Older people’s long-term care experiences during the COVID-19 pandemic in Ghana: a qualitative descriptive study

2021 ◽  
Author(s):  
Kofi Awuviry-Newton ◽  
Jacob Oppong Nkansah ◽  
Abraham Newton ◽  
Kwamina Abekah-Carter
Keyword(s):  
Long Term Care ◽  
Well Being ◽  
Descriptive Study ◽  
Structured Interviews ◽  
Term Care ◽  
Care Policies ◽  
Qualitative Descriptive ◽  
Descriptive Approach ◽  
Southern Ghana

This study explores older people’s long-term care experiences during the COVID-19 pandemic in Ghana. A qualitative descriptive approach employing semi-structured interviews was used to collect data from 15 older people from Southern Ghana. Analysis of interview data resulted in five interrelated themes: (1) sources and type of long-term care; (2) older people’s satisfaction with the long-term care received; (3) changes in their long-term care; (4) feelings of neglect regarding long-term care; and (5) older people’s resilience in long-term care. The sustainability of long-term care depends on the state’s ability to devise innovative long-term care policies and programmes to promote older people’s and their carers’ well-being.

Implementing primary healthcare nurse practitioners in long‐term care teams: A qualitative descriptive study

2019 ◽  
Vol 75 (6) ◽  
pp. 1306-1315 ◽  
Author(s):  
Kelley Kilpatrick ◽  
Mira Jabbour ◽  
Éric Tchouaket ◽  
Michelle Acorn ◽  
Faith Donald ◽  
...  
Keyword(s):  
Nurse Practitioners ◽  
Primary Healthcare ◽  
Long Term Care ◽  
Descriptive Study ◽  
Term Care ◽  
Qualitative Descriptive

scholarly journals The perceptions of workers in a long-term care institution for older adults regarding the family

2014 ◽  
Vol 23 (4) ◽  
pp. 971-978 ◽  
Author(s):  
Naiana Oliveira dos Santos ◽  
Margrid Beuter ◽  
Nara Marilene Oliveira Girardon-Perlini ◽  
Lisiane Manganelli Girardi Paskulin ◽  
Marinês Tambara Leite ◽  
...  
Keyword(s):  
Older Adults ◽  
Long Term Care ◽  
Well Being ◽  
The Elderly ◽  
Structured Interviews ◽  
Term Care ◽  
Care Institution ◽  
The Family

This study aimed to investigate the perception of the workers in a Long-Term Care Institution for the Elderly regarding the families of the older adults in the institution. It is qualitative research, undertaken with 16 workers of the multidisciplinary team. Data collection occurred in February-June 2012, through semi-structured interviews. The technique used for treatment of the data was thematic analysis. The results indicate that the family members visit the Long-Term Care Institution for the Elderly rarely, with commemorative dates being the main occasions in which they appear. The workers evidenced some situations of abandonment, in which the family does not visit the older adult even when called. They understand that nobody can substitute the role of the family, as it is the reference for the older adults. Therefore, spending time with the family can positively influence the well-being of the older adults in institutions.

scholarly journals Stigmatization and the Experience of Informal Dementia Caregivers in Nigeria

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 277-277
Author(s):  
Candidus Nwakasi ◽  
Kate de Medeiros ◽  
Darlingtina Esiaka
Keyword(s):  
Long Term Care ◽  
Informal Caregiving ◽  
Structured Interviews ◽  
Dementia Caregivers ◽  
Term Care ◽  
Nigerian Women ◽  
Increased Risk ◽  
Qualitative Descriptive ◽  
The Impact

Abstract There is no formal word for dementia in Nigeria. Instead, some Nigerians, in their effort to make sense of dementia symptoms, use descriptions that may result in stigmatization of people living with dementia and their families. With Nigeria’s rapid aging, increased risk of dementia, and lack of formal long-term care, this study focused on the impact of stigma on the caregiving experiences of Nigerian women. This exploration is significant as adult females in Nigeria are the pillar of informal caregiving in the country. The study employed a qualitative descriptive method. Semi-structured interviews were conducted with a purposive sample of 12 adult informal female caregivers in Anambra, Nigeria. Data were then transcribed, coded and analyzed for themes. Afterwards, focus groups of 21 adult Nigerians residing in Ohio, US, were conducted to offer more contextual insight on the findings. The three major themes identified were: 1) negative views of dementia symptoms (e.g., witchcraft, madness), 2) caregiving protects against stigmatization (e.g., by keeping family members out of sight), and 3) stigma and caregiving support such as adult children abandoning parents with dementia because of the stigma associated with dementia. Given the overwhelming presence of stigma in all aspects of dementia to include dementia caregiving, results point to the critical need for better strategies to help strengthen informal caregiving in Nigeria. This includes culturally appropriate dementia education for families and caregivers, and formal long-term care policies that include care support in a rapidly aging Nigeria.

scholarly journals Resident and family perceptions of the nurse practitioner role in long term care settings: a qualitative descriptive study

BMC Nursing ◽  
2013 ◽  
Vol 12 (1) ◽  
Author(s):  
Jenny Ploeg ◽  
Sharon Kaasalainen ◽  
Carrie McAiney ◽  
Ruth Martin-Misener ◽  
Faith Donald ◽  
...  
Keyword(s):  
Nurse Practitioner ◽  
Long Term Care ◽  
Descriptive Study ◽  
Term Care ◽  
Qualitative Descriptive ◽  
Family Perceptions ◽  
Practitioner Role

scholarly journals Navigating COVID-19 and Long-Term Care: Dementia Caregivers' Challenges and Strengths

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 9-9
Author(s):  
Lauren Mitchell ◽  
Elizabeth Albers ◽  
Robyn Birkeland ◽  
Henry Stabler ◽  
Jinhee Cha ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Thematic Analysis ◽  
Long Term Care ◽  
Well Being ◽  
Intervention Trial ◽  
Structured Interviews ◽  
Dementia Caregivers ◽  
Term Care ◽  
Services And Supports

Abstract Persons with dementia living in long-term care settings have been especially affected by the COVID-19 pandemic, and their family caregivers have had to cope with numerous additional stressors during this time. We conducted 20 semi-structured interviews and gathered open-ended survey data from N=104 caregivers participating in an ongoing intervention trial at the start of the COVID-19 pandemic. Open-ended questions explored the difficulties caregivers have experienced in caring for and supporting a relative in long-term residential care. Caregivers provided their perspectives about services and supports that have facilitated coping with uncertainty, anxiety, and loss during the pandemic, and identified resources and strengths they have found helpful in caring for their relatives. Thematic analysis was used to identify themes reflecting the key challenges and supports that have emerged for caregivers, and to highlight caregivers' recommendations for promoting their and their relatives' well-being during this crisis.

scholarly journals “A Crazy Roller Coaster at the End”: A Qualitative Study of Death Preparedness With Caregivers of Persons With Dementia

2020 ◽  
Vol 6 ◽  
pp. 237796082094911
Author(s):  
Pamela Durepos ◽  
Jenny Ploeg ◽  
Tamara Sussman ◽  
Noori Akhtar-Danesh ◽  
Sharon Kaasalainen
Keyword(s):  
End Of Life ◽  
Long Term Care ◽  
Life Experiences ◽  
Healthcare Providers ◽  
Well Being ◽  
Influential Factors ◽  
Structured Interviews ◽  
Term Care ◽  
Core Concepts

Introduction Caregivers of persons with dementia experience challenges that can make preparing for end-of-life particularly difficult. Feeling prepared for death is associated with caregiver well-being in bereavement and is promoted by strategies supporting a palliative approach. Further conceptualization of caregiver preparedness for death of persons with dementia is needed to guide the practice of healthcare providers and to inform development of a preparedness questionnaire. Objectives We aimed to: 1) explore the end-of-life experiences of caregivers of persons with dementia to understand factors perceived as influencing preparedness; and 2) identify the core concepts (i.e., components), barriers and facilitators of preparedness for death. Methods This study used an interpretive descriptive design. Semi-structured interviews were conducted with sixteen bereaved caregivers of persons with dementia, recruited from long-term care homes in Ontario. Data was analyzed through reflexive thematic analysis. Findings Four themes were interpreted including: ‘A crazy rollercoaster at the end’ which described the journey of caregivers at end-of-life. The journey provided context for the development of core concepts (i.e., components) of preparedness represented by three themes: ‘A sense of control, ‘Doing right’ and ‘Coming to terms’. Conclusion The study findings serve to expand the conceptualization of preparedness and can guide improvements to practice in long-term care. Core concepts, facilitators and influential factors of preparedness will provide the conceptual basis and content to develop the Caring Ahead: Preparing for End-of-Life with Dementia questionnaire.

scholarly journals Caring for a Relative with Dementia in Long-Term Care During COVID-19

2021 ◽  
Author(s):  
Lauren Mitchell ◽  
Elle Albers ◽  
Robyn Birkeland ◽  
Colleen Peterson ◽  
Henry Stabler ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Long Term Care ◽  
Controlled Trial ◽  
Well Being ◽  
Structured Interviews ◽  
Term Care ◽  
Good Communication ◽  
Lack Of Information ◽  
Survey Responses

Objectives: The COVID-19 pandemic created unique stressors for caregivers of persons with dementia living in long-term care (LTC) facilities. The purpose of this qualitative study was to identify the challenges associated with caring for a relative with dementia in LTC during the pandemic, as well as resources, strategies, and practices caregivers found helpful in coping with COVID-19.Design: This study was conducted within the context of an ongoing randomized controlled trial of a psychosocial intervention to support caregivers. Open-ended survey responses (N=125) and semi-structured interviews with a subset of the sample (N=20) collected between June 2020 and June 2021 explored caregivers' experiences during COVID-19. Setting and Participants: Participants included 125 family caregivers of persons with dementia living in residential LTC. Methods: Thematic analysis was used to identify themes capturing caregivers' experiences.Results: In addition to concerns about COVID-19 infection, participants reported key challenges such as the difficulty of maintaining contact with relatives because of visiting restrictions, lack of information about relatives' health and well-being, worries about overburdened LTC staff, impossibility of returning relatives home from the LTC facility, and fears about relatives dying alone. Participants also identified resources, strategies, and practices that they perceived as helpful, including effective infection prevention within the LTC facility, good communication with LTC staff, and creative strategies for connecting with their relatives.Conclusions and Implications: This qualitative analysis informs recommendations for practice within LTC facilities, as well as supports that may help caregivers manage stressful situations in the context of COVID-19. Vaccination and testing protocols should be implemented to maximize family caregivers' opportunities for in-person contact with relatives in LTC, as alternative visiting modalities were often unsatisfactory or unfeasible. Informing caregivers regularly about individual residents' needs and status is crucial. Supports for bereaved caregivers should address complicated grief and feelings of loss.

scholarly journals Mental well‐being of staff in long‐term care facilities at risk

2021 ◽  
Author(s):  
Chiaki Ura ◽  
Tsuyoshi Okamura ◽  
Akinori Takase ◽  
Masaya Shimmei ◽  
Yukan Ogawa
Keyword(s):  
At Risk ◽  
Long Term Care ◽  
Well Being ◽  
Term Care ◽  
Care Facilities ◽  
Mental Well Being
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