scholarly journals Patient Perspectives on Peer Mentoring

2014 ◽  
Vol 41 (1) ◽  
pp. 59-68 ◽  
Author(s):  
Yang Lu ◽  
Elizabeth A. Pyatak ◽  
Anne L. Peters ◽  
Jamie R. Wood ◽  
Michele Kipke ◽  
...  
Keyword(s):  
Young Adults ◽  
Blood Glucose ◽  
Text Messaging ◽  
Peer Mentoring ◽  
Diabetes Management ◽  
Adolescents And Young Adults ◽  
Management Skills ◽  
Convenience Sample ◽  
Communication Modes ◽  
Large Household

Purpose The purpose of the study was to identify attitudes and topics relevant to peer mentoring as an adherence-promoting intervention for adolescents and young adults (YAs) with type 1 diabetes (T1D). Methods Self-administered survey data were collected in 2 diabetes clinics from a convenience sample of adolescents as prospective mentees (ages 13-18) and YAs as prospective mentors (ages 19-25) with T1D. Survey topics included demographics, disease history, glycemic control, adherence, depression, barriers to disease management, social support, and interest in peer mentoring. Descriptive statistical analyses, thematic coding, and stepwise multivariate logistic regression were performed. Results A majority of the 54 adolescents and 46 YAs expressed interest in a peer mentoring program. Having supportive friends and living in a large household positively predicted adolescent interest in having a peer mentor. Approximately one-third of all participants experienced social barriers to diabetes management. For adolescents, barriers included inflexible schedules, unfamiliar foods, and the embarrassment of checking blood glucose in front of others. Young adults reported barriers in tracking food consumption and remembering to check blood glucose. Various diabetes management skills were in high demand by adolescents, who especially desired to learn about managing T1D on their own and in college. Participants were open to multiple communication modes, including in-person meetings, phone, text messaging, and social media. Conclusions Many adolescents and young adults with T1D are interested in peer mentoring as a way to facilitate learning and sharing essential diabetes management skills and experiences.

Growing up with congenital heart disease: the dilemmas of adolescents and young adults

1998 ◽  
Vol 8 (3) ◽  
pp. 303-309 ◽  
Author(s):  
Elizabeth M. Tong ◽  
Patricia S.A. Sparacino ◽  
DeAnne K.H. Messias ◽  
Dru Foote ◽  
Catherine A. Chesla ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Young Adults ◽  
Heart Disease ◽  
Congenital Heart ◽  
Adolescents And Young Adults ◽  
Clinical Population ◽  
Subjective Experiences ◽  
Convenience Sample ◽  
Dependence Versus ◽  
Psychosocial Concerns

AbstactAdvances in diagnosis, medical management and surgical intervention have improved the longevity and quality of life for children with congenital heart disease. Despite this, research studies specifically examining the psychosocial concerns of adolescents and young adults with congenital heart disease are few. To explore the subjective experiences and dilemmas of this population during the transition from adolescence to young adulthood, we interviewed, using a semi-structured protocol, a convenience sample of nine adolescents and young adults. Using analytic procedures inherent in Grounded Theory methodology, seven themes were identified: the dilemma of normality; dilemmas in disclosure; dilemmas in strategies for management of illness; the challenge of social integration versus social isolation; the challenge of dependence versus independence; the challenge of uncertainty; and strategies for coping. An understanding of these experiences by health professionals can be beneficial in helping this clinical population as they grow up and face the challenges of an uncertain, yet promising, future.

Prompting Healthy Behavior via Text Messaging in Adolescents and Young Adults

2011 ◽  
Vol 5 (3) ◽  
pp. 247-252 ◽  
Author(s):  
Karen E. Preston ◽  
Tara A. Walhart ◽  
Ann L. O'Sullivan
Keyword(s):  
Young Adults ◽  
Text Messaging ◽  
Adolescents And Young Adults ◽  
Healthy Behavior

Usefulness of Cellular Text Messaging for Improving Adherence Among Adolescents and Young Adults with Systemic Lupus Erythematosus

2011 ◽  
Vol 39 (1) ◽  
pp. 174-179 ◽  
Author(s):  
TRACY V. TING ◽  
DEEPA KUDALKAR ◽  
SHANNEN NELSON ◽  
SANDRA CORTINA ◽  
JOSHUA PENDL ◽  
...  
Keyword(s):  
Systemic Lupus Erythematosus ◽  
Young Adults ◽  
Medication Adherence ◽  
Disease Activity ◽  
Lupus Erythematosus ◽  
Text Messaging ◽  
Adolescents And Young Adults ◽  
Systemic Lupus ◽  
Visit Adherence ◽  
Clinic Visits

Objective.In a cohort of 70 patients with childhood-onset systemic lupus erythematosus (cSLE): to determine the baseline adherence to medications and visits; to investigate the effects of cellular text messaging reminders (CTMR) on adherence to clinic visits; and to study the influence of CTMR on adherence to use of hydroxychloroquine (HCQ).Methods.CTMR were sent to 70 patients prior to clinic visits for 14 months. A subgroup of patients were evaluated for medication adherence to HCQ: 19 patients receiving CTMR prior to each scheduled HCQ dose were compared to 22 patients randomized to standard of care education about HCQ. Visit adherence was measured using administrative databases. Pharmacy refill information, self-report of adherence, and HCQ blood levels were utilized to monitor medication adherence to HCQ. Sufficient adherence to visits or HCQ was defined as estimates > 80%. Disease activity was primarily monitored with the Systemic Lupus Erythematosus Disease Activity Index.Results.At baseline, 32% of patients were sufficiently adherent to HCQ, and 81% to clinic visits. Visit adherence improved significantly by > 80% among those who were nonadherent to clinic visits at the baseline CTMR (p = 0.01). CTMR did not influence adherence to HCQ over time.Conclusion.Patients with cSLE were only modestly adherent to HCQ and clinic visits. CTMR may be effective for improving visit adherence among adolescents and young adults with cSLE, but it does not improve adherence to HCQ.

Feasibility and acceptability of a pilot tailored text messaging intervention for adolescents and young adults completing cancer treatment

2019 ◽  
Vol 29 (1) ◽  
pp. 164-172 ◽  
Author(s):  
Lisa A. Schwartz ◽  
Lauren C. Daniel ◽  
Dare Henry‐Moss ◽  
Christopher P. Bonafide ◽  
Yimei Li ◽  
...  
Keyword(s):  
Young Adults ◽  
Cancer Treatment ◽  
Text Messaging ◽  
Adolescents And Young Adults ◽  
Text Messaging Intervention

Development and Usability of a Text Messaging Program for Women with Gestational Diabetes: Mixed Methods Study (Preprint)

2021 ◽  
Author(s):  
Rachel A. Blair ◽  
Christine E. Horn ◽  
Jennifer M. Dias ◽  
Marie E. McDonnell ◽  
Ellen W. Seely
Keyword(s):  
Blood Glucose ◽  
Gestational Diabetes ◽  
User Experience ◽  
Text Messaging ◽  
Diabetes Management ◽  
Secondary Outcome ◽  
Program Text ◽  
Usability Study ◽  
Maternal Complications ◽  
Self Monitoring

BACKGROUND Gestational diabetes mellitus (GDM) affects 5-10% of pregnancies and can lead to serious fetal and maternal complications. SMS text messaging is an effective way to improve diabetes management outside of pregnancy, but has not been well studied in GDM. OBJECTIVE This study aimed to perform user experience testing and assess usability and acceptability of a text messaging program (Text 4 Success) for women with GDM. METHODS An automated two-way texting program was developed. It included: 1) reminders to check blood glucoses, 2) positive feedback to user-reported glucoses, 3) weekly educational messages and 4) weekly motivational messages. For the user experience testing, women received simulated messages. For the usability study, women were enrolled in the program and received messages for 2 weeks. All women participated in semi-structured interviews. For women in the usability study, glucose measuring devices were downloaded to assess adherence to self-monitoring of blood glucose (SMBG), measured as the percent of recommended SMBG checks performed (a secondary outcome). RESULTS Ten women participated in user experience testing. Suggestions for optimization included further customization of message timing and minimization of jargon which were incorporated. Ten women participated in the usability study. All 10 would recommend the program to other women with GDM. Participants liked the immediate feedback to glucose values. Suggestions included further flexibility of messages related to mealtimes and the ability to aggregate blood glucose data into a table or graph. Overall, adherence to SMBG testing was high at baseline (>90%). In comparing the week prior to the trial to the two weeks during the trial, there was a small but statistically insignificant difference in the percentage of recommended SMBG performed (median 93% [5 to 95 percentile 82-100%] vs median 97% [83-100%]). CONCLUSIONS Overall, women with GDM would recommend the Text 4 Success in GDM program and think it is helpful for GDM self-management. The program was usable and acceptable. The program may be better suited to those who have a low adherence to self-monitoring of blood glucose at baseline. Adaptations to the program will be made based on user suggestions. Further study of text messaging to improve SMBG in GDM is needed.

scholarly journals Text message reminders as an adjunct to a substance use intervention for adolescents and young adults: Pilot feasibility and acceptability findings

2020 ◽  
Vol 6 ◽  
pp. 205520762096505
Author(s):  
Frank J Schwebel ◽  
Mary E Larimer
Keyword(s):  
Substance Use ◽  
Young Adults ◽  
Drug Use ◽  
Text Messaging ◽  
Text Message ◽  
Text Messages ◽  
Adolescents And Young Adults ◽  
Message Content ◽  
Acceptable Method ◽  
Pilot Intervention

Objective Text messaging has been proposed as a method for increasing the reach of interventions for harmful alcohol and other drug use. This paper describes the design of an automated text messaging adjunct to a substance use intervention intended to support adolescents and young adults attempting to change their alcohol and other drug use behavior. Feasibility and acceptability testing was conducted as part of this pilot study. Method Five focus groups were conducted to refine text message content and finalize pilot intervention design. Automated, daily, substance use-related reminder text messages were sent to pilot intervention participants ( n = 39), who were recruited from outpatient treatment. Results Of those who were invited, 63% enrolled in the study and 89.7% remained enrolled in the study as measured by completing at least one assessment after baseline. Participants reported a positive experience with the messages, particularly supportive/empowering messages and commitment reminder messages. Conclusions These findings suggest that text messaging is a feasible and acceptable method for delivery of substance use-related reminder content as an adjunct to substance use intervention.

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