Comparing the efficacy of a portable oxygen concentrator versus a liquid oxygen portable device in the promotion of physical activity and quality of life in patients with Cystic Fibrosis

Purpose: Physical activity is well known to improve or maintain exercise capacity and overall health in patients with cystic fibrosis (CF). However, many patients do not meet recommended guidelines for physical activity. The purpose of this study was to determine if individualized, targeted coaching could improve the levels of physical activity and quality of life in children and adolescents with CF. Subjects: Twelve children with CF, ages 7 to 17, participated in this study.Method: Each participant completed a physical activity questionnaire (PAQ) and a disease-specific quality of life questionnaire (CFQ) at baseline and three months later. The participants were given pedometers and a 10,000 step per day target. Participants also participated in discussions regarding ways to increase physical activity appropriate for their interest, abilities and age. Weekly follow-up phone calls were made to obtain pedometer counts and discuss physical activities performed. Results: Physical activity scores (PAQ) improved in 6 of 12 participants. Quality of life improved in many dimensions of the CFQ, particularly in vitality (3 of 5 improved); emotional (8 of 12 improved) and respiratory (7 of 12 improved). Conclusions: The results of this small pilot study suggest that an individualized coaching approach to physical activity in children and adolescents with CF may improve physical activity levels and improve important aspects of quality of life in some children with CF.

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AB017. Associations between physical activity and quality of life in children and adolescents with cystic fibrosis

Pediatric Medicine ◽

10.21037/pm.2018.ab017 ◽

2018 ◽

Vol 1 ◽

pp. AB017-AB017

Author(s):

Jorge Lizandra ◽

Alexandra Valencia-Peris ◽

Amparo Escribano ◽

Silvia Castillo ◽

Elena Lopez-Cañada ◽

...

Keyword(s):

Quality Of Life ◽

Physical Activity ◽

Cystic Fibrosis ◽

Children And Adolescents

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Physical activity and quality of life of children and adolescents with cystic fibrosis: a cross-sectional study

Fisioterapia em Movimento ◽

10.1590/1980-5918.032.ao70 ◽

2020 ◽

Vol 33 ◽

Author(s):

Taiane dos Santos Feiten ◽

Josani da Silva Flores ◽

Paula Maria Eidt Rovedder ◽

Paulo de Tarso Roth Dalcin ◽

Bruna Ziegler

Keyword(s):

Quality Of Life ◽

Physical Activity ◽

Cystic Fibrosis ◽

Clinical Score ◽

Cross Sectional Study ◽

Lower Number ◽

Sectional Study ◽

Cross Sectional ◽

Hrqol Questionnaire

Abstract Introduction: Regular physical activity (PA) is part of outpatient care offered to most people with cystic fibrosis (CF). Objective: To determine the frequency of the self-reported PA and, secondarily evaluate associations between PA with clinical variables and health-related quality of life (HRQoL) in pediatric and adolescent CF subjects. Method: In this cross-sectional study, subjects between 6 and 17 years of age with a confirmed diagnosis of CF were recruited in the outpatient clinic. The subjects answered questions about the practices of PA, HRQoL questionnaire and clinical variables were collected. Subjects were classified into two groups according to weekly PA practice: PA performed ≥ 3 times/week and performed PA ≤ 2 times/week. Results: 66 subjects completed the study, 72.7% (n=48) had PA ≥ 3 times/week and 27.2% (n=18) had PA ≤ 2 times/week. Only twelve children (18,2%) reached the recommendations of the World Health Organization (WHO) to practice moderate to vigorous physical activities daily. The mean age of the subjects evaluated was 12.3 ± 3.2 years, forced expiratory volume in one second 90 ± 24.1% and forced vital capacity 95 ± 20.4%. The group that performed PA ≥ 3 times/week had a better clinical score (p=0.033), a lower number of hospitalizations in the year (p=0.002), a lower number of days hospitalized in the last year (p=0.020) and better score for the physical (p=0.003) and emotion (p=0.048) domains in HRQoL questionnaire. Conclusion: This study concluded that most subjects did not reach the WHO recommendations for the practice of PA. However, individuals who practice PA at least 3 times/week have better HRQoL, clinical score and fewer hospitalizations.

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Comparison of exercise capacity, physical activity level and quality of life in patients with different severity of non-cystic fibrosis bronchiectasis>

10.1183/13993003.congress-2021.pa779 ◽

2021 ◽

Author(s):

MELİKE MESE ◽

Sema Savcı ◽

Buse Ozcan Kahraman ◽

Aylin Tanriverdi ◽

Damla Gunduz ◽

...

Keyword(s):

Quality Of Life ◽

Physical Activity ◽

Cystic Fibrosis ◽

Exercise Capacity ◽

Physical Activity Level ◽

Activity Level

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Comparing supplementary oxygen benefits from a portable oxygen concentrator and a liquid oxygen portable device during a walk test in COPD patients on long-term oxygen therapy

Respiratory Medicine ◽

10.1016/j.rmed.2008.02.005 ◽

2008 ◽

Vol 102 (7) ◽

pp. 1021-1025 ◽

Cited By ~ 24

Author(s):

Jacek Nasilowski ◽

Tadeusz Przybylowski ◽

Jan Zielinski ◽

Ryszarda Chazan

Keyword(s):

Oxygen Therapy ◽

Portable Device ◽

Liquid Oxygen ◽

Walk Test ◽

Supplementary Oxygen ◽

Copd Patients ◽

Oxygen Concentrator ◽

Long Term Oxygen Therapy ◽

Portable Oxygen

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The feasibility of online video calling to engage patients with cystic fibrosis in exercise training

Journal of Telemedicine and Telecare ◽

10.1177/1357633x19828630 ◽

2019 ◽

Vol 26 (6) ◽

pp. 356-364 ◽

Cited By ~ 3

Author(s):

Owen W Tomlinson ◽

James Shelley ◽

Jayne Trott ◽

Ben Bowhay ◽

Rohan Chauhan ◽

...

Keyword(s):

Quality Of Life ◽

Physical Activity ◽

Cystic Fibrosis ◽

Exercise Training ◽

Exercise Intervention ◽

Physical Activity Interventions ◽

Technical Issues ◽

Video Calling ◽

Mean Compliance

Introduction Physical activity, including structured exercise, is an essential component in the management of cystic fibrosis. The use of telehealth such as video-calling may be a useful method for the delivery of exercise and physical activity interventions, though the feasibility of this remains unknown. Methods Nine patients with cystic fibrosis (three female, six male, 30.9 ± 8.7 years) volunteered to participate. Participants completed an eight-week exercise training intervention conducted via Skype, using personalised exercises, with all sessions supervised by an exercise therapist. Feasibility was assessed by demand, implementation, practicality and acceptability. Changes in anthropometric, pulmonary, physical activity and quality of life variables were also assessed. Results Two male participants withdrew from the study, citing lack of available time. The remaining participants found use of Skype useful, with a mean satisfaction rating of 9/10, and three participants requesting to continue the sessions beyond the duration of the study. Mean compliance with sessions was 68%, with mean duration of sessions being 20 min. A total of 25% of calls suffered from technical issues such as video or audio lags. Anthropometric, pulmonary, physical activity and quality of life variables remained unchanged over the course of the study period. Discussion The use of Skype to deliver an exercise intervention to patients withcystic fibrosis was found to be technologically feasible, and acceptable among participants. Findings have implications for clinical practice and could allow care teams to engage patients remotely in exercise. Further research is required to assess the efficacy of this modality on increasing physical activity and associated health outcomes.

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Development and validation of the Cystic Fibrosis Decisional Balance for Physical Activity scale (CF-DB-PA)

BMC Pulmonary Medicine ◽

10.1186/s12890-021-01471-0 ◽

2021 ◽

Vol 21 (1) ◽

Author(s):

Valentine Filleul ◽

Raphaëlle Ladune ◽

Mathieu Gruet ◽

Charlène Falzon ◽

Amélie Fuchs ◽

...

Keyword(s):

Quality Of Life ◽

Physical Activity ◽

Cystic Fibrosis ◽

Internal Consistency ◽

Exercise Tolerance ◽

Decisional Balance ◽

The Self ◽

Activity Scale ◽

Physical Activity Scale

Abstract Background People with cystic fibrosis (pwCF) derive several physiological and psychological benefits from regular physical activity (PA), but the practice is lower than recommended. Knowledge about the facilitators of and barriers to PA at the individual level is important to act positively on PA behaviors. This study validated the Cystic Fibrosis Decisional Balance for Physical Activity scale (CF-DB-PA) for adults with CF. Methods French adults with CF were recruited in several specialist centres in France. The CF-DB-PA scale was validated following a quantitative study protocol comprising four stages: (1) tests of the clarity and relevance of a preliminary 44-item version and reduction analysis, (2) confirmatory factor analysis and tests of dimensionality through equation modelling analysis, (3) tests of reliability with Cronbach alphas for the internal consistency and a test–retest with a 2-to-3 week interval for temporal stability, and 4) tests of construct validity with Spearman correlations to measure the associations between each subscale and the theoretically related constructs (i.e., quality of life, PA and exercise tolerance). Results A total of 201 French adults with CF participated in the validation study. The CF-DB-PA comprises 23 items divided into two factors: facilitators of and barriers to PA. Each factor is divided into three subscales: physical, psychological and environmental. The factors (facilitators and barriers) can be used independently or combined as a whole. A general score of decisional balance for PA can also be calculated. The bi-factor model presented satisfactory adjustment indexes: χ2 (194) = 362.33; p < .001; TLI = .87; CFI = .90; RMSEA = .067. The scale showed satisfactory internal consistency (Cronbach’s α = .77). The test–retest reliability was not significant for either subscale, indicating stability over time. The facilitators subscale correlated significantly with the self-reported score of PA (r = .33, p < .01) and quality of life (r = .24, p < .05). The barriers subscale correlated significantly with the self-reported scores of PA (r = − .42, p > .01), quality of life (r = − .44, p < .01), exercise tolerance (r = − .34, p < .01) and spirometry tests (r = − .30, p < .05). Conclusions The CF-DB-PA is a reliable and valid questionnaire assessing the decisional balance for PA, the facilitators of and the barriers to PA for adults with CF in French-speaking samples.

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