HIV diagnosis disclosure to infected children and adolescents; challenges of family caregivers in the Central Region of Ghana

ABSTRACT Objective: to analyze family caregivers’ perceptions on care delivered to children and adolescents presented with cerebral palsy. Methods: a quantitative, qualitative study developed with 50 family caregivers of children and adolescents diagnosed with cerebral palsy. Data collection was carried out by means of an interview with semi-open questions whose answers were analyzed based on the Content Analysis. Results: family members’ accounts on care delivered to children and adolescents with cerebral palsy are mostly connected with positive feelings, such as love, happiness, privilege and overcoming. However, for a significant share of these family members, their own quality of life depends on the cared subject’s health condition, blurring the distinction between their own needs and those of the cared subjects. Conclusions: health professionals need to recognize the importance of caregivers’ health promotion as a major condition to keep caring. In this dimension, they may contribute by helping caregivers identify their own health needs.

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Personal and Network-Related Factors Associated to Diagnosis Disclosure Reactions for Children and Adolescents Living with HIV

AIDS and Behavior ◽

10.1007/s10461-020-03018-6 ◽

2020 ◽

Author(s):

Luís Fernando Barreto Filho ◽

Cristina Barroso Hofer ◽

Elizabeth Stankiewicz Machado ◽

Thalita Fernandes de Abreu ◽

Ana Cristina Cisne Frota ◽

...

Keyword(s):

Children And Adolescents ◽

Related Factors ◽

Diagnosis Disclosure ◽

Factors Associated ◽

Living With Hiv

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The Experiences of Family Caregivers in Response to a Dementia Diagnosis Disclosure

10.21203/rs.3.rs-1105628/v1 ◽

2021 ◽

Author(s):

Miao-Chuan Chen ◽

Hung-Ru Lin

Keyword(s):

Family Caregivers ◽

Comparative Method ◽

Medical Attention ◽

Theory Approach ◽

Dementia Diagnosis ◽

Care Needs ◽

Diagnosis Disclosure ◽

Care Plans ◽

Living Well ◽

Diagnostic Disclosure

Abstract Background: Dementia is a serious disease that can lead to disability because it impacts the individual’s memory, cognition, behavior, and capacity to perform activities of daily living. While most people prefer to receive a full diagnostic disclosure, the actual care requirements of family caregivers, based on their perspectives, are often unknown. The primary aim of this study was to explore the experiences of family caregivers in response to a dementia diagnosis disclosure and analyze the care needs of caregivers.Methods: A qualitative study conducted in accordance with COREQ guidelines. The grounded theory approach was undertaken in 20 family caregivers of patients with dementia, who were selected using purposive sampling. Data were analysed using the constant comparative method.Results: Diagnostic disclosure: Start the long road of care challenges was identified as the core category of this study, which was defined as describing the experiences of family caregivers of patients with dementia after first being informed of the patients’ diagnosis, which activates their willpower to progress against the disease. Five major categories describing the experiences of family caregivers following a dementia diagnosis was developed: ‘deciding to seek medical attention,’ ‘the moment of disclosure,’ ‘conveying information,’ ‘maintaining the patients’ functioning,’ and ‘receiving support and living well with dementia.’ Subcategories within each major category also emerged.Conclusions: Clear diagnostic disclosure is important for ensuring that positive developments can occur in response to disclosure. Healthcare professionals must develop strategies to prevent disclosure from triggering overreactive emotions from patients with cognitive impairments, assist them in understanding their illness in a tactful manner, and ensure that they understand how to cooperate in any subsequent care plans.

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HIV Diagnosis Disclosure: Stigma Management and Stigma Resistance

Journal of Gerontological Social Work ◽

10.1080/01634371003715841 ◽

2010 ◽

Vol 53 (4) ◽

pp. 366-381 ◽

Cited By ~ 36

Author(s):

Cynthia Cannon Poindexter ◽

R. Andrew Shippy

Keyword(s):

Hiv Diagnosis ◽

Stigma Management ◽

Diagnosis Disclosure ◽

Stigma Resistance

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Diagnosis disclosure, medication hiding, and medical functioning among perinatally infected, HIV-positive children and adolescents

AIDS Care ◽

10.1080/09540121.2012.699670 ◽

2012 ◽

Vol 24 (9) ◽

pp. 1092-1096 ◽

Cited By ~ 18

Author(s):

Sarah K. Calabrese ◽

Staci Martin ◽

Pamela L. Wolters ◽

Mary A. Toledo-Tamula ◽

Tara L. Brennan ◽

...

Keyword(s):

Children And Adolescents ◽

Hiv Positive ◽

Diagnosis Disclosure ◽

Perinatally Infected

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Dyslipidemia in HIV-Infected Children and Adolescents on Antiretroviral Therapy Receiving Care at Kilimanjaro Christian Medical Centre in Tanzania: A Cross-Sectional Study

Infectious Diseases Research and Treatment ◽

10.1177/1178633720948860 ◽

2020 ◽

Vol 13 ◽

pp. 117863372094886

Author(s):

Michael E Irira ◽

Rune N Philemon ◽

Joshua Y Mmbaga ◽

Venancia Komba ◽

John Bartlett ◽

...

Keyword(s):

Children And Adolescents ◽

Protease Inhibitors ◽

Low Density Lipoprotein ◽

Density Lipoprotein ◽

Medical Centre ◽

P Value ◽

Hiv Diagnosis ◽

Cross Sectional ◽

Severe Immunosuppression ◽

Kilimanjaro Christian Medical Centre

Background: Worldwide prevalence of dyslipidemia in HIV-infected children on antiretroviral medications (ARVs) is rising due to extensive use of treatment during their entire lives. Dyslipidemia is the potential side effect of ARVs, especially in individuals taking protease inhibitors. The objective of this study was to determine the prevalence of dyslipidemia in HIV-infected children on ARVs receiving care at Kilimanjaro Christian Medical Centre (KCMC) in Tanzania. Methods: This was a cross-sectional hospital-based study conducted from September 2015 to May 2016 at KCMC. HIV-infected children and adolescents less than 17 years on ARVs for more than 6 months were enrolled. Blood samples were taken to determine levels of triglycerides (TGs), total cholesterol, lipoproteins (including low-density lipoprotein (LDL) and high-density lipoprotein (HDL)), CD4+ T cells, and viral load (VL). Anthropometric measurements were used to assess nutritional status. SPSS 20.0 was used for analysis. Logistic regression estimated odds ratio (OR) and 95% confidence interval (CI), and P value <.05 was considered significant. Written consent was obtained from parents/guardians on behalf of their children and assent for older children. Results: A total of 260 participants were included in the study; the median age at HIV diagnosis was 3 (interquartile range (IQR) = 1-6) years. The overall prevalence of dyslipidemia was 46.5% with hypercholesterolemia (⩾200 mg/dl) of 11.2%, HDL (<35 mg/dl) of 22.7%, LDL (⩾130 mg/dl) of 7.7%, and hyperglyceridemia (TG ⩾150 mg/dl) of 12.3%. Children aged between 6 and 12 years at HIV diagnosis had 2.7 times higher odds of developing dyslipidemia compared with younger age at diagnosis (OR = 2.7; 95% CI = 1.1-6.6). Patients with advanced (OR = 6.4; 95% CI = 1.5-27.1) or severe (OR = 9.8; 95% CI = 1.2-76.5) HIV-associated immunodeficiency at diagnosis had higher odds of developing dyslipidemia. Protease inhibitor use was associated with higher odds of developing dyslipidemia (OR = 3.1; 95% CI = 1.4-7.1). Conclusion: Late diagnosis of HIV at 6 years of age or more, advanced, or severe immunosuppression, and the use of protease inhibitors were independent predictors of dyslipidemia in children on ARVs after 6 months of treatment, and with low HDL levels observed most commonly. Monitoring lipid profiles in children, especially those on protease inhibitors and with advanced/severe immunosuppression at diagnosis, may help in preventing future complications.

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Resilience of family caregivers of children and adolescents in treatment of neoplasms and associated factors

Revista Brasileira de Enfermagem ◽

10.1590/0034-7167-2019-0388 ◽

2021 ◽

Vol 74 (6) ◽

Author(s):

Jaqueline Scalabrin da Silva ◽

Otavio Fereira Moraes ◽

Luiza Dressler Sabin ◽

Franciele Ormizinda Almeida ◽

Tânia Solange Bosi de Souza Magnago

Keyword(s):

Quality Of Life ◽

Children And Adolescents ◽

Family Caregivers ◽

Social Relations ◽

Associated Factors ◽

Psychological Disorders ◽

Cross Sectional Study ◽

University Hospital ◽

Cross Sectional

ABSTRACT Objectives: analyze the level of resilience of family caregivers of children and adolescents hospitalized for cancer treatment and associated factors. Methods: cross-sectional study, carried out in 2018, with 62 family caregivers in a university hospital in the state of Rio Grande do Sul, Brazil. The instruments CDRisc-10-Br, SRQ20, PSS-14 and WHOQOL-Bref were used to measure resilience, minor psychological disorders, stress, and quality of life, respectively. Inferential statistics were used. Results: female caregivers, married, with one child and who practice some predominated religion. They were classified as having a moderate level of resilience (48.4%); with suspicion for minor psychological disorders (45%) and high level of stress (41%). In terms of quality of life, they were satisfied in the Physical, Psychological and Social Relations domains; and dissatisfied in the Environment domain. Conclusions: there were direct weak to moderate correlations between the level of resilience and quality of life and inversely with stress and minor psychological disorders.

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