The Relationship Between Mutuality and Health-Related Quality of Life in Adult Child Caregivers in China

2017 ◽  
Vol 23 (3) ◽  
pp. 366-391 ◽  
Author(s):  
Yuqin Pan ◽  
Patricia S. Jones ◽  
Patricia Pothier

The strain inherent in caregiving relationships between adult children and aging parents is a prominent issue in contemporary China due to a combination of demographic and socioeconomic changes. The purpose of this study was to explore how mutuality, a positive quality of caregiving relationships, contributes to the physical health and mental health (health-related quality of life [HRQoL]) of adult child caregivers [ACCs] of parent stroke survivors. A cross-sectional correlational study was conducted on a nonproportional quota sample of 126 ACCs, using questionnaires of demographics, the 15-item Mutuality Scale, and the Second Version of the Standard 12-Item Health Survey (SF-12v2). Higher mutuality was found to be correlated with better caregiver physical health and mental health. However, after adjusting for the covariates, mutuality significantly explained 4.6% of the variance of caregiver physical health (β = .22, ΔR2 = .046, p < .01) but it did not significantly explain the variance of caregiver mental health. Although multiple factors correlate with Chinese family caregivers’ HRQoL, this was the first study exploring the impact of caregiver–care receiver dyadic relationships on caregiver HRQoL in mainland China by using a mutuality scale with SF-12v2. Despite the fact that the Chinese tradition of filial piety can facilitate mutuality, socioeconomic changes and legislation that require adult children to care for aging parents appear to create high stress among family caregivers. Higher levels of mutuality contribute to better physical health in Chinese family caregivers. Therefore, culturally appropriate family nursing strategies and social policies in China could enhance caregiver mutuality and potentially promote their HRQoL, in particular physical health.

2021 ◽  
pp. 008124632110487
Author(s):  
Desmond U Onu ◽  
Charles Tochukwu Orjiakor ◽  
Nneoma G Onyedire ◽  
Lawrence O Amazue ◽  
Trust-Jah Allison

Studies on improving the health-related quality of life of stroke patients are abundant, but less attention has been given to the factors influencing the wellbeing of their family caregivers, especially in low- to middle-income countries such as Nigeria where the burden of stroke is expected to increase. In this study, we examined the moderating role of preparedness for caregiving in the connection between the burden of caregiving and health-related quality of life of family caregivers of stroke patients in Nigeria. Family caregivers of stroke patients (140 females and 60 males; aged between 18 and 57 years) were purposively sampled from a Federal Medical Center in Southeastern Nigeria. Participants completed measures of caregiver’s strain (burden), health-related quality of life, and preparedness to give care. Results showed that burden negatively predicted physical health (β = –.61, CI: [–.89, –.34]) and mental health (β = –.76, CI: [−1.07, –.45]) dimensions of the health-related quality of life, respectively. Results also showed that preparedness moderated the relationship between burden and physical health (β = .21, CI: [.11, .32]), as well as mental health (β = .24, CI: [.12, .35]) dimensions. Ensuring that caregivers of stroke patients are adequately prepared to give care could ameliorate the negative impacts of caregiving on health of family caregivers of stroke patients.


2019 ◽  
Vol 18 (1) ◽  
Author(s):  
Ilham Alia ◽  
M.A. Fauzi ◽  
S.S Ismail ◽  
Ezmas Mahno ◽  
A W Ahmad ◽  
...  

Introduction: Foot ulcer is one of the most serious complications associated with diabetes mellitus that mat resulted in a disability and impairment of health related quality of life. Materials and Methods: The main objective of this cross-sectional study was to determine the factors adversely associated with quality of life among diabetic foot ulcer patients. Diabetic patients with evidence of diabetic foot ulcer attending outpatient orthopaedics and general surgical clinic of Hospital Tengku Ampuan Afzan were recruited into this study. A set of validated SF-36 questionnaire was employed to evaluate the health-related quality of life for each patient. This study was registered with the National Medical Research Register (NMRR registration no. 17-1520-36332). Results: There is a slightly higher proportion of female among the 104 respondents. Its prevalence is most pronounces in the lower income group. Majority presented with Wagner stage 2 and 3. Amputation has been performed in 54% of these patients. Physical health score fair worse than mental health. Age, low socioeconomic status, presence of comorbidities, major amputation, ulcer at the forefoot and wheelchair usage associated with an adverse effect on the physical health aspect in these patients. Interestingly, smoker seems to score better on the mental health aspect of the quality of life. Conclusion: Diabetic foot ulcer affected physical health aspect much more than mental health aspect within the context of the quality of life.


2022 ◽  
Vol 21 (1) ◽  
pp. 90-95
Author(s):  
Md Abdul Qader ◽  
AKM Abu Mottaleb ◽  
Naznin Akter Shetu ◽  
Raonokosh Salehin Khan ◽  
Tanjima Ahad Nisha ◽  
...  

Objectives: Assessment of health related quality of life (HRQOL) is an essential part of evaluation of end stage renal disease (ESRD) as we have conducted this study on haemodialysis patients to see the HRQOL and to asses and compare the parameters which influence physical and mental health. Materials and Methods: This was a single centre study on haemodialysis patients using Short Form 36 (SF-36) of Kidney Disease Quality of Life (KDQOL). All the eight domains of HRQOL were assessed individually as well as summary scores for mental health (MCS Mental composite summary) and physical health (PCS Physical composite summary) were also evaluated. The questionnaire was completed by patient themselves and the clinical data was extracted from the medical records with prior consent from the patient. Results and discussion: The study participants showed a female predominance of 66% with a lower PCS and MCS scores among female participants in comparison to their male counterparts. Overall summary scores showed a lower PCS (38.71±8.15) than MCS (42.79±11.6) which reflects better mental health than physical health in the study population. A multiple regression analysis showed, the presence of residual renal function (β= -0.421, p= 0.02), duration of dialysis (β= 0.405, p= 0.03) and haemoglobin less than 12g/dL (β= 0.379, p= 0.02) were significant predictors of MCS. Conclusion: HRQOL in haemodialysis patients are influenced by socio-demographic as well as clinical parameters. In our population, kidney disease affects physical health more than mental health and the reasons are multifactorial. Bangladesh Journal of Medical Science Vol. 21(1) 2022 Page : 90-95


Author(s):  
Mehdi Rezaei Far ◽  
Farzad Faraji-Khiavi

Background: Nurses face a lot of stress in their jobs, and the quality of life has a significant impact on the quality of their services. Therefore, the purpose of this study was to determine the relationship between general health and the quality of life conditions in nurses working in hospitals affiliated with Jundishapur University of Medical Sciences in Ahvaz. Methods: This cross-sectional descriptive-analytic study was conducted in 2017 on nurses working in educational hospitals in Ahvaz. The sample size was 265. A categorized random sampling was used for the research The collected data were analyzed using mean, standard deviation, independent t-test, ANOVA, regresson and Pearson correlation tests. Data collection tools included the general health questionnaire (GHQ) and the questionnaire on health-related quality of life (HRQOL). Results: Nurses had fairly good general health (23.9 ± 12.4) and their health-related quality of life was moderate (60.29 ± 16.07). Their physical health (63.4 ± 22.5) was found better than their mental health (61.7 ± 20.3) as a factor in the health-related quality of life states. General health had a strong and negative correlation with the quality of life associated with physical health (P-value < 0.001 and r = - 0.61) and the quality of life associated with mental health (P-value < 0.001 and r = - 0.68). Conclusion: Many aspects of health-related quality of life are influenced by general health factors. Therefore, it is recommended that prevention, identification, and treatment of physical and psychological problems and factors affecting the quality of life be considered as a priority, leading to an improvement in nurses’ quality of life.


2003 ◽  
Vol 23 (2_suppl) ◽  
pp. 200-205 ◽  
Author(s):  
Setsuko Shimoyama ◽  
Orie Hirakawa ◽  
Keiko Yahiro ◽  
Toshimi Mizumachi ◽  
Andrea Schreiner ◽  
...  

Objective Recent studies have found that patients with chronic renal failure suffer from depression and other symptoms of decreased mental health. However, little is know about caregiver burden and mental health among patients’ families. In the present study, we examined the relationship in Japan between peritoneal dialysis (PD) patients and caregivers with regard to health-related quality of life (HRQOL) and caregiver burden. Method In March of 2002, we recruited 60 subjects—26 patients on continuous ambulatory peritoneal dialysis (CAPD), and 34 caregivers—from a PD patient support group in southern Japan. We used the Kidney Disease Quality of Life Short Form (KDQOL-SF) and the Medical Outcomes Study Short Form 36 (SF-36) to measure HRQOL. We used the Zarit Burden Interview (ZBI) to measure caregiver burden. Data was also collected on each patient's duration of illness, treatment modality, age, sex, and medical history. All data were collected by mail surveys. Results Mean age of the PD patients was 48.2; mean age of the caregivers was 46.6. Mean caregiver burden on the ZBI was 14.1, which is considerably lower than that reported among caregivers for patients with dementia or stroke. Caregivers and patients both rated their general health and vitality among the lowest of the eight dimensions on the KDQOL-SF. In addition, patients scored lower than a normative population in all dimensions and significantly lower than caregivers in the dimensions of role physical functioning, role emotional functioning, and social functioning. Compared to national normative data for their age group, caregivers scored substantially lower in general health, vitality, and mental health. Conclusions Patients on CAPD are at risk for social role dysfunction, and their caregivers are at risk for decreased mental health. Further research is needed to identify interventions that can improve the HRQOL of CAPD patients and their family caregivers.


Author(s):  
Cecilia Fagerström ◽  
Sölve Elmståhl ◽  
Lena Sandin Wranker

Abstract Background For a significant proportion of the older population, increasing age is associated with health problems and worsening health. Older family caregivers are largely responsible for care of next-of-kin living at home, which impacts their own physical and mental health both positively and negatively. However, evidence is insufficient regarding the health situation of older caregivers. The aim of this study was to investigate health-related quality of life (HRQoL) and pain, and their associations, among caregivers aged ≥60 years. Methods The participants (n = 3444) were recruited from the Swedish National Study on Aging and Care-Blekinge and Good Aging in Skåne during 2001–2004. Participants aged ≥60 years were selected randomly and underwent cognitive tests, with demographic information obtained through questionnaires. The response rate was 60%. A predefined research protocol was used. HRQoL was measured with the Short-Form Health Survey, dimension mental health. Logistic regression models were used to investigate the associations between HRQoL and pain as well as control factors. Results Family caregiving was reported by 395 (11.5%) of the participants, and 56.7% of the caregivers reported pain. Family caregivers reported lower pain intensity on the Visual Analogue Scale and were younger, on median, than non-caregivers. Irrespective of caregiver status, pain was associated with mental HRQoL. Concerns about personal health and financial status had the strongest associations with mental HRQOL in both groups, but the levels were higher among caregivers. Conclusion Pain was one factor associated with low HRQoL regardless of family caregiver status and remained important when controlling for factors related to advanced age. This finding remained among family caregivers, though they reported lower pain intensity. Factors other than pain were shown to be important to mental HRQoL and should also be taken into consideration when discussing actions for family caregivers to maintain and improve health and HRQoL. Trial registration number Not applicable.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S877-S877
Author(s):  
Anjana Muralidharan ◽  
Clayton H Brown ◽  
Richard W Goldberg

Abstract Older adults with serious mental illness (i.e., schizophrenia spectrum disorders and affective psychoses) exhibit marked impairments across medical, cognitive, and psychiatric domains. The present study examined predictors of health-related quality-of-life and mental health recovery in this population. Participants (N=211) were ages 50 and older with a chart diagnosis of serious mental illness and a co-occurring medical condition, engaged in outpatient mental health services at a study site. Participants completed a battery of assessments including subtests from the Repeatable Battery for the Assessment of Neuropsychological Status (RBANS), the 24-Item Behavior and Symptom Identification Scale (BASIS-24), the 12-Item Short-Form Health Survey (SF-12), and the Maryland Assessment of Recovery Scale (MARS). Multiple linear regression analyses, with age, race, gender, and BMI as covariates, examined number of current medical conditions, RBANS, and BASIS as predictors of quality-of-life and recovery. Significant predictors of physical health-related quality-of-life (R-squared=.298, F(9,182)=8.57, p&lt;.0001) were number of medical conditions (β=-1.70, p&lt;.0001), BASIS-Depression/Functioning (β=-4.84, p&lt;.0001), and BASIS-Psychosis (β=2.39, p&lt;.0008). Significant predictors of mental health-related quality-of-life (R-squared=.575, F(9,182)=27.37, p&lt;.0001) were RBANS (β=0.03, p=.05), BASIS-Depression/Functioning (β=-6.49, p&lt;.0001), BASIS-Relationships (β=-3.17, p&lt;.0001), and BASIS-Psychosis (β=-1.30, p=.03). Significant predictors of MARS (R-squared=.434, F(9,183)=15.56, p&lt;.0001) were BASIS-Depression/Functioning (β=-4.68, p=.002) and BASIS-Relationships (β=-9.44, p&lt;.0001). To promote holistic recovery among older adults with serious mental illness, integrated interventions are required. For example, to improve physical health-related quality-of-life, one should target depression and psychotic symptoms as well as medical illness burden. To improve mental health-related quality-of-life, depression symptoms and interpersonal functioning may be key targets, as well as neurocognitive function.


Author(s):  
Lilia S Meltzer ◽  
Ron D Hays

Background: Nonadherence to blood pressure lowering medication is a main contributor to poor hypertension control. While trust in the medical profession has been found to be associated with health behaviors such as treatment adherence, it has rarely been examined in Hispanics with hypertension and its relationship with health-related quality of life (HRQOL) is unknown. Objective: We evaluated a priori hypotheses positing that trust in the medical profession would be associated with greater medication adherence, resilience, and, in turn, better HRQOL in patients with hypertension. The three specific aims of this study were to: 1) examine the overall association (total effect) of trust in the medical profession and HRQOL (self-reported physical and mental health); 2) assess whether the association of trust with HRQOL is mediated by medication adherence and resilience; and 3) evaluate whether these associations vary by ethnicity (Hispanic vs. non-Hispanic). Methods: A cross-sectional survey that included the PROMIS® global physical and mental health scales and Morisky Medication Adherence Scale-8 was conducted with 201 adults (101 Hispanics and 100 non-Hispanics) under treatment for hypertension at a practice with seven cardiologists. A structural equation model was estimated to examine hypothesized associations (direct and indirect effects) among variables. Model fit was assessed via the chi-square statistic and three fit indices (Root Mean Square Error of Approximation; Comparative Fit Index; Non-Normed Fit Index). Results: The proposed model fit the data well and explained 37% of the variance in mental health and 15% of the variance in physical health. Trust was positively associated with physical health (β = 0.32, P < 0.001) and mental health (β = 0.43, P < 0.001). Trust was also positively associated with resilience (β = 0.18, P < 0.05), and medication adherence (β = 0.25, P < 0.05). Resilience was not significantly associated with physical health, but it was positively associated with mental health (β = 0.34, P < 0.001). Medication adherence was not significantly associated with either physical or mental health. Additionally, resilience partially mediated the relationship between trust and physical and mental health. And medication adherence partially mediated the relationship between trust and mental health, but did not significantly mediate the relationship between trust and physical health. A simultaneous group analysis indicated that Hispanic ethnicity did not moderate the associations between trust, medication adherence, resilience, and HRQOL. Conclusions: Findings suggest that trust in the medical profession serves as a protective mechanism for improving health in patients with hypertension by enhancing medication adherence, resilience, and global health irrespective of Hispanic ethnicity.


2021 ◽  
Vol 28 (Supplement_1) ◽  
Author(s):  
EJ Pedreso ◽  
L Alamban ◽  
B Faderan

Abstract Funding Acknowledgements Type of funding sources: None. Background Determining the level of health-related quality of life among cardiovascular patients and looking into the demographic factors and clinical characteristics that might influence the dynamics of their physical and mental health are highly essential for health practitioners to improve current management procedures and interventions. Objective The study was conducted to evaluate the level of health-related quality of life among cardiac patients seen in adult cardiology clinic.  Methods This study used a descriptive research design. A total of 117 cardiac patients at the adult Cardiology Clinic in a Tertiary Hospital were interviewed using the MOS-SF – 36 Questionnaire. Statistical correlation analysis was then performed. Results The results showed that the patients are challenged in their physical functioning and general mental health with an average score of 33.33 ± 33.33 aside from their average median score of 55 ± 0.0 in  their role limitations due to physical health. In terms of mental health, higher score was reflected for vitality (75 ± 12.5), followed by emotional well-being (67.5 ± 20.0). Demographic and clinical factors that affect their quality of life were also determined. Marital status, family income, educational attainment and participation on cardiac rehabilitation program affect their quality of life. Married, income above Php10,000, college level, college graduate or with post graduate degree and those who participated in the cardiac rehabilitation program have higher level of physical health (W = 1127; p=.007; W = 1729.5; p=.024; W = 1300; p=.043).  Consistently, those who are married, a family income of above Php10,000 and are aware on cardiac rehabilitation  have higher level of mental health (W = 1189; p=.019; W = 1895; p=.001; W = 1187; p=.005). Although not statistically significant, an increase in age is associated with decrease in the physical health (r=-.176; p=.058). It should not also be discounted that those patients who are employed have higher level of physical health than those who were unemployed (W = 1729.5; p=.052). Moreover, health change are higher for those who participated in the cardiac rehabilitation program (W = 960; p=.003). On clinical characteristics, those who underwent interventions have higher level of health change than those who only received medical management (W = 100.0; p&lt;.001). Mental health was also seen to be higher in those patients with no history of smoking and with &gt;40% left ventricular ejection fraction (W = 264.5; p=.005). Conclusion This study concludes that those patients who are married, employed, with income above Php10,000, who have higher educational status, non-smoker,  LVEF of more than 40%, who received interventions and who underwent cardiac rehabilitation have higher level of quality of life.


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