scholarly journals The dignity of burn patients: a qualitative descriptive study of nurses, family caregivers, and patients

BMC Nursing ◽  
2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Banafsheh Tehranineshat ◽  
Mahnaz Rakhshan ◽  
Camellia Torabizadeh ◽  
Mohammad Fararouei ◽  
Mark Gillespie

Abstract Background As an ethical principle, showing respect for human dignity is a professional duty of all nurses. The aggressive nature of severe burn injuries makes it hard to respect the existential values and dignity of burn patients. However, only a few studies have been conducted on the preservation of the dignity of burn patients. The purpose of this study is to identify and describe burn patients’ dignity as perceived by nurses, family caregivers, and burn patients. Methods The present study has a descriptive, qualitative research design. Nurses, family caregivers and patients in the biggest burns hospital in the south of Iran were selected via purposeful sampling from October 2017 to August 2018 (n = 25). Data were collected using semi-structured, in-depth, individual interviews. Thereafter, data analysis was performed through conventional content analysis. Results Three main themes were extracted from the information obtained in the interviews: empathic communication, showing respect, and providing comprehensive support. Conclusion The care provided to burn patients should be combined with effective communication, spending time with them, and attending to their repetitive requests, so that they can freely express their feelings and concerns. In addition, the patients’ human values and beliefs should be respected and all aspects of their existence should be taken into account to preserve their dignity. Workshops designed based on the findings of the present study can help with improving the quality of burn nursing care.

2020 ◽  
Author(s):  
Banafsheh Tehranineshat ◽  
Mahnaz Rakhshan ◽  
Camellia Torabizadeh ◽  
Mohammad Fararouei ◽  
Mark Gillespie

Abstract Background: As an ethical principle, showing respect to human dignity is considered as a professional duty of all nurses. The aggressive nature of severe burn injuries makes it hard to respect existential values and dignity of burn patients. However, only a few studies have been conducted on the preservation of the dignity of burn patients.Purpose: The purpose of the study was to determine the various aspects of the concept of burn patients’ dignity from the perspective of nurses, family caregivers, and burn patients themselves.Methods: The present study has a descriptive, qualitative research design. Moreover, data were collected using semi-structured, in-depth, individual interviews. Thereafter, data analysis was performed using conventional content analysis. The subjects of the present study were from nurses, family caregivers, and patients referred to the biggest burns hospital in the southeast of Iran. The participants were then selected via a purposeful sampling (n=25), which continued until reaching data saturation. This study lasted from October 2017 to August 2018. Results: Three main themes were extracted from the information obtained in the interviews, which were as follows: Creating an intimate atmosphere, showing respect, and providing comprehensive support.Conclusion: Burn patients need receiving appropriate care in a convivial atmosphere where they are looked after by empathetic caregivers who dedicate enough time to them as well as allowing them to express their feelings and concerns. In addition, patients' human values and beliefs should be respected and all aspects of their existence should be taken into account to preserve their dignity. In this regard, workshops designed based on the findings of the present study can help improving the quality of burn care nursing.


2020 ◽  
Author(s):  
Banafsheh Tehranineshat ◽  
Mahnaz Rakhshan ◽  
Camellia Torabizadeh ◽  
Mohammad Fararouei ◽  
Mark Gillespie

Abstract Background: The essence of nursing care is preservation of patients' human dignity. The aggressive nature of severe burn injuries makes it hard to respect burn patient's existential dimensions and dignity. However, not much research has been conducted on respect for the dignity of burn patients.Purpose: The present study aims to outline the concept of maintaining the dignity of burn patients from the perspective of their caregivers. Methods: The study has a descriptive, qualitative research design. Data were collected using semi-structured, in-depth, individual interviews. Data analysis was executed using conventional content analysis. The subjects were nurses and family caregivers from the biggest burns hospital in the south-east of Iran. The participants were selected via purposeful sampling (n=20) until data saturation was reached. The study lasted from October 2017 to August 2018. Results: Three main themes emerged from the information obtained from the interviews: creating a friendly atmosphere, showing respect, and providing comprehensive support.Conclusion: Burn patients need to receive care in a friendly atmosphere where they are looked after by empathetic caregivers who give enough time to them and allow them to express their feelings and concerns. Also, patients' human values and beliefs should be respected and all aspects of their existence should be taken into account for their dignity to be preserved. Workshops designed based on the findings of the present study can help improve the quality of nursing care.


2020 ◽  
Author(s):  
Banafsheh Tehranineshat ◽  
Mahnaz Rakhshan ◽  
Camellia Torabizadeh ◽  
Mohammad Fararouei ◽  
Mark Gillespie

Abstract Background: The essence of nursing care is preservation of patients' human dignity. The aggressive nature of severe burn injuries is a threat to the integration of burn patient's existential dimensions and dignity. However, not much research has been conducted on respect for the dignity of burn patients.Purpose: The present study aims to determine the concept of maintaining the dignity of burn patients from the perspective of their caregivers. Methods: The study has a descriptive, qualitative research design. Data were collected using semi-structured, in-depth, individual interviews. Data analysis was executed using conventional content analysis. The subjects were nurses and family caregivers from the biggest burns hospital in southeastern Iran. The participants were selected via purposeful sampling (n=18) until data saturation was reached. The study lasted from October 2017 to August 2018. Results: Three main themes emerged from the information obtained from the interviews: creating a friendly atmosphere, showing respect, and providing comprehensive support.Conclusion: Burn patients need to receive care in a friendly atmosphere where they are looked after by empathetic caregivers who give enough time to them and allow them to express their feelings and concerns. Also, patients' human values and beliefs should be respected and all aspects of their existence should be taken into account for their dignity to be preserved. Workshops designed based on the findings of the present study can help improve the quality of nursing care.


2020 ◽  
Author(s):  
Banafsheh Tehranineshat ◽  
Mahnaz Rakhshan ◽  
Camellia Torabizadeh ◽  
Mohammad Fararouei ◽  
Mark Gillespie

Abstract Background: A focus of nursing care is the preservation of patients' human dignity. The aggressive nature of burn injuries is a threat to the integration of the patient's existential dimensions and dignity, however, previous studies have not examined the experience of dignity about this client group. The present study was aimed to define and explain the concept of dignity for burn patients from the perspective of their caregivers .Methods: This study was a qualitative research design. The data were collected by using semi-structured in-depth individual interviews. Also, data analysis was performed using conventional content analysis. Nurses and family caregivers of the biggest burn injury hospital in southeastern Iran were selected based on purposeful sampling method (n=18) to reach data saturation from October 2017 to August 2018.Results: According to the findings obtained from interviews, three main themes were identified, including the creation of an intimate atmosphere, respect, and comprehensive support.Conclusions: Burn patients need to be provided with care in a cordial and friendly atmosphere facilitated through empathetic caregiver-patient communication, as well as enough time to allow them to express their feelings and concerns. Also, patients' intrinsic values and beliefs and all aspects of existence should be taken into crucial account to preserve the dignity of these individuals. Therefore, the establishment of training interventions based on these indicators may improve the quality of nursing care.


2019 ◽  
Author(s):  
Aimee R. Castro ◽  
Jessica Marinello ◽  
Khadidja Chougui ◽  
Marilyn Morand ◽  
Claudette Bilodeau ◽  
...  

AbstractAims and objectivesThis study aimed to explore the day-to-day experiences of caregivers who are caring for children with Osteogenesis Imperfecta (OI).BackgroundOI is a rare genetic condition known to cause bone fragility. Family caregivers, such as parents, of children with OI play an important role in helping these children live well at home.DesignThe design was qualitative description.MethodsA qualitative descriptive study was conducted which adheres to the COREQ guidelines. Adult caregivers (n=18) of children with OI were recruited at a children’s hospital in Montréal, Canada to participate in individual interviews. The interviews were transcribed verbatim and inductively thematically analysed.ResultsThe following caregiving themes were identified in these interviews: regular day-to-day caregiving activities, including morning routines, evening routines, and the facilitation of their child’s mobilization; periods that made the caregiving routine more challenging, such as fractures, surgeries, and pain; and the long-term strategies caregivers developed to support day-to-day care, such as managing the environment, accessing medical and school resources, and coordinating care and respite.ConclusionsThe results showcase what being a caregiver for a child with OI involves on a day-to-day basis.Relevance to clinical practiceThe recommendations include suggestions for future clinical, policy, and research endeavours to develop better policies and interventions to support the unique needs of family caregivers of children with OI. These recommendations may be relevant to other clinicians and policymakers working with families living with rare and chronic physical conditions.


2019 ◽  
Vol 7 (4) ◽  
pp. 561-569
Author(s):  
Jo-Ana D Chase ◽  
David Russell ◽  
Meridith Rice ◽  
Carmen Abbott ◽  
Kathryn H Bowles ◽  
...  

Background: Post-acute home health-care (HHC) services provide a unique opportunity to train and support family caregivers of older adults returning home after a hospitalization. To enhance family-focused training and support strategies, we must first understand caregivers’ experiences. Objective: To explore caregivers’ experiences regarding training and support for managing older adults’ physical functioning (PF) needs in the post-acute HHC setting. Method: We conducted a qualitative descriptive study using semi-structured telephone interviews of 20 family caregivers. Interviews were recorded, transcribed, and analyzed using conventional content analysis. Results: We identified the following primary categories: facilitators to learning (eg, past experience, learning methods), barriers to learning (eg, learning on their own, communication, timing/logistics, preferred information and timing of information delivery), and interactions with HHC providers (eg, positive/negative interactions, provider training and knowledge). Conclusion: Caregivers were responsive to learning strategies to manage older adults’ PF needs and, importantly, voiced ideas to improve family-focused training and support. HHC providers can use these findings to tailor training and support of family caregivers in the post-acute HHC setting.


BMJ Open ◽  
2020 ◽  
Vol 10 (10) ◽  
pp. e038344
Author(s):  
Yong-Xia Mei ◽  
Beilei Lin ◽  
Weihong Zhang ◽  
Dong-Bin Yang ◽  
Shan-Shan Wang ◽  
...  

ObjectivesThe caregiving experience includes both caregiver burdens and benefits finding. However, the benefits obtained by family caregivers of stroke survivors in Chinese community dwellings are unknown. The objective of this study was to explore the benefits experienced by family caregivers of stroke survivors in Chinese community dwellings.DesignA qualitative descriptive design was used, fulfilling the consolidated criteria for the Standards for Reporting Qualitative Research reporting guidelines. Semi-structured interviews were conducted with 20 family caregivers of stroke survivors. The interviews were audiotaped, transcribed and analysed. Thematic analysis was performed to analyse the interview transcripts.Setting and participantsHome interviews were conducted with family caregivers of stroke survivors in two communities in Zhengzhou, China.ResultsThe family caregivers of stroke survivors experienced various benefits from caregiving. There were both internal benefits (increases in knowledge and skills, the development of positive attitudes, and the development of a sense of worthiness and achievement) and external benefits (family growth and gains in social support), which interact to create a healthy lifestyle.ConclusionOur findings provide a comprehensive perspective in understanding the benefits perceived by family caregivers of stroke survivors. This study provides insights into interventions focused on identifying benefits finding in six domains that may help reduce negative emotions and promote the mental health of caregivers.


2021 ◽  
Vol 11 (1) ◽  
pp. 10-23
Author(s):  
Homelo Valenzuela Estoque ◽  
Reynold Culimay Padagas

Background: Transitioning is a common phenomenon that happens such as in a career shift provoked by either internal or external factors. This phenomenon also occurs to nurses becoming lawyers. Considering its complexity, such transition entails a process.Purpose: This study aimed to describe and uncover the preparations, motivations, ad barriers of nurses who transitioned into nurse-lawyers in the Philippines. Methods: The study employed descriptive-qualitative research design utilizing twenty participants selected through purposive and snowball or referral sampling techniques. A semi-structured interview guide was used for the data collection using Google form. Braun and Clarke’s thematic analysis was utilized as the primary treatment of the transcribed data. Strict observance of ethical standards in conducting research was ensured.Results: The study found out several themes and subcategories from the thematic analysis conducted. These included (1) “pre-planning emotive expressions”; (2) “motivations of career shift”; (3) “support mechanisms to afford career shift”; (4) “barriers to career shift”; (5) “the interconnectedness of law and nursing”; and (6) “impacts of the career shift.” Conclusion: Generally, the career shift of the nurse-lawyers presented significant themes pertinent to their preparations, motivations, and barriers in becoming lawyers. Apparently, these are all primordial in the career transition of the nurse-lawyers. Essentially, the study provides preliminary findings that may become springboard in the construction of a grounded theory that would explicate the transition of the nurse-lawyers as a phenomenon uniting and expanding nursing and the practice of law as complementary sciences.


Author(s):  
Linda Robertson ◽  
Beatrice Hale ◽  
Debra Waters ◽  
Leigh Hale ◽  
Alexa Andrew

Purpose: This paper considers reasons for the successful maintenance of community based, falls-prevention programs. While the physical achievement of such programs has been demonstrated through randomized trials, other features influential in ongoing membership have received less attention. This study examined the sustainability of a specific model of a community-based program in a New Zealand city: SAYGO, the strength and balance classes for older adults lead by older volunteer leaders recruited from local communities. Method: A qualitative, descriptive approach was used and first-hand knowledge of the experiences of those involved in the groups gathered. Data collection methods included individual interviews of two group organizers and seven focus groups: six with the members of the exercise groups (57 participants) and one with the peer leaders from these same groups (6 participants). Results: Three major themes emerged from the interviews. Two were related to the outcomes of the groups (ie. physical and social benefits). The third was concerned with the support needs of the groups to ensure their on-going maintenance. The aspect that most invigorated the participants was the social value of the group. Conclusions: A major feature that contributed to the sustainability of the peer led exercise groups was the positive social connectedness created by the modeling of a caring culture by the peer-leaders. This caring culture involves support and inclusion of every member and acting as a resource and confidant for individual issues. Because group leaders are similar in age and physical problems, it is expected that they will empathize with participants, and because of their community and agency links, it is expected that they will be able to act as a resource for information on issues related to the participants, therefore, stand between the formal and informal domains and are perceived to have knowledge and connections in both. This, we suggest, is a major, previously unconsidered feature in the sustainability of these groups.


Author(s):  
Heather N. Fedesco ◽  
Drew Cavin ◽  
Regina Henares

Field-based learning in higher education is lacking both in practice at colleges and in research within the academic literature. This study aims to address these deficits by exploring the benefits of, and suggesting strategies for, executing field study in higher education across a variety of courses. We report the results of a qualitative research design that included the observation of five courses within the natural sciences, social sciences, and humanities. Approximately eight students per observed course were interviewed three times during their course to assess perceptions of the class, their peers and instructor, the field experiences, and their motivation throughout the course. In total, 130 individual interviews were conducted with 45 students. Results revealed that field-based learning enhances the degree of relatedness students feel with their classmates and instructors, they have a greater degree of intrinsic motivation in the course, and these experiences facilitate learning in ways that may not be replicated in the traditional classroom. In addition, we created a typology of field-based learning, which includes eight different trips that could be employed in higher education courses. We also identified general strategies to improve the execution of these trips.


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