Examination of psychometric properties of PROMIS®: Pediatric upper limb measures in youth with cerebral palsy

2018 ◽  
Vol 81 (7) ◽  
pp. 393-401 ◽  
Author(s):  
Mary Jane Mulcahey ◽  
Mary D Slavin ◽  
Ni Pengsheng ◽  
Anna Kratz ◽  
Pamela A Kisala ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Young People ◽  
Upper Limb ◽  
Short Form ◽  
Limb Function ◽  
Cross Sectional ◽  
Adaptive Tests ◽  
Upper Limb Function ◽  
Ceiling Effects ◽  
Computer Adaptive Tests

Introduction This study examines the validity and distribution characteristics of the PROMIS® pediatric upper limb measures in a sample of young people with cerebral palsy. Method Data are a cross-sectional subset of a larger prospective study of the responsiveness to change of PROMIS® pediatric measures following surgery to improve functioning in young people with cerebral palsy. Ninety-three participants between the ages of eight and 21 years completed the PROMIS® pediatric mobility and upper limb computer adaptive tests and short forms in conjunction with a set of static “legacy” measures of physical functioning, including a parent-report of upper limb function. Results The PROMIS® Pediatric upper limb short form demonstrated acceptable internal consistency (Cronbach’s alpha = 0.85). PROMIS® pediatric upper limb computer adaptive tests and short form mean values (42.1(11) and 43(10.4), respectively) were nearly 1 SD below normal, which is appropriate when a generic measure is used in a sample of young persons with cerebral palsy. The PROMIS® pediatric upper limb computer adaptive tests had a higher frequency of ceiling effects (29.50%) compared to the short form (18.30%). Conclusion Results of this study suggest that the PROMIS® pediatric upper limb computer adaptive tests and the short form are valid indicators of upper limb function in young people with cerebral palsy. The item bank can be replenished to address ceiling effects.

scholarly journals The Dynamic Thumb-in-Palm Pattern in Children with Spastic Cerebral Palsy and Its Effects on Upper Limb Function

Children ◽  
2020 ◽  
Vol 8 (1) ◽  
pp. 17
Author(s):  
Ja Young Choi ◽  
Dong-Wook Rha ◽  
Seon Ah Kim ◽  
Eun Sook Park
Keyword(s):  
Cerebral Palsy ◽  
Upper Limb ◽  
Multivariable Analysis ◽  
Spastic Cerebral Palsy ◽  
Type I ◽  
Upper Arm ◽  
Limb Function ◽  
Upper Limb Function ◽  
Limb Deformities ◽  
Arm Function

The thumb-in-palm (TIP) pattern is one of the most common upper limb deformities in cerebral palsy (CP). This study was designed to investigate the effect of the dynamic TIP pattern on upper limb function in children with spastic CP. This prospective observational study included a total of 106 children with CP with dynamic TIP. The House TIP classification while grasping small or large objects, Melbourne Assessment of Unilateral Upper Limb Function (MUUL), Shriners Hospital Upper Extremity Evaluation (SHUEE), Zancolli classification for wrist–finger flexor deformity, and degree of swan neck deformity were assessed. Type I was the most common and highest functioning House TIP classification type. However, there were no significant differences in upper arm function between types II, III, and IV. The three components of the SHUEE showed stronger association with MUUL than House TIP and Zancolli classifications. After multivariable analysis, functional use of the wrist–finger and the thumb played a more significant role than the dynamic alignment of the thumb. In conclusion, the House TIP classification is useful to describe the TIP pattern. The SHUEE thumb assessment is a useful tool for reflecting upper arm function. The upper arm function was related more with the associated wrist flexor deformity than dynamic TIP.

Upper Limb Function, Kinematic Analysis, and Dystonia Assessment in Children With Spastic Diplegic Cerebral Palsy and Periventricular Leukomalacia

2017 ◽  
Vol 32 (11) ◽  
pp. 936-941 ◽  
Author(s):  
Roser Pons ◽  
Athanasios Vanezis ◽  
Helen Skouteli ◽  
Antigoni Papavasiliou ◽  
Magda Tziomaki ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Upper Limb ◽  
Kinematic Analysis ◽  
Periventricular Leukomalacia ◽  
Limb Function ◽  
Upper Limb Function

scholarly journals The use of computer adaptive tests in outcome assessments following upper limb trauma

2018 ◽  
Vol 100-B (6) ◽  
pp. 693-702 ◽  
Author(s):  
P. Jayakumar ◽  
C. L. Overbeek ◽  
A-M. Vranceanu ◽  
M. Williams ◽  
S. Lamb ◽  
...  
Keyword(s):  
Outcome Measures ◽  
Upper Limb ◽  
Methodological Quality ◽  
Outcome Measurement ◽  
Health Measurement ◽  
Adaptive Tests ◽  
Number Of Patients ◽  
Patient Reported ◽  
Ceiling Effects ◽  
Computer Adaptive Tests

Aims Outcome measures quantifying aspects of health in a precise, efficient, and user-friendly manner are in demand. Computer adaptive tests (CATs) may overcome the limitations of established fixed scales and be more adept at measuring outcomes in trauma. The primary objective of this review was to gain a comprehensive understanding of the psychometric properties of CATs compared with fixed-length scales in the assessment of outcome in patients who have suffered trauma of the upper limb. Study designs, outcome measures and methodological quality are defined, along with trends in investigation. Materials and Methods A search of multiple electronic databases was undertaken on 1 January 2017 with terms related to “CATs”, “orthopaedics”, “trauma”, and “anatomical regions”. Studies involving adults suffering trauma to the upper limb, and undergoing any intervention, were eligible. Those involving the measurement of outcome with any CATs were included. Identification, screening, and eligibility were undertaken, followed by the extraction of data and quality assessment using the Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) criteria. The review is reported according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) criteria and reg istered (PROSPERO: CRD42016053886). Results A total of 31 studies reported trauma conditions alone, or in combination with non-traumatic conditions using CATs. Most were cross-sectional with varying level of evidence, number of patients, type of study, range of conditions and methodological quality. CATs correlated well with fixed scales and had minimal or no floor-ceiling effects. They required significantly fewer questions and/or less time for completion. Patient-Reported Outcomes Measurement Information System (PROMIS) CATs were the most frequently used, and the use of CATs is increasing. Conclusion Early studies show valid and reliable outcome measurement with CATs performing as well as, if not better than, established fixed scales. Superior properties such as floor-ceiling effects and ease of use support their use in the assessment of outcome after trauma. As CATs are being increasingly used in patient outcomes research, further psychometric evaluation, especially involving longitudinal studies and groups of patients with specific injuries are required to inform clinical practice using these contemporary measures. Cite this article: Bone Joint J 2018;100-B:693–702.

scholarly journals Upper limb function evaluation scales for individuals with cerebral palsy: a systematic review

2015 ◽  
Vol 27 (5) ◽  
pp. 1617-1620 ◽  
Author(s):  
Cibele Almeida Santos ◽  
Renata Calhes Franco de Moura ◽  
Roberta Delasta Lazzari ◽  
Arislander Jonathan Lopes Dumont ◽  
Luiz Alfredo Ferreira Braun ◽  
...  
Keyword(s):  
Systematic Review ◽  
Cerebral Palsy ◽  
Upper Limb ◽  
Function Evaluation ◽  
Limb Function ◽  
Upper Limb Function
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