Supporting survivorship care through comprehensive cancer control technical assistance.

2018 ◽  
Vol 36 (7_suppl) ◽  
pp. 15-15
Author(s):  
Allison Harvey ◽  
Mohammad Khalaf ◽  
Aubrey Villalobos ◽  
Mandi Chapman
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Technical Assistance ◽  
Patient Navigation ◽  
Cancer Control ◽  
Background Information ◽  
Comprehensive Cancer Control ◽  
Survivorship Care ◽  
Care Providers ◽  
Care Plans

15 Background: In 2010, the Centers for Disease Control and Prevention (CDC) issued six priorities for Comprehensive Cancer Control (CCC) programs, including addressing needs of cancer survivors (Seeff, 2010). CCC programs identified need for technical assistance (TA), tools and resources in this area. George Washington University (GW) Cancer Center provides TA on survivorship through a 5-year agreement from CDC and contracts from 5 states. Methods: Since 2013, GW developed three online trainings for health care providers with a focus on survivorship. From 2016-2017, GW delivered four tailored in-person workshops to health care professionals (N = 137). GW also produced a survivorship report and a roadmap to implement the patient navigation standard from the Commission on Cancer: both include background information, sample metrics and implementation resources. Results: Across online trainings for oncology and primary care provider (PCP) learners, a majority of participants (N = 1,983) agreed or strongly agreed their knowledge was enhanced (94.6%) and planned to implement strategies/skills/information learned (79.6%). While content varied for workshops, patient-provider communication, survivorship care plans and patient navigation were common topics presented. The majority (n = 74) agreed or strongly agreed their knowledge was enhanced (82.4%) and planned to implement strategies/skills/information learned (86.4%). The survivorship report has been downloaded 11,000+ times in one year and the roadmap nearly 5,000 times in one month. Conclusions: Based on uptake of TA, GW is meeting a need for CCC programs. However, stakeholder feedback indicates programs continue to desire TA support to meet patient navigation and survivorship care standards. Notably, most PCPs are not familiar with survivorship care, and uptake of trainings aimed at PCPs remains low. Opportunities for further TA to troubleshoot challenges in patient navigation and survivorship care remain.

Engaging a statewide network to expand survivorship care to rural and urban cancer survivors.

2016 ◽  
Vol 34 (3_suppl) ◽  
pp. 23-23
Author(s):  
Jennifer R. Klemp ◽  
Carol Bush ◽  
Ashley Spaulding ◽  
Hope Krebill ◽  
Gary C. Doolittle
Keyword(s):  
Primary Care ◽  
Health Care ◽  
Technical Assistance ◽  
Community Support ◽  
Primary Care Providers ◽  
Educational Needs ◽  
The State ◽  
Survivorship Care ◽  
Care Providers ◽  
Care Plans

23 Background: Advances have been made in elevating cancer survivorship as a public health priority and defining elements needed to deliver high-quality follow-up care to survivors. However, a lack of research on how best to care for survivors and the most effective and efficient strategies for delivering survivorship care in the community setting still exists. We report our assessment of the current state of practice, knowledge and professional development, and plan to increase access to care of urban and rural practices across the state of Kansas. Methods: In 2014, the Midwest Cancer Alliance (MCA), a membership-based outreach arm of The University of Kansas Cancer Center, convened an educational summit and survey to assess the survivorship landscape in Kansas. Post-summit, individual interviews were conducted. Survey and interviews included questions regarding health records, treatment summaries, survivorship care plans (SCP), availability of survivorship programs and resources, access to primary care and specialists, distress screening, community support, and educational needs. Results: Ten MCA member health systems were invited to participate and 7 indicated interest in participating in the project. Only one organization provided an SCP to survivors. Barriers included lack of an integrated approach and knowledge. A majority of survivorship care could be delivered close to home, however, services including fertility preservation, genetic counseling, oncology rehab, sexual health, and second opinions, required travel of more than 50 miles. Identified educational needs focused on comprehensive survivorship care across the health care team. Conclusions: Survivorship care remains fragmented across the state of Kansas. Based on this project, we have secured a CDC survivorship grant that will facilitate clinical and technical assistance related to process improvement and electronic health record integration focused on survivorship care and delivery of an SCP. Next steps include engaging primary care providers and survivors to assure the SCP meets the needs of stakeholders. This work will focus on a translational process to meet the growing needs of the survivors and complex health care organizations.

scholarly journals Survivorship care planning in gynecologic oncology: Perspectives from patients, caregivers, and health care providers.

2018 ◽  
Vol 36 (7_suppl) ◽  
pp. 63-63
Author(s):  
Belle Hadewijch de Rooij ◽  
Teresa Hagan ◽  
Kathryn E. Post ◽  
Jane M. Flanagan ◽  
Jeffrey M. Peppercorn ◽  
...  
Keyword(s):  
Health Care ◽  
Health Care Providers ◽  
Gynecological Cancer ◽  
Gynecologic Oncology ◽  
The United States ◽  
Care Planning ◽  
Survivorship Care ◽  
Care Providers ◽  
Care Plans ◽  
Survivorship Care Planning

63 Background: More than a decade after the widespread recommendation of survivorship care plans (SCPs), evidence-based content and processes for providing survivorship care planning in gynecologic oncology remain undefined. This qualitative study sought to characterize the challenges experienced in care after treatment of gynecological cancer and preferences for survivorship care planning among patients, their caregivers and health care providers. Methods: Between July and August 2017, in-depth semi-structured interviews were conducted at a large academic hospital in the United States among patients that recently ended treatment ( < 12 months) of a gynecological cancer (ovarian, endometrial, cervical and vulvar), their caregivers, and health care providers (oncologists, nurses and fellows). Main themes were identified using descriptive content analysis. Results: A total of 30 individuals participated in this study (13 patients, 9 caregivers, 8 health care providers). The vast majority of patients and caregivers (91%) expressed satisfaction for survivorship care, although all reported that remaining needs and ongoing issues remained unaddressed (i.e. distressing symptoms and mood). Almost all (95%) reported a desire for more information on how to address these needs, including issues related to side effects (59%), follow-up planning (32%), and psychological assistance (23%). Preferences for survivorship care planning differed across individuals, with respect to content, timing, and mode of delivery. Some patients did not want a SCP at all (14%). Health care providers expressed that they 1) experience challenges in communicating with patients about survivorship, 2) want to shift the focus to improving quality of life as opposed to focusing on likely disease recurrence, 3) do not currently provide formal SCPs, 4) want disease specific and tailored SCPs to support their survivorship care. Conclusions: Patients, caregivers and health care providers express a need for resources to support survivorship care in gynecologic oncology. The variation of disease types and patient and caregiver needs in this field requires multi-faceted, tailored survivorship care planning.

Survivorship Perspectives and Advocacy

2006 ◽  
Vol 24 (32) ◽  
pp. 5154-5159 ◽  
Author(s):  
Barbara Hoffman ◽  
Ellen Stovall
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Health Care Providers ◽  
Personal Control ◽  
Survivorship Care Plans ◽  
Survivorship Care ◽  
Care Providers ◽  
Care Plans ◽  
The Moment

From the moment of diagnosis, a cancer survivor faces serious life-altering decisions. Survivors who are informed about their options and who feel they have personal control over decision making generally perceive a higher quality of life than those who feel less informed and less in control. Health care providers are in a unique position to define a survivor's cancer care and to guide a survivor through treatment and post-treatment care. By implementing survivorship care plans and directing their patients to survivorship resources, health care providers can advocate for survivors and teach them to be effective self-advocates.

scholarly journals “Breaking the Silence” to Improve Cancer Survivorship Care for First Nations Peoples

2018 ◽  
Vol 17 (1) ◽  
pp. 160940691877413
Author(s):  
Wendy Gifford ◽  
Roanne Thomas ◽  
Gwen Barton ◽  
Viviane Grandpierre ◽  
Ian D. Graham
Keyword(s):  
Health Care ◽  
First Nations ◽  
Cancer Survivorship ◽  
Health Care Providers ◽  
Large Scale ◽  
Care Delivery ◽  
Survivorship Care ◽  
Care Providers ◽  
Community Based ◽  
Knowledge To Action

There is a significant knowledge-to-action gap in cancer survivorship care for First Nations (FN) communities. To date, many approaches to survivorship have not been culturally responsive or community-based. This study is using an Indigenous knowledge translation (KT) approach to mobilize community-based knowledge about cancer survivorship into health-care programs. Our team includes health-care providers and cancer survivors from an FN community in Canada and an urban hospital that delivers Cancer Care Ontario’s Aboriginal Cancer Program. Together, we will study the knowledge-to-action process to inform future KT research with Indigenous peoples for improving health-care delivery and outcomes. The study will be conducted in settings where research relations and partnerships have been established through our parent study, The National Picture Project. The inclusion of community liaisons and the continued engagement of participants from our parent study will foster inclusiveness and far-reaching messaging. Knowledge about unique cancer survivorship needs co-created with FN people in the parent study will be mobilized to improve cancer follow-up care and to enhance quality of life. Findings will be used to plan a large-scale implementation study across Canada.

scholarly journals Towards Universal Quality Health Care through an Independent Accreditation Agency: A Review

2020 ◽  
Vol 54 (6) ◽  
Author(s):  
Gabriel R. Borlongan ◽  
Ma-Ann M. Zarsuelo ◽  
Michael Antonio F. Mendoza ◽  
Ma. Esmeralda C. Silva ◽  
Leonardo R. Estacio Jr.
Keyword(s):  
Health Care ◽  
Health Insurance ◽  
Health Care Providers ◽  
National Health ◽  
Technical Assistance ◽  
Development Program ◽  
Health Facilities ◽  
Third Party ◽  
Care Providers ◽  
Accreditation System

Background. Guaranteeing quality of health care services is part of the objectives of Republic Act No. 11223 or the Universal Health Care (UHC) Act of 2019. In assuring that quality services are delivered by health care providers, they must be accredited to participate in the National Health Insurance Program. The UHC Act mandates the Philippine Health Insurance Corporation (PhilHealth) to recognize third party mechanisms as basis of granting incentives for health facilities that deliver services of higher quality. This review aimed to identify lessons and experiences from literature that can be adopted and contextualized in the Philippine setting, for strategic policies on strengthening the national health facility accreditation system. Methods. A systematic review of literature was conducted to generate evidence-based recommendations from discussions on cross country experiences and local government initiatives towards improved accreditation system. Results. By virtue of the UHC Act, a form of strategic purchasing is further institutionalized through a rating system that incentivizes health facilities that provide better services in terms of quality, efficiency, and equity. It is imperative to consider the country’s previous and current gaps and challenges in accreditation and adopt the best practices of other countries, as appropriate to Philippine's local settings. A tool is proposed in creating a national hospital accreditation system using the domains of leadership and governance, financing and sustainability, standards development, program management, and continuing quality improvement. Conclusion and Recommendations. With the legitimacy of third party accreditation body mandated by the UHC Act, operationalization of the prescribed mechanisms and organizational structure must enjoin all pertinent stakeholders and be supported by sustainable funds and technical assistance by the government.

Making the Informal Formal: Discussing and Completing Advance Care Plans in Care Dyads with Cognitive Impairment

2021 ◽  
pp. 082585972110630
Author(s):  
Megan Shepherd-Banigan ◽  
Cassie B. Ford ◽  
Nicole DePasquale ◽  
Valerie A. Smith ◽  
Emmanuelle Belanger ◽  
...  
Keyword(s):  
Health Care ◽  
Cognitive Impairment ◽  
Health Care Providers ◽  
Living Will ◽  
Care Providers ◽  
Positive Role ◽  
Cross Sectional ◽  
Care Plans ◽  
Care Partners ◽  
Advance Care

Background Discussing advance care planning (ACP) with care partners may be a steppingstone to the completion of advance directives (ADs) for persons with cognitive impairment (PwCIs). Objectives To examine whether PwCI-reported occurrence of and PwCI-care partner agreement about ACP discussions are associated with completion of ADs. Design and Subjects We conducted a secondary, cross-sectional analysis of data from 1672 PwCI-care partner dyads in the BLINDED study. PwCIs were Medicare beneficiaries in the US, aged >65 years, and diagnosed with mild cognitive impairment or dementia. Care partners were identified by PwCIs as being most involved in their health care. Measurements PwCIs’ completion of ADs was determined by 1 or more affirmative responses to dichotomous indicators for formalizing a living will, medical directive, or durable power of attorney for health care. Discussion occurrence was based on PwCI reports and agreement between PwCI and care partner reports of prior conversations about PwCIs’ ACP preferences between PwCIs and care partners. Results In logistic regression models adjusted for PwCI and care partner characteristics, PwCIs who had (vs. had not) discussed ACP were 10% more likely to complete ADs. PwCIs from dyads agreeing (vs. disagreeing) a discussion occurred were 7% more likely to complete ADs. PwCIs from care dyads in agreement (vs. disagreement) about non-discussion were 11% less likely to formalize ADs. Conclusions Discussing ACP with care partners plays a direct, positive role in completing ADs among PwCIs. Health care providers who approach ACP as a dyadic, communicative decision-making process from the outset may facilitate PwCIs’ uptake of ADs.

scholarly journals Passport for Care: Implementing the Survivorship Care Plan

2009 ◽  
Vol 5 (3) ◽  
pp. 110-112 ◽  
Author(s):  
Marc E. Horowitz ◽  
Michael Fordis ◽  
Susan Krause ◽  
Julie McKellar ◽  
David G. Poplack
Keyword(s):  
United States ◽  
Health Care ◽  
Health Care Providers ◽  
The United States ◽  
Care Plan ◽  
Survivorship Care Plan ◽  
Survivorship Care ◽  
Care Providers ◽  
Long Term Survivors

Approximately 12,000 children in the United States are diagnosed with cancer each year, and roughly 75% of these patients become long-term survivors. The Passport for Care was developed to support these survivors and their health care providers.

scholarly journals Cancer related knowledge, attitude, and practice among community health care providers and health assistants in rural Bangladesh

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Nazirum Mubin ◽  
Redwan Bin Abdul Baten ◽  
Sayeeda Jahan ◽  
Fatema Tuz Zohora ◽  
Naim Mahmud Chowdhury ◽  
...  
Keyword(s):  
Health Care ◽  
Community Health ◽  
Health Care Providers ◽  
Rural Areas ◽  
Cancer Control ◽  
Community Health Care ◽  
Care Providers ◽  
Rural Bangladesh ◽  
Attitude And Practice ◽  
Knowledge Attitude And Practice

Abstract Background Cancer remains one of the primary causes of death in Bangladesh. The success of cancer control in rural areas depends on the ability of the health care system and workforce to identify and manage cases properly at early stages. Community Health Workers (CHW) can play a vital role in this process. The present study aims to assess cancer related Knowledge, Attitude, and Practice (KAP) among 2 categories of CHWs - Community Health Care Providers (CHCP) and Health Assistants (HA) in rural Bangladesh. Methods A descriptive cross-sectional study was conducted using a self-administered questionnaire from July 2019 to June 2020. Multi-stage sampling technique was used to determine the sample. One Upazilla Health Complex (UHC) from each of the eight administrative divisions of Bangladesh were randomly chosen as study sites, from which 325 CHCPs and HAs were in the final sample. Multivariate logistic regression models were developed to determine the association between KAP scores and demographic variables. Results Our study shows that a modest number of respondents scored above average in the knowledge (54.15%), attitude (58.15%), and practice (65.54%) sections. Majority CHCPs (90.91%) and HAs (96.06%) did not receive govt. training on cancer. Only 20.71% HAs and 25.2% CHCPs knew about the availability of cancer treatment options in Bangladesh. Uncertainty about the availability of relevant treatments or vaccinations at public facilities was also high. Having cancer in the family, income, duration of employment and workplace locations were important predictors of cancer related KAP scores. Conclusion Healthcare workforce’s knowledge gap and unfavorable attitude towards cancer may result in poor delivery of care at the rural level. For many people in rural areas, CHCPs and HAs are the first point of contact with the healthcare system and thus effective cancer control strategies must consider them as key stakeholders. Targeted training programs must be adopted to address the cancer related KAP gaps among CHCPs and HAs.

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