scholarly journals The impact of socio-economic status on health related quality of life for children and adolescents with heart disease

2013 ◽  
Vol 11 (1) ◽  
pp. 99 ◽  
Author(s):  
Amy Cassedy ◽  
Dennis Drotar ◽  
Richard Ittenbach ◽  
Shawna Hottinger ◽  
Jo Wray ◽  
...  
2017 ◽  
Vol 27 (8) ◽  
pp. 1455-1464 ◽  
Author(s):  
Mandy Niemitz ◽  
Diana C. M. Gunst ◽  
Hedwig H. Hövels-Gürich ◽  
Michael Hofbeck ◽  
Renate Kaulitz ◽  
...  

AbstractObjectiveChronic paediatric heart disease is often associated with residual symptoms, persisting functional restrictions, and late sequelae for psychosocial development. It is, therefore, increasingly important to evaluate the health-related quality of life of children and adolescents with chronic heart disease. The aim of this study was to determine medical and socio-demographic variables affecting health-related quality of life in school-aged children and adolescents with chronic heart disease.Patients and methodsThe Pediatric Cardiac Quality of Life Inventory was administered to 375 children and adolescents and 386 parental caregivers. Medical information was obtained from the charts. The socio-demographic information was provided by the patients and caregivers.ResultsGreater disease severity, low school attendance, current cardiac medication, current parental employment, uncertain or limited prognosis, history of connection to a heart–lung machine, number of nights spent in a hospital, and need for treatment in a paediatric aftercare clinic independently contributed to lower health-related quality of life (self-report: R2=0.41; proxy-report: R2=0.46). High correlations between self-reports and parent-proxy reports indicated concordance regarding the evaluation of a child’s health-related quality of life.ConclusionsBeyond medical treatment, integration into school is important to increase health-related quality of life in children and adolescents surviving with chronic heart disease. Regular screening of health-related quality of life is recommended to identify patients with special needs.


2014 ◽  
Vol 164 (4) ◽  
pp. 781-788.e1 ◽  
Author(s):  
Katelyn Mellion ◽  
Karen Uzark ◽  
Amy Cassedy ◽  
Dennis Drotar ◽  
Gil Wernovsky ◽  
...  

2010 ◽  
Vol 26 (3) ◽  
pp. 631-636 ◽  
Author(s):  
Denise Ascenção Klatchoian ◽  
Claudio A. Len ◽  
Maria Teresa R. A. Terreri ◽  
Maria Odete E. Hilário

The Pediatric Quality of Life Inventory (PedsQL) 4.0 is a questionnaire that evaluates the health related quality of life of children and adolescents, considering different aspects of their development, including the physical, emotional, social and educational. We verified the impact of demographic, social, and economic factors, as well as the family situation, on the health related quality of life of a group of school children of the city of São Paulo, Brazil. The PedsQL 4.0 was applied to 240 children and adolescents aged 2 to 18 and their respective parents. More than two thirds of the families were from lower social strata (C, D, and E). A statistically significant difference was observed in scores when evaluating the health related quality of life across socioeconomic strata and we observed statistically significant differences in the emotional, social, psychosocial and total scores. The PedsQL 4.0 scores obtained through interviews were satisfactory when compared with other urban populations of children and adolescents, probably due to the homogeneity of the population studied.


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