Caring for a Child with Cancer: Experiences of Jordanian Mothers

2021 ◽  
pp. 105477382110020
Author(s):  
Khulood K. Shattnawi ◽  
Heba Okour ◽  
Ahlam Alnatour ◽  
Nihaya Al-Sheyab ◽  
Lina Mrayan ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Emotional Response ◽  
Phenomenological Approach ◽  
Fear Of Death ◽  
Financial Resources ◽  
Role Transition ◽  
Care Providers ◽  
Socially Isolated ◽  
Dreaded Disease

The diagnosis of childhood cancer is one of the most serious and unexpected experiences a mother can endure. A descriptive phenomenological approach was used to explore the experiences of mothers of children diagnosed with cancer in Jordan. Themes that emerged include (1) Emotional response on knowing the diagnosis (feelings of shock, lack of preparedness, denial, and feelings of “paralysis”), (2) Fear of the dreaded disease (fear of suffering and fear of death), and (3) The challenges of the treatment journey (inadequate financial resources, role transition, and feeling socially isolated). This study describes the experiences of Jordanian mothers who care for their children diagnosed with cancer so that health care providers can develop strategies to provide adequate psychological support to these mothers.

Dancing With Death in the Dust of Coronavirus: The Lived Experience of Iranian Nurses

2020 ◽  
Vol 26 (4) ◽  
pp. e82-e89
Author(s):  
Fatemeh Bahramnezhad ◽  
Parvaneh Asgari
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Health Care Providers ◽  
Health Care Systems ◽  
Phenomenological Approach ◽  
Care Providers ◽  
Care Systems ◽  
Interpretative Phenomenological Approach ◽  
Communication Challenges ◽  
Novel Coronavirus

The novel coronavirus disease (COVID-19) pandemic as a public health emergency poses dramatic challenges for health-care systems. The experiences of health-care workers are important in planning for future outbreaks of infectious diseases. This study explored the lived experiences of 14 nurses in Tehran, Iran caring for coronavirus patients using an interpretative phenomenological approach as described by Van Manen. In-depth interviews were audio-recorded between March 10 and May 5, 2020. The essence of the nurses' experiences caring for patients with COVID-19 was categorized as three themes and eight subthemes: (a) Strong pressure because of coronavirus: initial fear, loneliness, communication challenges, exhaustion. (b) Turn threats into opportunities: improvement of nursing image, professional development. (c) Nurses' expectations: expectations of people, expectations of government. The findings of this study showed that identifying the challenges and needs of health-care providers is necessary to create a safe health-care system and to prepare nurses and expand their knowledge and attitudes to care for patients in new crises in the future.

scholarly journals Emotional Responses And Perceived Stressors Of Frontline Medical Staffs In Case Of Addis Ababa Covid-19 Treatment Centers And Obstetrics Emergency And Abortion Care Clinic, Ethiopia; Analytical Cross Sectional Study

2020 ◽  
Author(s):  
Mebratu Kebede ◽  
Dereje Demissie ◽  
Dessalegn Guddu ◽  
Michael Haile ◽  
Zebenay Bitew ◽  
...  
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Health Care Providers ◽  
Emotional Response ◽  
Addis Ababa ◽  
Emotional Responses ◽  
Care Providers ◽  
Front Line ◽  
Care Clinic ◽  
Abortion Care

Abstract Background: the rapid spread of COVID-19, its lethality in severe cases and the absence of specific medicine poses a huge threat to human life and health, as well as huge impact on the mental health. Facing this critical situation, health care workers on the front line who are directly involved in the diagnosis, treatment, and care of patients with COVID-19 are at risk of developing psychological distress and other mental health symptoms including emotional disturbance.Objective: the aim of this study will be to assess the current state of emotional responses and perceived stressors of frontline medical staffs in case of Addis Ababa COVID-19 Treatment Centers and obstetrics emergency and abortion care, Ethiopia 2020Methods: Hospital based comparative cross-section study design was conducted by using self-administered questionnaire survey from June 1st to 30th of 2020 among 133 and 266 frontline medical staffs from obstetric emergency and abortion care clinic and COVID-19 treatment centers respectively. The data were collected after getting written consent from each participant and it entered into the computer using Epi-data version 7, then exported to SPSS version 20 for further analysis. Descriptive analysis was done using frequencies & percent. All independent determinants with P-value <0.05 were used to identify important predictors of emotional responses and perceived stressors. Result; A total of 399 frontline medical staffs were included in the study. The mean age of the respondents of those who were working in obstetrics emergency and abortion care clinic was 27.47 (SD=3.46) years and it was 28.12 (SD=4.09) years for the other groups. This study revealed that, 72.9% and 5.6% of the study participant from obstetrics emergency and abortion clinic and COVID-19 treatment centers had a positive emotional response, respectively. Factors such as having a low level of motivational factors (AOR 2.78, 95% CI (1.13, 6.84)), being a nurse (AOR 10.53, 95% CI (1.31, 85.26)) and working at triage (AOR 8.61, 95% CI (1.15, 64.81))) had statistically significant association with negative emotional response.Conclusion; The current study revealed that a high proportion of front line a negative emotional responses had negative emotional response. Further, almost all of the medical staffs working in COVID-19 treatment centers and at obstetrics emergency and abortion care unit had perceived the outbreak related stressors. So, providing comprehensive psychological support is warranted for health care providers working in such kinds of department or units.

Seeing the Patient and Family Through: Nurses and Physicians Experiences With Withdrawal of Life-Sustaining Therapy in the ICU

2018 ◽  
Vol 36 (1) ◽  
pp. 13-23 ◽  
Author(s):  
Debra L. Wiegand ◽  
Jooyoung Cheon ◽  
Giora Netzer
Keyword(s):  
Health Care ◽  
Critical Care ◽  
Data Analysis ◽  
Health Care Providers ◽  
Quality Care ◽  
Phenomenological Approach ◽  
Critical Care Nurses ◽  
Care Providers ◽  
Therapy Decision ◽  
Nurses And Physicians

Withdrawal of life-sustaining therapy at the end of life is a complex phenomenon. Intensive care nurses and physicians are faced with caring for patients and supporting families, as these difficult decisions are made. The purpose of this study was to explore and describe the experience of critical care nurses and physicians participating in the process of withdrawal of life-sustaining therapy. A hermeneutic phenomenological approach was used to guide this qualitative investigation. Interviews were conducted with critical care nurses and physicians from 2 medical centers. An inductive approach to data analysis was used to understand similarities between the nurses and the physicians’ experiences. Methodological rigor was established, and data saturation was achieved. The main categories that were inductively derived from the data analysis included from novice to expert, ensuring ethical care, uncertainty to certainty, facilitating the process, and preparing and supporting families. The categories aided in understanding the experiences of nurses and physicians, as they worked individually and together to see patients and families through the entire illness experience, withdrawal of life-sustaining therapy decision-making process and dying process. Understanding the perspectives of health-care providers involved in the withdrawal of life-sustaining therapy process will help other health-care providers who are striving to provide quality care to the dying and to their families.

scholarly journals Challenges experienced by mothers caring for children with cerebral palsy in Zambia

2015 ◽  
Vol 71 (1) ◽  
Author(s):  
Carol Singogo ◽  
Margaret Mweshi ◽  
Anthea Rhoda
Keyword(s):  
Health Care ◽  
Cerebral Palsy ◽  
Social Isolation ◽  
Health Care Providers ◽  
Health Care Professionals ◽  
Care Providers ◽  
Community Members ◽  
Marital Problems ◽  
Children With Cerebral Palsy ◽  
Socially Isolated

Background: Mothers caring for children with disability experience a number of challenges.Aim: The aim of the study was to explore the challenges that mothers who cared for children with cerebral palsy (CP) living in Zambia experienced.Methods: During a qualitative study the experiences of 16 conveniently sampled mothers of children with CP, from the Ndola district in Zambia, were explored by means of interviews. The responses were thematically analysed. All the necessary ethical considerations were upheld.Results: Mothers experienced social isolation and marital problems, as well as negative attitudes from family, friends, community members and health care professionals. The physical environment created access challenges because of a lack of sidewalks, ramps, functioning lifts and small indoor spaces.Conclusion: Mothers of children with CP feel socially isolated owing to a lack of support from family, community members, and health care providers. This social isolation was exacerbated by attitudes of others towards the mothers; it was felt that mothers were responsible for their children’s condition. Mothers also experienced marital problems as a result of having a child with CP.

scholarly journals Patients' experiences of peritoneal dialysis at home: a phenomenological approach

2012 ◽  
Vol 20 (1) ◽  
pp. 68-75 ◽  
Author(s):  
Maria Lúcia Araújo Sadala ◽  
Gabriela Azevedo de Souza Bruzos ◽  
Estela Regina Pereira ◽  
Edwa Maria Bucuvic
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Phenomenological Approach ◽  
Care Providers ◽  
Physical Pain ◽  
Positive Health ◽  
Home Dialysis ◽  
Uncertain Future ◽  
Positive Health Outcomes ◽  
Meaning Of Home

The aim of this study was to highlight the meaning of home dialysis as experienced by patients with chronic renal failure. The research design was influenced by Ricoeur´s phenomenology. Nineteen patients from a Brazilian public hospital were interviewed, from May to September 2009. Interviews were guided by the question: "Tell me about your experiences lived undergoing PD". Findings unveiled the patients' perception of the drastic changes in their existence, consequent to disease and treatment; and the perception of themselves in that process. The feeling of anguish, physical pain and deprivations were part of living that condition. They foresee an uncertain future, depending on the expertise of health care providers and the demands on support of significant others. Findings suggest that individual aspects of patients' experiences must be considered if health care providers are to facilitate positive health outcomes.

scholarly journals Emotional responses and perceived stressors of frontline medical staffs in case of COVID-19 treatment centers and obstetrics emergency in Ethiopia

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Mebratu Abraha Kebede ◽  
Dereje Bayissa Demissie ◽  
Dessalegn Kenay Guddu ◽  
Michael Temane Haile ◽  
Zebenay Workneh Bitew ◽  
...  
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Health Care Providers ◽  
Emotional Response ◽  
Addis Ababa ◽  
Emotional Responses ◽  
Care Providers ◽  
Front Line ◽  
Care Clinic ◽  
Abortion Care

Abstract Background the rapid spread of COVID-19, its lethality in severe cases and the absence of specific medicine poses a huge threat to human life and health, as well as huge impact on the mental health. Facing this critical situation, health care workers on the front line who are directly involved in the diagnosis, treatment, and care of patients with COVID-19 are at risk of developing psychological distress and other mental health symptoms including emotional disturbance. Objective the aim of this study will be to assess the current state of emotional responses and perceived stressors of frontline medical staffs in case of Addis Ababa COVID-19 Treatment Centers and obstetrics emergency and abortion care, Ethiopia 2020. Methods Hospital based comparative cross-section study design was conducted by using self-administered questionnaire survey from June 1st to 30th of 2020 among 133 and 266 frontline medical staffs from obstetric emergency and abortion care clinic and COVID-19 treatment centers respectively. The data were collected after getting written consent from each participant and it entered into the computer using Epi-data version 7, then exported to SPSS version 20 for further analysis. Descriptive analysis was done using frequencies & percent. All independent determinants with P-value < 0.05 were used to identify important predictors of emotional responses and perceived stressors. Result A total of 399 frontline medical staffs were included in the study. The mean age of the respondents of those who were working in obstetrics emergency and abortion care clinic was 27.47 (SD, 3.46) years and it was 28.12 (SD, 4.09) years for the other groups. This study revealed that, 72.9 and 5.6% of the study participant from obstetrics emergency and abortion clinic and COVID-19 treatment centers had a positive emotional response, respectively. Factors such as having a low level of motivational factors (AOR 2.78, 95% CI (1.13, 6.84)), being a nurse (AOR 10.53, 95% CI (1.31, 85.26)) and working at triage (AOR 8.61, 95% CI (1.15, 64.81))) had statistically significant association with negative emotional response. Conclusion The current study revealed that a high proportion of front line a negative emotional responses had negative emotional response. Further, almost all of the medical staffs working in COVID-19 treatment centers and at obstetrics emergency and abortion care unit had perceived the outbreak related stressors. So, providing comprehensive psychological support is warranted for health care providers working in such kinds of department or units.

scholarly journals Pengalaman Pasien yang Pernah Terpasang Ventilator

1970 ◽  
Vol 4 (1) ◽  
Author(s):  
Yani AF Bastian ◽  
Suryani Suryani ◽  
Etika Emaliyawati
Keyword(s):  
Health Care ◽  
Mechanical Ventilation ◽  
Qualitative Study ◽  
Health Care Providers ◽  
Life Experience ◽  
Phenomenological Approach ◽  
Spiritual Needs ◽  
Care Providers ◽  
Self Image ◽  
Skilled Health

Jumlah pasien kritis yang terpasang ventilator menempati dua per tiga dari seluruh pasien ICU di Indonesia. Kondisi kritis dengan terpasang ventilator akan menimbulkan masalah fisik, psikososial dan spiritual. Tenaga kesehatan terutama perawat perlu memberikan asuhan keperawatan terhadap pasien ICU yang terpasang ventilator secara menyeluruh. Penelitian kualitatif terhadap pasien yang terpasang ventilator sangat diperlukan sebagai upaya untuk menggali secara mendalam pengalaman hidup pasien selama terpasang ventilator dan menemukan new insight (pemahaman baru) tentang pengalaman mereka. Penelitian ini menggunakan metode kualitatif dengan pendekatan fenomenologi. Data didapatkan dengan wawancara mendalam terhadap 6 partisipan yang terdiri dari 2 laki-laki dan 4 perempuan, usia antara 27–54 tahun, yang terpasang ventilator antara 4 sampai 27 hari dan mendapatkan sedasi yang minimal. Analisis data menggunakan metode Colaizzi. Ada 8 tema yang didapatkan dari pengalaman hidup pasien selama terpasang ventilator yaitu (1) hilangnya harapan dalam menjalani hidup, (2) merasa telah diambang kematian, (3) prosedur suction yang dilematis –antara nyaman dan tidaknyaman, (4) kehadiran orang terkasih sebagai spirit dalam melanjutkan hidup, (5) memandang penyakit sebagai rencana dari Tuhan, (6) memandang rendah citra diri, (7) pentingnya fasilitator dalam menjalani ritual keagamaan dan (8) keinginan untuk dirawat oleh tenaga kesehatan yang terampil. Individu yang hidup selama terpasang ventilator mengalami dilemma dengan prosedur suction, memiliki citra diri yang rendah, membutuhkan fasilitator dalam pemenuhan kebutuhan spiritual serta keinginan untuk dirawat oleh tenaga kesehatan yang terampil. Berkaitan dengan hal tersebut, pasien yang terpasang ventilator membutuhkan dukungan, pendampingan dan kemampuan yang terampil dari petugas kesehatan terutama dari perawat.Kata kunci: Pasien kritis, pengalaman hidup, ventilator. The Experience of Patients after using VentilatorAbstractThe number of critically ill patients with mechanical ventilation occupies almost two-thirds of all ICU patients in Indonesia. The critical condition with mechanical ventilation will be followed by many human responses such as physical, psychosocial and spiritual problems. Health care providers, especially nurses are demanded to provide holistic care to the patients with mechanical ventilation. Qualitative study can be used to explore the life experience of the patients with mechanical ventilation to gain new insights of their experience. This study is a qualitative study using phenomenological approach. The data was obtained by in-depth interviews to six participants consisting of two men and four women with age range from 27 to 54 years. The length of time with mechanical ventilation was between 4 to 27 days and they received a minimal sedation. The data was analyzed by Colaizzi method of analysis. There were eight themes found from this study: hopelessness in life, feel closer to dying, the suction procedure dilemma between comfortable and uncomfortable, the presence of loved ones as a spirit for continuing live, the assumption of disease as God planning, perceived low self-image, the importance of the facilitator in religious rituals as well as the desire to be treated by skilled health care personnel. Patients with mechanical ventilation who experienced suction procedure dilemma have low self-image. They need a facilitator for meeting their spiritual needs, and caring from skilled health care provider especially from nurses.Keywords: Life experience, mechanical ventilation, the critical Ill patient.

Perception of women toward childbirth positions among women on postnatal unit at Jimma Medical Center, Jimma town, South West Ethiopia: A Phenomenological Qualitative Study

2020 ◽  
Author(s):  
Bikila Jiregna ◽  
Tigist Demeke ◽  
Enatfenta Sewmehone ◽  
Gugsa Nemera
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Health Care Professionals ◽  
Medical Center ◽  
Phenomenological Approach ◽  
Lithotomy Position ◽  
Care Providers ◽  
Factors Affecting ◽  
Skill Gaps ◽  
Jimma Town

Abstract Background: The women have been giving birth at health facilities without considering their preference of birth positions. Accordingly, they routinely positioned at lithotomy position as standard medical practices during normal vertex vaginal childbirths, which results in negative maternal and neonatal outcomes. Thus, this study aimed to understand women’s perception of birth positions.Objective: To explore perception of women toward child birthing positions among women on postnatal unit at Jimma Medical Center, Jimma town, Ethiopia 2020.Methods and Materials: A descriptive phenomenological approach was employed among women from postnatal and maternity care providers were selected purposively. The audio was transcribed, translated, coded, and categorized to respective identified themes. Then, thematized by Archive for Technology, Lifeworld and Everyday Language.text interpretation (ATLAS.ti version 8) software for thematic analysis in triangulation with the quantitative findings.Results: The women and health care providers were responded on factors affecting the use of alternative birth positions in the health facility. The women were positioned at common supine positions due to women’s lack of awareness about birth positions, women’s passivity to respect their decision-making on their position of preference, and health care professionals’ knowledge and skill gaps on alternative childbirth positions.Conclusion and recommendations: The women were coerced and adopted birth positions directed by health care providers. Therefore, health care providers’ practice should be intensified through the provision and implementation of evidence-based alternative birth positions.

Malpractice & Negligence: Cal. Supreme Court Clarifies Negligence Provisions under State’s Elder Abuse Act

1999 ◽  
Vol 27 (2) ◽  
pp. 203-203
Author(s):  
Kendra Carlson
Keyword(s):  
Health Care ◽  
Supreme Court ◽  
Health Care Providers ◽  
Elder Abuse ◽  
Skilled Nursing Facility ◽  
Pressure Sores ◽  
Care Providers ◽  
Nursing Facility ◽  
Skilled Nursing ◽  
The Supreme Court

The Supreme Court of California held, in Delaney v. Baker, 82 Cal. Rptr. 2d 610 (1999), that the heightened remedies available under the Elder Abuse Act (Act), Cal. Welf. & Inst. Code, §§ 15657,15657.2 (West 1998), apply to health care providers who engage in reckless neglect of an elder adult. The court interpreted two sections of the Act: (1) section 15657, which provides for enhanced remedies for reckless neglect; and (2) section 15657.2, which limits recovery for actions based on “professional negligence.” The court held that reckless neglect is distinct from professional negligence and therefore the restrictions on remedies against health care providers for professional negligence are inapplicable.Kay Delaney sued Meadowood, a skilled nursing facility (SNF), after a resident, her mother, died. Evidence at trial indicated that Rose Wallien, the decedent, was left lying in her own urine and feces for extended periods of time and had stage I11 and IV pressure sores on her ankles, feet, and buttocks at the time of her death.

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