Resilience of family caregivers of children and adolescents in treatment of neoplasms and associated factors

ABSTRACT Objectives: analyze the level of resilience of family caregivers of children and adolescents hospitalized for cancer treatment and associated factors. Methods: cross-sectional study, carried out in 2018, with 62 family caregivers in a university hospital in the state of Rio Grande do Sul, Brazil. The instruments CDRisc-10-Br, SRQ20, PSS-14 and WHOQOL-Bref were used to measure resilience, minor psychological disorders, stress, and quality of life, respectively. Inferential statistics were used. Results: female caregivers, married, with one child and who practice some predominated religion. They were classified as having a moderate level of resilience (48.4%); with suspicion for minor psychological disorders (45%) and high level of stress (41%). In terms of quality of life, they were satisfied in the Physical, Psychological and Social Relations domains; and dissatisfied in the Environment domain. Conclusions: there were direct weak to moderate correlations between the level of resilience and quality of life and inversely with stress and minor psychological disorders.

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Gait speed and malnutrition in hospitalized patients and the quality of life of their caregivers

Revista Brasileira de Enfermagem ◽

10.1590/0034-7167-2019-0137-2019-0776 ◽

2020 ◽

Vol 73 (suppl 5) ◽

Author(s):

Juliana Yukari Suganuma ◽

Talita Yoshimura da Costa ◽

Wanderson Roberto da Silva ◽

Maria Claudia Bernardes Spexoto

Keyword(s):

Quality Of Life ◽

Social Relations ◽

Gait Speed ◽

Cross Sectional Study ◽

University Hospital ◽

Cross Sectional ◽

The Social ◽

Environment Domain ◽

Spss Software

ABSTRACT Objective: To verify the age, nutritional status, and gait speed in hospitalized individuals, and their association with the quality of life of their caregivers. Methods: Observational cross-sectional study with 54 patients and their respective caretakers in a university hospital in the Brazilian Midwest. The analyses were carried out using the SPSS software, with p < 0.05. Results: The Social Relations domain had the highest mean score (71.45±18.64). The lowest score was in the Physical domain (57.80±12.01). According to a subjective nutritional evaluation, 72.2% presented some degree of malnutrition. Most were classified with low gait speeds (82%). There was a significant correlation between age and the Physical and General Quality of Life domains. The Environment domain was significantly correlated to the gait speed. Conclusion: The age and the gait speed of the patient were related to the quality of life of the caregiver, but the nutritional state was not affected.

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The Pediatric Quality of Life Inventory 4.0: A Study on Normal Children and Adolescents in India−A Cross-Sectional Study

Critical Reviews in Physical and Rehabilitation Medicine ◽

10.1615/critrevphysrehabilmed.v22.i1-4.50 ◽

2010 ◽

Vol 22 (1-4) ◽

pp. 61-69

Author(s):

Prayash Rath ◽

Sailakshmi Ganesan ◽

Amitesh Narayan

Keyword(s):

Quality Of Life ◽

Children And Adolescents ◽

Cross Sectional Study ◽

Sectional Study ◽

Normal Children ◽

Cross Sectional ◽

Quality Of Life Inventory ◽

Life Inventory

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Health-related quality of life in different trimesters during pregnancy

Health and Quality of Life Outcomes ◽

10.1186/s12955-021-01811-y ◽

2021 ◽

Vol 19 (1) ◽

Author(s):

Huailiang Wu ◽

Weiwei Sun ◽

Hanqing Chen ◽

Yanxin Wu ◽

Wenjing Ding ◽

...

Keyword(s):

Quality Of Life ◽

Pregnant Women ◽

Demographic Data ◽

Cross Sectional Study ◽

University Hospital ◽

Health Related Quality ◽

Cross Sectional ◽

Related Quality ◽

Health Related

Abstract Background Pregnant women experience physical, physiological, and mental changes. Health-related quality of life (HRQoL) is a relevant indicator of psychological and physical behaviours, changing over the course of pregnancy. This study aims to assess HRQoL of pregnant women during different stages of pregnancy. Methods This cross-sectional study was performed using the The EuroQoL Group’s five-dimension five-level questionnaire (EQ-5D-5L) to assess the HRQoL of pregnant women, and demographic data were collected. This study was conducted in a regional university hospital in Guangzhou, China. Results A total of 908 pregnant women were included in this study. Pregnant women in the early 2nd trimester had the highest HRQoL. The HRQoL of pregnant women rose from the 1st trimester to the early 2nd trimester, and dropped to the bottom at the late 3rd trimester due to some physical and mental changes. Reports of pain/discomfort problem were the most common (46.0%) while self-care were the least concern. More than 10% of pregnant women in the 1st trimester had health-related problems in at least one dimension of whole five dimensions. In the whole sample, the EuroQoL Group’s visual analog scale (EQ-VAS) was 87.86 ± 9.16. Across the gestational stages, the HRQoL remained stable during the pregnancy but the highest value was observed in the 1st trimester (89.65 ± 10.13) while the lowest was in the late 3rd trimester (87.28 ± 9.13). Conclusions During pregnancy, HRQoL were associated with gestational trimesters in a certain degree. HRQoL was the highest in the early 2nd trimester and then decreased to the lowest in the late 3rd trimester due to a series of physical and psychological changes. Therefore, obstetric doctors and medical institutions should give more attention and care to pregnant women in the late 3rd trimester.

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Quality of life in multiple sclerosis: The differential impact of motor and cognitive fatigue

Multiple Sclerosis Journal - Experimental Translational and Clinical ◽

10.1177/2055217321996040 ◽

2021 ◽

Vol 7 (1) ◽

pp. 205521732199604

Author(s):

Sabina David Ruban ◽

Claudia Christina Hilt ◽

Thor Petersen

Keyword(s):

Quality Of Life ◽

Multiple Sclerosis ◽

Short Form ◽

Cross Sectional Study ◽

University Hospital ◽

Cognitive Fatigue ◽

Cross Sectional ◽

Impact Scale ◽

Assessment And Treatment

Background Multiple sclerosis is a chronic disease leading to reduced quality of life. Objectives To investigate whether motor and cognitive fatigue impact differently on aspects of quality of life among patients with multiple sclerosis, independently from bodily disability. Methods 79 patients with multiple sclerosis from Aalborg University Hospital, Denmark were included in an observational, cross-sectional study. Each subject completed two separate questionnaires regarding fatigue (Fatigue Scale for Motor and Cognitive Functions and Modified Fatigue Impact Scale) and one regarding quality of life (Short Form 36). Disability was measured with the Expanded Disability Status Scale (EDSS)-scores obtained from patient records. Results All fatigue scores were significantly correlated to all areas of quality of life (p < 0,05). This remained significant after adjustment for age, disease duration and EDSS-score. When looking at each type of fatigue separately, cognitive fatigue correlated mainly with mental health aspects of quality of life and motor fatigue with physical health areas of quality of life. Conclusion Increased motor and cognitive fatigue lead to a differential reduction in physical and mental quality of life, independently of bodily disability. This underlines the importance of proper assessment and treatment of fatigue among patients with multiple sclerosis.

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Analysis of quality of life among asthmatic individuals with obesity and its relationship with pulmonary function: cross-sectional study

Sao Paulo Medical Journal ◽

10.1590/1516-3180.2016.0342250217 ◽

2017 ◽

Vol 135 (4) ◽

pp. 332-338 ◽

Cited By ~ 4

Author(s):

Letícia Baltieri ◽

Luiz Claudio Martins ◽

Everton Cazzo ◽

Débora Aparecida Oliveira Modena ◽

Renata Cristina Gobato ◽

...

Keyword(s):

Quality Of Life ◽

Pulmonary Function ◽

Cross Sectional Study ◽

University Hospital ◽

Morbidly Obese ◽

Life Questionnaire ◽

Sectional Study ◽

Anthropometric Data ◽

Cross Sectional

ABSTRACT CONTEXT AND OBJECTIVE: The combined effect of obesity and asthma may lead to significant impairment of quality of life (QOL). The aim here was to evaluate the prevalence of asthma among obese individuals, characterize the severity of impairment of quality of life and measure its relationship with pulmonary function. DESIGN AND SETTING: Observational cross-sectional study in public university hospital. METHODS: Morbidly obese individuals (body mass index > 40 kg/m2) seen in a bariatric surgery outpatient clinic and diagnosed with asthma, were included. Anthropometric data were collected, the Standardized Asthma Quality of Life Questionnaire (AQLQ(S)) was applied and spirometry was performed. The subjects were divided into two groups based on the median of the score in the questionnaire (worse < 4 and better > 4) and were compared regarding anthropometric data and pulmonary function. RESULTS: Among the 4791 individuals evaluated, 219 were asthmatic; the prevalence of asthma was 4.57%. Of these, 91 individuals were called to start multidisciplinary follow-up during the study period, of whom 82 answered the questionnaire. The median score in the AQLQ(S) was 3.96 points and, thus, the individuals were classified as having moderate impairment of their overall QOL. When divided according to better or worse QOL, there was a statistically difference in forced expiratory flow (FEF) 25-75%, with higher values in the better QOL group. CONCLUSION: The prevalence of asthma was 4.57% and QOL was impaired among the asthmatic obese individuals. The worst QOL domain related to environmental stimuli and the best QOL domain to limitations of the activities. Worse QOL was correlated with poorer values for FEF 25-75%.

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Faculty Opinions recommendation of Quality of life and associated factors among university students during the COVID-19 pandemic: a cross-sectional study.

Faculty Opinions – Post-Publication Peer Review of the Biomedical Literature ◽

10.3410/f.740954148.793590592 ◽

2021 ◽

Author(s):

Santosh Kumar

Keyword(s):

Quality Of Life ◽

University Students ◽

Associated Factors ◽

Cross Sectional Study ◽

Sectional Study ◽

Cross Sectional

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Quality of Life in Chilean Transgender Children and Adolescents

Hormone Research in Paediatrics ◽

10.1159/000520606 ◽

2021 ◽

Author(s):

Carolina Mendoza ◽

Helena Poggi ◽

Mónica Flores ◽

Cristóbal Morales ◽

Alejandro Martínez-Aguayo

Keyword(s):

Quality Of Life ◽

Children And Adolescents ◽

School Environment ◽

Social Acceptance ◽

Well Being ◽

Psychosocial Health ◽

Cross Sectional Study ◽

Cross Sectional ◽

Psychological Well Being

Introduction: Transgender (TG) children and adolescents experience problems in school as well as with family and social relationships that can adversely affect their physical and psychosocial health and impair their quality of life (QOL). This study aims to assess health-related quality of life (HRQOL) in TG children. Methods: We performed a cross-sectional study comparing HRQoL in gender nonconforming (Trans) and gender conforming (CIS) children and adolescents using the Spanish version of KIDSCREEN-52 in 120 Chilean Trans and CIS children (aged 8–18 years) and their parents. All scores were standardized according to the KIDSCREEN manual. Results: Among the 100 questionnaires answered, 38 corresponded to children and adolescents aged 8.4–18 years. Twenty-one of them were TG (71% trans males) and 17 were CIS (76% females). Sixty-two parents answered the questionnaires: 33 from families of TG children (PTrans) and 29 from families of CIS children (PCis). Trans children had lower HRQOL scores in all domains compared to CIS children. The lowest-scoring domains for TG children were “Moods and Emotions”, “Psychological Well-Being” and “Social Acceptance”, and the highest-scoring domain was “School Environment”. The PTrans group had significantly higher scores than the Trans group for 3 of the 10 domains: “Psychological Well-Being”, “Moods and Emotions”, and “Parent Relations and Home Life”. Conclusion: Our results revealed that TG children and adolescents have lower QOL than their CIS counterparts, especially regarding items related to mental health. Furthermore, their parents may underestimate their well-being, confirming the vulnerability of the TG population. This finding underlies the need to perform early assessments of QOL for early detection and intervention in aspects that could deteriorate their quality of life.

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Quality of life of children and adolescents with chronic kidney disease: a cross-sectional study

Archives of Disease in Childhood ◽

10.1136/archdischild-2018-314934 ◽

2018 ◽

Vol 104 (2) ◽

pp. 134-140 ◽

Cited By ~ 9

Author(s):

Anna Francis ◽

Madeleine S Didsbury ◽

Anita van Zwieten ◽

Kerry Chen ◽

Laura J James ◽

...

Keyword(s):

Quality Of Life ◽

Chronic Kidney Disease ◽

Kidney Disease ◽

Children And Adolescents ◽

Family Income ◽

Cross Sectional Study ◽

Kidney Transplants ◽

Cross Sectional ◽

Factors Associated

ObjectiveThe aim was to compare quality of life (QoL) among children and adolescents with different stages of chronic kidney disease (CKD) and determine factors associated with changes in QoL.DesignCross-sectional.SettingThe Kids with CKD study involved five of eight paediatric nephrology units in Australia and New Zealand.PatientsThere were 375 children and adolescents (aged 6–18 years) with CKD, on dialysis or transplanted, recruited between 2013 and 2016.Main outcome measuresOverall and domain-specific QoL were measured using the Health Utilities Index 3 score, with a scale from −0.36 (worse than dead) to 1 (perfect health). QoL scores were compared between CKD stages using the Mann-Whitney U test. Factors associated with changes in QoL were assessed using multivariable linear and ordinal logistic regression.ResultsQoL for those with CKD stages 1–2 (n=106, median 0.88, IQR 0.63–0.96) was higher than those on dialysis (n=43, median 0.67, IQR 0.39–0.91, p<0.001), and similar to those with kidney transplants (n=135, median 0.83, IQR 0.59–0.97, p=0.4) or CKD stages 3–5 (n=91, 0.85, IQR 0.60–0.98). Reductions were most frequent in the domains of cognition (50%), pain (42%) and emotion (40%). The risk factors associated with decrements in overall QoL were being on dialysis (decrement of 0.13, 95% CI 0.02 to 0.25, p=0.02), lower family income (decrement of 0.10, 95% CI 0.03 to 0.15, p=0.002) and short stature (decrement of 0.09, 95% CI 0.01 to 0.16, p=0.02).ConclusionsThe overall QoL and domains such as pain and emotion are substantially worse in children on dialysis compared with earlier stage CKD and those with kidney transplants.

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Social support network, mental health and quality of life: a cross-sectional study in primary care

Cadernos de Saúde Pública ◽

10.1590/0102-311x00165115 ◽

2016 ◽

Vol 32 (12) ◽

Cited By ~ 2

Author(s):

Flávia Batista Portugal ◽

Mônica Rodrigues Campos ◽

Celina Ragoni Correia ◽

Daniel Almeida Gonçalves ◽

Dinarte Ballester ◽

...

Keyword(s):

Quality Of Life ◽

Social Support ◽

Social Relations ◽

Cross Sectional Study ◽

Support Network ◽

Sectional Study ◽

Social Support Network ◽

Cross Sectional ◽

The Social

The objective of this study was to identify the association between emotional distress and social support networks with quality of life in primary care patients. This was a cross-sectional study involving 1,466 patients in the cities of São Paulo and Rio de Janeiro, Brazil, in 2009/2010. The General Health Questionnaire, the Hospital Anxiety and Depression Scale and the brief version of the World Health Organization Quality of Life Instrument were used. The Social Support Network Index classified patients with the highest and lowest index as socially integrated or isolated. A bivariate analysis and four multiple linear regressions were conducted for each quality of life outcome. The means scores for the physical, psychological, social relations, and environment domains were, respectively, 64.7; 64.2; 68.5 and 49.1. In the multivariate analysis, the psychological domain was negatively associated with isolation, whereas the social relations and environment domains were positively associated with integration. Integration and isolation proved to be important factors for those in emotional distress as they minimize or maximize negative effects on quality of life.

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