scholarly journals A qualitative study examining the benefits and challenges of incorporating patient-reported outcome substance use and mental health questionnaires into clinical practice to improve outcomes on the HIV care continuum

2018 ◽  
Vol 18 (1) ◽  
Author(s):  
Anne K. Monroe ◽  
Sarah M. Jabour ◽  
Sebastian Peña ◽  
Jeanne C. Keruly ◽  
Richard D. Moore ◽  
...  
Keyword(s):  
Mental Health ◽  
Substance Use ◽  
Clinical Practice ◽  
Qualitative Study ◽  
Patient Reported Outcome ◽  
Hiv Care ◽  
Hiv Care Continuum ◽  
Care Continuum ◽  
Patient Reported ◽  
Health Questionnaires

scholarly journals Exploring How Substance Use Impedes Engagement along the HIV Care Continuum: A Qualitative Study

2016 ◽  
Vol 4 ◽  
Author(s):  
Marya Gwadz ◽  
Rebecca de Guzman ◽  
Robert Freeman ◽  
Alexandra Kutnick ◽  
Elizabeth Silverman ◽  
...  
Keyword(s):  
Substance Use ◽  
Qualitative Study ◽  
Hiv Care ◽  
Hiv Care Continuum ◽  
Care Continuum

scholarly journals Care Facilitation Advances Movement Along The Hepatitis C Care Continuum For Persons With Hiv, Hepatitis C And Substance Use: A Randomized Clinical Trial (Ctn-0064)

2021 ◽  
Author(s):  
Lisa R Metsch ◽  
Daniel J Feaster ◽  
Lauren K Gooden ◽  
Carmen Masson ◽  
David C Perlman ◽  
...  
Keyword(s):  
Substance Use ◽  
Viral Load ◽  
Hepatitis C ◽  
Controlled Trial ◽  
Sustained Viral Response ◽  
Hiv Care ◽  
Control Group ◽  
Hiv Care Continuum ◽  
Care Continuum ◽  
Viral Response

Abstract Background Direct-acting antivirals can cure HCV. Persons with HCV/HIV and living with substance use are disadvantaged in benefitting from advances in HCV treatment. Methods In this randomized controlled trial, participants with HCV/HIV were randomized between February 2016 and January 2017 to either care facilitation or control. Twelve-month follow-up assessments completed in January 2018. Care facilitation group participants received motivation and strengths-based case-management addressing retrieval of HCV load results, engagement in HCV/HIV care and medication adherence. Control group participants received referral to HCV evaluation and an offer of assistance in making care appointments. Primary outcome was number of steps achieved along a series of 8 clinical steps (e.g., receiving HCV results, initiating treatment, sustained viral response) of the HCV/HIV care continuum over 12 months post-randomization. Results Three hundred and eighty-one individuals were screened and 113 randomized. Median age was 51 years; 58.4% male and 72.6% Black/African American. Median HIV-1 viral load was 27,209 copies/ml with 69% having a detectable viral load. Mean number of steps completed was statistically significantly higher in the intervention (2.44 steps) vs. control group (1.68 steps) [χ 2(1)=7.36, p=0.0067]. Men in the intervention (vs. control) group completed a statistically significantly higher number of steps. Eleven participants achieved sustained viral response with no difference by treatment group. Conclusions The care facilitation intervention increased progress along the HCV/HIV care continuum, as observed for men and not women. Study findings also highlight the continued challenges to achieve individual patient sustained viral responses and population level HCV elimination.

A qualitative study of Thai HIV-positive young men who have sex with men and transgender women demonstrates the need for eHealth interventions to optimize the HIV care continuum

AIDS Care ◽  
2017 ◽  
Vol 29 (7) ◽  
pp. 870-875 ◽  
Author(s):  
Tarandeep Anand ◽  
Chattiya Nitpolprasert ◽  
Stephen J. Kerr ◽  
Kathryn E. Muessig ◽  
Sangusa Promthong ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Young Men ◽  
Transgender Women ◽  
Hiv Care ◽  
Hiv Positive ◽  
Hiv Care Continuum ◽  
Care Continuum ◽  
Sex With Men

scholarly journals Young people’s perspectives on patient-reported outcome measures in inflammatory arthritis: results of a multicentre European qualitative study from a EULAR task force

RMD Open ◽  
2021 ◽  
Vol 7 (1) ◽  
pp. e001517
Author(s):  
Erika Mosor ◽  
Paul Studenic ◽  
Alessia Alunno ◽  
Ivan Padjen ◽  
Wendy Olsder ◽  
...  
Keyword(s):  
Clinical Practice ◽  
Young People ◽  
Qualitative Study ◽  
Focus Groups ◽  
Outcome Measures ◽  
Inflammatory Arthritis ◽  
Positive Attitude ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Patient Reported

IntroductionAlthough patient-reported outcome measures (PROMs) are increasingly used in clinical practice and research, it is unclear whether these instruments cover the perspective of young people with inflammatory arthritis (IA). The aims of this study were to explore whether PROMs commonly used in IA adequately cover the perspective of young people from different European countries.MethodsA multinational qualitative study was conducted in Austria, Croatia, Italy and the Netherlands. Young people with either rheumatoid arthritis (RA), juvenile idiopathic arthritis (JIA), Still’s disease, psoriatic arthritis (PsA) or spondyloarthritis (SpA), aged 18–35 years, participated in semistructured focus group interviews. Thematic analysis was used and data saturation was defined as no new emergent concepts in at least three subsequent focus groups.ResultsFifty-three patients (21 with RA/JIA/Still’s, 17 with PsA, 15 with SpA; 72% women) participated in 12 focus groups. Participants expressed a general positive attitude towards PROMs and emphasised their importance in clinical practice. In addition, 48 lower level concepts were extracted and summarised into 6 higher level concepts describing potential issues for improvement. These included: need for lay-term information regarding the purpose of using PROMs; updates of certain outdated items and using digital technology for data acquisition. Some participants admitted their tendency to rate pain, fatigue or disease activity differently from what they actually felt for various reasons.ConclusionsDespite their general positive attitude, young people with IA suggested areas for PROM development to ensure that important concepts are included, making PROMs relevant over the entire course of a chronic disease.

A systematic review of patient-reported outcome measurement (PROM) and provider assessment in mental health: goals, implementation, setting, measurement characteristics and barriers

2020 ◽  
Author(s):  
Marc Gelkopf ◽  
Yael Mazor ◽  
David Roe
Keyword(s):  
Mental Health ◽  
Clinical Practice ◽  
Outcome Measures ◽  
Outcome Measurement ◽  
Web Security ◽  
Patient Reported Outcome ◽  
Self Report ◽  
Attrition Rate ◽  
Review Of Literature ◽  
Patient Reported

Abstract Purpose To review and integrate the literature on mental-health-related patient-reported outcome measures (PROMs) and routine outcome measures (ROMs), namely in the domains of goals, characteristics, implementation, settings, measurements and barriers. PROM/ROM aims mainly to ascertain treatment impact in routine clinical practice through systematic service users’ health assessment using standardized self-report, caretaker and/or provider assessment. Data sources Psych INFO and PubMed including Medline, Biomed Central, EMBASE Psychiatry and Elsevier Science’s Direct. Study selection Systemized review of literature (2000–2018) on implementation and sustainability of PROMs/ROMs in adult mental health settings (MHS). Data extraction and synthesis Systemized review of literature (2000–2018) on numerous aspects of PROM/ROM implementation and sustainability in adult MHS worldwide. Results Based on 103 articles, PROMs/ROMs were implemented mostly in outpatient settings for people with assorted mental health disorders receiving a diversity of services. Frequency of assessments and completion rates varied: one-third of projects had provider assessments; about half had both provider and self-assessments. Barriers to implementation: perceptions that PROM/ROM is intrusive to clinical practice, lack of infrastructure, fear that results may be used for cost containment and service eligibility instead of service quality improvement, difficulties with measures, ethical and confidentiality regulations and web security data management regulations. Conclusion Improving data input systems, sufficient training, regular feedback, measures to increase administrative and logistic support to improve implementation, acceptability, feasibility and sustainability, follow-up assessments and client attrition rate reduction efforts are only some measures needed to enhance PROM/ROM efficiency and efficacy.

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