The Impact of a Childhood Cancer Diagnosis on the Children and Siblings’ School Attendance, Performance, and Activities: A Qualitative Descriptive Study

2017 ◽  
Vol 35 (2) ◽  
pp. 118-131 ◽  
Author(s):  
Argerie Tsimicalis ◽  
Laurence Genest ◽  
Bonnie Stevens ◽  
Wendy J. Ungar ◽  
Ronald Barr
Keyword(s):  
Childhood Cancer ◽  
School Attendance ◽  
Productivity Loss ◽  
Descriptive Study ◽  
Semistructured Interview ◽  
Children With Cancer ◽  
Productivity Cost ◽  
Cost Study ◽  
Qualitative Descriptive ◽  
The Impact

Families of children with cancer are confronted with unexpected out-of-pocket expenses and productivity costs associated with the diagnosis. One productivity cost that falls on children is the impact of cancer on children’s school attendance, performance, and activities (eg, play, friendships, and socialization). Nested within the Childhood Cancer Cost Study, this qualitative descriptive study used convenience sampling to recruit and interview parents of children newly diagnosed with cancer. Content analysis techniques were used to inductively descriptive the semistructured interview data. Sixty-six parents of 65 children with cancer and of 73 siblings participated. The most commonly reported productivity loss in children with cancer was school absenteeism mainly due to cancer treatment. Children fell behind their classmates academically and lost important social time with peers. A few siblings also fell behind their peers primarily due to limited parental attention. Parents adopted various strategies to lessen the impact of the diagnosis on their children’s school attendance, performance, and activities. Providing parents with additional resources and support may optimize their children’s academic and social reintegration into school.

The Impact of Hypoglycemia on Productivity Loss and Utility in Type 2 Diabetes Patients Treated with Insulin in Real-World Canadian Practice: Protocol for a Prospective Study (Preprint)

2021 ◽  
Author(s):  
Veronique Lambert-Obry ◽  
Jean-Philippe Lafrance ◽  
Michelle Savoie ◽  
Jean Lachaine
Keyword(s):  
Type 2 Diabetes ◽  
Prospective Study ◽  
Real World ◽  
Productivity Loss ◽  
Economic Modeling ◽  
Economic Evaluations ◽  
Productivity Cost ◽  
Productivity Losses ◽  
The Impact

BACKGROUND Type 2 diabetes mellitus (T2DM) imposes a significant burden, with its increasing prevalence and life-threatening complications. In patients not achieving glycemic targets on oral antidiabetic drugs, initiation of insulin is recommended. However, a serious concern about insulin is drug-induced hypoglycemia. Hypoglycemia is known to affect quality of life and healthcare resource utilization. However, health economics and outcomes research (HEOR) data for economic modeling are limited, particularly in terms of utility values and productivity losses. OBJECTIVE The aim of this real-world prospective study is to assess the impact of hypoglycemia on productivity and utility in insulin-treated T2DM adults from Ontario and Quebec (Canada). METHODS This noninterventional, multicenter, 3-month prospective study will recruit patients from four medical clinics and two endocrinology/diabetes clinics. Patients will be identified using appointment lists, and enrolled through consecutive sampling during routinely scheduled consultations. To be eligible, patients must be ≥18 years of age, diagnosed with T2DM, and treated with insulin. Utility and productivity will be collected using the EQ-5D-5L questionnaire and the iMTA Productivity Cost Questionnaire (iPCQ), respectively. Questionnaires will be completed at 4, 8 and 12 weeks after recruitment. Generalized estimating equations (GEE) models will be used to investigate productivity losses and utility decrements associated with incident hypoglycemic events while controlling for individual patient characteristics. A total of 500 patients will be enrolled to ensure precision of HEOR estimates. RESULTS This study is designed to fill a gap in the Canadian evidence on the impact of hypoglycemia on HEOR outcomes. More specifically, it will generate productivity and utility inputs for economic modeling in T2DM. CONCLUSIONS Insulin therapies are expensive, and hypoglycemia is a significant component of economic evaluations. Robust HEOR data may help health technology assessment (HTA) agencies in future reimbursement decision making.

scholarly journals Social Attitude Analysis of 4th Grade of SDN 2 Kebumen in Industrial Revolution 4.0

2019 ◽  
Vol 2 (1) ◽  
pp. 188
Author(s):  
Suhartono Suhartono ◽  
Diyani Ayu Karimizzah ◽  
Dwi Pungky Ari Sandhi
Keyword(s):  
Industrial Revolution ◽  
Descriptive Study ◽  
Human Mind ◽  
Social Attitudes ◽  
Study Data ◽  
Social Attitude ◽  
Qualitative Descriptive ◽  
The Subject ◽  
Teachers And Parents ◽  
The Impact

<em>The industrial 4.0 was the impact of the disruptive and development of the human mind pattern. In this era people will live with the help of technology so sophisticated that it affects social attitudes. The study served to describe the impact of the industrial revolution on students' social attitudes and to describe the students' social attitudes on learning. This research is a qualitative descriptive study, data collection techniques use interviews, questionnaire, and observation. The subject of this study is a 4<sup>th</sup> grade at SDN 2 Kebumen as many as 18 student, parent and 4<sup>th</sup> grade teachers. The results of this study shows that industrial era 4.0 cause students' poor social attitude when there is no supervision and direction from teachers and parents. On learning indicates that 4<sup>th</sup> grade students have varying degrees of social attitudes that cause learning to be less conducive.</em>

scholarly journals The Impact of Socially Responsible Marketing on TV Viewership and Household Conflicts: A Theoretical Descriptive Study

2022 ◽  
Vol 19 ◽  
pp. 396-401
Author(s):  
Ahmed M. Asfahani
Keyword(s):  
Descriptive Study ◽  
Conflict Theory ◽  
Business Practices ◽  
Business Organizations ◽  
Socially Responsible ◽  
Uses And Gratification ◽  
Uses And Gratification Theory ◽  
Qualitative Descriptive ◽  
Responsible Business Practices ◽  
The Impact

Marketing is used by business organizations to promote the beneficial attributes of their product and services. The increased focus on promoting ethical and socially responsible business practices has contributed to the emergence of socially responsible marketing. This study explores this concept and how it promotes good/positive social and cultural norms. The research demonstrates how businesses are forced to practice socially responsible marketing though its impact on TV viewership and household conflict remains unknown. A qualitative descriptive study is carried out to examine the effect of socially responsible marketing on TV viewership and household conflict. Data was collected from a sample of 15 marketing experts using a self-administered question and analyzed through thematic analysis. The study found no significant link between socially responsible marketing and TV viewership. Additionally, this research found that socially responsible marketing reduces household conflict. These findings are supported by the Uses and Gratification Theory, Functionalist Theory, and Conflict Theory.

scholarly journals Health system determinants of access to essential medicines for children with cancer in Ghana

2020 ◽  
Vol 5 (9) ◽  
pp. e002906
Author(s):  
Rhonda Boateng ◽  
Lorna Renner ◽  
Kadia Petricca ◽  
Sumit Gupta ◽  
Avram Denburg
Keyword(s):  
Health System ◽  
Childhood Cancer ◽  
Policy Development ◽  
Essential Medicines ◽  
Cancer Drug ◽  
Structured Interviews ◽  
Children With Cancer ◽  
Drug Access ◽  
Context Specific ◽  
The Impact

BackgroundEvidence of the context-specific challenges related to childhood cancer drug (CCD) access is vital to improving outcomes for children with cancer in low- and middle-income countries, such as Ghana. We sought to determine the availability and cost of essential CCD in Ghana and identify the underlying determinants of access.MethodsOur study integrated quantitative data on drug prices and availability with qualitative insights into health system and sociopolitical determinants of CCD access in Ghana. We analysed retrospective monthly price and stock data for 41 cancer and supportive care drugs on the WHO Essential Medicines List (EML) from private retail and public institutional pharmacies. Non-parametric analyses evaluated relationships between drug price and availability, and impacts of drug class and formulation on availability and procurement efficiency. We assessed the determinants of drug access through thematic analysis of policy documents and semi-structured interviews (n=21) with key health system stakeholders.ResultsGhana lists only 47% of essential CCD on its National EML, revealing gaps in domestic formulary inclusion. Stock-outs occurred for 88% of essential CCD, with a 70-day median stock-out duration; 32% had median price ratios above internationally-accepted efficiency thresholds. Drugs procured inefficiently were more susceptible to stock-outs (p=0.0003). Principal determinants of drug access included: (1) lack of sociopolitical priority afforded childhood cancer and (2) the impact of policy and regulatory environments on drug affordability, availability and quality. Establishment of a population-based cancer registry, a nationally-coordinated procurement strategy for CCD, public financing for childhood cancer care and policies to control drug costs emerged as priority interventions to improve drug access in Ghana.ConclusionOur study provides context-specific evidence to enable responsive policy development for efficient drug procurement and supply management in Ghana and establishes a rigorous approach to the analysis of childhood cancer drug access in similar health system settings.

The Impact of School Visits on Siblings of Children With Cancer

2017 ◽  
Vol 35 (2) ◽  
pp. 110-117
Author(s):  
Isabelle Sjoberg ◽  
Jason D. Pole ◽  
Marilyn Cassidy ◽  
Claudette Boilard ◽  
Sharon Costantini ◽  
...  
Keyword(s):  
Health Care Professionals ◽  
School Attendance ◽  
School Adjustment ◽  
Well Being ◽  
Future Research ◽  
Semistructured Interview ◽  
Entire Family ◽  
Oncology Nurse ◽  
Pediatric Cancer Patients ◽  
The Impact

Background: Childhood cancer affects the entire family. Siblings experience similar stress to that of the ill child, including anger, depression, jealousy, guilt, and social isolation. School reentry programs are shown to be positive interventions for patients, it is hypothesized that similar outcomes exist for siblings. Objective: To examine the feasibility of studying the impact of the Ontario Oncology Nurse School Visitation Program on the well-being and school adjustment of siblings of pediatric cancer patients. Methods: Fourteen sibling participants and parents completed a semistructured interview and the PedsQL® questionnaire before and after a nurse school visit. School attendance was also compared and data were collected for logistics of study procedures. Results: The mode of data collection was agreeable and easy to plan and execute. School attendance showed a reduction of days missed; there was no significant impact on PedsQL results but the interviews yielded positive feedback. Conclusions: The outlook for siblings improves with the support of family members and health care professionals. This pilot study provides hypotheses and design for future research.

scholarly journals Strategies and challenges in Kerala’s response to the initial phase of COVID-19 pandemic: a qualitative descriptive study

BMJ Open ◽  
2021 ◽  
Vol 11 (7) ◽  
pp. e051410
Author(s):  
Kannamkottapilly Chandrasekharan Prajitha ◽  
Arya Rahul ◽  
Sujatha Chintha ◽  
Gopakumar Soumya ◽  
Meenu Maheswari Suresh ◽  
...  
Keyword(s):  
Focus Group ◽  
Health System ◽  
Descriptive Study ◽  
The State ◽  
Focus Group Discussions ◽  
Group Discussions ◽  
Wide Range ◽  
Qualitative Descriptive ◽  
The Impact ◽  
Depth Interviews

ObjectiveTo understand the structures and strategies that helped Kerala in fighting the COVID-19 pandemic, the challenges faced by the state and how it was tackled.DesignQualitative descriptive study using focus group discussions and in-depth interviews.SettingState of Kerala, India.Participants29 participants: four focus group discussions and eight in-depth interviews. Participants were chosen purposively based on their involvement in decision-making and implementation of COVID-19 control activities, from the department of health and family welfare, police, revenue, local self-government and community-based organisations. Districts, panchayats (local bodies) and primary health centres (PHCs) were selected based on epidemiological features of the area like the intensity of disease transmission and preventive/containment activities carried out in that particular area to capture the wide range of activities undertaken in the state.ResultsThe study identified five major themes that can inform best practices viz social capital, robust public health system, participation and volunteerism, health system preparedness, and challenges. This study was a real-time exploration of the intricacies of COVID-19 management in a low/middle-income country and the model can serve as an example for other states and nations to emulate or adjust accordingly.ConclusionThe study shows the impact of synergy of these themes towards more effective solutions; however, further research is much needed in examining the relationship between these factors and their relevance in policy decisions.

scholarly journals Economic burden of out-of-pocket expenditure, productivity cost during pregnancy and COVID-19 impact on household economy in a cohort of pregnant women in Anuradhapura District, Sri Lanka; A study protocol

F1000Research ◽  
2021 ◽  
Vol 10 ◽  
pp. 700
Author(s):  
Sajaan Praveena Gunarathne ◽  
Nuwan Darshana Wickramasinghe ◽  
Thilini Chanchala Agampodi ◽  
Indika Ruwan Prasanna ◽  
Suneth Buddhika Agampodi
Keyword(s):  
Health Care ◽  
Sri Lanka ◽  
Maternal Health ◽  
Health Services ◽  
Pregnant Women ◽  
Economic Burden ◽  
Productivity Loss ◽  
Household Economy ◽  
Productivity Cost ◽  
The Impact

Background: Investigating the out-of-pocket expenditure (OOPE) associated with maternal health is important since OOPE directly affects the affordability of health services. Global evidence suggests the importance of capturing the productivity cost during pregnancy in terms of absenteeism and presenteeism. Furthermore, the impact of the ongoing COVID-19 pandemic on the household economy needs to be further evaluated as pregnant women are one of the most vulnerable groups. This study aims at determining the economic burden of OOPE, productivity cost, and COVID-19 impact on pregnant women's household economy in a cohort of pregnant women in Anuradhapura District, Sri Lanka. Methods: The study setting is all 22 Medical Officer of Health (MOH) areas in Anuradhapura district, Sri Lanka. The study has three components; a follow-up study of a cohort of pregnant women to assess the magnitude and associated factors of OOPE and to assess the productivity cost (Component 1), a qualitative case study to explore the impact and causes of the OOPE under free health services (Component 2) and a cross-sectional study to describe the effects of COVID-19 outbreak on household economy (Component 3). The study samples consist of 1,393 and 1,460 participants for components one and three, respectively, and 25 pregnant women will be recruited for component two. The data will be analyzed using descriptive, parametric, and non-parametric statistics for the first and third components and thematic analysis for the second component. Discussion: With the lack of evidence on OOPE, productivity loss/cost in terms of maternal health, and COVID-19 impact on household economy in Sri Lanka, the evidence generated from this study would be valuable for policymakers, health care administrators, and health care practitioners globally, regionally, and locally to plan for future measures for reducing the OOPE, productivity loss/cost, and minimizing the economic hardship of the COVID-19 outbreak during pregnancy.

scholarly journals Pelestarian Koleksi Langka Berbasis Flipbook di Perpustakaan Umum

2021 ◽  
Vol 1 (2) ◽  
pp. 99-110
Author(s):  
Ifon Margiati Rahayu
Keyword(s):  
Sampling Technique ◽  
Descriptive Study ◽  
Rare Book ◽  
Digital Books ◽  
Qualitative Descriptive ◽  
Book Collections ◽  
Rare Books ◽  
Text Content ◽  
The Impact ◽  
Selection Of

Introduction. Currently, the office limits access to collections of rare books for users to preserve the physical collection. Users who want to access the display will only get a synopsis. However, this policy makes users challenging to access the full-text content. The collection of rare books has also not received proper preservation and creates some rare book collections to be damaged. This study aims to determine the process of digitizing the rare book collections at the Archives and Library Office of Banjarnegara Regency based on Flipbook.Methodology. This study is a qualitative descriptive study. The selection of informants in this study is a purposive sampling technique. The data collection in this study is observation, interview, and literature study.Result and discussion. This study shows that digitizing the rare book collections includes selection, scanning, editing, flipbook making, and uploading on the OPAC INLISLite application 3.1. Users can access rare book collections in the form of flipbooks or interesting digital books. The obstacles found in digitizing rare book collections are the absence of SOPs of digitizing, inadequate digitization facilities and infrastructures, the absence of Human Resources (HR). Nevertheless, they master the digitization of collections and the lack of budget allocations for digitizing the collection.Conclusion. The impact of digitization with Flipbook is that users have full access to a collection of rare books needed by users and become an alternative to the preservation and empowerment of libraries and users that are more attractive and safe.

scholarly journals DESKRIPSI DAMPAK GEMPA BUMI DAN LIKUIFAKSI TERHADAP PETANI DI DESA JONO OGE KABUPATEN SIGI PROPINSI SULAWESI TENGAH

2019 ◽  
Vol 26 (2) ◽  
pp. 148
Author(s):  
Karlina Muhsin Tondi
Keyword(s):  
Agricultural Land ◽  
Descriptive Study ◽  
Online Media ◽  
Cultivated Land ◽  
Literature Study ◽  
Water Pumping ◽  
Irrigation Channels ◽  
Qualitative Descriptive ◽  
The Impact ◽  
Central Sulawesi

The purpose of this study was to describe the impact of earthquakes and liquefaction on farmers in Jono Oge village, Sigi regency, Central Sulawesi province. This research was a qualitative descriptive study using questionnaire and interview instruments. Information was also obtained through literature study and field observations. The subjects of this study were farmers in Jono Oge village, Sigi regency.  Respondents were purposively selected. The questionnaires consisted of ten questions which had been validated by experts.  The questionnaires were given to ten farmers while the interview was conducted on four farmers.  The literature study was carried out by tracing information on the Sigi Regency BPS Office, Jono Oge Village Office and a number of online media reporting on earthquakes and liquefaction that occurred in Central Sulawesi on 28 September 2018. The observations were made on such land affected by earthquakes and liquefaction. These observations were also carried out on irrigation channels and cultivated land in the area of liquefaction.  It was found that around 250 ha cultivated agricultural land had been destroyed due to the liquefaction as well as the irrigation canals used to distribute water to the cultivated land had been damaged. The disappearance of the cultivated land had led the farmers to rent agricultural land in the nearby villages such as Lolu, Sidera and Pombewe in order for them to sustain their livelihood. The source of water for irrigation was ground water pumping by Alcon equipment donated by several organizations. The farmers' income was also decreased by almost 50%. Thus it was concluded that the earthquake and liquefaction had a significant impact on the lives of farmers in Jono Oge Village. Keywords: Earthquakes, Farmers, Jono Oge and Liquefaction.

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