The Experience of Children With Neuroblastoma and Their Parents During Single-Room Isolation for 131I-Metaiodobenzylguanidine Therapy: A Qualitative Descriptive Study

2022 ◽  
pp. 275275302110687
Author(s):  
Cynthia M. LaFond ◽  
Alyssa Yost ◽  
Kelly Lankin ◽  
Megha Kilaru ◽  
Susan L. Cohn
Keyword(s):  
Emotional Stress ◽  
Descriptive Study ◽  
Physical Contact ◽  
Single Room ◽  
Children And Parents ◽  
Qualitative Descriptive ◽  
Conventional Content Analysis ◽  
Mibg Therapy ◽  
The Impact

Background: Administration of 131I-metaiodobenzylguanidine (131I-MIBG) for neuroblastoma requires hospitalization in single-room isolation and limits caregiver physical contact due to the child's radioactive burden. Though used for decades, there is a dearth of research on the experiences of children and their parents while isolated. Methods: This qualitative descriptive study evaluated the experience of children with neuroblastoma undergoing single-room isolation for 131I-MIBG therapy and their parents. Ten nurses, nine parents, and five children were interviewed; transcripts were analyzed applying a conventional content analysis approach. Results: Child themes included overall experiences ranging from positive to negative; emotional stress was common; symptoms were common but mostly managed; the children were adequately prepared for isolation; and audiovisual technology and entertainment helped. The indwelling urinary catheter was a source of emotional stress and/or pain for several children. Parent themes included I thought it was going to be a lot worse; it gets better with time; feeling concerned and overwhelmed; prepared as much as you can be; and you feel like you’re not alone. Discussion: Findings suggest that children and parents would benefit from additional coping support interventions to address emotional distress. Efforts should be made to identify other sources of technology or room designs that can maximize the child's sense of connection with parents and healthcare professionals. Additional research is needed to examine the impact of this isolation experience on the long-term psychological outcomes of children and parents.

scholarly journals “We Are Doing These Things So That People Will Not Laugh at Us”: Caregivers’ Attitudes About Dementia and Caregiving in Nigeria

2021 ◽  
pp. 104973232110041
Author(s):  
Candidus C. Nwakasi ◽  
Kate de Medeiros ◽  
Foluke S. Bosun-Arije
Keyword(s):  
The United States ◽  
Structured Interviews ◽  
Dementia Caregivers ◽  
Term Care ◽  
Awareness Campaigns ◽  
Knowledge Deficit ◽  
People With Dementia ◽  
Qualitative Descriptive ◽  
The Impact

Some Nigerians, in their effort to make sense of dementia symptoms, use descriptions that may stigmatize people with dementia and their families. This qualitative descriptive study focused on the everyday understanding of dementia and the impact of stigma on the caregiving experiences of informal female Nigerian dementia caregivers. Semi-structured interviews were conducted with a purposive sample of 12 adult informal female caregivers in Nigeria and analyzed for themes. Afterward, results were presented to focus groups of 21 adult Nigerians residing in the United States for more contextual insight on the findings. The three major themes were misconceptions about dementia symptoms, caregiving protects against stigmatization, and stigma affects caregiving support. Overall, we argue that knowledge deficit, poor awareness, and traditional spiritual beliefs combine to drive dementia-related stigmatization in Nigeria. Strategies such as culturally appropriate dementia awareness campaigns and formal long-term care policies are urgently needed to help strengthen informal dementia caregiving in Nigeria.

The Impact of a Childhood Cancer Diagnosis on the Children and Siblings’ School Attendance, Performance, and Activities: A Qualitative Descriptive Study

2017 ◽  
Vol 35 (2) ◽  
pp. 118-131 ◽  
Author(s):  
Argerie Tsimicalis ◽  
Laurence Genest ◽  
Bonnie Stevens ◽  
Wendy J. Ungar ◽  
Ronald Barr
Keyword(s):  
Childhood Cancer ◽  
School Attendance ◽  
Productivity Loss ◽  
Descriptive Study ◽  
Semistructured Interview ◽  
Children With Cancer ◽  
Productivity Cost ◽  
Cost Study ◽  
Qualitative Descriptive ◽  
The Impact

Families of children with cancer are confronted with unexpected out-of-pocket expenses and productivity costs associated with the diagnosis. One productivity cost that falls on children is the impact of cancer on children’s school attendance, performance, and activities (eg, play, friendships, and socialization). Nested within the Childhood Cancer Cost Study, this qualitative descriptive study used convenience sampling to recruit and interview parents of children newly diagnosed with cancer. Content analysis techniques were used to inductively descriptive the semistructured interview data. Sixty-six parents of 65 children with cancer and of 73 siblings participated. The most commonly reported productivity loss in children with cancer was school absenteeism mainly due to cancer treatment. Children fell behind their classmates academically and lost important social time with peers. A few siblings also fell behind their peers primarily due to limited parental attention. Parents adopted various strategies to lessen the impact of the diagnosis on their children’s school attendance, performance, and activities. Providing parents with additional resources and support may optimize their children’s academic and social reintegration into school.

scholarly journals Social Attitude Analysis of 4th Grade of SDN 2 Kebumen in Industrial Revolution 4.0

2019 ◽  
Vol 2 (1) ◽  
pp. 188
Author(s):  
Suhartono Suhartono ◽  
Diyani Ayu Karimizzah ◽  
Dwi Pungky Ari Sandhi
Keyword(s):  
Industrial Revolution ◽  
Descriptive Study ◽  
Human Mind ◽  
Social Attitudes ◽  
Study Data ◽  
Social Attitude ◽  
Qualitative Descriptive ◽  
The Subject ◽  
Teachers And Parents ◽  
The Impact

<em>The industrial 4.0 was the impact of the disruptive and development of the human mind pattern. In this era people will live with the help of technology so sophisticated that it affects social attitudes. The study served to describe the impact of the industrial revolution on students' social attitudes and to describe the students' social attitudes on learning. This research is a qualitative descriptive study, data collection techniques use interviews, questionnaire, and observation. The subject of this study is a 4<sup>th</sup> grade at SDN 2 Kebumen as many as 18 student, parent and 4<sup>th</sup> grade teachers. The results of this study shows that industrial era 4.0 cause students' poor social attitude when there is no supervision and direction from teachers and parents. On learning indicates that 4<sup>th</sup> grade students have varying degrees of social attitudes that cause learning to be less conducive.</em>

scholarly journals Acceptance of long-term care from intelligent robots: a study of attitudes among the elderly in China

2019 ◽  
Author(s):  
Zehao Zhang ◽  
Sifeng Zhang ◽  
Linling Xie
Keyword(s):  
Long Term Care ◽  
The Elderly ◽  
Physical Contact ◽  
Term Care ◽  
Intelligent Machines ◽  
Intelligent Robots ◽  
Disabled Elderly ◽  
Intelligent Tools ◽  
The Impact

Abstract Background China has the world's largest elderly population, as well as the largest population of disabled elderly. Existing literature shows that there have been increased efforts to develop intelligent robots to address the shortage of caregivers for the elderly. However, there has been little research on elders’ acceptance of care from intelligent robots. Aims The purpose of this study was to examine the acceptance of intelligent robots among disabled elderly in need of long-term care. Methods We used structured questionnaire and interview methods during a social survey. In total, 3060 questionnaires and 50 interviews were collected. Results An overwhelming majority of the 3060 participants (79.39%) indicated that they would reject robot care. Discussion In further research, should consider more about the background of interviewees, the influence of the economy and social development across different regions, and distinguish the impact of each type of basic information on the acceptance of intelligent machines by the elderly. Conclusions Most elderly adults were reluctant to allow robots to provide services that involved physical contact. Therefore, the development and design of robots should consider elderly individuals’ attitudes toward non-human services, in addition to broadening the scope of activities that intelligent robots could cover, and providing intelligent tools and products that the elderly would be more likely to gradually accept.

scholarly journals The Impact of Socially Responsible Marketing on TV Viewership and Household Conflicts: A Theoretical Descriptive Study

2022 ◽  
Vol 19 ◽  
pp. 396-401
Author(s):  
Ahmed M. Asfahani
Keyword(s):  
Descriptive Study ◽  
Conflict Theory ◽  
Business Practices ◽  
Business Organizations ◽  
Socially Responsible ◽  
Uses And Gratification ◽  
Uses And Gratification Theory ◽  
Qualitative Descriptive ◽  
Responsible Business Practices ◽  
The Impact

Marketing is used by business organizations to promote the beneficial attributes of their product and services. The increased focus on promoting ethical and socially responsible business practices has contributed to the emergence of socially responsible marketing. This study explores this concept and how it promotes good/positive social and cultural norms. The research demonstrates how businesses are forced to practice socially responsible marketing though its impact on TV viewership and household conflict remains unknown. A qualitative descriptive study is carried out to examine the effect of socially responsible marketing on TV viewership and household conflict. Data was collected from a sample of 15 marketing experts using a self-administered question and analyzed through thematic analysis. The study found no significant link between socially responsible marketing and TV viewership. Additionally, this research found that socially responsible marketing reduces household conflict. These findings are supported by the Uses and Gratification Theory, Functionalist Theory, and Conflict Theory.

scholarly journals The Acute Impact of the COVID-19 Pandemic on Children’s Mental Health in Southwestern Ontario

2020 ◽  
Author(s):  
Alexandra Mactavish ◽  
Carli Mastronardi ◽  
Rosanne Menna ◽  
Kimberley A. Babb ◽  
Marco Battaglia ◽  
...  
Keyword(s):  
Mental Health ◽  
Social Support ◽  
Psychological Distress ◽  
Psychological Impact ◽  
Well Being ◽  
Children’S Mental Health ◽  
Children's Mental Health ◽  
Children And Parents ◽  
The Impact

Objective: COVID-19 is an unprecedented global crisis. Research is critically needed to identify the acute and long-term impacts of the pandemic to children’s mental health including psychosocial factors that predict resilience, recovery, and persistent long-term distress. The present study collected data in June-July 2020 to enumerate the acute impact of the pandemic on children’s mental health, including the magnitude and nature of psychiatric and psychological distress in children, and to evaluate social support as a putative psychosocial correlate of children’s distress.Method: 190 families of children aged 8 to 13 from the Windsor-Essex region of Southwestern Ontario reported on the impact of the pandemic on children’s well-being (e.g., worry, happiness); irritability; social support; and symptoms of anxiety, depressive, and posttraumatic stress disorder at baseline assessment of an ongoing longitudinal study of the COVID-19 pandemic.Results: Children and parents reported worsened well-being and psychological distress during the pandemic compared to retrospective report of pre-pandemic well-being. Children and parents also reported higher depressive and anxiety symptoms, but fewer PTSD symptoms, compared to epidemiological samples that used the same measures prior to the pandemic. Finally, child-perceived social support from family and friends was associated with lower symptom severity.Conclusions: Study findings indicate broad psychological impact of the COVID-19 pandemic and are consistent with prior research that indicates a protective role of social support to mitigate the negative psychological impact of the pandemic.

Older people’s long-term care experiences during the COVID-19 pandemic in Ghana: a qualitative descriptive study

2021 ◽  
Author(s):  
Kofi Awuviry-Newton ◽  
Jacob Oppong Nkansah ◽  
Abraham Newton ◽  
Kwamina Abekah-Carter
Keyword(s):  
Long Term Care ◽  
Well Being ◽  
Descriptive Study ◽  
Structured Interviews ◽  
Term Care ◽  
Care Policies ◽  
Qualitative Descriptive ◽  
Descriptive Approach ◽  
Southern Ghana

This study explores older people’s long-term care experiences during the COVID-19 pandemic in Ghana. A qualitative descriptive approach employing semi-structured interviews was used to collect data from 15 older people from Southern Ghana. Analysis of interview data resulted in five interrelated themes: (1) sources and type of long-term care; (2) older people’s satisfaction with the long-term care received; (3) changes in their long-term care; (4) feelings of neglect regarding long-term care; and (5) older people’s resilience in long-term care. The sustainability of long-term care depends on the state’s ability to devise innovative long-term care policies and programmes to promote older people’s and their carers’ well-being.

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