scholarly journals Informal caregivers and persons with dementia’s everyday life coping

2021 ◽  
Vol 8 (1) ◽  
pp. 205510292110009
Author(s):  
Bente Nordtug ◽  
Wenche K Malmedal ◽  
Rigmor Einang Alnes ◽  
Kari Blindheim ◽  
Gunn Steinsheim ◽  
...  
Keyword(s):  
Health Care ◽  
Nursing Home ◽  
Everyday Life ◽  
Home Health Care ◽  
Health Personnel ◽  
Informal Caregivers ◽  
Home Health ◽  
Dementia Prevalence ◽  
Close Relatives ◽  
Home Availability

This qualitative study explores informal caregivers’ experiences of supporting persons with dementia’s everyday life coping. In the future, there will be fewer health personnel, increased dementia prevalence and limited nursing home availability. Accordingly, close relatives may be compelled to assume greater care responsibilities. Knowledge concerning persons with dementia’s everyday coping from the perspective of informal caregivers remains insufficient, despite these people’s importance for those with dementia. This investigation analyses informal caregivers’ perceived challenges and pleasures in providing care, how home health care affects everyday life coping and the factors that are most important to informal caregivers in supporting care receivers.

scholarly journals Perspectives on Care for Late-Stage Parkinson’s Disease

2021 ◽  
Vol 2021 ◽  
pp. 1-11
Author(s):  
Kristina Rosqvist ◽  
Marianne Kylberg ◽  
Charlotte Löfqvist ◽  
Anette Schrag ◽  
Per Odin ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Health Care ◽  
Parkinson's Disease ◽  
Everyday Life ◽  
Residential Care ◽  
Home Health Care ◽  
Late Stage ◽  
Informal Caregivers ◽  
Home Health ◽  
Main Category

In the late stage of Parkinson’s disease (PD), there is an increasing disease burden not only for the patients but also for their informal caregivers and the health and social services systems. The aim of this study was to explore experiences of late-stage PD patients’ and their informal caregivers’ satisfaction with care and support, in order to better understand how they perceive the treatment and care they receive. This qualitative substudy was part of the longitudinal European multicentre Care of Late Stage Parkinsonism (CLaSP) project. Individual semistructured interviews were conducted with patients (n = 11) and informal caregivers (n = 9) in Sweden. Data were analysed through the content analysis technique. The final analyses generated one main category: “We are trying to get by both with and without the formal care” and five subcategories: “Availability of health care is important for managing symptoms and everyday life”; “Dependence on others and scheduled days form everyday life”; “There is a wish to get adequate help when it is needed”; “Mixed feelings on future housing and respite care”; and “Family responsibility and loyalty for a functioning everyday life”. Having regular contact with PD-specialised health care was perceived as important. Greater access to physiotherapy was wished for. Maintaining autonomy was perceived as important by patients, in both home health care and a future residential care setting. Responsibility and loyalty between spouses and support from children enabled everyday life to carry on at home, indicating a vulnerability for those without an informal caregiver. The results suggest that regular access to PD-specialised health care is important and that a specialised and multidisciplinary approach to the management of PD symptomatology is likely necessary. Non-PD-specialised staff in home health care and residential care facilities should regularly be given opportunities to obtain PD-specific education and information.

A Conceptual-Theoretical-Empirical Structure for the Study of Alzheimer Informal Caregivers and Home Health Care Nursing Services

2019 ◽  
Vol 31 (4) ◽  
pp. 231-238 ◽  
Author(s):  
Joanne M. Garvey ◽  
Joanne Marie Dalton ◽  
Cherlie Magny-Normilus
Keyword(s):  
Health Care ◽  
Alzheimer Disease ◽  
Home Health Care ◽  
Informal Caregivers ◽  
Home Health ◽  
Nursing Services ◽  
Middle Range ◽  
Range Theory ◽  
Roy's Adaptation Model ◽  
Care Nursing

The purpose of this article is to describe the process used to create a conceptual-theoretical-empirical structure for a proposed study of policies for home health care nursing services for informal caregivers of persons with Alzheimer disease. The process consisted of linkage of the Conceptual Model of Nursing and Health Policy with Roy’s Adaptation Model to guide derivation of a middle-range theory of home health care nursing services for Alzheimer disease informal caregiving, and selection of appropriate empirical research methods.

PERCEPTIONS OF NURSING HOME HEALTH CARE PROFESSIONALS INFLUENCING END-OF-LIFE DISCUSSIONS

2005 ◽  
Vol 6 (2) ◽  
pp. B15
Author(s):  
B Ricke ◽  
A Shmookler ◽  
T J McCallum ◽  
S Reddy ◽  
B J Messinger-Rapport
Keyword(s):  
Health Care ◽  
Nursing Home ◽  
End Of Life ◽  
Home Health Care ◽  
Health Care Professionals ◽  
Home Health

scholarly journals Burnout in the nursing home health care aide: A systematic review

2016 ◽  
Vol 3 (3) ◽  
pp. 76-87 ◽  
Author(s):  
Sarah L. Cooper ◽  
Heather L. Carleton ◽  
Stephanie A. Chamberlain ◽  
Greta G. Cummings ◽  
William Bambrick ◽  
...  
Keyword(s):  
Systematic Review ◽  
Health Care ◽  
Nursing Home ◽  
Home Health Care ◽  
Home Health ◽  
Health Care Aide

scholarly journals The Impact of Certificate-of-Need Laws on Nursing Home and Home Health Care Expenditures

2015 ◽  
Vol 73 (1) ◽  
pp. 85-105 ◽  
Author(s):  
Momotazur Rahman ◽  
Omar Galarraga ◽  
Jacqueline S. Zinn ◽  
David C. Grabowski ◽  
Vincent Mor
Keyword(s):  
Health Care ◽  
Nursing Home ◽  
Home Health Care ◽  
Health Care Expenditures ◽  
Home Health ◽  
Certificate Of Need ◽  
The Impact

Self-Care for Caregivers of Individuals Living With Multiple Sclerosis: Testing Mediation Models of Caregiver Stress, Health, and Self-Care

2020 ◽  
pp. 108482232097321
Author(s):  
MacKenzie Fye ◽  
Wren Yoder ◽  
Kelly Manser ◽  
Steve N. Du Bois
Keyword(s):  
Multiple Sclerosis ◽  
Health Care ◽  
Home Health Care ◽  
Online Survey ◽  
Functional Limitations ◽  
Informal Caregivers ◽  
Self Care ◽  
Home Health ◽  
Policy Implications ◽  
Future Research

Individuals with Multiple Sclerosis (MS) often receive home health care, yet little research investigates the health of informal caregivers of individuals with MS. We tested a mediation model in which associations between caregiver stress and caregiver self-care were explained by each of four a priori caregiver health factors—caregiver negative affect, pain, tiredness, and functional limitations. Participants ( n = 60 informal caregivers) were recruited online or in-person from March—July 2018, and completed an online survey assessing demographics and their caregiving experience. After controlling for demographics, only caregiver tiredness mediated the association between caregiver stress and caregiver self-care. Therefore, caregiver tiredness may be an important construct for assessment, intervention, and future research, among caregivers of individuals with MS, and among anyone providing home health care. These findings have research, clinical, and policy implications.

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