Orienting child- and family-centered care toward equity

2020 ◽  
pp. 136749352095335
Author(s):  
Alison Gerlach ◽  
Colleen Varcoe

Child- and family-centered care (CFCC) is being increasingly adopted internationally as a fundamental philosophical approach to the design, delivery, and evaluation of children’s services in diverse primary and acute health care contexts. CFCC has yet to be explored in the context of families and children whose health and health care is likely to be compromised by multifaceted social and structural factors, including racialization, material deprivation, and historically entrenched power imbalances. To date, an equity orientation for CFCC has not been examined or developed. This is a critical area of inquiry, given the increasing evidence that children in families who face such inequities have poor health outcomes. This article examines dominant discourses on CFCC in the context of families and children who are at greater risk of health inequities in wealthy countries, drawing on Canada as a useful example. It outlines an evidence-based approach to equity-oriented care that the authors contend has the potential to orient CFCC toward equity and provide greater clarity in the conceptualization, implementation, measurement, and evaluation of CFCC in ways that can benefit all families and children including those who have typically been excluded from research.

2021 ◽  
Vol 10 (3) ◽  
pp. 125-134
Author(s):  
Ismail Cetintas ◽  
Melahat Akgun Kostak ◽  
Remziye Semerci ◽  
Esra Nur Kocaaslan

Aim: This study was conducted to determine the relationship between the perceptions of parents whose children are hospitalized about family-centered care provided in the hospital and their health care satisfaction and the factors affecting them. Methods: This descriptive study was conducted with parents (n=169) of children who were hospitalized in a university hospital in Turkey between May and July 2019. Data were collected with "Child and Family Information Form", "Family-Centered Care Scale" and "PedsQL Health Care Satisfaction Scale". Data were analyzed with descriptive statistics, Mann Whitney U, and Spearman correlation tests. Results: The mean age of the children was 6.86±5.63, 51.5% were male, 56.2% were hospitalized before and 88.2% of parents received information about the care and treatment of their children. There was a positive correlation between the parents’ Family-Centered Care Scale and PedsQL Health Care Satisfaction Scale scores and between the age of the children and age of the mother and the PedsQL Health Care Satisfaction Scale scores, the number of children and Family-Centered Care Scale scores of parents. A statistically significant difference was found between the child's previous hospitalization and median scores of the Family-Centered Care Scale, and between whether parents receive information about the care and treatment of their children and the median scores of the PedsQL Health Care Satisfaction Scale. Conclusion: In this study, as the family-centered care that parents expect was met, their health care satisfaction increased. As the age of children and mothers increased, parents' health care satisfaction increased. Health care satisfaction of parents who received information about treatment and care was found higher. Keywords: family-centered care, patient satisfaction, child, parents


2017 ◽  
Vol 2 (7) ◽  
pp. 56-62 ◽  
Author(s):  
Raquel M. Heacock ◽  
Jill E. Preminger

Family-centered care emphasizes collaboration and open communication between the patient, clinician, and the family. Social support from a frequent communication partner can help to promote initiation of hearing health care services, auditory rehabilitation (AR), or everyday communication management. Research in the caregiving fields has shown different amounts of caregiving burden in adult children compared to spouses, thus the audiologist should recognize that the adult child may be trying to assist their parent in the AR process, while at the same time juggling multiple responsibilities of their own such as a career or raising children. Preliminary investigations of the role of the adult child in the AR process are discussed in order to determine if adult children should be considered differently than spouses in the AR process, primarily due to the fact that many adult children may not live with their parent. The article concludes with 3 recommendations to include communication partners in AR, ranging from invitations to the hearing health care appointment, the physical setup of the room, introducing discussion regarding family-centered care, and the use of tools to promote a structured discussion to include all in the shared decision-making process.


2008 ◽  
Vol 27 (1) ◽  
pp. 64-64
Author(s):  
Linda Rector

Most health care professionals who work with neonates in the hospital setting acknowledge the benefits of family-centered care. Textbooks and journal articles that focus on neonatal problems usually include a section on the importance of supporting parents through this stressful time. Strategies for including siblings in the NICU are found in a sidebar or in a few short paragraphs, as afterthoughts in the big picture of family-centered care.


2020 ◽  
Vol 73 (suppl 4) ◽  
Author(s):  
Fernanda Yeza Ferreira ◽  
Mariane Caldeira Xavier ◽  
Paula Rossi Baldini ◽  
Larissa Tassim Luciano Ferreira ◽  
Regina Aparecida Garcia Lima ◽  
...  

ABSTRACT Objectives: to explore the influence of health care practices on the burden of caregiver mothers of children with special health needs. Methods: observational, analytical, cross-sectional, quantitative study. Participation of 100 caregiver mothers, who responded the following instruments: characterization instrument; Burden Interview for Informal Caregivers; Perceptions of Family-Centered Care - Parents version; Evaluation Instrument for Primary Care - Child Version. For statistical analysis, were used the Spearman’s Correlation and univariate and multivariate linear regression analysis. Results: the mean burden score was 47.99. There was a negative correlation between the burden and the domains of collaboration and support of the Perceptions of Family-Centered Care scale. In the multivariate linear regression model, the longitudinality variable maintained a significant relation with the burden (p = 0.023). Conclusions: a shared, longitudinal and integrated care between families and health services can ease the burden of caregiver mothers.


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