THE ROLE OF PATIENTS IN THE MANAGEMENT OF CHRONIC DISEASES: RESULTS OF THE FOCUS-GROUP STUDY

2015 ◽  
Vol 8 (2) ◽  
Author(s):  
Teodora Dimcheva ◽  
Gergana Foreva ◽  
Radost Аsenova ◽  
Nonka Маteva ◽  
Todor Stoev ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Focus Groups ◽  
Chronic Diseases ◽  
Chronically Ill ◽  
Active Role ◽  
Weak Links ◽  
Focus Group Study

The management of chronic diseases shall be considered a priority in the work of the global international institutions, which are related to health policies. In the search for effective and efficient solutions for the treatment of chronic diseases, scientists are developing different programs. In Bulgaria the continuous monitoring of chronically ill people is defined with the term dispensarization. The objective of the research is to analyze the place and the role of patients in the monitoring of their chronic diseases and how the concept of quality of life relates to this process.Method The research in focus groups is planned within a research project on the monitoring of chronic diseases. Five group discussions were held. The number of participants in all focus groups was sixty.Results The two discussed directions - the active role of the patient and the focus on the results are weak links in the current organization of the care for the chronically ill people. The topic of creating and adopting an Act of the patient was also presented, in which to be paid attention to the evaluation of the quality of life. In general was brought the need for a clear delineation of the roles and the competencies of everyone involved in the monitoring process of chronic diseases. The chronic disease cannot be defined only as a medical problem, as there are economic and social, including political consequences.Conclusions The management of the chronic disease requires coordination of doctor-patient interaction, a model of partnership and trust in the relations, self-management of the condition by the patients and their inclusion in the health team. The most important step to achieve this goal is the education of the patients, increasing their knowledge and motivation, psycho-emotional support, instilling hope and faith in the capacity of the patients.

scholarly journals OPENCRONIC Study. Knowledge and Experiences of Spanish Patients and Carers about Chronic Disease

2018 ◽  
Vol 16 (1) ◽  
pp. 39
Author(s):  
Emilio Casariego ◽  
Ana Cebrián-Cuenca ◽  
José Llisterri ◽  
Rafael Micó-Pérez ◽  
Domingo Orozco-Beltran ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Public Opinion ◽  
Chronic Disease ◽  
Chronic Diseases ◽  
Online Survey ◽  
Healthcare Systems ◽  
Daily Lives ◽  
And Training

Background: Chronic diseases are currently the main cause of morbidity and mortality and represent a major challenge to healthcare systems. The objective of this study is to know Spanish public opinion about chronic disease and how it affects their daily lives. Methods: Through a telephone or online survey of 24 questions, data was gathered on the characteristics of the respondents and their knowledge and experiences of chronic diseases. Results: Of the 2522 survey respondents, 325 had a chronic disease and were carers, 1088 had a chronic disease and were not carers, 140 did not have a chronic disease but were carers, and 969 did not have chronic disease and were not carers. The degree of knowledge on these diseases was good or very good for 69.4%, 56.0%, 62.2%, and 46.7%, respectively, for each group. All the groups agreed that chronic diseases mainly affect mood, quality of life and having to make sacrifices. Conclusions: Knowledge about chronic diseases is relatively good, although it can be improved among the Spanish population, especially among patients who report having a chronic disease and play the role of carers. However, it is important to continue maintaining the level of information and training concerning these diseases.

Retirement and organizations: perspectives and challenges for both workers and human resource management

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Diogo Henrique Helal ◽  
Cleverson Vasconcelos da Nóbrega ◽  
Tatiana Aguiar Porfírio de Lima
Keyword(s):  
Quality Of Life ◽  
Resource Management ◽  
Human Resource Management ◽  
Human Resource ◽  
Design Methodology ◽  
Active Role ◽  
Theoretical Framework ◽  
Content Type

Purpose This paper aims to reflect on retirement, showing its different viewpoints, advocating the need to understand the issue from a procedural and multidimensional perspective, and especially, defending a more active role of human resource management in the process. Design/methodology/approach This paper presents a theoretical framework of retirement, based on a procedural and multidimensional perspective. Findings To study how individuals adapt to retirement permits the discovery, for example, of how they obtain the quality of life after the transition and how they manage the internal and external aspects of the process. Human resource management must treat retirement as a complex and multidimensional phenomenon. This means it should consider retirement not only as a decision but also as a process. Originality/value This essay seeks to reflect on retirement, advocating the need to understand the issue from a procedural and multidimensional perspective, and especially, defending a more active role of human resource management in the process.

Feasibility of the PHYZ X 2U program: a mobile and cloud-based outreach service to improve chronic disease outcomes in underserviced rural communities

2019 ◽  
Vol 25 (6) ◽  
pp. 539
Author(s):  
Serene S. Paul ◽  
Tania Gardner ◽  
Angela Hubbard ◽  
Justin Johnson ◽  
Colleen G. Canning ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Rural Communities ◽  
Chronic Diseases ◽  
Behaviour Change ◽  
Access To Health Care ◽  
Allied Health ◽  
Health Coaching ◽  
Mobile Clinic

Chronic disease is prevalent in rural communities, but access to health care is limited. Allied health intervention, incorporating behaviour change and exercise, may improve health outcomes. PHYZ X 2U is a new service delivery model incorporating face-to-face consultations via a mobile clinic and remote health coaching, delivered by physiotherapy and exercise physiology clinicians and university students on clinical placement, to provide exercise programs to people living with chronic disease in rural New South Wales, Australia. This pilot study evaluated the feasibility and acceptability of PHYZ X 2U by evaluating participants’ goal attainment, exercise, quality of life and behaviour change following participation in the 12-week program, and amount of health coaching received. Sixty-two participants with one or more chronic diseases set a total of 123 goals. Thirty-nine (63%) participants completed the program, with 59% of these achieving their goals and 43% progressing in their attitudes and behaviour towards exercise. Weekly exercise increased by 1h following program participation (P=0.02), but quality of life remained unchanged (P=0.24). Participants who completed the program received more health coaching than those lost to follow up. PHYZ X 2U can increase access to allied health for people with chronic disease living in rural and remote areas. Refining the service to maximise program adherence and optimally manage a broad range of chronic diseases is required.

scholarly journals Psychosocial Profile in Portuguese Adolescents with Chronic Disease Attending an Outpatient Department in a Hospital Setting

2018 ◽  
Vol 2018 ◽  
pp. 1-10 ◽  
Author(s):  
Teresa Santos ◽  
Margarida Gaspar de Matos ◽  
Adilson Marques ◽  
Celeste Simões ◽  
Isabel Leal ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Chronic Diseases ◽  
Hospital Setting ◽  
Outpatient Department ◽  
Health Related Quality ◽  
Psychosomatic Health ◽  
Related Quality ◽  
Health Related

Living with a chronic disease (CD) in adolescence involves new multifaceted challenges. This study aims to conduct a psychosocial characterization of a group of adolescents with chronic diseases in a hospital setting and to compare such dimensions for the total group and for different diseases. A cross-sectional study included 135 adolescents with chronic diseases (51.9% boys; 48.1% girls), having an average age of 14±1.5 years (SD=1.5) and attending a paediatric outpatient department in a hospital setting. Statistically significant differences were found among the different chronic diseases for the variables self-regulation (adolescents with diabetes had significantly higher competencies) and multiple psychosomatic symptoms (adolescents with neurologic diseases reported significantly more complaints). Boys presented both better health-related quality of life and psychosomatic health when compared to girls. No statistically significant differences were observed for health-related quality of life, psychosomatic health, resilience, and social support. These findings bring important suggestions especially while planning interventions, which must take into account the promotion of a healthy psychosocial development, through an inclusive perspective (covering different chronic diseases), that take into consideration specific and gendered approaches. Such suggestions might help healthcare professionals to better plan interventions in order to increase their effectiveness.

scholarly journals Chronic illness and quality of life

2000 ◽  
Vol 56 (4) ◽  
pp. 10-16 ◽  
Author(s):  
C. J. Eales ◽  
A. V. Stewart ◽  
T. D. Noakes
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Chronic Illness ◽  
Chronic Diseases ◽  
Psychological Health ◽  
Major Objective ◽  
Acceptable Quality ◽  
Successful Rehabilitation ◽  
Life Evaluations

The major objective of medical care is to preserve life. If patients cannot be cured and are left with residual chronic diseases then the aim is to provide them with the means to lead a life of quality within the confines of their disease. Rehabilitation in chronic disease means restoring or creating a life of acceptable quality. This is achieved by restoring the patient to optimal physiological and psychological health compatible with the extent of the disease and in doing so improve the quality of life. Improved quality of life is the best indicator of successful rehabilitation. Patients with chronic diseases are increasingly expected to become partners when decisions are made regarding their therapy and therefor their evaluation of the outcome is of great importance. There are a number of shortcomings with quality of life evaluations and the most important one is that it does not seem to be adequately defined. Another major problem is that this evaluation usually focuses on aspects of physical function and few studies include subjective indicators. It is generally felt that the opinion of the spouse or caregiver should be included.

scholarly journals Marketing and sustainability from the perspective of future decision makers

2016 ◽  
Vol 47 (1) ◽  
pp. 37-48 ◽  
Author(s):  
D. Pantelic ◽  
M. Sakal ◽  
A. Zehetner
Keyword(s):  
Quality Of Life ◽  
Active Role ◽  
Academic Community ◽  
Decision Makers ◽  
Strategic Decision ◽  
Business Strategies ◽  
Marketing Function ◽  
Sustainable Marketing

Contemporary research on sustainability is fragmented between multiple disciplines and areas, with on-going debates about methodological as well as practical issues. The core value of sustainability is embedded in the long-term maintenance of quality of life and contains environmental, economic and social components. Business organizations have a substantial responsibility for preserving the quality of life for future generations, as a result of the role they play in transforming natural and societal resources into goods and services. The marketing function is a major force in strategic decision-making in contemporary organizations. With its arsenal of tools for influencing (managing) consumption patterns, marketing must take responsibility for sustainable behaviour of both organizations and consumers. This article discusses the role of marketing in facilitating sustainable behaviour. Contemporary marketing education may not prepare students to use marketing’s influence to support sustainability. This study, using senior level Marketing students, assesses the perceptions, opinions and attitudes towards sustainability at three different universities in Austria, Portugal and Serbia. These students represent future decision makers shaping marketing and business strategies. The results of this research inform the marketing academic community about its ability to build contemporary curricula, as well as marketing professionals who seek justification for sustainable marketing strategies. Business schools, in their role of educators, should assume more active role in shaping students’ attitudes towards sustainability.

scholarly journals Effectiveness of Family Function in Quality of Life in Elderly Patients: An Evidence Based Case Report

2021 ◽  
Vol 1 (2) ◽  
pp. 52
Author(s):  
Muhammad Sobri Maulana
Keyword(s):  
Quality Of Life ◽  
Elderly Patients ◽  
Chronically Ill ◽  
The Elderly ◽  
Evidence Based ◽  
Literature Searching ◽  
Family Function ◽  
Based Medicine

Background: Geriatric care is an important part in healthcare and are sometimes neglected.  Family caregivers figures assume a key role in postponing and potentially forestalling standardization of chronically ill elderly patients. The role of family function in depression has been demonstrated from earlier studies, however, the part of family function in quality of life the elderly has not concentrated widely. Objective: To evaluate the connection between family function and quality of life. Methods: Literature searching was conducted through PubMed, Science Direct and Embase. Critical appraisal using appraisal sheet for prognosis from Oxford Center for Evidence Based Medicine in 2011. Results: One article was found with good validity showed that direct relationship between family function and quality of life is not associated. However, if depression is present it plays as a strong mediator between family function and quality of life. Conclusion: Family function mediated with depression plays an important role in quality of life in elderly patients.

scholarly journals Assessment of Health-Related Quality of Life (HRQOL) in Patients with Chronic Diseases

2021 ◽  
Vol 68 (2) ◽  
Author(s):  
Mohammed Safeer V S ◽  
Dr M Umesh
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Medication Adherence ◽  
Chronic Diseases ◽  
Health Related Quality ◽  
Patient Counselling ◽  
Information Leaflets ◽  
Related Quality ◽  
Health Related

According to various studies conducted on HRQoL it was found that patient counselling provided by a pharmacist play an appreciable role in improving the HRQoL of the patients. Patient counselling plays a pivotal role in improving patient understanding about the disease and medications. Patient counselling can be provided through various mediums such as face-to-face counselling, patient information leaflets. The HRQoL of the patients can be assessed using various questionnaires available. The aim of the study is to assess influence of pharmacist provided counselling on improving the Health related quality of life (HRQoL) in patients with chronic diseases. Over a period of nine months, a prospective interventional study was held in the department of General Medicine JSS Hospital, Mysuru. Ethics committee approval was obtained for this study. Patients that fulfilled the requirements were included in the research and were educated about the disease, medications, importance of medication adherence and lifestyle modifications. All the necessary data have been gathered and recorded. The HRQoL was determined before and after educating using HRQoL (SF-20) questionnaire respectively. Paired student t-test had been used to compare the pre and post HRQoL scores. Out of 227 subjects admitted in the study, 66(29%) had Diabetes Mellitus, 55(24%) had been diagnosed with hypertension, 52(23%) had been diagnosed with stroke and 54(24%) were diagnosed with bronchial asthma. All the study participants with different chronic disease were given with the HRQoL questionnaire before education (baseline) and after education (follow up). There was a significant increase in the patients’ HRQoL scores after education as p-value which has been calculated was <0.001. Educating or counselling the patients regarding disease, medication and medication adherence helps in improving the Health related quality of life (HRQoL) in chronic disease patients.

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