scholarly journals Testing Times: The Social Life of Non-invasive Prenatal Testing

2020 ◽  
pp. 097172182096026
Author(s):  
Gareth M. Thomas ◽  
Barbara Katz Rothman ◽  
Heather Strange ◽  
Joanna E. Latimer

Non-invasive prenatal testing (NIPT) is a genomic technology used to predict the chance of a foetus having a genetic condition. Despite the immediacy of this technology’s integration into clinical practice, there is a dearth of evidence outlining how both patients and professionals experience NIPT on the ground. In this article, we draw upon our collective empirical research—specifically on earlier screening technologies (BKR), Down syndrome screening (GT), genetic screening/testing (JL) and NIPT (HS)—to outline the most pressing and often controversial issues which, we argue, remain unresolved and vital to consider regarding NIPT. We begin with a brief introduction to NIPT as a prenatal technology and the bodies of literature which unpack its ‘social life’. In what follows, BKR discusses NIPT within the context of her research on ‘the tentative pregnancy’ and diagnostic testing in the USA. In the following sections, GT, HS and JL identify different, but related, concerns with respect to NIPT, particularly around routinisation, commercialisation, choice, abortion, and configurations of disability and ‘normalcy’.

2019 ◽  
Vol 2 (2) ◽  
pp. 21-22
Author(s):  
Meghan Chevalier

With the advent of Non-Invasive Prenatal Testing, Chris Kaposy believes that more people should choose to parent children with Down Syndrome. Kaposy advocates for the Social Disability Model and recommends a normative pragmatic approach as standard. He makes use of both quantitative and qualitative evidence to support his position.


2015 ◽  
Vol 18 (5) ◽  
pp. 260-271 ◽  
Author(s):  
Elke Mersy ◽  
Christine E.M. de Die-Smulders ◽  
Audrey B.C. Coumans ◽  
Luc J.M. Smits ◽  
Guido M.W.R. de Wert ◽  
...  

2016 ◽  
Vol 13 (3) ◽  
pp. 4748
Author(s):  
Mustafa Şahin

This research aims to examine the reforms in social life in the early republican era in the perspective of the The New York Times (NYT) which is one of the most effective newspapers in the USA and the world. The research was made by way of analyzing documents is limited to 1923-1938; the NYT as a research source, and in the content of women rights, the development in education, the art, the transportation, and the clothing reform. The research has been prepared by scanning of the related period of NYT’s collection in the 1851-2015 years. In the newspaper, the articles about the social change of Turkey are generally newsworthy and the number of the writings as a comment about this subject is limited. Whatever the comments are related to Turkey, they were interest in Istanbul and its lifestyle. The themes of the research have been determined as women, education, art, transportation, and clothing. In the newspaper, the rational distribution of news and comments related to the period are as follows: women reform in Turkey is 30%, educational reform is 25%, art reform is 20%, recovery of transportation system is 13% and clothing reform is 12%. ÖzetBu araştırmanın amacı, erken cumhuriyet döneminin sosyal hayatındaki reformlarını Amerika’nın ve dünyanın en etkili gazetelerinden biri olan The New York Times (NYT) perspektifinden ele almaktır. Doküman inceleme yoluyla yapılan araştırma dönem olarak 1923-1938 tarihleriyle; kapsam olarak, kadın hakları, eğitimdeki gelişmeler, sanata yaklaşım, ulaşım ve kıyafet reformu; araştırma kaynağı olarak da NYT gazetesiyle sınırlandırılmıştır. Araştırma NYT’nin 1851-2015 yıllarındaki koleksiyonunun ilgili döneminin taranmasıyla hazırlanmıştır. Gazetede Türkiye’deki sosyal değişime ilişkin yazılar genellikle haber niteliklidir ve bu konuda yorum tarzındaki yazı sayısı sınırlıdır. Yapılan yorumlar her ne kadar Türkiye ile ilgili gibi görünse de ağırlıklı olarak İstanbul ele alınmıştır. Araştırmanın temaları kadın, eğitim, sanat, ulaşım ve kıyafet olarak belirlenmiştir. Gazetede dönemle ilgili haber ve yorumların oransal dağılımı şöyledir: Türkiye’de kadın reformu % 30, eğitim reform % 25, sanat reform % 20, ulaşım sisteminin iyileştirilmesi % 13, kıyafet reform % 12.


Gerontology ◽  
2017 ◽  
Vol 63 (3) ◽  
pp. 238-252 ◽  
Author(s):  
XinQi Dong ◽  
E-Shien Chang

Background: Social network research has become central to studies of health and aging. Its results may yield public health insights that are actionable and improve the quality of life of older adults. However, little is known about the social networks of older immigrant adults, whose social relationships often develop in the context of migration, compounded by cultural and linguistic barriers. Objectives: This report aims to describe the structure, composition, and emotional components of social networks in the Chinese aging population of the USA, and to explore ways in which their social networks may be critical to their health decision-making. Methods: Our data come from the PINE study, a population-based epidemiological study of community-dwelling older Chinese American adults, aged 60 years and above, in the greater Chicago area. We conducted individual interviews in participants' homes from 2011 until 2013. Based on sociodemographic and socioeconomic characteristics, this study computed descriptive statistics and trend tests for the social network measures adapted from the National Social Life, Health, and Aging Project study. Results: The findings show that older Chinese adults have a relatively small social network in comparison with their counterparts from other ethnic and racial backgrounds. Only 29.6% of the participants could name 5 close network members, and 2.2% could name 0 members. Their network composition was more heavily kin oriented (95.0%). Relationships with network members differed according to the older adults' sociodemographic and socioeconomic characteristics. Subgroup variations included the likelihood of discussing health-related issues with network members. Conclusion: This study highlights the dynamic nature of social networks in later-life Chinese immigrants. For healthcare practitioners, developing cost-effective strategies that can mobilize social network support remains a critical undertaking in health intervention. Longitudinal studies are needed to examine the causal impact of social networks on various domains of health.


Author(s):  
Robert P. Saldin

In the age of mass warfare, US engagement in foreign wars was an important force for state development. In particular, American wars spurred state growth, public capacities, regulatory oversight, and social reforms. These changes expanded government’s sphere of operations and recast American political, economic, and social life. Many of these changes were focused directly on veterans and the social problems that emerged in the aftermath of wars. Yet some of the changes were more broadly based and paved the way for future developments of the American welfare state. This war-based story complements the more familiar, domestic-based accounts of American state development. Notably, and in contrast with many European states, these changes were instituted in the USA even though there was very little war-wrought domestic destruction and no war-induced regime changes or social policy changes ordered by occupying powers.


2017 ◽  
Vol 216 (1) ◽  
pp. S121
Author(s):  
Anne H. Mardy ◽  
Julia Zachary ◽  
Rebecca Clifton ◽  
Karen Wou ◽  
Brynn Levy ◽  
...  

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