Working with Deafblind people to develop a good practice approach

2019 ◽  
Vol 21 (1) ◽  
pp. 69-87
Author(s):  
Alana Roy ◽  
Keith R McVillly ◽  
Beth R Crisp
Keyword(s):  
Lived Experience ◽  
Policy Development ◽  
Minority Groups ◽  
Social Research ◽  
Good Practice ◽  
Practice Model ◽  
World Cafe ◽  
Qualitative Research Methodology ◽  
Practice Approach ◽  
Inductive Thematic Analysis

Summary There is growing recognition of the importance in social research and social policy development of engaging with people with lived experience and using intervention approaches characterised by co-design and co-production. However, the inclusion of some minority groups such as those who are Deafblind has proven challenging. Working from the perspective of Appreciative Inquiry, a qualitative research methodology called The World Café was used to generate patterns of insight and collective discoveries from Deafblind participants. Data from The Deafblind World Café were analysed using inductive thematic analysis. Findings Four themes were produced that could inform the development of a good practice model for engaging with people who are Deafblind: Being Deafblind – it’s who we are, not what we are; we welcome co-production with outsiders who are prepared to make the effort to become insiders; being culturally inclusive is about both what you say and what you do; and listen to our story – don’t try to count it. Applications Group-based and interactive approaches, such as World Café, though challenging, can be successfully adapted for those who are Deafblind. How this might be up-scaled is yet to be explored.

scholarly journals Civil society involvement in harm reduction drug policy: reflections on the past, expectations for the future

2021 ◽  
Vol 18 (1) ◽  
Author(s):  
Aileen O’Gorman ◽  
Eberhard Schatz
Keyword(s):  
Civil Society ◽  
Harm Reduction ◽  
Lived Experience ◽  
Political Institutions ◽  
Drug Policy ◽  
Policy Development ◽  
Policy Decision ◽  
People Who Use Drugs ◽  
Annual Conference ◽  
Health Crisis

Abstract Background A range of civil society organisations (CSOs) such as drug user groups, non-governmental/third sector organisations and networks of existing organisations, seek to shape the development of drugs policy at national and international levels. However, their capacity to do so is shaped by the contexts in which they operate nationally and internationally. The aim of this paper is to explore the lived experience of civil society participation in these contexts, both from the perspective of CSOs engaged in harm reduction advocacy, and the institutions they engage with, in order to inform future policy development. Methods This paper is based on the presentations and discussions from a workshop on ‘Civil Society Involvement in Drug Policy hosted by the Correlation - European Harm Reduction Network at the International Society for the Study of Drugs Policy (ISSDP) annual conference in Paris, 2019. In the aftermath of the workshop, the authors analysed the papers and discussions and identified the key themes arising to inform CSI in developing future harm reduction policy and practice. Results Civil society involvement (CSI) in policy decision-making and implementation is acknowledged as an important benefit to representative democracy. Yet, the accounts of CSOs demonstrate the challenges they experience in seeking to shape the contested field of drug policy. Negotiating the complex workings of political institutions, often in adversarial and heavily bureaucratic environments, proved difficult. Nonetheless, an increase in structures which formalised and resourced CSI enabled more meaningful participation at different levels and at different stages of policy making. Conclusions Civil society spaces are colonised by a broad range of civil society actors lobbying from different ideological standpoints including those advocating for a ‘drug free world’ and those advocating for harm reduction. In these competitive arena, it may be difficult for harm reduction orientated CSOs to influence the policy process. However, the current COVID-19 public health crisis clearly demonstrates the benefits of partnership between CSOs and political institutions to address the harm reduction needs of people who use drugs. The lessons drawn from our workshop serve to inform all partners on this pathway.

A practice report for e-moderators: Promoting participatory engagement within discussion boards for online students

2021 ◽  
Author(s):  
Ameena Leah Payne
Keyword(s):  
Lived Experience ◽  
Social Research ◽  
Department Of Education ◽  
Research Centre ◽  
Online Students ◽  
Online Instructors ◽  
Personal Learning ◽  
Education Experience ◽  
Learning Conversations ◽  
Participatory Engagement

According to the Australian Government Department of Education and Training (2017b), the number of fully online students grew from 17.5% in 2010 (Stone & O'Shea, 2019, p. 57) to 26% in 2019 (Department of Education, Skills and Employment, 2020). However, positive ratings for engagement are 62% less overall for online learners (The Social Research Centre, 2020). Through the lens of the ‘Community of Inquiry’ education experience (Garrison, 2006), this practice reports provides guidance and examples for online instructors to engage students within discussions in the digital realm. Five elements will be discussed: embedding multi-media, affiliative humour and storytelling, Socratic questioning, ‘reframes’ and summarising and ‘weaving’. Based on the lived experience of one eLearning Advisor, or online instructor/e-moderator, at Swinburne Online, this practice report offers suggestions to build engaging, sustainable learning conversations that are abundant with collaborative inquiry, dialogue and sharing of personal learning experiences for online students in higher education.

scholarly journals Ethical Regulation and Visual Methods: Making Visual Research Impossible or Developing Good Practice?

2012 ◽  
Vol 17 (1) ◽  
pp. 3-12 ◽  
Author(s):  
Rose Wiles ◽  
Amanda Coffey ◽  
Judy Robison ◽  
Jon Prosser
Keyword(s):  
Detrimental Effect ◽  
Social Research ◽  
Good Practice ◽  
Ethical Review ◽  
Visual Methods ◽  
Research Practice ◽  
Ethical Challenges ◽  
Visual Research ◽  
Ethical Approval ◽  
The Uk

The ethical regulation of social research in the UK has been steadily increasing over the last decade or so and comprises a form of audit to which all researchers in Higher Education are subject. Concerns have been raised by social researchers using visual methods that such ethical scrutiny and regulation will place severe limitations on visual research developments and practice. This paper draws on a qualitative study of social researchers using visual methods in the UK. The study explored their views, the challenges they face and the practices they adopt in relation to processes of ethical review. Researchers reflected on the variety of strategies they adopted for managing the ethical approval process in relation to visual research. For some this meant explicitly ‘making the case’ for undertaking visual research, notwithstanding the ethical challenges, while for others it involved ‘normalising’ visual methods in ways which delimited the possible ethical dilemmas of visual approaches. Researchers only rarely identified significant barriers to conducting visual research from ethical approval processes, though skilful negotiation and actively managing the system was often required. Nevertheless, the climate of increasing ethical regulation is identified as having a potential detrimental effect on visual research practice and development, in some instances leading to subtle but significant self-censorship in the dissemination of findings.

scholarly journals The intrinsic roles of regulatory instruments in mining operations

2015 ◽  
Vol 4 (2) ◽  
pp. 132-140
Author(s):  
Kola Odeku
Keyword(s):  
Good Practice ◽  
Mineral Resources ◽  
Management Plan ◽  
Mining Activities ◽  
Mining Operations ◽  
Regulatory Instruments ◽  
Intrinsic Roles ◽  
Practice Approach ◽  
Remedial Actions ◽  
And Control

Prospecting and exploiting natural mineral resources for economic growth and development could be beneficial if done in sustainable ways and manners. However, if the operation is done in such a way that cause harm to the environment and people, this will amount to unsustainable mining activity and anti-sustainable development. Therefore, there is need to ensure that appropriate and adequate plans and programmes are put in place in order to mitigate, minimise and avoid negative environmental impacts. Against the backdrop of these concerns and the need to ensure that the environment is not degraded and destroyed, South Africa, as part of the countries that promotes sustainable prospecting and mining has put in place and currently implementing tools known as environmental management plan and programme to regulate and control all prospecting and mining activities. These tools contain a bundle of remedial actions in the forms of compensation, rehabilitation and restoration of any harm done to the environment during the course of mining activities. They also contain information on mitigation, ingredients for good practice approach on how to conduct sustainable prospecting and mining. This article looks at the intrinsic roles of these tools and accentuates the importance and operations of their use in the decision making processes.

scholarly journals Exploring good practice in life story work with people with dementia: The findings of a qualitative study looking at the multiple views of stakeholders

Dementia ◽  
2018 ◽  
Vol 19 (2) ◽  
pp. 182-194 ◽  
Author(s):  
Kate Gridley ◽  
Yvonne Birks ◽  
Gillian Parker
Keyword(s):  
Focus Groups ◽  
Life Story ◽  
Good Practice ◽  
Family Carers ◽  
People With Dementia ◽  
Practice Approach ◽  
Story Work ◽  
The Individual ◽  
Person With Dementia ◽  
Design And Methods

Introduction Despite growing international interest in life story work as a tool for person-centred dementia care, there is little agreement on what constitutes good practice and little evidence from the perspectives of people with dementia or their family carers. Design and methods This paper reports the findings from the qualitative element of a larger study looking at the feasibility of evaluating life story work. Ten focus groups were held with 73 participants: four groups of people with dementia (25 participants); three with family carers (21 participants); and three with staff, professionals and volunteers with experience of life story work (27 participants). Findings: It became apparent through our focus groups that, when people talk about ‘life story work’, different people mean different things. This related to both process and outcomes. In particular, a person with dementia may have very different views from others about what life story work is for and how their life story products should be used. There was general agreement that a good practice approach would be tailored to the individual needs and preferences of the person with dementia. However, in practice many settings used templates and the process was led by staff or completed by family carers. Conclusion We produced nine key features of good practice which could be used to guide the life story work process. Key elements include the recognition that not everyone will want to take part in life story work and that some people may even find it distressing; the importance of being led by the person with dementia themselves; the need for training and support for staff, carers and volunteers; and the potential for life story work to celebrate the person’s life today and look to the future.

Cyclonic Transactions as Cultural Ecological Mechanisms for Investigating Change and Facilitating Action Research in Education

2014 ◽  
pp. 768-780
Author(s):  
Andrew Creed ◽  
Patrick Dillon
Keyword(s):  
Online Education ◽  
Lived Experience ◽  
Policy Development ◽  
Ecological Framework ◽  
Integrated Framework ◽  
Daily Work ◽  
Theoretical Perspectives ◽  
Research In Education ◽  
Cultural Ecological ◽  
The Individual

The aim of this chapter is to draw together two theoretical perspectives on the dynamics of educational change and propose a contemporary integrated framework as an analytical tool for use in education. A cultural ecological framework, which views the individual as an integral part of the environment and places significance on interaction with the environment in the context of daily work, is integrated with a cyclonic transactional framework, which emerges from recent research on online education and traverses hermeneutical, transformational mechanisms. The cyclonic transactional framework forms a bridge between abstraction and lived experience, which are both at the heart of the cultural ecological framework, and provides a mechanism through which learning relationships may be explored. The augmented and integrated framework, developed from historical and current explorations, is a tool that can assist policy development, implementation, and evaluation for both classroom and online education.

The characterisation, treatment and sustainable reuse of biosolids in Ireland

2001 ◽  
Vol 44 (10) ◽  
pp. 35-40 ◽  
Author(s):  
J. Bartlett ◽  
E. Killilea
Keyword(s):  
Sustainable Development ◽  
Waste Management ◽  
Policy Development ◽  
Technology Development ◽  
Agricultural Waste ◽  
Good Practice ◽  
Western Boundary ◽  
The European Union ◽  
Infrastructure Provision ◽  
Irish Government

Ireland is an island country on the western boundary of the European Union. A suite of environmental legislation over the last decade has combined to increase the amount of municipal sludge for treatment fourfold, while, simultaneously, eliminating traditional disposal methods. The Irish Government has instituted a comprehensive programme of policy development, infrastructure provision and drafting of “codes of good practice” to meet these environmental and legislative challenges. As the programme has developed, it has become clear that the sludge/biosolids issue shares many of the philosophical and logistical elements of other environmental issues that are developing apace in Ireland, including municipal waste management, agricultural waste management and overall integrated development. In many ways, it represents a model of the ultimate “sustainable development” issue. To provide specific data for decision making and policy/infrastructure/technology development, the Irish Government has funded a US$600k programme of research in The Characterisation, Treatment and Sustainable Reuse of Biosolids. The design philosophy of the programme is a “cradle-to-grave” approach, in order to integrate the outcomes of specialised research studies into an overall sustainable development model.

From surviving to thriving: how does that happen

2015 ◽  
Vol 10 (5) ◽  
pp. 337-348 ◽  
Author(s):  
Mark Bertram ◽  
Sarah McDonald
Keyword(s):  
Lived Experience ◽  
Peer Support ◽  
Policy Development ◽  
Well Being ◽  
Service Users ◽  
Content Type ◽  
Employment Education ◽  
Vocational Goals ◽  
The Impact

Purpose – The purpose of this paper is to explore what helped seven people in contact with secondary mental health services achieve their vocational goals, such as: employment, education, training and volunteering. Design/methodology/approach – The authors used the practice of co-operative inquiry – staff and peer supporters co-designed an evaluation of vocational and peer support work with service users. Findings – Service users experienced invalidating living conditions that caused serious distress. These life struggles included: isolation, trauma events and stigma. The impact involved distressing emotions such as: despair, fear, pain and confusion. In contrast, when service users experienced supportive validating conditions (trusting relationships, engaging in valued activity and peer support) they reported being able to learn, change and grow – finding their own way forward, to improve well-being and quality of life. Research limitations/implications – Qualitative analysis from in-depth interviews revealed a range of consistent themes that enabled the authors to visually represent these and “begin” developing a model of change – grounded in lived experience. Further research is required to develop this model. Originality/value – The development of a model of change grounded in an invalidation/validation framework offers a different approach – in terms of how people are perceived and treated. This has relevance for Government policy development, clinical commissioning groups and practitioners.

scholarly journals How is Participating in Suicide Prevention Activities Experienced by Those with Lived and Living Experiences of Suicide in Australia? A Qualitative Study

2020 ◽  
Vol 17 (13) ◽  
pp. 4635
Author(s):  
Sarah Wayland ◽  
Kathy McKay ◽  
Myfanwy Maple
Keyword(s):  
Qualitative Study ◽  
Lived Experience ◽  
Suicide Prevention ◽  
Policy Development ◽  
Best Practice ◽  
Prevention Research ◽  
Emotional Labour ◽  
Best Practice Guidelines ◽  
Prevention Activities ◽  
The Impact

People with a lived experience of suicide are commonly included within suicide prevention research. This includes participation in conferences, policy development, research and other activities. Yet little is known about the impact on the person in the long term of regularly sharing one’s experience to different audiences and, in some cases, to a schedule not of your choosing. This qualitative study asked twenty people to share their reflections of being lived experience representatives within suicide prevention. Participants varied in the length of time they had been sharing their stories, and how they shared with different audiences. These narratives were thematically analysed within a reflective framework, including field notes. Four broad themes were noted that highlighted participants’ recommendations as to how the lived experience speaker training could grow alongside suicide prevention activities to facilitate safe activities that include a shared understanding of the expected outcome from participation. The environment for people with lived experience of suicide to tell their stories already exists, meaning that the suicide prevention sector needs to move quickly to ensure people understand the variety of spaces where lived experience needs to be incorporated, evaluated and better supported. When lived experience is a valued inclusion in the creation of effective and appropriate suicide prevention research and interventions, those who share their experience must be valued and supported in a way that reflects this. This study recommends strategies to practically and emotionally support speakers, including ways to ensure debriefing and support, which can enhance the longevity of the speakers in the suicide prevention space by valuing the practical and emotional labour required to be suicide prevention representatives, with an outcome recommendation for best practice guidelines for those who engage people with lived experience in suicide prevention activities.

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