Patient-Reported Outcome Measurements (PROMs) After Discharge From the Emergency Department: A Cross-Sectional Study

Background: The purpose of a patient-reported outcome (PRO) is to elicit the perspectives of patients and translate them into a reliable measurement questionnaire. Objectives: The objective of this cross-sectional study was to detect a set of PROs and PRO measurements (PROMs) about patients with isolated trauma of the limbs receiving emergency department (ED) care. Methods: A survey was performed in the ED using a questionnaire among the enrolled patients to identify which proposed outcomes were perceived as important by the patients according to their expectations. Results: Ninety-six consecutive patients were conveniently enrolled. For each item of the questionnaire, the percentage of patients who agreed to perceive it important were calculated. Three items were perceived important by almost 85% of the patients: getting an x-ray (91%; 95% CI: 88%-98%), obtaining a written therapy (94%; 95% CI: 87%-97%), and feeling the physicians’ and nurses’ empathy (97%; 95% CI: 91%-99%). The ED system was able to satisfy 2 of the 3 agreed PROs in at least 85% of the cases: getting an x-ray (97%; 95% CI: 91%-99%) and obtaining a written therapy (97%; 95% CI: 91%-99%). Moreover, in 30/96 patients (31%; 95% CI: 22%-41%), all the PROs were satisfied, and in 75/96 patients (78%; 95% CI: 69%-85%), all agreed PROs were satisfied. Conclusions: Our study shows an example of core of PROs proposed by the ED physicians and agreed by the patients. Moreover, we presented a set of PROMs which could be used to measure the quality of an ED.

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Gastrointestinal Symptoms of and Psychosocial Changes in Inflammatory Bowel Disease: A Nursing-Led Cross-Sectional Study of Patients in Clinical Remission

Medicina ◽

10.3390/medicina56010045 ◽

2020 ◽

Vol 56 (1) ◽

pp. 45 ◽

Cited By ~ 4

Author(s):

Rosellina Margherita Mancina ◽

Raffaele Pagnotta ◽

Caterina Pagliuso ◽

Vincenzo Albi ◽

Daniela Bruno ◽

...

Keyword(s):

Quality Of Life ◽

Patient Reported Outcomes ◽

Gastrointestinal Symptoms ◽

Cross Sectional Study ◽

Sectional Study ◽

Cross Sectional ◽

Patient Reported ◽

Inflammatory Bowel ◽

The Impact

Background and Objectives: Nursing management in Inflammatory Bowel Disease (IBD) is focused on global patient care. Starting from basic knowledge of diagnostic and therapeutic management, nurses can assess the impact of IBD on patients’ quality of life not only at the physical level, but also at the psychological, social, and emotional levels. The aim of this study was to evaluate the impact of gastrointestinal symptoms on psychosocial changes in IBD patients in remission through nursing-led Patient-Reported Outcomes. Materials and Methods: We performed a cross-sectional study of 109 IBD patients in clinical and endoscopic remission. Specialist nurses invited patients to complete questionnaires on gastrointestinal symptoms and quality of life through the Patient-Reported Outcomes Measurement Information System (PROMIS). Results: We found that the gastrointestinal symptoms that the patients reported had a significant impact on the analyzed aspects of health. More specifically, belly pain, diarrhea, and bloating were associated with depressive symptoms (p < 0.001), anxiety (p < 0.001), fatigue (p < 0.001), and sleep disturbances (p < 0.001). Moreover, these symptoms also significantly affected patients’ social dimension in terms of satisfaction with participation in social roles (p < 0.001, p < 0.05, and p < 0.001 for belly pain, diarrhea, and bloating, respectively) and physical functions (p < 0.001). The results were virtually the same in a multivariable analysis adjusted by age, gender, body mass index (BMI), and disease duration. Conclusions: Even during remission, gastrointestinal symptoms are the main factors that influence quality of life in IBD patients. This exploratory study highlights the need to adopt validated questionnaires in clinical practice, and demonstrates that PROMIS is a valid, objective, and standardized instrument that can help nursing staff to better define the consequences of the disease in a patient’s daily life.

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PNS190 PATIENT-REPORTED OUTCOME MEASURES IN CORE OUTCOME SETS: A CROSS-SECTIONAL STUDY BASED ON THE COMET DATABASE

Value in Health ◽

10.1016/j.jval.2020.04.1185 ◽

2020 ◽

Vol 23 ◽

pp. S319

Author(s):

O. Ciani ◽

M. Salcher-Konrad ◽

M. Meregaglia ◽

K. Smith ◽

S. Gorst ◽

...

Keyword(s):

Outcome Measures ◽

Patient Reported Outcome Measures ◽

Cross Sectional Study ◽

Patient Reported Outcome ◽

Core Outcome ◽

Sectional Study ◽

Cross Sectional ◽

Core Outcome Sets ◽

Patient Reported

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Establishing User Error on the Patient-Reported Component of the American Shoulder and Elbow Surgeons Shoulder Score

Orthopaedic Journal of Sports Medicine ◽

10.1177/2325967120910094 ◽

2020 ◽

Vol 8 (3) ◽

pp. 232596712091009

Author(s):

Jonathan Bourget-Murray ◽

Ariana Frederick ◽

Lisa Murphy ◽

Jacqui French ◽

Shane Barwood ◽

...

Keyword(s):

Total Error ◽

Cross Sectional Study ◽

Patient Reported Outcome ◽

Error Rates ◽

Sectional Study ◽

Level Of Evidence ◽

Cross Sectional ◽

Total Error Rate ◽

Patient Reported ◽

The Mean

Background: The American Shoulder and Elbow Surgeons (ASES) score is a patient-reported outcome (PRO) questionnaire developed to facilitate communication among international investigators and to allow comparison of outcomes for patients with shoulder disabilities. Although this PRO measure has been deemed easy to read and understand, patients may make mistakes when completing the questionnaire. Purpose: To evaluate the frequency of potential mistakes made by patients completing the ASES score. Study Design: Cross-sectional study; Level of evidence, 3. Methods: A prospective cross-sectional study was performed for 600 ASES questionnaires completed by patients upon their first visit to 1 of 2 clinic locations (Australian vs Canadian site). Two categories of potential errors were predefined, and then differences in error rates were compared based on demographics (age, sex, and location). To determine whether these methods were reliable, an independent, third reviewer evaluated a subset of questionnaires separately. The interrater reliability was evaluated through use of the Cohen kappa. Results: The mean patient age was 49.9 years, and 63% of patients were male. The Cohen kappa was high for both evaluation methods used, at 0.831 and 0.918. On average, 17.9% of patients made at least 1 potential mistake, while an additional 10.4% of patients corrected their own mistakes. No differences in total error rate were found based on baseline demographics. Canadians and Australians had similar rates of error. Conclusion: To ensure the accuracy of the ASES score, this questionnaire should be double checked, as potential mistakes are too frequently made. This attentiveness will ensure that the ASES score remains a valid, reliable, and responsive tool to be used for further shoulder research.

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The Gait Deviation Index Is Associated with Hip Muscle Strength and Patient-Reported Outcome in Patients with Severe Hip Osteoarthritis—A Cross-Sectional Study

PLoS ONE ◽

10.1371/journal.pone.0153177 ◽

2016 ◽

Vol 11 (4) ◽

pp. e0153177 ◽

Cited By ~ 18

Author(s):

Signe Rosenlund ◽

Anders Holsgaard-Larsen ◽

Søren Overgaard ◽

Carsten Jensen

Keyword(s):

Muscle Strength ◽

Hip Osteoarthritis ◽

Cross Sectional Study ◽

Patient Reported Outcome ◽

Sectional Study ◽

Cross Sectional ◽

Deviation Index ◽

Hip Muscle ◽

Patient Reported ◽

Gait Deviation Index

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COVID-19 Pandemic Impact on Emergency Department Visits and Quality of Service: A Comparative Cross-Sectional Study in a Tertiary Centre

Journal of Pharmaceutical Research International ◽

10.9734/jpri/2021/v33i58b34227 ◽

2021 ◽

pp. 471-483

Author(s):

Maram Mohammed Jaboua ◽

Warif Jameel Abdulhaq ◽

Nada Saeed Almuntashiri ◽

Sarah Saud Almohammdi ◽

Asayel Qeblan Aldajani ◽

...

Keyword(s):

Emergency Department ◽

Cross Sectional Study ◽

Emergency Department Visits ◽

Critical Conditions ◽

Sectional Study ◽

Cross Sectional ◽

Coronary Syndrome ◽

Number Of Patients ◽

Ed Visits

Background: The COVID-19 pandemic has contributed to a devastating impact on emergency departments worldwide, resulting in a global crisis with various health consequences. We aimed to evaluate this impact on an emergency department (ED) visit of critical conditions such as Acute Coronary Syndrome (ACS), Cerebrovascular accident (CVA), Sepsis and Febrile neutropenia (FN), and to assess the quality of the ED after new adaptive measures were applied. Methods: This is a comparative cross-sectional study to assess the number of patients who presented to the ED of King Abdullah Medical city with the specified diagnosis. We collected data via the E-medical records. We compared the data over three periods pre-lockdown, lockdown and post lockdown in years 2019-2021. For quality measurement, Adaa (Ministry of Health's program) was used to calculate the percentage of patients who stayed 4 hours or less in the ED. Results: The total number of ED visits in the specified periods of study was 8387. The total numbers of patients for 2019, 2020, and 2020 respectively were 2011 (, ACS 70.4%, CVA 16.3%, sepsis and FN 13.3%.), 2733 (ACS 73.1%, CVA 9.9%, sepsis and FN 17.0%), and 3643 (ACS 64.0%, CVA 19.4%, sepsis and FN 16.7). The average percentage of patients who stayed 4 hours or less in the ED was 60% and 57.5% for 2020 and 2021, respectively. Conclusion: Although we expected reductions in ED visits during COVID-19 periods, we found that visits were rising through the years 2019-2021.

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The Otology Questionnaire Amsterdam: a generic patient reported outcome measure about the severity and impact of ear complaints. A cross-sectional study on the development of this questionnaire

Clinical Otolaryngology ◽

10.1111/coa.12950 ◽

2017 ◽

Vol 43 (1) ◽

pp. 240-248 ◽

Cited By ~ 6

Author(s):

E.M. Bruinewoud ◽

J.T. Kraak ◽

L.M. van Leeuwen ◽

S.E. Kramer ◽

P. Merkus

Keyword(s):

Outcome Measure ◽

Cross Sectional Study ◽

Patient Reported Outcome ◽

Sectional Study ◽

Cross Sectional ◽

Patient Reported Outcome Measure ◽

Patient Reported

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A cross-sectional study of the radiation dose and image quality of X-ray equipment used in IVR

Journal of Applied Clinical Medical Physics ◽

10.1120/jacmp.v17i4.6231 ◽

2016 ◽

Vol 17 (4) ◽

pp. 391-401 ◽

Cited By ~ 12

Author(s):

Yohei Inaba ◽

Koichi Chida ◽

Ryota Kobayashi ◽

Masayuki Zuguchi

Keyword(s):

Image Quality ◽

Radiation Dose ◽

Cross Sectional Study ◽

Sectional Study ◽

Cross Sectional ◽

X Ray

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Assessment of Sarcopenia and Obesity in Patients with Myasthenia Gravis Using Dual-Energy X-ray Absorptiometry: A Cross-Sectional Study

Journal of Personalized Medicine ◽

10.3390/jpm11111139 ◽

2021 ◽

Vol 11 (11) ◽

pp. 1139

Author(s):

Che-Cheng Chang ◽

Yen-Kung Chen ◽

Hou-Chang Chiu ◽

Jiann-Horng Yeh

Keyword(s):

Quality Of Life ◽

Body Composition ◽

Muscle Mass ◽

Cross Sectional Study ◽

Dual Energy ◽

Sectional Study ◽

Cross Sectional ◽

X Ray ◽

Composition Changes

Sarcopenia and obesity can negatively impact quality of life and cause chronic fragility, and are associated with neuromuscular diseases, including myasthenia gravis (MG). The long-term consequences of body composition changes in chronic MG remain unknown; we therefore evaluated changes in body composition, including sarcopenia, obesity, lean body mass, and the prevalence of sarcopenic obesity in patients. In this cross-sectional study, 35 patients with MG (mean age: 56.1 years) and 175 matched controls were enrolled. Body fat mass and skeletal muscle mass were measured using whole body dual-energy X-ray absorptiometry. Patients with MG exhibited a higher prevalence of obesity and higher android adiposity and total body fat percentage than those of controls. Although the prevalence of sarcopenia and sarcopenic obesity did not increase with age, there was a decrease in arm and android muscle mass in patients with MG compared with controls. Lower muscle mass percentages were correlated with increased age and MG severity, but not with corticosteroid use. Thus, MG is associated with increased risk for obesity and decreased muscle mass with aging, regardless of corticosteroid use. Therefore, accurate diagnosis of body composition changes in MG could facilitate the application of appropriate therapies to promote health, improve quality of life, and prevent fragility.

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‘Well-being paradox’ revisited: a cross-sectional study of quality of life in over 4000 adults with congenital heart disease

BMJ Open ◽

10.1136/bmjopen-2021-049531 ◽

2021 ◽

Vol 11 (6) ◽

pp. e049531

Author(s):

Caroline Sophie Andonian ◽

Sebastian Freilinger ◽

Stephan Achenbach ◽

Peter Ewert ◽

Ulrike Gundlach ◽

...

Keyword(s):

Quality Of Life ◽

Congenital Heart Disease ◽

Heart Disease ◽

Congenital Heart ◽

Cross Sectional Study ◽

Secondary Outcome ◽

Sectional Study ◽

Cross Sectional ◽

Patient Reported

ObjectiveThe present cross-sectional study investigated quality of life (QOL) in a large cohort of German adults with congenital heart disease (ACHDs) in association with patient-related and clinical variables.DesignCross-sectional survey.ParticipantsBetween 2016 and 2019, a representative sample of 4014 adults with various forms of congenital heart defect (CHD) was retrospectively analysed. Inclusion criteria were confirmed diagnosis of CHD; participant aged 18 years and older; and necessary physical, cognitive and language capabilities to complete self-report questionnaires.Primary and secondary outcome measuresQOL was assessed using the 5-level EQ-5D version (EQ-5D-5L). Sociodemographic and medical information was obtained by a self-devised questionnaire. Associations of QOL with patient-reported clinical and sociodemographic variables were quantified using multiple regression analysis and multiple ordinal logit models.ResultsOverall, ACHDs (41.8±17.2 years, 46.5% female) reported a good QOL comparable to German population norms. The most frequently reported complaints occurred in the dimensions pain/discomfort (mean: 16.3, SD: p<0.001) and anxiety/depression (mean: 14.3, p<0.001). QOL differed significantly within ACHD subgroups, with patients affected by pretricuspid shunt lesions indicating the most significant impairments (p<0.001). Older age, female sex, medication intake and the presence of comorbidities were associated with significant reductions in QOL (p<0.001). CHD severity was positively associated with QOL within the dimensions of self-care (OR 0.148, 95% CI 0.04 to 0.58) and mobility (OR 0.384, 95% CI 0.19 to 0.76).ConclusionCurrent findings temper widely held assumptions among clinicians and confirm that ACHDs experience a generally good QOL. However, specific subgroups may require additional support to cope with disease-related challenges. The negative correlation of QOL with age is especially alarming as the population of ACHDs is expected to grow older in the future.Trial registration numberDRKS00017699; Results.

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