Development of the dementia community attitudes questionnaire

Dementia ◽  
2020 ◽  
pp. 147130122097764
Author(s):  
Sheridan T Read ◽  
Dianne Wynaden ◽  
Matthew A Albrecht ◽  
Christine Toye
Keyword(s):  
Quality Of Life ◽  
Community Involvement ◽  
Questionnaire Development ◽  
Psychometric Testing ◽  
Community Attitudes ◽  
Expert Review ◽  
Item Questionnaire ◽  
People With Dementia ◽  
The Impact

Background What it means to live with dementia is changing. Autonomy, independence and continued community involvement are now recognised goals. As a result, new initiatives are required to support people with dementia to sustain their quality of life, update community understanding and reflect resultant change in community attitudes. Measuring the impact of such initiatives can help determine the extent of their success, inform needs for further intervention and, ultimately, shape policy. Objective To discover – or, if this could not be achieved, develop – a questionnaire measuring community attitudes towards people with dementia reflecting these newly recognised goals in terms of both content and expression. Methods A four-stage approach was used in this research: a scoping review of the literature, questionnaire development and expert review, questionnaire piloting, including with people living with dementia and their families, and preliminary psychometric testing. Results The review failed to retrieve a suitable existing questionnaire. A ten-item questionnaire, the Dementia Community Attitudes Questionnaire was developed, content validity was established by expert review and piloting led to refinements. Exploratory factor analysis ( N = 92) generated an interpretable three-factor solution. Cronbach’s alpha coefficient for Factor 1, Engagement, was good (0.855); for Factor 2, Challenges, and Factor 3, Decision-Making, reliability was acceptable (0.785 and 0.709, respectively). Conclusion Supporting people with dementia to sustain their quality of life requires new initiatives and suitable measures to evaluate their impact. The Dementia Community Attitudes Questionnaire was developed with input from people with dementia, their families, and relevant experts. Items reflect current opportunities for people with dementia to retain their independence, autonomy and community engagement for as long as possible. Following further psychometric testing, this new questionnaire may be useful to evaluate such initiatives.

scholarly journals Understanding the Link between Family Caregiver Quality of Life and the Care Provided to Older People With Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 153-154
Author(s):  
Afeez Hazzan
Keyword(s):  
Quality Of Life ◽  
Quality Of Care ◽  
Older People ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Well Being ◽  
The United States ◽  
People With Dementia ◽  
The Impact

Abstract Dementia is one of the most rapidly growing diseases in the United States. In 2018, the direct costs to American society of caring for older people with dementia was approximately $277 billion. Primary informal caregivers are mainly responsible for the care of older people with dementia including Alzheimer’s disease. Caregivers perform a myriad of duties ranging from shopping for their loved ones’ groceries, helping with medications, and managing finances. The caregiving role becomes more demanding as the disease progresses over time, and studies have shown that the quality-of-life (QoL) experienced by caregivers of older adults who have dementia is lower than the QoL of caregivers for older people who do not have dementia. To the best of our knowledge, there has been no research conducted to investigate whether lower caregiver QoL affects the level or quality of care that caregivers provide to persons with dementia. In the current study, we interviewed family caregivers living in Rochester, New York to inquire about their quality of life and the care provided to older people living with dementia. Further, caregivers completed the 36-item Short Form Health Survey (SF-36) as well as a draft questionnaire for measuring the quality of care provided to older people living with dementia. Both quantitative and qualitative findings from this study reveals important relationships between family caregiver QoL and the care provided, including the impact of social support and financial well-being. The study findings could have significant impact, particularly for the provision of much needed support for family caregivers.

Quality of Life for People With Dementia Living in Residential and Nursing Home Care: The Impact of Performance on Activities of Daily Living, Behavioral and Psychological Symptoms, Language Skills, and Psychotropic Drugs

2001 ◽  
Vol 13 (1) ◽  
pp. 93-106 ◽  
Author(s):  
Clive Ballard ◽  
John O'Brien ◽  
Ian James ◽  
Pat Mynt ◽  
Marisa Lana ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Activities Of Daily Living ◽  
Psychotropic Drugs ◽  
Daily Living ◽  
Psychological Symptoms ◽  
Well Being ◽  
Nursing Home Care ◽  
People With Dementia ◽  
The Impact

Many people with dementia reside in care facilities. Little is known about how key parameters impact upon their quality of life (QOL). All 209 people with dementia in six facilities received a standardized assessment (Neuropsychiatric Inventory [NPI], Barthel Scale, psychotropic drugs). One hundred twelve residents were assessed using Dementia Care Mapping, an observational method for QOL indices. Lower performance on activities of daily living (reduced well-being [WB] r = +0.39, p < .0001; social withdrawal [SW] r = +0.42, p < .0001; engagement in activities [EA] r = +0.31, p = .001) and taking psychotropics (WB 2.5 vs. 3.2, t = .2.3, p = .02; SW 11.4% vs. 2.7%, t = 3.0, p = .004; EA 56.5% vs. 71.9%; t = 3.5, p = .001) were associated with reduced QOL, but symptoms from the NPI were not. More focused prescribing of psychotropics and better staff training are essential.

scholarly journals The impact of co-morbidity on the quality of life of people with dementia: findings from the IDEAL study

2018 ◽  
Vol 48 (3) ◽  
pp. 361-367 ◽  
Author(s):  
Sharon M Nelis ◽  
Yu-Tzu Wu ◽  
Fiona E Matthews ◽  
Anthony Martyr ◽  
Catherine Quinn ◽  
...  
Keyword(s):  
Quality Of Life ◽  
People With Dementia ◽  
Co Morbidity ◽  
Ideal Study ◽  
The Impact ◽  
The Ideal

The impact of antipsychotics and neuropsychiatric symptoms on the quality of life of people with dementia living in nursing homes

2012 ◽  
Vol 28 (5) ◽  
pp. 530-538 ◽  
Author(s):  
Julia van de Ven-Vakhteeva ◽  
Hans Bor ◽  
Roland B. Wetzels ◽  
Raymond T. C. M. Koopmans ◽  
Sytse U. Zuidema
Keyword(s):  
Quality Of Life ◽  
Nursing Homes ◽  
Neuropsychiatric Symptoms ◽  
People With Dementia ◽  
The Impact

scholarly journals Exploring the impact of Covid-19 on the care and quality of life of people with dementia and their carers: A scoping review

Dementia ◽  
2021 ◽  
pp. 147130122110539
Author(s):  
Patricia Masterson-Algar ◽  
Maria Cheshire Allen ◽  
Martin Hyde ◽  
Norah Keating ◽  
Gill Windle
Keyword(s):  
Quality Of Life ◽  
Social Services ◽  
Scoping Review ◽  
Negative Impact ◽  
Care Needs ◽  
Health And Social Services ◽  
People With Dementia ◽  
Severity Of Dementia ◽  
The Impact

This article reports on findings of a scoping review aimed to map the published literature concerning the impact of Covid-19 on the care and quality of life of people living with dementia and their carers. Twenty-nine articles were included in the review. Three overarching themes were identified: (1) Impact on people with dementia – unmet and increased care needs; (2) Impact on carers – increased stress and burden and (3) Impact according to demographics. Overall, findings show that Covid-19 has led to a reduction in support from health and social services and to a move towards technology-based support. Furthermore, Covid-19 has had a negative impact on the care and quality of life of people living with dementia and their carers, and that this impact was influenced by the severity of dementia.

scholarly journals EXAMINATION OF IMPACT OF RESPONSIBLE TOURISM PRACTICES ON QUALITY OF LIFE OF DESTINATION COMMUNITIES

2021 ◽  
Vol 36 (2spl) ◽  
pp. 688-697
Author(s):  
Parikshat Singh MANHAS ◽  
◽  
Ramjit SINGH ◽  
Gyula FODOR ◽  
Sándor BERGHAUER ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Factor Analysis ◽  
Community Involvement ◽  
Structural Equation ◽  
Mediating Role ◽  
The Impact ◽  
The Relationship ◽  
Responsible Tourism

The study endeavors to find out the perceived impact of Responsible Tourism Practices (RTPs) on destination communities’ Quality of Life (QOL). Besides, the investigation tests the mediating role of community involvement in the relationship between RTPs and QOL. A well-designed questionnaire developed from the existing literature was distributed among the tourist destination residents of Pahalgam, Kashmir Valley, India. In addition, exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) was performed to validate the EFA findings through AMOSS 22. Structural Equation Modelling (SEM) technique was also applied to ascertain the impact of RTPs on QOL. Finally, the mediating role of community involvement was examined and, subsequently, the results were reported. The study’s findings resulted in a significant relationship between RTPs and QOL; thereby, RTPs have a pivotal role in enhancing the QOL of the communities. Furthermore, the investigation revealed that community involvement mediates the relationship between RTPs and QOL. Thus, the study’s achievements suggest that the locals should be involved in tourism activities to enhance the communities’ QOL.

CONSERVATION OF HISTORIC WATERFRONT TO IMPROVE THE QUALITY OF LIFE IN OLD DHAKA

2017 ◽  
Vol 11 (2) ◽  
pp. 83 ◽  
Author(s):  
Mohammed Mahbubur Rahman ◽  
Sharif Shams Imon
Keyword(s):  
Quality Of Life ◽  
Community Involvement ◽  
Social Life ◽  
Study Approach ◽  
The Social ◽  
Political Forces ◽  
The Impact ◽  
Historic Landscape

Liveability of a city is related to the quality of life (QOL) assessed by the impact of the quality of physical environment on liveability and the role of recreation in psychological wellbeing of individuals. Like in major Asian cities, the historic waterfront and architectural heritage of Dhaka are important components of the fabric. Despite diminution, it continues to affect the social life of Old Dhaka residents. In recent years, protection of the waterfront from illegal encroachment and pollution has become a major concern, amidst a lack of understanding of the river’s role in improving the QOL of the waterfront residents and the role of community involvement. By comparing waterfronts in similar contexts and through literature review and observations, the authors investigate how the conservation of the historic waterfront can contribute to the improvement of quality of life in Old Dhaka, and suggest ways to protect the riverfront with this objective. Seeing waterfronts as products of human intervention into nature, this paper discusses the socio-political forces that shape this, and investigates how conservation of the historic landscape can improve the QOL of the nearby residents. It uses a case study approach based on documentary research, unstructured and nonparticipant observations, and interviews with community leaders, environmental activists and local bodies.

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