The role of the social worker in the comprehensive long-term care of multiple sclerosis patients

Neurology ◽  
1980 ◽  
Vol 30 (Issue 7, Part 2) ◽  
pp. 48-54 ◽  
Author(s):  
D. F. Geronemus
Keyword(s):  
Multiple Sclerosis ◽  
Social Worker ◽  
Long Term Care ◽  
Term Care ◽  
The Social ◽  
Multiple Sclerosis Patients

The Role of the Social Worker in Long-Term Care

2004 ◽  
Vol 43 (2-3) ◽  
pp. 187-202 ◽  
Author(s):  
Renee Solomon
Keyword(s):  
Social Worker ◽  
Long Term Care ◽  
Term Care ◽  
The Social

scholarly journals General Practitioner Preferences in Managing Care of Multiple Sclerosis Patients

2015 ◽  
Vol 43 (1) ◽  
pp. 142-148 ◽  
Author(s):  
Mathieu Bray ◽  
Christina Wolfson ◽  
Fraser Moore ◽  
Bin Zhu ◽  
Jennifer Uniat
Keyword(s):  
Multiple Sclerosis ◽  
Rural Areas ◽  
Long Term Care ◽  
Disease Course ◽  
Term Care ◽  
Clinical Scenarios ◽  
Stratified Sample ◽  
Multiple Sclerosis Patients ◽  
Intention To Continue

AbstractBackground:Multiple sclerosis (MS) is a lifelong neurological disorder requiring care in a variety of settings. The purpose of this study is to describe preferences of general practitioners (GPs) with regards to providing care for MS patients.Methods:A stratified sample of 900 GPs in the province of Quebec were sent a questionnaire, with 266 returning completed questionnaires. Respondents were surveyed about their preferences using four clinical scenarios describing hypothetical patients experiencing different stages of MS. Respondents were asked whether they would continue managing the patient themselves, formally refer the patient to a specialist, or seek specialist advice.Results:In two scenarios representing stable courses, 40.9% and 61.6% of GPs, respectively, intended to manage the patient themselves. GPs who reported having experience with MS patients were more likely to report an intention to continue management. In one scenario, GPs operating in rural areas were less likely to consider management than those in the Montreal metropolitan area (odds ratio=0.422, 95% confidence interval 0.20-0.90).Conclusions:For MS patients with a stable disease course, an important proportion of GPs appear to be willing to manage long-term care for MS patients.

Judaism, Professional Intervention, and Ethics in Long-Term Care

2000 ◽  
Vol 54 (1) ◽  
pp. 33-43 ◽  
Author(s):  
Norman Linzer ◽  
J. Samuel ◽  
Jean Sable
Keyword(s):  
Long Term Care ◽  
Term Care ◽  
Decision Making Capacity ◽  
Do No Harm ◽  
The Social ◽  
Nutrition And Hydration ◽  
Ethical Approaches ◽  
Professional Intervention

Discusses spiritual, professional, and ethical approaches to work with an elderly Jewish patient in a nursing home. Addresses the knotty issues of determining decision-making capacity, the refusal of nutrition and hydration, Judaic values pertaining to ending one's life, the role of the spiritual caregiver, the role of the social worker, and the ethical principles of autonomy, beneficence, paternalism, and do no harm.

Familiengerechtigkeit in der sozialen Pflegeversicherung

2020 ◽  
Vol 69 (8-9) ◽  
pp. 627-641
Keyword(s):  
Social Insurance ◽  
Long Term Care ◽  
Term Care ◽  
Social Insurance System ◽  
Insurance System ◽  
The Social ◽  
The Family ◽  
Long Term Care Insurance

Zusammenfassung Ausgehend von Beiträgen des Wissenschaftlichen Beirats für Familienfragen zum Verhältnis Familie und Sozialversicherung beleuchten wir in diesem Aufsatz die Frage der Familiengerechtigkeit in der sozialen Pflegeversicherung. Ein Großteil der Pflegearbeit in Deutschland wird innerhalb der Familie erbracht, gleichzeitig gewährleisten Familien die nachhaltige Finanzierung der Pflegeversicherung. Demographische Entwicklungen und veränderte Verantwortungskonzepte stellen diese Leistungserbringung vor Herausforderungen. Wir argumentieren, dass Familien auf der Beitrags- wie auf der Leistungsseite mehr ­Unterstützung benötigen, z. B. bei der arbeitsrechtlichen und finanziellen Absicherung pflegender Angehöriger, um die bestehende Schieflage zwischen stationärer und häuslicher Versorgung zu mildern. Abstract: The Role of Families in the Social Insurance System Based on previous reports of the Scientific Advisory Board for Family Affairs on the role of families in the social insurance system, this essay examines the aspect of family fairness in long-term care insurance. The majority of care work in Germany is provided within the family, while at the same time families ensure sustainable financing of long-term care insurance. Demographic change and changing concepts of responsibility challenge these modes of care provision. We argue that families need more support on the contribution as well as the benefit side, e. g. by securing labour rights and financial protection of caring relatives to alleviate the existing imbalances between institutional and home care.

scholarly journals 106 - Environmental Influences on the Cognitive and Psychological Well Being of Older Adults with Dementia

2020 ◽  
Vol 32 (S1) ◽  
pp. 15-16
Author(s):  
William E. Reichman ◽  
L. Bradford Perkins ◽  
Hilde Verbeek
Keyword(s):  
Quality Of Life ◽  
Older Adults ◽  
Physical Environment ◽  
Culture Change ◽  
Long Term Care ◽  
Small Scale ◽  
Term Care

This symposium will review the latest data on the influence of environmental design and its attributes on the cognitive and psychological wellbeing of older adults living with dementia. The presenters will cover the myriad ways in which the physical environment of care can adapt to the changing demands of older adults with sensory, motor and cognitive deficits and foster optimal functioning and quality of life. The role of emerging technologies will also be reviewed as they complement the contribution of the design of the physical environment to the wellbeing of older adults with cognitive impairment. Information will be offered through a review of the existing research literature as well as case studies that illustrate the impact of environmental modification on fostering wellbeing and minimizing the emergence of the behavioral and psychological symptoms of dementia. The presenters will represent and integrate sensibilities that have emerged from the fields of architecture, cognitive neuroscience and psychology.How the Principles of the Culture Change Movement Inform Environmental Design and the Application of Technology in the Care of Older Adults Living with DementiaWilliam E. ReichmanThe culture change movement informs a number of principles that have been applied to more contemporary design concepts for the congregate care of older adults living with dementia. This talk will review the core tenets of the Culture Change Movement as exemplified by the Greenhouse, Dementia Village and other innovative models of congregate long-term care. Specific reference will be made to how these tenets have been operationalized around the world into the design of programming and the creation of residential care environments that foster a better quality of life for older adults and an enhanced work environment for care providers. This talk will also include the emerging role of technologies that complement innovative design of the environment and which foster optimized social and recreational functioning of older adults living with dementia.A Better Life Through a Better Nursing Home DesignL. Bradford PerkinsOver the last 20 years there has been extensive experimentation related to the role of the environment in the housing, care and treatment of persons with Alzheimer’s and other age related dementias. Prior to that time the typical housing and care environment was a locked unit in a skilled nursing or other restrictive senior living facility. In 1991 the Presbyterian Association on Aging in Western Pennsylvania opened Woodside Place on its Oakmont campus. This small 36 bed facility was designed to incorporate the latest research and care experience with persons suffering from these issues. This one small project, as well as the long post occupancy research led by Carnegie Mellon University, clearly demonstrated that individuals with Alzheimer’s and related forms of dementia could lead a healthier, happier, higher quality of life in a more residential, less restrictive environment. Not everything in this pioneering project worked, and five generations of living and care models have followed that have refined the ideas first demonstrated by Woodside Place. Bradford Perkins, whose firm designed Woodside Place and over 100 other related projects, will discuss what was learned from Woodside Place as well as the five generations of projects (and post occupancy research) that followed.Innovative dementia care environments as alternatives for traditional nursing homes: evidence and experiences from the NetherlandsHilde VerbeekKey goals of the dementia care environment focus on increasing autonomy, supporting independence and trying to enable one’s own lifestyle for as long as possible. To meet these goals, innovative, small-scale and homelike care environments have been developed that have radically changed the physical, social and organizational aspects of long-term care in the Netherlands. This presentation discusses various Dutch models that have implemented small-scale and homelike care environments, including green care farms, dementia village and citizen initiatives. The models reflect a common care concept, focusing on residents’ remaining strengths, providing opportunity for choice and aiming to sustain a sense of self and control. A small number of residents (usually 6 to 8) live together in a homelike environment and nursing staff are part of the household. Residents are encouraged to participate in daily household activities, emphasizing normalization of daily life with person-centred care. The physical environment resembles an archetypal home. This talk presents the scientific evidence on the impact and effects of these small-scale, homelike models on residents, their family caregivers and staff. Furthermore, the presentation will highlight working approaches and how these initiatives have positively influenced routine care across the long-term care spectrum.

Habituation Theory and Environment-Aging Research: Ennui to Joie De Vivre?

1989 ◽  
Vol 29 (4) ◽  
pp. 241-257 ◽  
Author(s):  
Carolyn Norris-Baker ◽  
Rick J. Scheidt
Keyword(s):  
Older People ◽  
Psychological Control ◽  
Long Term Care ◽  
Aging Research ◽  
Term Care ◽  
Targeted Interventions ◽  
Situational Characteristics ◽  
The Social ◽  
The Impact

Robert Kastenbaum posits that functional aging results in the overadaptation to our own routines and expectations, producing “hyperhabituation,” mental stagnation, and novaphobic response orientations. This article examines the promise and implications of this notion for two areas of environment-aging research: psychological control and environmental comprehension. Possible causal and mediating links between control and habituation are considered, as well as the impact of habituation on environmental perception, cognition, and appraisal. Personal and situational characteristics of older people likely to be at risk for habituated responses are suggested. The article also speculates about individually- and environmentally-targeted interventions which might prevent and/or ameliorate tendencies toward hyperhabituated responses among older people who reside in highly ritualized and constant environments such as long-term care institutions. Interventions subject to future evaluations include modifications for the social, physical, and policy milieux and desensitization of novaphobic responses.

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