Outcomes of a care coordinated service model for persons with severe and persistent mental illness: A qualitative study

2016 ◽  
Vol 63 (1) ◽  
pp. 40-47 ◽  
Author(s):  
Anton N Isaacs ◽  
Keith Sutton ◽  
Kim Dalziel ◽  
Darryl Maybery

Background: Owing to difficulties faced by individuals with severe and persistent mental illness (SPMI) in accessing multiple services, the Australian Government trialed a care coordinated service model called the Partners in Recovery (PIR) initiative. Material: A total of 45 stakeholders in Gippsland were asked what difference the initiative had made. Discussion: The PIR initiative benefited not only clients and carers but also service providers. It addressed an unmet need in service delivery for individuals with SPMI. Conclusion: The PIR initiative has filled a gap in delivery of care for individuals with SPMI in Gippsland.

2022 ◽  
pp. 095646242110608
Author(s):  
Janice Y. C. Lau ◽  
Ngai-Sze Wong ◽  
Krystal C. K. Lee ◽  
Tsz-Ho Kwan ◽  
Grace C. Y. Lui ◽  
...  

Background Pre-exposure prophylaxis (PrEP) is an effective means of HIV prevention for men who have sex with men (MSM), a key population whose engagement is crucial for achieving effective public health outcomes. An optimal service model would be important in planning the implementation of PrEP in places where such service has not been established. Methods A qualitative study was conducted to delineate the attributes of an optimal PrEP service model for MSM in Hong Kong, a city where no formal PrEP programs existed. Twenty purposively sampled MSM who were enrollees of two pilot PrEP projects participated in the semi-structured interviews promoting story-telling. The coded data were thematically analyzed following Grounded Theory approach, focusing on uncovering a typology of the essential attributes of an optimal PrEP service model, and the reasons for such preferences. Results Participating MSM were all ethnic Chinese and aged 26 to 52 years. All had received PrEP from pilot projects in conjunction with periodic screening of sexually transmitted infections (STI), HIV antibody, and plasma creatinine. Four major themes emerged as regards the attributes of a preferred PrEP service: (i) comprehensiveness of HIV/STI and safety monitoring; (ii) convenient unitary service; (iii) stigma-free PrEP access and protecting confidentiality; and (iv) affordable price. Whereas regular provision of PrEP was acceptable to MSM, unaffordability and related stigma were the anticipated challenges for potential service providers. Conclusions The qualitative assessment of MSM’s preference for PrEP service delivery has yielded important information on the many facets of a desirable service model.


2018 ◽  
Vol 17 (1) ◽  
pp. 20-28 ◽  
Author(s):  
Beth A. Vayshenker ◽  
Joseph DeLuca ◽  
Timothy Bustle ◽  
Philip Yanos

Purpose Stigma by association occurs when members affiliated with a marginalized group become discredited themselves. The purpose of this paper is to explore associative stigma among mental health (MH) clinicians working with individuals diagnosed with serious mental illness (SMI). Design/methodology/approach In total, 47 eligible service providers completed an online qualitative study, with open-ended questions about areas touching on associative stigma such as assumptions about the MH profession, personal experiences of work-related stigma, and ways of coping. Findings The data revealed that MH clinicians commonly endorse experiences of associative stigma. The following themes were derived: experiences of stigma in describing the profession to others, media portrayal of MH professionals, assumptions about the field, ascriptions of personal characteristics, job devaluation, means of coping with associative stigma, and impact of associative stigma on work on clients. Originality/value This is the first qualitative study to examine the phenomenon of associative stigma with MH clinicians. This study suggests that MH providers working with people with SMI do encounter associative stigma when discussing their profession with community members. Professionals discussed encountering the stereotype that the work that they do is dangerous, that it is something “unwanted” and that it does not require much skill but could be done by anyone. Associative stigma could be an important component in the understanding of factors related to professional burnout.


2021 ◽  
Vol 12 ◽  
Author(s):  
Mairead Furlong ◽  
Christine Mulligan ◽  
Sharon McGarr ◽  
Siobhan O'Connor ◽  
Sinead McGilloway

Background: Parental mental illness (PMI) is common and can lead to children developing mental disorders. Family Talk (FT) is a well-known and widely implemented intervention designed to reduce the risk of transgenerational psychopathology. However, given the research to practise “gap,” very little qualitative research, to date, has investigated practitioner experiences in implementing FT. This study aimed to explore the practitioner-perceived barriers and facilitators to the implementation and sustainability of FT within mainstream mental health settings.Methods: This qualitative study was nested within a randomised controlled trial (RCT) of Family Talk [N = 86 families (139 parents, 221 children)] within 15 adult (AMHS), child (CAMHS), primary care mental health, and child protection sites in Ireland. Semi-structured interviews and focus groups were undertaken with a purposive sample of clinicians (n = 31) and managers (n = 10), based on their experiences of implementing FT. Interview data were transcribed verbatim, analysed using constructivist grounded theory, and informed by Fixsen's implementation science framework.Results: Service providers highlighted a number of benefits for approximately two thirds of families across different diagnoses and mental health settings (AMHS/CAMHS/primary care). Sites varied in their capacity to embed FT, with key enablers identified as acquiring managerial and organisational support, building clinician skill, and establishing interagency collaboration. Implementation challenges included: recruitment difficulties, stresses in working with multiply-disadvantaged families, disruption in delivery due to the COVID-19 global pandemic, and sustainability concerns (e.g., perceived fit of FT with organisational remit/capacity, systemic and cultural barriers to change).Conclusion: This study is only the second qualitative study ever conducted to explore practitioner experiences in implementing FT, and the first conducted within the context of an RCT and national research programme to introduce family-focused practise (FFP) for families living with PMI. The findings illuminate the successes and complexities of implementing FFP in a country without a “think family” infrastructure, whilst highlighting a number of important generalisable lessons for the implementation of FT, and other similar interventions, elsewhere.


2017 ◽  
Vol 41 (5) ◽  
pp. 566 ◽  
Author(s):  
Nicola Hancock ◽  
Jennifer Smith-Merry ◽  
James A. Gillespie ◽  
Ivy Yen

Objective The Partners in Recovery (PIR) program is an Australian government initiative designed to make the mental health and social care sectors work in more coordinated ways to meet the needs of those with severe and complex mental illness. Herein we reflect on demographic data collected during evaluation of PIR implementation in two Western Sydney sites. The aims of the present study were to: (1) explore whether two Sydney-based PIR programs had recruited their intended population, namely people living with severe and persistent mental illness; and (2) learn more about this relatively unknown population and their self-identified need priorities. Methods Routinely collected initial client assessment data were analysed descriptively. Results The data suggest that the two programs are engaging the intended population. The highest unmet needs identified included psychological distress, lack of daytime activities and company, poor physical health and inadequate accommodation. Some groups remain hard to connect, including people from Aboriginal and other culturally diverse communities. Conclusions The data confirm that the PIR program, at least in the two regions evaluated, is mostly reaching its intended audience. Some data were being collected inconsistently, limiting the usefulness of the data and the ability to build on PIR findings to develop ongoing support for this population. What is known about the topic? PIR is a unique national program funded to engage with and address the needs of Australians living with severe and persistent mental illness by facilitating service access. What does this paper add? This paper reports on recruitment of people living with severe and persistent mental illness, their need priorities and data collection. These are three central elements to successful roll-out of the much anticipated mental health component of the National Disability Insurance Scheme, as well as ongoing PIR operation. What are the implications for practitioners? Active recruitment, exploration of self-reported need priorities and routine outcome measurement are essential yet challenging work practices when working with people living with severe and persistent mental illness.


2020 ◽  
Vol 20 (3) ◽  
pp. 140-156
Author(s):  
Paul Harris ◽  
Margarete Barry ◽  
Lyndal Sleep ◽  
Jessica Griffiths ◽  
Lynne Briggs

Partners in Recovery (PIR) was an Australian government initiative designed to provide support and service linkage for individuals with complex needs living with severe and persistent mental illness. This article reports the external evaluation process and approach that was undertaken of the Gold Coast Partners in Recovery initiative between September and December 2015 regarding the achievement of PIR outcomes. The evaluation of this consortia-based initiative was framed using principles of realistic evaluation and recovery-oriented practice. Numerous evaluations of similar initiatives have recently been undertaken, each adopting different approaches and methods in accordance with local needs and expectations. The incorporation of realistic evaluation with recovery-oriented principles in this mixed methods research design, however, offers a unique perspective. This can be used to inform future developments in evaluative practice particularly in the area of recovery-oriented services and/or partnership-focused, capacity-building initiatives.


Author(s):  
Lindsay Sheehan ◽  
Sonya Ballentine ◽  
Lorenzo Washington ◽  
Mark Canser ◽  
John Connor ◽  
...  

Community-based participatory research (CBPR) is an approach that involves community members in research, not as research participants, but as partners. However, few studies have examined CBPR projects conducted among African Americans with serious and persistent mental illness (SPMI). This article focuses specifically on the Inspiring Change (IC) model, which includes a leadership trio comprised of an academic researcher, health service provider and an African American with lived experience of SPMI. Our purpose is to investigate how the IC model shapes not only how research is conducted but how research is understood and experienced by the community. We achieve this purpose by (1) describing an innovative CBPR model and pilot projects that involved African Americans with SPMI in all stages of the research project; and (2) presenting findings from qualitative interviews conducted with CBPR team members about strengths, challenges and leadership particular to this model of CBPR, an area rarely explored in CBPR literature. With the guidance of an advisory board and the manualised IC curriculum, two CBPR teams initiated and conducted nine-month long research projects focusing on health disparities for African Americans with SPMI. Members of the two CBPR teams (n = 13), which included individuals with lived experience, service providers and researchers, completed qualitative interviews. Benefits of CBPR projects included opportunities to learn, a sense of purpose in helping others and increased trust of research participants. Challenges pertained to disorganisation of leadership, lack of transparency with compensation, time pressures and interpersonal conflicts. These challenges highlight the importance of preparing and supporting those from both academic and lived experience backgrounds in skills necessary to thrive in leadership roles for CBPR projects.  


2018 ◽  
Vol 42 (4) ◽  
pp. 445 ◽  
Author(s):  
Nicola Hancock ◽  
Justin Newton Scanlan ◽  
James A. Gillespie ◽  
Jennifer Smith-Merry ◽  
Ivy Yen

Objective Partners in Recovery (PIR) is an Australian government initiative designed to provide support and service linkage for individuals with complex needs living with severe and persistent mental illness. The aim of the present study was to examine whether consumers engaged in PIR programs in two large regions of Sydney experienced: (1) a reduction in unmet needs (either via self- or staff report); and (2) progress in their self-reported mental health recovery. Methods Unmet needs were measured using the Camberwell Assessment of Need Short Appraisal Scale and recovery was measured using the Recovery Assessment Scale – Domains and Stages. For individuals with initial and follow-up data, paired t-tests were used to examine change over time. Results At follow-up, individuals reported an average of two to three fewer unmet needs, and recovery scores increased by approximately 5% across each domain and the total score. At follow-up, the most common unmet needs were in the areas of ‘company’ and ‘daytime activities’. Conclusions The results of the present study suggest that PIR services in these two geographical regions have achieved positive results. Individuals with severe and persistent mental illness engaged with PIR appear to have reduced their unmet needs and enhanced their mental health recovery. What is known about the topic? PIR services were established to support individuals with severe and persistent mental illness by creating service linkages to address unmet needs in order to facilitate recovery. Services were delivered through the new role of ‘support facilitator’. What does this paper add? By examining routinely collected outcome measures, this paper shows the success of the PIR program. Individuals engaged with PIR reported fewer unmet needs and enhanced recovery over the time they were involved with the program. However, they still faced serious challenges in building successful social interactions, such as developing friendships, and participating in meaningful activities. What are the implications for practitioners? The support facilitator role developed as part of PIR appears to be a useful method of supporting individuals to reduce unmet needs and enhance recovery. However, further work is required to address the challenges associated with overcoming social isolation and participation in meaningful activities.


2021 ◽  
pp. JARC-D-20-00005
Author(s):  
Randall Boen ◽  
Derek Ruiz

The Rehabilitation Counseling profession has foundations in disability awareness and acknowledges disability stigma as a barrier to full participation. Graduate-level rehabilitation counseling programs assist students with self-evaluation and examination of attitudes toward individuals with disabilities. Effective service providers are seen as having knowledge of how social attitudes play a part in issue of inclusion and full participation. Mental health is an area that has historically drew considerable attention. However, barriers to effective service delivery still persist and may include the stigma toward individuals with mental illness. Attitude formation and the implications of stigma will be provided in this conceptual article. This literature review will include an overview of factors that may contribute to stigmatizing reactions. Recommendations for graduate educational programs are discussed including best practices. These include creating a learning environment that focuses on student’s awareness, knowledge, and skills surrounding issues that affect individuals with severe and persistent mental illness.


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