scholarly journals YouTube as a resource for evaluating the unmet needs of caregivers of stroke survivors

2019 ◽  
Vol 26 (3) ◽  
pp. 1599-1616 ◽  
Author(s):  
Alexandra MJ Denham ◽  
Amanda L Baker ◽  
Neil J Spratt ◽  
Olivia Wynne ◽  
Sally A Hunt ◽  
...  

Content produced by caregivers of stroke survivors on the online video-sharing platform YouTube may be a good source of knowledge regarding caregivers’ unmet needs. We aimed to examine the content, quantity and quality of YouTube videos that target and discuss the needs and concerns of caregivers of stroke survivors. YouTube was systematically searched using six search strings, and the first 20 videos retrieved from each search were screened against the inclusion criteria. A pre-determined coding schedule was used to report the rate of unmet needs in each video. Twenty-six videos were included in the analysis. In total, 291 unmet needs were reported by caregivers of stroke survivors, an average of 11.2 unmet needs per video. The most common unmet needs domain was ‘Impact of Caregiving on Daily Activities’ (44%). Most videos were developed in the United States (61.5%) and featured spouses of stroke survivors (65.47%). Content produced by caregivers of stroke survivors on YouTube may be used as a tool for caregivers to provide and receive support through online communication. YouTube videos offer insight into the unmet needs of caregivers of stroke survivors and may be used as an additional resource for stroke services to support caregivers.

2018 ◽  
Author(s):  
Alexandra, M.J. Denham ◽  
Amanda, L Baker ◽  
Neil, J Spratt ◽  
Olivia Wynne ◽  
Sally Hunt ◽  
...  

BACKGROUND Content produced by caregivers of stroke survivors on online video sharing platforms such as YouTube may be a good source of knowledge regarding caregivers’ unmet needs and caregiving experiences. OBJECTIVE We aimed to examine content, quantity and quality of YouTube videos that specifically target and discuss the needs and concerns of caregivers of stroke survivors. METHODS YouTube was systematically searched using six select search strings. The first 20 videos retrieved from each search string were screened against the eligibility criteria and included if they were: developed by either adult caregivers of stroke survivors and focused on caregivers’ needs and concerns; or professional organisations and depicted first-hand testimonials of the needs and concerns of caregivers of stroke survivors. A pre-determined coding schedule was used to report the rate of unmet needs in each video: (1) Impact of Caregiving on Daily Activities; (2) Relationship; (3) Emotional and Psychological; (4) Comprehensive Stroke care; (5) Information; and (6) Spirituality. General video characteristics were also reported. RESULTS Of the 132 videos screened, 26 individual videos were included in the analysis. Most videos were developed in the USA (61.5%) and featured spouses of stroke survivors (65.47%). The most common types of videos were video blogs (vlogs) in which the main content featured the caregiver(s) diarising their daily thoughts and feelings (n=16, 48.5%). In total, 291 unmet needs were reported by caregivers of stroke survivors, with an average of 11.2 unmet needs per video. The most common unmet needs domain was ‘Impact of Caregiving on Daily Activities’ which made up 44% of the unmet needs reported. The most frequently reported sub-category was ‘Financial Impact’, appearing 24 times in 26 videos (92.3%). CONCLUSIONS Content produced by caregivers of stroke survivors on YouTube may be used as a tool for caregivers to provide and receive support through online communication. YouTube videos offer insight into the unmet needs of caregivers of stroke survivors across countries and healthcare systems, and may be used as an additional resource for stroke services to disseminate health information and support to caregivers. Further research is needed to investigate other online platforms to address the unmet needs of caregivers of stroke survivors.


2019 ◽  
Vol 26 (2) ◽  
pp. 934-944 ◽  
Author(s):  
Alexandra MJ Denham ◽  
Olivia Wynne ◽  
Amanda L Baker ◽  
Neil J Spratt ◽  
Billie Bonevski

Google is the most used search engine in the world, and likely to be used by caregivers of stroke survivors to find online forums and online communities to connect with other caregivers. This study aims to identify the types of websites accessed by caregivers of stroke survivors to connect with other caregivers, and analyse the online content produced by caregivers to identify their unmet needs. The first 20 websites from eight search strings entered into Google were systematically reviewed. Unmet needs on included websites were identified using a pre-determined coding schedule. Six websites were analysed. Most were discussion boards (n = 5, 83%) developed by organisations in the United States (n = 4, 66.6%). Overall, 2124 unmet needs appeared in 896 posts from caregivers. ‘Emotional and psychological’ were the most reported needs across posts (n = 765, 36%). Content produced on websites may address social isolation and provide insight into delivering and developing services to meet the needs of caregivers of stroke survivors.


2020 ◽  
Author(s):  
Takumi Kawashita ◽  
Sara Shu ◽  
Teevit Dunnsiri ◽  
Andrew Fung ◽  
Brian Bui ◽  
...  

BACKGROUND YouTube is a popular American video-sharing platform that has been accessible to the public since 2005. Previous studies have shown that YouTube is potentially beneficial to medical education, but the quality of videos still need to be determined. OBJECTIVE The goal of this study is to understand the quality of the YouTube videos by evaluating the characteristics of physicians and the total number of views on videos regarding fibromyalgia. METHODS The term “fibromyalgia” was searched on the YouTube search engine by relevance, the default setting. Information from the first 100 videos were analyzed. A search was performed on Scopus to determine the h-index and fibromyalgia-related publication for any physician who was featured in the videos. RESULTS Of the top 100 videos, there were 64 academic videos, 18 vlogs, 5 interview videos, and 13 miscellaneous videos. Out of the 64 academic videos, 30 physicians, 7 Doctors of Philosophy (Ph.D.), 5 physical therapists, and 5 chiropractors were identified. The majority physicians have an adequate academic affiliation such as h-index and academic publications. CONCLUSIONS Residents and medical students will encounter a large number of academic videos on fibromyalgia on YouTube. This study suggests that many videos were posted for academic purposes and that the quality of the videos can be ensured to some degree. However, developing a better systemic evaluation of the quality of YouTube content is still necessary.


2007 ◽  
Vol 8 (2) ◽  
pp. 101-109 ◽  
Author(s):  
Margarete Seidenspinner ◽  
Gabriele Theuner

This paper sums up the results of a survey conducted with four samples of website users, i.e. young urban academics from the PR of China, the United States, Egypt and Germany. The survey analyses the ways in which users from such distinctly dissimilar cultural environments view websites. The websites researched are those of global operators that either offer international services, high price utility items or technologically advanced products. The results gained in the course of this research project demonstrate how the targeted users’ cultural environments may impact on their preferred navigation tools, their perceived quality of web designs and on the perception and processing of the information provided online. A brief overview of the consequences which derive from this culture‐bound user behaviour for corporate communication policies conclude this paper.


Author(s):  
Shellie D. Ellis ◽  
Saleema A. Karim ◽  
Rachel R. Vukas ◽  
Daniel Marx ◽  
Jalal Uddin

Specialists, who represent 60% of physicians in the United States, are consolidating into large group practices, but the degree to which group practice type facilitates the delivery of high quality of care in specialty settings is unknown. We conducted a systematic literature review to identify the impact of group practice type on the quality of care among specialty providers. The search resulted in 913 articles, of which only 4 met inclusion criteria. Studies were of moderate methodological quality. From the limited evidence available, we hypothesize that solo specialists deliver care that is inferior to their peers in group practice, whether measured by patient satisfaction ratings or adherence to guideline-based care. However, solo specialists and multidisciplinary group specialists may be more likely to provide some specialized services compared with their single-specialty group peers. Insufficient research compares quality of care among different practice types in specialty care. Substantial opportunity exists to test the degree to which organizational factors, whether size of practice or the mix of providers within the practice, influence quality of care in specialty settings.


2016 ◽  
Vol 18 (4) ◽  
pp. 420-431 ◽  
Author(s):  
Qinglan Ding ◽  
Robin Whittemore ◽  
Nancy Redeker

Excessive daytime sleepiness (EDS) is a prevalent symptom among stroke survivors. This symptom is an independent risk factor for stroke and may reduce stroke survivors’ quality of life, cognitive functioning, and daytime functional performance. The lack of a universally accepted definition of EDS makes it difficult to measure EDS and synthesize research. The purpose of this integrative review is to describe poststroke EDS, ascertain conceptual and operational definitions of EDS, identify factors that contribute to EDS in stroke survivors, and explore outcomes associated with EDS in stroke survivors. We searched the following databases: PubMed and MEDLINE (OvidSP 1946—April; Week 2, 2015), Embase (OvidSP 1974—March; Week 1, 2015), and PsycINFO (OvidSP 1967—April; Week 2, 2015). Our search yielded 340 articles, 27 of which met inclusion criteria. The literature reveals EDS to be a multidimensional construct that is operationalized with both subjective and objective measures. Choosing measures that can quantify both the objective and subjective components is useful for gaining a comprehensive understanding of EDS. The antecedents of EDS are stroke, sleep-disordered breathing, reversed Robin Hood syndrome, and depression. The outcomes associated with EDS in stroke patients are serious and negative. Via synthesis of this research, we propose a possible framework for poststroke EDS, which may be of use in clinical practice and in research to identify valid quantifying methods for EDS as well as to prevent harmful outcomes in stroke survivors.


First Monday ◽  
2015 ◽  
Author(s):  
Tatiana Pontes ◽  
Elizeu Santos-Neto ◽  
Jussara Almeida ◽  
Matei Ripeanu

Multimedia content is central to our experience on the Web. Specifically, users frequently search and watch videos online. The textual features that accompany such content (e.g., title, description, and tags) can generally be optimized to attract more search traffic and ultimately to increase the advertisement-generated revenue.This study investigates whether automating tag selection for online video content with the goal of increasing viewership is feasible. In summary, it shows that content producers can lower their operational costs for tag selection using a hybrid approach that combines dedicated personnel (often known as ‘channel managers’), crowdsourcing, and automatic tag suggestions. More concretely, this work provides the following insights: first, it offers evidence that existing tags for a sample of YouTube videos can be improved; second, this study shows that an automated tag recommendation process can be efficient in practice; and, finally it explores the impact of using information mined from various data sources associated with content items on the quality of the resulting tags.


Author(s):  
Umaru M. Badaru ◽  
Omoyemi O. Ogwumike ◽  
Ade F. Adeniyi ◽  
Ekechukwu E. Nelson

AbstractBackground:The involvement of informal caregivers (CGs) in the provision of care for stroke survivors always ensures the success of stroke rehabilitation.Aims:The aim of this review was to find the determinants of caregiving burden and quality of life (QOL) of CGs of African stroke survivors.Methods:The literature was searched in Google Scholar and PUBMED, AJOL and Cochrane Databases using selected search strategies without date restriction.Results:A total of eight African studies met the inclusion criteria. There were more female stroke CGs (55.6%) than their male counterparts. The determinants of CG QOL were duration and burden of caregiving, the CG’s age and functional status of the stroke survivors. The determinants of caregiving burden were functional status of stroke survivors and having intimate relationship with them.Conclusion:Impairment of physical function in African stroke survivors was the consistent determinant of increased caregiving burden and deterioration of CG QOL. CG education and training is needed in order to enhance their ability to cope effectively with the burden of providing care to stroke survivors who have impairment of physical function and this may help to improve CG QOL.


2021 ◽  
Vol 14 (1 (39)) ◽  
pp. 39-54
Author(s):  
Ligia SMARANDACHE

The title of the present paper refers to a well-known article by Phillip Lopate named metaphorically “In Search of the Centaur: The Essay- Film”, published in 1992. The syntagma ‘tamed Centaur’ contains a con- tradiction in terms. The twisted new sense proposed changes the very inner form of the essay from an untamed elusive creature to a domestic one. Being an expression of freedom, the video-essay is very hard to define and even harder to be fixed in conventions. Nevertheless, the new online video- sharing environment empowers the “protean form” of the video-essay -as Lopate calls it- to have a unified voice and a proper place. If it paid the price of regularization, it could become more visible and even acknowl- edged as an effective means of communication. This article stresses the importance of using alternative ways of understanding that go beyond logocentrism and can better reflect the complexity of our communication. In this respect, the video-essay qualifies as the most appropriate form of audiovisual grammar, able to express emotions and abstract thinking in equal measure.


2020 ◽  
pp. 014556132093492
Author(s):  
Necati Enver ◽  
Akın Şahin ◽  
Said Sönmez ◽  
Semra Demokan

Objectives: The number of citations an article receives is an important indication of its impact. The main objectives of this investigation provide readers with a practical guide in evaluating head and neck oncology literature and determine the characteristics of trends in ORL. Methods: This was a retrospective bibliometric analysis that did not involve human participant. The Thomson Reuters Web of Science was searched to determine the citations of all published HNO articles. Most cited 300 article analyzed and a total of 100 articles were included in our investigation under the topic search “Head AND NECK AND (cancer OR carcinoma OR oncology).” Articles include malignancies other than head and neck are excluded. The top 100 cited articles were selected and analyzed by 2 independent investigators. Country, Institution, First Author, Journal name, study design, cites per year information gathered and analyzed. Results: The journal with the highest number of top 100 cited articles was New England Journal Of Medicine with 19 paper, followed by The Journal of Clinical Oncology(17) and Cancer Research (12). The top article on the list (Radiotherapy plus cetuximab for squamous cell carcinoma of the head and neck-NEJM) has 2243 citations. A statistically significant association was found between the journal impact factor and the number of top 100 cited articles ( P < .05). The United States had the highest number of articles (63). John Hopkins is differed from other institutions with 15 contributing articles. Conclusion: Our analysis provides an insight into the citation frequency of top cited articles published in HNO to help recognize the quality of the works, discoveries and the trends steering the study of HNO. This is also a modern reading list for young HNO scientist.


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