P021 EMOTIONAL TOLL OF INFLAMMATORY BOWEL DISEASE: LESSONS FROM THE THEMATIC ANALYSIS OF ONLINE COMMUNITY FORUMS

2019 ◽  
Vol 156 (3) ◽  
pp. S16
Author(s):  
Robert Lerrigo ◽  
Johnny T. Coffey ◽  
Kravitz L. Joshua ◽  
Priyanka Jadhav ◽  
Sidhartha Sinha
Keyword(s):  
Inflammatory Bowel Disease ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Online Community ◽  
Inflammatory Bowel

P021 EMOTIONAL TOLL OF INFLAMMATORY BOWEL DISEASE: LESSONS FROM THE THEMATIC ANALYSIS OF ONLINE COMMUNITY FORUMS

2019 ◽  
Vol 25 (Supplement_1) ◽  
pp. S11-S11
Author(s):  
Robert Lerrigo ◽  
Johnny T Coffey ◽  
Kravitz L Joshua ◽  
Priyanka Jadhav ◽  
Sidhartha Sinha
Keyword(s):  
Inflammatory Bowel Disease ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Online Community ◽  
Inflammatory Bowel

scholarly journals The invisible paradox of inflammatory bowel disease: An analysis of men’s blogs

2019 ◽  
pp. 135910531988459
Author(s):  
Lucy Prodgers ◽  
Brendan Gough
Keyword(s):  
Inflammatory Bowel Disease ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Disease Risk ◽  
Online Support ◽  
Critical Realist ◽  
Inflammatory Bowel ◽  
Health Support ◽  
Inductive Thematic Analysis ◽  
The Invisible

Inflammatory bowel disease is associated with stigmatising symptoms. Online support platforms eschew stigma, thus may appeal more to men who avoid traditional forms of health support. Using a critical realist netnographic approach and inductive thematic analysis, this study examined six blogs written by UK-based men to explore how inflammatory bowel disease was narrated. Three subthemes and one overarching theme – The (in)visible paradox of IBD – were developed. Findings suggest private aspects of inflammatory bowel disease risk experiential erasure, whereas public aspects lack control. Blogging facilitates the regaining of control, leading to important support connections and a re-imagining of the male inflammatory bowel disease body.

scholarly journals The Experience of Self-conscious Emotions in Inflammatory Bowel Disease: A Thematic Analysis

2021 ◽  
Author(s):  
Noelle Robertson ◽  
Sarah Gunn ◽  
Rebecca Piper
Keyword(s):  
Inflammatory Bowel Disease ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Help Seeking ◽  
Future Research ◽  
Structured Interviews ◽  
Semantic Approach ◽  
Critical Realist ◽  
Key Factor ◽  
Inflammatory Bowel

AbstractFew studies have investigated emotional experiences in people living with inflammatory bowel disease (IBD). However, self-conscious emotions, including embarrassment and shame, are indicated as a key factor in delayed help-seeking for bowel symptoms, which can result in poorer health outcomes. This study aimed to explore experiences of self-conscious emotions among people with IBD. Fifteen participants were recruited from outpatient IBD clinics and patient groups, and engaged in semi-structured interviews about their experiences of IBD-related self-consciousness. Data were analysed using thematic analysis following an inductive, semantic approach and conducted from a critical realist position. The analysis generated two themes, each with three sub-themes, which captured self-conscious emotions in relation to experiences which threatened participants’ preferred identities. The first theme, ‘Lack of control’ encapsulated participants’ distress relating to fundamental alteration in self-perception, and their attempts to mitigate this. The second, ‘Lack of understanding’ captured distress associated with awareness of being unfairly judged by other people. Clinical implications are identified, including consideration of therapeutic approaches which target self-conscious emotions such as shame, and continued societal efforts to educate others about invisible disabilities such as IBD. Experiences which threatened participants’ identities were implicated in the generation of self-conscious emotions; these should be considered in work with clients with IBD. Future research should target further investigation of these constructs.

scholarly journals Adapting ‘Tame Your Gut’ for patients with inflammatory bowel disease and co-morbid anxiety and/or depression

2020 ◽  
pp. 135910532094500
Author(s):  
Inna Hanlon ◽  
Catherine Hewitt ◽  
Subhadra Evans ◽  
Jo Taylor ◽  
Christian Selinger ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Qualitative Study ◽  
Focus Groups ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Health Professionals ◽  
Positive Attitude ◽  
Comorbid Anxiety ◽  
Online Psychotherapy ◽  
Inflammatory Bowel

This qualitative study collected stakeholders’ views on adapting an existing online psychotherapy programme, ‘Tame Your Gut’, to the needs of patients with inflammatory bowel disease (IBD) and comorbid anxiety and/or depression. Adult patients ( n = 13) and health professionals ( n = 12) participated in semi-structured focus groups or interviews, analysed with a thematic analysis. Patients had a generally positive attitude towards ‘Tame Your Gut’, while health professionals saw it as useful for selected patients only. Both groups indicated their preference for clinician-assisted online psychotherapy. ‘Tame Your Gut’ is acceptable to patients and health professionals but only when supported by clinicians.

“The Rest of my Childhood was Lost”: Canadian Children and Adolescents’ Experiences Navigating Inflammatory Bowel Disease

2021 ◽  
pp. 104973232110465
Author(s):  
Claudia Barned ◽  
Alexis Fabricius ◽  
Alain Stintzi ◽  
David R Mack ◽  
Kieran C O’Doherty
Keyword(s):  
Inflammatory Bowel Disease ◽  
Children And Adolescents ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Pediatric Patients ◽  
Newly Diagnosed ◽  
Making Sense ◽  
Canadian Youth ◽  
Illness Experiences ◽  
Inflammatory Bowel

Children and adolescents with Inflammatory Bowel Disease (IBD) face significant and unique challenges related to their condition. The aim of this study was to better understand some of these challenges, and to explore how Canadian youth respond to them. We interviewed 25 pediatric patients with IBD, ranging in age from 10–17, to find out about their illness experiences. Using a thematic analysis, we discerned three themes: challenges related to diagnosis, making sense of change, and navigating sociability. Taken together, they paint a picture of young people facing great uncertainty prior to diagnosis, pronounced changes to selfhood as they make lifestyle adjustments, and facing difficulties with the implications of reduced sociability because of their disease. We conclude by providing recommendations for the development of resources aimed at helping newly diagnosed pediatric patients navigate these issues.

scholarly journals Experiences of patients living with inflammatory bowel disease in rural communities

2019 ◽  
Vol 3 (1) ◽  
Author(s):  
Rebecca K. Britt ◽  
Andrew Englebert
Keyword(s):  
Quality Of Life ◽  
Inflammatory Bowel Disease ◽  
Rural Communities ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Rural Setting ◽  
Factors Associated ◽  
Inflammatory Bowel ◽  
Physician Availability

Inflammatory bowel disease (IBD) is a chronic disease that often has fluctuating and painful symptoms. IBD patients must cope with a lifelong illness with relapses, remissions, and varied treatments that can affect their overall quality of life. Patients living in a rural setting are faced with further challenges such as access to healthcare, physician availability, and socioeconomic factors. For the current study, we interviewed adult patients in a clinic who were diagnosed with IBD for at least 3 years to better understand their experiences with the aim to inform intervention and educations for patients and physicians. Through a thematic analysis, we argue that five themes emerged from the data: i) IBD etiology, ii) ceding self-care, iii) environmental factors associated with disclosure, iv) stigma, and v) environmental obstacles to care. We suggest opportunities for research and collaboration among researchers and practitioners to help reduce stigma associated with IBD and promote health among rural communities.

scholarly journals N09 Sexuality as lived incompleteness: exploring intimacy and sexuality experiences of people living with inflammatory bowel disease

2021 ◽  
Vol 15 (Supplement_1) ◽  
pp. S612-S613
Author(s):  
S Fourie ◽  
C Norton ◽  
D Jackson ◽  
W Czuber-Dochan
Keyword(s):  
Quality Of Life ◽  
Inflammatory Bowel Disease ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Healthcare Professionals ◽  
Phenomenological Study ◽  
Well Being ◽  
Negative Effects ◽  
Inflammatory Bowel

Abstract Background Sexual function in those living with Inflammatory Bowel Disease (IBD) is known to be affected by their condition, with impact on their psychosocial well-being. Little is known about the causality of low sexual functions scores and their contribution to low quality of life reports. The aim of this study was to explore how intimacy and sexuality is experienced in the context of IBD. Methods This was a phenomenological study guided by van Manen’s methodology. Data were collected from 43 participants from interviews and narrative accounts submitted via Google Forms. Reflection on four existential domains (body, relationships, space and time) and thematic analysis were used to interpret the data. Results Four themes were generated from data analysis: Otherness of the sick body, Interrupted connectedness, Missing out on life fullness and Fragmented openness. These led to the overarching theme Sexuality as lived incompleteness, which reflected the essence of the experiences described by participants. Their experiences were deeply embedded in everyday life, and the IBD posed an obstacle to intimacy and sexuality, negatively affecting their life, relationships, family planning and their social position, imposing limitations and isolation. Conclusion IBD has a significant impact on sexual well-being with negative effects on overall quality of life, which may be unknown to healthcare professionals, therefore remain unaddressed. A better understanding of the potential issues could help healthcare professionals identify and address concerns and worries related to sexual well-being, and approach them in a reflective, holistic manner in situations arising in practice.

scholarly journals The Emotional Toll of Inflammatory Bowel Disease: Using Machine Learning to Analyze Online Community Forum Discourse

2019 ◽  
Vol 1 (2) ◽  
Author(s):  
Robert Lerrigo ◽  
Johnny T R Coffey ◽  
Joshua L Kravitz ◽  
Priyanka Jadhav ◽  
Azadeh Nikfarjam ◽  
...  
Keyword(s):  
Machine Learning ◽  
Inflammatory Bowel Disease ◽  
Bowel Disease ◽  
Online Community ◽  
Learning Algorithm ◽  
Well Being ◽  
Psychosocial Impacts ◽  
Community Forum ◽  
Inflammatory Bowel ◽  
The Impact

Abstract Background Patients with inflammatory bowel disease are using online community forums (OCFs) to seek emotional support. The impact of OCFs on well-being and their emotional content are unknown. Methods We used an unsupervised machine learning algorithm to identify the thematic content of 51,591 public, online posts from the Crohn’s & Colitis Foundation Community Forum. Results We identified 10,702 (20.8%) posts expressing: gratitude (40%), anxiety/fear (20.8%), empathy (18.2%), anger/frustration (13.4%), hope (13.2%), happiness (10.0%), sadness/depression (5.8%), shame/guilt (2.5%), and/or loneliness (2.5%). A common subtheme was the importance of fostering social support. Conclusions High-throughput, machine learning-directed analysis of OCFs may help identify psychosocial impacts of inflammatory bowel disease on patients and their caregivers.

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