scholarly journals The invisible paradox of inflammatory bowel disease: An analysis of men’s blogs

2019 ◽  
pp. 135910531988459
Author(s):  
Lucy Prodgers ◽  
Brendan Gough
Keyword(s):  
Inflammatory Bowel Disease ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Disease Risk ◽  
Online Support ◽  
Critical Realist ◽  
Inflammatory Bowel ◽  
Health Support ◽  
Inductive Thematic Analysis ◽  
The Invisible

Inflammatory bowel disease is associated with stigmatising symptoms. Online support platforms eschew stigma, thus may appeal more to men who avoid traditional forms of health support. Using a critical realist netnographic approach and inductive thematic analysis, this study examined six blogs written by UK-based men to explore how inflammatory bowel disease was narrated. Three subthemes and one overarching theme – The (in)visible paradox of IBD – were developed. Findings suggest private aspects of inflammatory bowel disease risk experiential erasure, whereas public aspects lack control. Blogging facilitates the regaining of control, leading to important support connections and a re-imagining of the male inflammatory bowel disease body.

scholarly journals The Experience of Self-conscious Emotions in Inflammatory Bowel Disease: A Thematic Analysis

2021 ◽  
Author(s):  
Noelle Robertson ◽  
Sarah Gunn ◽  
Rebecca Piper
Keyword(s):  
Inflammatory Bowel Disease ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Help Seeking ◽  
Future Research ◽  
Structured Interviews ◽  
Semantic Approach ◽  
Critical Realist ◽  
Key Factor ◽  
Inflammatory Bowel

AbstractFew studies have investigated emotional experiences in people living with inflammatory bowel disease (IBD). However, self-conscious emotions, including embarrassment and shame, are indicated as a key factor in delayed help-seeking for bowel symptoms, which can result in poorer health outcomes. This study aimed to explore experiences of self-conscious emotions among people with IBD. Fifteen participants were recruited from outpatient IBD clinics and patient groups, and engaged in semi-structured interviews about their experiences of IBD-related self-consciousness. Data were analysed using thematic analysis following an inductive, semantic approach and conducted from a critical realist position. The analysis generated two themes, each with three sub-themes, which captured self-conscious emotions in relation to experiences which threatened participants’ preferred identities. The first theme, ‘Lack of control’ encapsulated participants’ distress relating to fundamental alteration in self-perception, and their attempts to mitigate this. The second, ‘Lack of understanding’ captured distress associated with awareness of being unfairly judged by other people. Clinical implications are identified, including consideration of therapeutic approaches which target self-conscious emotions such as shame, and continued societal efforts to educate others about invisible disabilities such as IBD. Experiences which threatened participants’ identities were implicated in the generation of self-conscious emotions; these should be considered in work with clients with IBD. Future research should target further investigation of these constructs.

scholarly journals Targeted Analysis of Serum Proteins Encoded at Known Inflammatory Bowel Disease Risk Loci

2018 ◽  
Vol 25 (2) ◽  
pp. 306-316 ◽  
Author(s):  
Kimi Drobin ◽  
Ghazaleh Assadi ◽  
Mun-Gwan Hong ◽  
Eni Andersson ◽  
Claudia Fredolini ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Serum Proteins ◽  
Disease Risk ◽  
Targeted Analysis ◽  
Inflammatory Bowel

Association between physical activity and inflammatory bowel disease risk: A meta-analysis

2016 ◽  
Vol 48 (12) ◽  
pp. 1425-1431 ◽  
Author(s):  
Qiang Wang ◽  
Ke-Qun Xu ◽  
Xiang-Rong Qin ◽  
Wen-Lu ◽  
Yan-Liu ◽  
...  
Keyword(s):  
Physical Activity ◽  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Disease Risk ◽  
Meta Analysis ◽  
Inflammatory Bowel

P021 EMOTIONAL TOLL OF INFLAMMATORY BOWEL DISEASE: LESSONS FROM THE THEMATIC ANALYSIS OF ONLINE COMMUNITY FORUMS

2019 ◽  
Vol 156 (3) ◽  
pp. S16
Author(s):  
Robert Lerrigo ◽  
Johnny T. Coffey ◽  
Kravitz L. Joshua ◽  
Priyanka Jadhav ◽  
Sidhartha Sinha
Keyword(s):  
Inflammatory Bowel Disease ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Online Community ◽  
Inflammatory Bowel

Perianal Abscesses in Infants Are Not Associated With Crohn’s Disease in a Surgical Cohort

2019 ◽  
Vol 14 (6) ◽  
pp. 773-777
Author(s):  
Mariëlle Roskam ◽  
Tim de Meij ◽  
Reinoud Gemke ◽  
Roel Bakx
Keyword(s):  
Inflammatory Bowel Disease ◽  
Crohn’S Disease ◽  
Crohn's Disease ◽  
Bowel Disease ◽  
Disease Risk ◽  
Age Of Onset ◽  
Faecal Calprotectin ◽  
Young Infants ◽  
Inflammatory Bowel

Abstract Aims The aim of this study is to search for an association between infantile perianal abscesses and [development of] Crohn’s disease in a surgical population of children. Methods Patients who were surgically treated in the Amsterdam UMC between January 2000 and December 2014 were included in this retrospective cohort study. Data collected include: sex, date of birth, underlying conditions, age of onset, additional symptoms, pus cultures, endoscopic examination, histological examination, magnetic resonance imaging, faecal calprotectin levels, antibiotic treatment, surgical treatment strategy, and number of recurrences. Follow-up data were gathered from medical records and by contacting the patients and/or parents or the general practitioner. Results The study consisted of 62 patients of whom 60 were boys. Median age was 5 months [range 0–17 months]; 92% were under 1 year of age at diagnosis. A minority of patients had accompanying symptoms. In total, 72 abscesses were treated, 19 fistulas and 23 abscesses with fistula-in-ano. Follow-up data of 46 patients [74%] were available; none of the patients developed Crohn’s disease. Conclusions We found no association between isolated perianal abscesses as presenting symptom in early childhood and [development of] Crohn's disease. In young infants with isolated perianal disease, risk for inflammatory bowel disease seems low. In this specific population there seems no place for routine performance of endoscopic investigations. One should always take the risk of very-early-onset inflammatory bowel disease into account. Further research with a larger cohort of children and a longer follow-up time is required.

P019 OPTIMIZING NUTRITION RISK SCREENING AND FOLLOW-UP NUTRITION COUNSELING IN AN OUTPATIENT INFLAMMATORY BOWEL DISEASE POPULATION

2020 ◽  
Vol 26 (Supplement_1) ◽  
pp. S54-S54
Author(s):  
Therezia AlChoufete ◽  
Siobhan Proksell ◽  
Marc Schwartz ◽  
Cassie Myers ◽  
Emily Weaver ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Screening Tool ◽  
Disease Risk ◽  
Nutrition Status ◽  
Risk Scores ◽  
Nutrition Screening ◽  
Nutrition Risk ◽  
Inflammatory Bowel

Abstract Background As management of Inflammatory Bowel Disease (IBD) advances, the outpatient (OP) population is shifting its fears from risks of malnutrition to those associated with over-nutrition and under-nutrition, lack of diet education, access to resources, mental health implications, and socioeconomic status. Failure to identify a patient at nutrition risk could lead to increased costs of care which can be avoided by proper nutrition screening and counseling with a Registered Dietitian (RD). The integration of nutrition counseling into the interdisciplinary care model for patients with IBD needs to be optimized to identify a broader range of risks to nutrition status in an efficient and objective format that can be applied universally in the OP IBD setting. Aims This study 1) explores a novel approach to nutrition risk screening within the OP IBD setting using an interdisciplinary team approach; and 2) evaluates correlations between an objective scoring method for biological and psychosocial risk with nutrition risk scores reported by an RD. Methods Two objective nutrition risk scoring methods were developed to capture biological (NUTR-OBJ) and lifestyle (NUTR-WELL) nutrition factors on a 0–6 scale (low-severe risk). Scores were determined using review of the electronic health record and a screening tool provided to patients. These scores were compared to the previously established IBD Biopsychosocial Complexity Grid, a tool which organizes this health information into biological and psychological domains and serves as the basis for algorithm-driven treatment plans within an IBD Medical Home. Results Data from 44 patients (mean age:35.2 years;47.7% female;56.8% Crohn’s Disease) were included in this study. BMI ranged from 18.08 to 37.92 kg/m2. BIO-C-PRO (mean=1.95,SD 1.86) and BIO-C-OBJ (mean 1.59, SD 1.76) indicate mild overall disease risk within our sample. NUTR-OBJ scores (mean=2.39, SD 1.28) showed no significant correlations with biological (BIO-C-PRO/OBJ) or psychosocial (PSY-C/H;SOC-SES;MI-C) scores. NUTR-WELL (mean=1.98,SD 1.36) showed strong positive correlations with PSY-C (r=.326, p<.05), PSY-H (r=.386,p<.01), SOC-SES (r=.306,p<.05), and MI-C (r=.473,p<.01). Discussion This study indicates a significant correlation between NUTR-WELL scores and psychosocial scores, suggesting validity for this nutrition screening tool to determine behaviors that may increase nutrition risk. Poor correlations between NUTR-OBJ and biological scores suggests that the need for nutrition intervention may not always be indicated by disease severity. This scoring system can potentially serve as a guide to maximize efficiency of follow-up appointments with an RD and avoid complications of care related to poor nutrition status that may be unidentified by disease risk alone. Further research is needed to confirm findings and extend to a larger sample.

Sign in / Sign up

Export Citation Format

Share Document