(s):  
L. Montgomery ◽  
M. Donnelly

BackgroundService user involvement is receiving increasing support from mental health policy makers, service planners and research commissioners. However, we lack a good understanding of the nature and extent to which service users are involved in personality disorder (PD) services and the effects of involvement in these services.ObjectivesTo review and appraise published sources; increase understanding about service user involvement in PD services; and highlight knowledge gaps and related issues.MethodsA scoping review methodology was adopted. Data were ‘charted’ to illustrate the landscape of writings and views and a qualitative analysis synthesized the results in terms of key emergent themes.ResultsOnly a small amount of published work was identified with significant gaps in the literature. Effects were reported mostly in terms processes and emotional and practical benefits for service users. Emergent themes were wellness and health, recruitment and support for service users.ConclusionsThis scoping review uncovered a lack of published work despite service user involvement being a key strand of health policy. There is a need for outcomes-focused research regarding service user involvement. Successful user involvement in PD services requires attention to be focused on the context, recruitment, support and ‘wellness’ of service users.


2014 ◽  
Vol 28 (22) ◽  
pp. 37-41 ◽  
Author(s):  
Penny Tremayne ◽  
Pip Russell ◽  
Helen Allman

2016 ◽  
Vol 37 (2) ◽  
pp. 126-133 ◽  
Author(s):  
C. Miller ◽  
V. Pradeep ◽  
M. Mohamad ◽  
Z. Izmeth ◽  
M. T. P. Reynolds ◽  
...  

IntroductionThe direct involvement of patients and carers in psychiatric education is driven by policy in the United Kingdom and Ireland. The benefits of this involvement are well known, however, it is important to consider the ethical aspects. This paper suggests how further research could explore and potentially mitigate adverse outcomes.MethodA literature search evaluating the role of patients and carer involvement in psychiatric education was undertaken to summarise existing evidence relating to the following: methods of involvement, evidence of usefulness, patient’s/carer’s views and learners’ views.ResultsThe Medline search produced 231 articles of which 31 were included in the literature review based on the key themes addressed in the paper.Discussion/conclusionThe available evidence is generally positive regarding the use of patients and carers in psychiatric education. However, available research is varied in approach and outcome with little information on the ethical consequences. More research is required to inform policies on teaching regarding potential adverse effects of service user involvement.


2011 ◽  
Vol 35 (6) ◽  
pp. 609-615 ◽  
Author(s):  
Rosemary Barber ◽  
Peter Beresford ◽  
Jonathan Boote ◽  
Cindy Cooper ◽  
Alison Faulkner

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