scholarly journals Patients' experiences of peritoneal dialysis at home: a phenomenological approach

2012 ◽  
Vol 20 (1) ◽  
pp. 68-75 ◽  
Author(s):  
Maria Lúcia Araújo Sadala ◽  
Gabriela Azevedo de Souza Bruzos ◽  
Estela Regina Pereira ◽  
Edwa Maria Bucuvic
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Phenomenological Approach ◽  
Care Providers ◽  
Physical Pain ◽  
Positive Health ◽  
Home Dialysis ◽  
Uncertain Future ◽  
Positive Health Outcomes ◽  
Meaning Of Home

The aim of this study was to highlight the meaning of home dialysis as experienced by patients with chronic renal failure. The research design was influenced by Ricoeur´s phenomenology. Nineteen patients from a Brazilian public hospital were interviewed, from May to September 2009. Interviews were guided by the question: "Tell me about your experiences lived undergoing PD". Findings unveiled the patients' perception of the drastic changes in their existence, consequent to disease and treatment; and the perception of themselves in that process. The feeling of anguish, physical pain and deprivations were part of living that condition. They foresee an uncertain future, depending on the expertise of health care providers and the demands on support of significant others. Findings suggest that individual aspects of patients' experiences must be considered if health care providers are to facilitate positive health outcomes.

Dancing With Death in the Dust of Coronavirus: The Lived Experience of Iranian Nurses

2020 ◽  
Vol 26 (4) ◽  
pp. e82-e89
Author(s):  
Fatemeh Bahramnezhad ◽  
Parvaneh Asgari
Keyword(s):  
Health Care ◽  
Lived Experience ◽  
Health Care Providers ◽  
Health Care Systems ◽  
Phenomenological Approach ◽  
Care Providers ◽  
Care Systems ◽  
Interpretative Phenomenological Approach ◽  
Communication Challenges ◽  
Novel Coronavirus

The novel coronavirus disease (COVID-19) pandemic as a public health emergency poses dramatic challenges for health-care systems. The experiences of health-care workers are important in planning for future outbreaks of infectious diseases. This study explored the lived experiences of 14 nurses in Tehran, Iran caring for coronavirus patients using an interpretative phenomenological approach as described by Van Manen. In-depth interviews were audio-recorded between March 10 and May 5, 2020. The essence of the nurses' experiences caring for patients with COVID-19 was categorized as three themes and eight subthemes: (a) Strong pressure because of coronavirus: initial fear, loneliness, communication challenges, exhaustion. (b) Turn threats into opportunities: improvement of nursing image, professional development. (c) Nurses' expectations: expectations of people, expectations of government. The findings of this study showed that identifying the challenges and needs of health-care providers is necessary to create a safe health-care system and to prepare nurses and expand their knowledge and attitudes to care for patients in new crises in the future.

scholarly journals Canadian Association of Paediatric Nephrologists COVID-19 Rapid Response: Home and In-Center Dialysis Guidance

2021 ◽  
Vol 8 ◽  
pp. 205435812110534
Author(s):  
Abdullah Alabbas ◽  
Elizabeth Harvey ◽  
Amrit Kirpalani ◽  
Chia Wei Teoh ◽  
Cherry Mammen ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Pediatric Patients ◽  
Practice Management ◽  
Peritoneal Dialysis Catheter ◽  
Care Providers ◽  
Dialysis Unit ◽  
Home Dialysis ◽  
Canadian Association ◽  
Kidney Health

Purpose of the program: This article provides guidance on optimizing the management of pediatric patients with end-stage kidney disease (ESKD) who will be or are being treated with any form of home or in-center dialysis during the COVID-19 pandemic. The goals are to provide the best possible care for pediatric patients with ESKD during the pandemic and ensure the health care team’s safety. Sources of information: The core of these rapid guidelines is derived from the Canadian Society of Nephrology (CSN) consensus recommendations for adult patients recently published in the Canadian Journal of Kidney Health and Disease ( CJKHD). We also consulted specific documents from other national and international agencies focused on pediatric kidney health. Additional information was obtained by formal review of the published academic literature relevant to pediatric home or in-center hemodialysis. Methods: The Leadership of the Canadian Association of Paediatric Nephrologists (CAPN), which is affiliated with the CSN, solicited a team of clinicians and researchers with expertise in pediatric home and in-center dialysis. The goal was to adapt the guidelines recently adopted for Canadian adult dialysis patients for pediatric-specific settings. These included specific COVID-19-related themes that apply to dialysis in a Canadian environment, as determined by a group of senior renal leaders. Expert clinicians and nurses with deep expertise in pediatric home and in-center dialysis reviewed the revised pediatric guidelines. Key findings: We identified 7 broad areas of home dialysis practice management that may be affected by the COVID-19 pandemic: (1) peritoneal dialysis catheter placement, (2) home dialysis training, (3) home dialysis management, (4) personal protective equipment, (5) product delivery, (6) minimizing direct health care providers and patient contact, and (7) caregivers support in the community. In addition, we identified 8 broad areas of in-center dialysis practice management that may be affected by the COVID-19 pandemic: (1) identification of patients with COVID-19, (2) hemodialysis of patients with confirmed COVID-19, (3) hemodialysis of patients not yet known to have COVID-19, (4) management of visitors to the dialysis unit, (5) handling COVID-19 testing of patients and staff, (6) safe practices during resuscitation procedures in a pandemic, (7) routine hemodialysis care, and (8) hemodialysis care under fixed dialysis resources. We make specific suggestions and recommendations for each of these areas. Limitations: At the time when we started this work, we knew that evidence on the topic of pediatric dialysis and COVID-19 would be severely limited, and our resources were also limited. We did not, therefore, do formal systematic review or meta-analysis. We did not evaluate our specific suggestions in the clinical environment. Thus, this article’s advice and recommendations are primarily expert opinions and subject to the biases associated with this level of evidence. To expedite the publication of this work, we created a parallel review process that may not be as robust as standard arms’ length peer-review processes. Implications: We intend these recommendations to help provide the best care possible for pediatric patients prescribed in-center or home dialysis during the COVID-19 pandemic, a time of altered priorities and reduced resources.

Seeing the Patient and Family Through: Nurses and Physicians Experiences With Withdrawal of Life-Sustaining Therapy in the ICU

2018 ◽  
Vol 36 (1) ◽  
pp. 13-23 ◽  
Author(s):  
Debra L. Wiegand ◽  
Jooyoung Cheon ◽  
Giora Netzer
Keyword(s):  
Health Care ◽  
Critical Care ◽  
Data Analysis ◽  
Health Care Providers ◽  
Quality Care ◽  
Phenomenological Approach ◽  
Critical Care Nurses ◽  
Care Providers ◽  
Therapy Decision ◽  
Nurses And Physicians

Withdrawal of life-sustaining therapy at the end of life is a complex phenomenon. Intensive care nurses and physicians are faced with caring for patients and supporting families, as these difficult decisions are made. The purpose of this study was to explore and describe the experience of critical care nurses and physicians participating in the process of withdrawal of life-sustaining therapy. A hermeneutic phenomenological approach was used to guide this qualitative investigation. Interviews were conducted with critical care nurses and physicians from 2 medical centers. An inductive approach to data analysis was used to understand similarities between the nurses and the physicians’ experiences. Methodological rigor was established, and data saturation was achieved. The main categories that were inductively derived from the data analysis included from novice to expert, ensuring ethical care, uncertainty to certainty, facilitating the process, and preparing and supporting families. The categories aided in understanding the experiences of nurses and physicians, as they worked individually and together to see patients and families through the entire illness experience, withdrawal of life-sustaining therapy decision-making process and dying process. Understanding the perspectives of health-care providers involved in the withdrawal of life-sustaining therapy process will help other health-care providers who are striving to provide quality care to the dying and to their families.

scholarly journals Lessons Learnt during the COVID-19 Pandemic: For Patients with End-Stage Renal Disease, We Should Prioritize Home-Based Treatment and Telemedicine

2021 ◽  
pp. 1-6
Author(s):  
Giuliano Brunori ◽  
Gianpaolo Reboldi ◽  
Filippo Aucella
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Health Care Professionals ◽  
Care Delivery ◽  
Cost Effective ◽  
Care Providers ◽  
Home Dialysis ◽  
Digital Revolution ◽  
Control Center ◽  
Home Based

<b><i>Backgrounds:</i></b> The recent coronavirus disease 2019 (CO­VID-19) pandemic has placed worldwide health systems and hospitals under pressure, and so are the renal care models. This may be a unique opportunity to promote and expand alternative models of health-care delivery in patients undergoing renal replacement therapies. <b><i>Summary:</i></b> Despite the high risk of acquiring communicable diseases when undergoing in-centre treatments, only a small proportion of patients are currently being treated with home therapies. Recent data provided by the Italian Society of Nephrology (SIN), the REIN French Registry and the Wuhan Hemodialysis Quality Control Center clearly show that patients receiving hospital-based treatment have a 3- to 4-fold greater risk of infection, and a subsequent fatality proportion between 21 and 34%. On the other hand, home-based therapy can be managed remotely, there is little or no need for transport to and from the hospital, and it is less expensive. Besides, the digital revolution in health care with the development of virtual care systems can make home dialysis with telehealth a cost-effective solution for both patients and health-care providers. Such a transition would require specific training for physicians and health-care professionals and a functional re-organization of dialysis centres to improve the skills and expertise in caring for patients at home. <b><i>Conclusion:</i></b> The need for more widespread home treatment is the main lesson learnt by nephrologists by the COVID-19 pandemic.

Caring for a Child with Cancer: Experiences of Jordanian Mothers

2021 ◽  
pp. 105477382110020
Author(s):  
Khulood K. Shattnawi ◽  
Heba Okour ◽  
Ahlam Alnatour ◽  
Nihaya Al-Sheyab ◽  
Lina Mrayan ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Emotional Response ◽  
Phenomenological Approach ◽  
Fear Of Death ◽  
Financial Resources ◽  
Role Transition ◽  
Care Providers ◽  
Socially Isolated ◽  
Dreaded Disease

The diagnosis of childhood cancer is one of the most serious and unexpected experiences a mother can endure. A descriptive phenomenological approach was used to explore the experiences of mothers of children diagnosed with cancer in Jordan. Themes that emerged include (1) Emotional response on knowing the diagnosis (feelings of shock, lack of preparedness, denial, and feelings of “paralysis”), (2) Fear of the dreaded disease (fear of suffering and fear of death), and (3) The challenges of the treatment journey (inadequate financial resources, role transition, and feeling socially isolated). This study describes the experiences of Jordanian mothers who care for their children diagnosed with cancer so that health care providers can develop strategies to provide adequate psychological support to these mothers.

Health Literacy and Multicultural Populations

2011 ◽  
Vol 18 (3) ◽  
pp. 79-87
Author(s):  
Mercedes Benitez McCrary ◽  
Eva Jackson Hester
Keyword(s):  
Health Care ◽  
Health Literacy ◽  
Health Care Providers ◽  
Care Providers ◽  
Low Literacy ◽  
Positive Health ◽  
Limited Health Literacy ◽  
Cultural Variations ◽  
Health Care Communication ◽  
Major Factors

Health literacy is recognized as one of the major factors related to positive health outcomes and involves understanding, accessing, and using health information to make necessary health decisions. However, many members of multicultural populations demonstrate limited health literacy due to language barriers, health-care providers' limited knowledge of cultural variations, health-care communication restrictions, and low literacy levels as related to educational attainment. These problems become more complex for people with speech, language, and hearing problems and result in higher risk for inadequate health literacy. In this article, we review the status of health literacy and health-care communication of multicultural populations and offer suggestions for speech-language pathologists and audiologists to improve health literacy.

scholarly journals The Environmental Causes of Cancer: A Literature Review

2010 ◽  
Vol 1 (1) ◽  
pp. 60
Author(s):  
Premal Patel ◽  
James Gomes
Keyword(s):  
Health Care ◽  
Social Media ◽  
Health Promotion ◽  
Health Care Providers ◽  
Low Cost ◽  
Age Groups ◽  
Easy Access ◽  
Care Providers ◽  
Positive Health ◽  
Interprofessional Communication

Social media holds considerable potential for health promotion and other health intervention activities, as it addresses some of the limitations in traditional health communication by increasing accessibility, interaction, engagement, empowerment and customization. The use of social media increases the potential for easy access to preventive medicine, interaction with health care providers, interprofessional communication in emergency management, and public health. However, more research is needed to determine its long term effectiveness and to maximize the strategic presence of health organizations on social networking websites. This paper provides encouraging information about the possibilities of using social media to improve access to health information and health care providers, as well as to promote positive health behaviour change. It is essential for health promotion organizations to capitalize on the opportunities provided by social media, in order to modernize strategies to reach all age groups and to tailor programs to current communication trends, all of which are offered at a relatively low cost. 

scholarly journals Pengalaman Pasien yang Pernah Terpasang Ventilator

1970 ◽  
Vol 4 (1) ◽  
Author(s):  
Yani AF Bastian ◽  
Suryani Suryani ◽  
Etika Emaliyawati
Keyword(s):  
Health Care ◽  
Mechanical Ventilation ◽  
Qualitative Study ◽  
Health Care Providers ◽  
Life Experience ◽  
Phenomenological Approach ◽  
Spiritual Needs ◽  
Care Providers ◽  
Self Image ◽  
Skilled Health

Jumlah pasien kritis yang terpasang ventilator menempati dua per tiga dari seluruh pasien ICU di Indonesia. Kondisi kritis dengan terpasang ventilator akan menimbulkan masalah fisik, psikososial dan spiritual. Tenaga kesehatan terutama perawat perlu memberikan asuhan keperawatan terhadap pasien ICU yang terpasang ventilator secara menyeluruh. Penelitian kualitatif terhadap pasien yang terpasang ventilator sangat diperlukan sebagai upaya untuk menggali secara mendalam pengalaman hidup pasien selama terpasang ventilator dan menemukan new insight (pemahaman baru) tentang pengalaman mereka. Penelitian ini menggunakan metode kualitatif dengan pendekatan fenomenologi. Data didapatkan dengan wawancara mendalam terhadap 6 partisipan yang terdiri dari 2 laki-laki dan 4 perempuan, usia antara 27–54 tahun, yang terpasang ventilator antara 4 sampai 27 hari dan mendapatkan sedasi yang minimal. Analisis data menggunakan metode Colaizzi. Ada 8 tema yang didapatkan dari pengalaman hidup pasien selama terpasang ventilator yaitu (1) hilangnya harapan dalam menjalani hidup, (2) merasa telah diambang kematian, (3) prosedur suction yang dilematis –antara nyaman dan tidaknyaman, (4) kehadiran orang terkasih sebagai spirit dalam melanjutkan hidup, (5) memandang penyakit sebagai rencana dari Tuhan, (6) memandang rendah citra diri, (7) pentingnya fasilitator dalam menjalani ritual keagamaan dan (8) keinginan untuk dirawat oleh tenaga kesehatan yang terampil. Individu yang hidup selama terpasang ventilator mengalami dilemma dengan prosedur suction, memiliki citra diri yang rendah, membutuhkan fasilitator dalam pemenuhan kebutuhan spiritual serta keinginan untuk dirawat oleh tenaga kesehatan yang terampil. Berkaitan dengan hal tersebut, pasien yang terpasang ventilator membutuhkan dukungan, pendampingan dan kemampuan yang terampil dari petugas kesehatan terutama dari perawat.Kata kunci: Pasien kritis, pengalaman hidup, ventilator. The Experience of Patients after using VentilatorAbstractThe number of critically ill patients with mechanical ventilation occupies almost two-thirds of all ICU patients in Indonesia. The critical condition with mechanical ventilation will be followed by many human responses such as physical, psychosocial and spiritual problems. Health care providers, especially nurses are demanded to provide holistic care to the patients with mechanical ventilation. Qualitative study can be used to explore the life experience of the patients with mechanical ventilation to gain new insights of their experience. This study is a qualitative study using phenomenological approach. The data was obtained by in-depth interviews to six participants consisting of two men and four women with age range from 27 to 54 years. The length of time with mechanical ventilation was between 4 to 27 days and they received a minimal sedation. The data was analyzed by Colaizzi method of analysis. There were eight themes found from this study: hopelessness in life, feel closer to dying, the suction procedure dilemma between comfortable and uncomfortable, the presence of loved ones as a spirit for continuing live, the assumption of disease as God planning, perceived low self-image, the importance of the facilitator in religious rituals as well as the desire to be treated by skilled health care personnel. Patients with mechanical ventilation who experienced suction procedure dilemma have low self-image. They need a facilitator for meeting their spiritual needs, and caring from skilled health care provider especially from nurses.Keywords: Life experience, mechanical ventilation, the critical Ill patient.

‘Working with the team’: an exploratory study of improved type 2 diabetes management in a new model of integrated primary/secondary care

2013 ◽  
Vol 19 (3) ◽  
pp. 207 ◽  
Author(s):  
Julie Hepworth ◽  
Deborah Askew ◽  
Claire Jackson ◽  
Anthony Russell
Keyword(s):  
Type 2 Diabetes ◽  
Health Care ◽  
Health Care Providers ◽  
Secondary Care ◽  
Diabetes Management ◽  
Care Providers ◽  
Positive Health ◽  
New Model ◽  
Patient Centred Care

This study aimed to explore how a new model of integrated primary/secondary care for type 2 diabetes management, the Brisbane South Complex Diabetes Service (BSCDS), related to improved diabetes management in a selected group of patients. We used a qualitative research design to obtain detailed accounts from the BSCDS via semi-structured interviews with 10 patients. The interviews were fully transcribed and systematically coded using a form of thematic analysis. Participants’ responses were grouped in relation to: (1) Patient-centred care; (2) Effective multiprofessional teamwork; and (3) Empowering patients. The key features of this integrated primary/secondary care model were accessibility and its delivery within a positive health care environment, clear and supportive interpersonal communication between patients and health care providers, and patients seeing themselves as being part of the team-based care. The BSCDS delivered patient-centred care and achieved patient engagement in ways that may have contributed to improved type 2 diabetes management in these participants.

Perception of women toward childbirth positions among women on postnatal unit at Jimma Medical Center, Jimma town, South West Ethiopia: A Phenomenological Qualitative Study

2020 ◽  
Author(s):  
Bikila Jiregna ◽  
Tigist Demeke ◽  
Enatfenta Sewmehone ◽  
Gugsa Nemera
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Health Care Professionals ◽  
Medical Center ◽  
Phenomenological Approach ◽  
Lithotomy Position ◽  
Care Providers ◽  
Factors Affecting ◽  
Skill Gaps ◽  
Jimma Town

Abstract Background: The women have been giving birth at health facilities without considering their preference of birth positions. Accordingly, they routinely positioned at lithotomy position as standard medical practices during normal vertex vaginal childbirths, which results in negative maternal and neonatal outcomes. Thus, this study aimed to understand women’s perception of birth positions.Objective: To explore perception of women toward child birthing positions among women on postnatal unit at Jimma Medical Center, Jimma town, Ethiopia 2020.Methods and Materials: A descriptive phenomenological approach was employed among women from postnatal and maternity care providers were selected purposively. The audio was transcribed, translated, coded, and categorized to respective identified themes. Then, thematized by Archive for Technology, Lifeworld and Everyday Language.text interpretation (ATLAS.ti version 8) software for thematic analysis in triangulation with the quantitative findings.Results: The women and health care providers were responded on factors affecting the use of alternative birth positions in the health facility. The women were positioned at common supine positions due to women’s lack of awareness about birth positions, women’s passivity to respect their decision-making on their position of preference, and health care professionals’ knowledge and skill gaps on alternative childbirth positions.Conclusion and recommendations: The women were coerced and adopted birth positions directed by health care providers. Therefore, health care providers’ practice should be intensified through the provision and implementation of evidence-based alternative birth positions.

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