Positive impact and its relationship to well-being in parents of children with intellectual disability: a literature review

2013 ◽  
Vol 61 (1) ◽  
pp. 1-19 ◽  
Author(s):  
Sarah Horsley ◽  
Chris Oliver
2016 ◽  
Vol 2 (2) ◽  
pp. 96
Author(s):  
Martaria Rizky Rinaldi ◽  
Sofia Retnowati

Parenting child with intellectual disability is associated with physical and psychological problems that influence mother’s subjective well-being. The evidence is show that mindfulness based intervention can increase of life satisfaction, elicit positive affect, dan minimize negative affect, so that it can increase subjective well-being. The aim of this study is to examine the effectiveness of “Mindful parenting” program in increasing subjective well-being mother who has child with intellectual disability. This study uses a one-group pretest-posttesttt design using a double pretest. “Mindful Parenting” program was administered to ten mothers of children with intellectual disability. Participant attend 8 sessions of “Mindful parenting” program in four meeting. Analysis using Friedman test showed significance result (Fr(2) = 11.13, p< 0.05). It conclude that there was significant effect of “Mindful parenting” program on promotes subjective well-being of mothers of children with intellectual disability.


BJPsych Open ◽  
2021 ◽  
Vol 7 (S1) ◽  
pp. S334-S335
Author(s):  
Omer Minhas ◽  
Pippa Mundy ◽  
Jessica Stewart

AimsA service review of specialist child and adolescent intellectual disability provision in South Wales was conducted between March and May 2020. The purpose was to explore the impact of the first COVID-19 pandemic lockdown on children with intellectual disability and their families. The review aimed to explore if the disruption to the systems involved in their care would impact their wellbeing and behavioural presentations. We also measured if there had been an increase in the use of medication. Our focus was on the distress calls, which are requests for urgent clinical review to prevent a crisis.A service review of specialist child and adolescent intellectual disability provision in South Wales was conducted between March and May 2020. The purpose was to explore the impact of the first COVID-19 pandemic lockdown on children with intellectual disability and their families. The review aimed to explore if the disruption to the systems involved in their care would impact their wellbeing and behavioural presentations. We also measured if there had been an increase in the use of medication. Our focus was on the distress calls, which are requests for urgent clinical review to prevent a crisis.MethodSix clinical areas across three Welsh health boards under the same specialist team were surveyed. Case notes and email correspondence were reviewed to obtain the number and content of crisis calls made to specialist CAMHS across an eight week period during the first UK COVID-19 lockdown. Data were gathered on frequency, purpose, and outcome of calls. Comparison data were also collected for the period October 2019 to March 2020.ResultPre-COVID-19: Two crisis calls were identified in two different areas during the pre-COVID period surveyed. Increases in medication and increases in respite care packages were made as a result.During COVID-19 restrictions: 20 different initial distress calls made (children age 9 and 17 years old (M = 13.2); 75% were boys) across five of the six clinical areas. Of these 20 calls, 17 were active cases and 3 were new referrals. 95% of calls resulted in medication increases and there were few other interventions used due to COVID-19 constraints. Changes to the child's support system were discussed across all cases and return to school was highlighted as a key protective factor in improved well-being. Differences between clinical areas were also identified.ConclusionThere was a clear increase in distress calls and requests to prescribe or increase psychotropic medication to calm the distress during the ‘lockdown’. Changes in behavioural presentation may have occurred partly due to the disruption to the complex systems that typically support a child and the shift away from community support. Children with intellectual disability and their families are unique and embedded in complex systems comprising schools, respite, and healthcare provision which work together to deliver optimal mental healthcare with psychosocial interventions with medication for higher-risk situations. Any shifts in these systems may lead to an imbalance and a higher likelihood of medication use.


2021 ◽  
Vol 1 (3) ◽  
pp. 104-111
Author(s):  
Maria Theresia Arie Lilyana ◽  
Made Indra Ayu Astarini

Background: Aging is the final phase in the human life cycle; elderly people are at risk to face the problem as an impact loss of their roles. Objective: This study aimed to know that spirituality has an impact on providing the ability to face and accept the changes that occur with age. Methods: This literature review aimed to find out the benefits of spirituality for healthy elderly lives. Data Sources: This study searched articles published between 2010 to 2020, full-text and free articles. The search keywords consisted of “function” and “spirituality” and “elderly”. Review Methods: This literature review was conducted using analysis of the selected articles based on the inclusion criteria such full-text articles that were discussed about the benefits of spirituality for the elderly, published in the last 10 years. Result: Spirituality has an impact on influencing the incidence of depression; the main source of support for physical and psychosocial health, increasing self-awareness that they are no longer young and death will surely come for them; source of life force; coping strategies that help overcome difficult times in the elderly’s life. Conclusion: Spirituality has a positive impact on the elderly in terms of physical and mental well-being.


2020 ◽  
Vol 105 (10) ◽  
pp. 969-974
Author(s):  
Emma J Glasson ◽  
David Forbes ◽  
Madhur Ravikumara ◽  
Lakshmi Nagarajan ◽  
Andrew Wilson ◽  
...  

ObjectiveChildren with intellectual disability and marked feeding difficulties may undergo gastrostomy insertion to assist with their nutritional and medication needs. Use has increased recently for younger children, and it is intended to provide long-term support. This study explored the perceived value of gastrostomy for the quality of life (QOL) of children with intellectual disabilities and their families.MethodsTwenty-one primary caregivers of children with intellectual disability aged 2–18 years participated in semistructured telephone interviews. Data were analysed using directed content analysis, and data were coded to existing QOL domains relevant to children with intellectual disability and their families.ResultsBenefits in each of the child and family QOL domains were represented in the interview data. For children, the impacts of gastrostomy for the physical health domain were predominant, supplemented by experiences of value for emotional well-being, social interactions, leisure activities and independence. For families, gastrostomy was integrated into multiple aspects of QOL relating to family interactions, parenting, resources and supports, health and safety, and advocacy support for disability. Shortcomings related to difficulties with equipment and complications.ConclusionsOur comprehensive overview of the value of gastrostomy for children with intellectual disability and their families was classified within a QOL framework. Gastrostomy was mainly supportive over long time periods across many QOL domains. Findings will be of use to patient counselling and education and the development of family support resources.


2011 ◽  
Vol 2011 ◽  
pp. 1-5 ◽  
Author(s):  
Margaret Njeri Mbugua ◽  
Mary W. Kuria ◽  
David M. Ndetei

Caregivers of children with intellectual disability have a great responsibility that may be stressful. The psychological well-being of the care giver may affect the quality of care given to children with intellectual disability. Objective. The objective of the study was to determine the risk of depression in caregivers of children with intellectual disability. Setting. The study was conducted at Gachie Catholic Parish, Archdiocese of Nairobi (Kenya). Design. Cross sectional, descriptive study. Method. The study was conducted among 114 caregivers registered at the Gachie Parish program (in Kenya) for the intellectual disabled children. A researcher-designed social demographic questionnaire and the Beck depression inventory were administered to those that met the inclusion criteria. Results. Seventy-nine percent (79%) of the caregivers were at risk of clinical depression. Conclusion. Majority of the caregivers of children with intellectual disability were at risk of developing clinical depression.


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