scholarly journals Chronic illness and quality of life

2000 ◽  
Vol 56 (4) ◽  
pp. 10-16 ◽  
Author(s):  
C. J. Eales ◽  
A. V. Stewart ◽  
T. D. Noakes
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Chronic Illness ◽  
Chronic Diseases ◽  
Psychological Health ◽  
Major Objective ◽  
Acceptable Quality ◽  
Successful Rehabilitation ◽  
Life Evaluations

The major objective of medical care is to preserve life. If patients cannot be cured and are left with residual chronic diseases then the aim is to provide them with the means to lead a life of quality within the confines of their disease. Rehabilitation in chronic disease means restoring or creating a life of acceptable quality. This is achieved by restoring the patient to optimal physiological and psychological health compatible with the extent of the disease and in doing so improve the quality of life. Improved quality of life is the best indicator of successful rehabilitation. Patients with chronic diseases are increasingly expected to become partners when decisions are made regarding their therapy and therefor their evaluation of the outcome is of great importance. There are a number of shortcomings with quality of life evaluations and the most important one is that it does not seem to be adequately defined. Another major problem is that this evaluation usually focuses on aspects of physical function and few studies include subjective indicators. It is generally felt that the opinion of the spouse or caregiver should be included.

Feasibility of the PHYZ X 2U program: a mobile and cloud-based outreach service to improve chronic disease outcomes in underserviced rural communities

2019 ◽  
Vol 25 (6) ◽  
pp. 539
Author(s):  
Serene S. Paul ◽  
Tania Gardner ◽  
Angela Hubbard ◽  
Justin Johnson ◽  
Colleen G. Canning ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Rural Communities ◽  
Chronic Diseases ◽  
Behaviour Change ◽  
Access To Health Care ◽  
Allied Health ◽  
Health Coaching ◽  
Mobile Clinic

Chronic disease is prevalent in rural communities, but access to health care is limited. Allied health intervention, incorporating behaviour change and exercise, may improve health outcomes. PHYZ X 2U is a new service delivery model incorporating face-to-face consultations via a mobile clinic and remote health coaching, delivered by physiotherapy and exercise physiology clinicians and university students on clinical placement, to provide exercise programs to people living with chronic disease in rural New South Wales, Australia. This pilot study evaluated the feasibility and acceptability of PHYZ X 2U by evaluating participants’ goal attainment, exercise, quality of life and behaviour change following participation in the 12-week program, and amount of health coaching received. Sixty-two participants with one or more chronic diseases set a total of 123 goals. Thirty-nine (63%) participants completed the program, with 59% of these achieving their goals and 43% progressing in their attitudes and behaviour towards exercise. Weekly exercise increased by 1h following program participation (P=0.02), but quality of life remained unchanged (P=0.24). Participants who completed the program received more health coaching than those lost to follow up. PHYZ X 2U can increase access to allied health for people with chronic disease living in rural and remote areas. Refining the service to maximise program adherence and optimally manage a broad range of chronic diseases is required.

Multiple sclerosis and quality of life: a qualitative investigation

2002 ◽  
Vol 7 (3) ◽  
pp. 151-159 ◽  
Author(s):  
Maggie Somerset ◽  
Deborah Sharp ◽  
Rona Campbell
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Chronic Illness ◽  
Social Services ◽  
Personal Control ◽  
Theory Approach ◽  
Illness Trajectory ◽  
Personal Assistance ◽  
Acceptable Quality

Objectives: Many people who live with long-term illness experience a decline in their quality of life. The primary aim of this qualitative study was to identify aspects of life that contributed to the quality of the lives of people who had one particular chronic illness, namely multiple sclerosis (MS). A secondary aim was to use this information to highlight areas where there was potential for effective intervention by health or social services. Methods: Sixteen people with MS who lived in a variety of circumstances and had a range of disabilities were interviewed in depth. Views relating to personal experience of chronic illness, diagnosis, living with disability, and conventional and alternative treatments were explored. Transcripts were analysed using a grounded theory approach. Results: Analysis of the interviews revealed that being subjectively reasonably happy and as socially active as desired was central to an acceptable quality of life. The extent of the personal control that participants were able to exert and their individual illness trajectory were found to be central to whether or not this aim was achieved. In addition, the importance of social comparison was revealed, although its influence upon quality of life was somewhat inconsistent. A number of other factors were found to play an influential role in the quality of people's lives. These are described and plausible links between factors are proposed. Conclusions: Many aspects of living with chronic illness are unavoidable, but health or social intervention can affect others. Inappropriate personal assistance may result in dependency, which detracts from personal control and worsens quality of life. When appropriate, however, support may have beneficial consequences. By recognising the specific factors that link personal control and the illness trajectory, appropriate and timely support can be negotiated.

scholarly journals Psychosocial Profile in Portuguese Adolescents with Chronic Disease Attending an Outpatient Department in a Hospital Setting

2018 ◽  
Vol 2018 ◽  
pp. 1-10 ◽  
Author(s):  
Teresa Santos ◽  
Margarida Gaspar de Matos ◽  
Adilson Marques ◽  
Celeste Simões ◽  
Isabel Leal ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Chronic Diseases ◽  
Hospital Setting ◽  
Outpatient Department ◽  
Health Related Quality ◽  
Psychosomatic Health ◽  
Related Quality ◽  
Health Related

Living with a chronic disease (CD) in adolescence involves new multifaceted challenges. This study aims to conduct a psychosocial characterization of a group of adolescents with chronic diseases in a hospital setting and to compare such dimensions for the total group and for different diseases. A cross-sectional study included 135 adolescents with chronic diseases (51.9% boys; 48.1% girls), having an average age of 14±1.5 years (SD=1.5) and attending a paediatric outpatient department in a hospital setting. Statistically significant differences were found among the different chronic diseases for the variables self-regulation (adolescents with diabetes had significantly higher competencies) and multiple psychosomatic symptoms (adolescents with neurologic diseases reported significantly more complaints). Boys presented both better health-related quality of life and psychosomatic health when compared to girls. No statistically significant differences were observed for health-related quality of life, psychosomatic health, resilience, and social support. These findings bring important suggestions especially while planning interventions, which must take into account the promotion of a healthy psychosocial development, through an inclusive perspective (covering different chronic diseases), that take into consideration specific and gendered approaches. Such suggestions might help healthcare professionals to better plan interventions in order to increase their effectiveness.

scholarly journals OPENCRONIC Study. Knowledge and Experiences of Spanish Patients and Carers about Chronic Disease

2018 ◽  
Vol 16 (1) ◽  
pp. 39
Author(s):  
Emilio Casariego ◽  
Ana Cebrián-Cuenca ◽  
José Llisterri ◽  
Rafael Micó-Pérez ◽  
Domingo Orozco-Beltran ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Public Opinion ◽  
Chronic Disease ◽  
Chronic Diseases ◽  
Online Survey ◽  
Healthcare Systems ◽  
Daily Lives ◽  
And Training

Background: Chronic diseases are currently the main cause of morbidity and mortality and represent a major challenge to healthcare systems. The objective of this study is to know Spanish public opinion about chronic disease and how it affects their daily lives. Methods: Through a telephone or online survey of 24 questions, data was gathered on the characteristics of the respondents and their knowledge and experiences of chronic diseases. Results: Of the 2522 survey respondents, 325 had a chronic disease and were carers, 1088 had a chronic disease and were not carers, 140 did not have a chronic disease but were carers, and 969 did not have chronic disease and were not carers. The degree of knowledge on these diseases was good or very good for 69.4%, 56.0%, 62.2%, and 46.7%, respectively, for each group. All the groups agreed that chronic diseases mainly affect mood, quality of life and having to make sacrifices. Conclusions: Knowledge about chronic diseases is relatively good, although it can be improved among the Spanish population, especially among patients who report having a chronic disease and play the role of carers. However, it is important to continue maintaining the level of information and training concerning these diseases.

scholarly journals Assessment of Health-Related Quality of Life (HRQOL) in Patients with Chronic Diseases

2021 ◽  
Vol 68 (2) ◽  
Author(s):  
Mohammed Safeer V S ◽  
Dr M Umesh
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Medication Adherence ◽  
Chronic Diseases ◽  
Health Related Quality ◽  
Patient Counselling ◽  
Information Leaflets ◽  
Related Quality ◽  
Health Related

According to various studies conducted on HRQoL it was found that patient counselling provided by a pharmacist play an appreciable role in improving the HRQoL of the patients. Patient counselling plays a pivotal role in improving patient understanding about the disease and medications. Patient counselling can be provided through various mediums such as face-to-face counselling, patient information leaflets. The HRQoL of the patients can be assessed using various questionnaires available. The aim of the study is to assess influence of pharmacist provided counselling on improving the Health related quality of life (HRQoL) in patients with chronic diseases. Over a period of nine months, a prospective interventional study was held in the department of General Medicine JSS Hospital, Mysuru. Ethics committee approval was obtained for this study. Patients that fulfilled the requirements were included in the research and were educated about the disease, medications, importance of medication adherence and lifestyle modifications. All the necessary data have been gathered and recorded. The HRQoL was determined before and after educating using HRQoL (SF-20) questionnaire respectively. Paired student t-test had been used to compare the pre and post HRQoL scores. Out of 227 subjects admitted in the study, 66(29%) had Diabetes Mellitus, 55(24%) had been diagnosed with hypertension, 52(23%) had been diagnosed with stroke and 54(24%) were diagnosed with bronchial asthma. All the study participants with different chronic disease were given with the HRQoL questionnaire before education (baseline) and after education (follow up). There was a significant increase in the patients’ HRQoL scores after education as p-value which has been calculated was <0.001. Educating or counselling the patients regarding disease, medication and medication adherence helps in improving the Health related quality of life (HRQoL) in chronic disease patients.

scholarly journals Effectiveness of Chronic Disease Management Program in Improving the Quality of Life under National Health Insurance

2019 ◽  
Vol 8 (2S9) ◽  
pp. 245-250
Keyword(s):  
Quality Of Life ◽  
Health Insurance ◽  
Chronic Disease ◽  
Disease Management ◽  
Chronic Diseases ◽  
National Health Insurance ◽  
Disease Management Program ◽  
Chronic Disease Management ◽  
Management Program

Purpose: The Chronic Disease Management Program (Prolanis) implemented at Puskesmas with the concept of cost effective and efficient health services in the National Health Insurance (JKN). Prolanis intended for participants who suffer from chronic diseases to achieve optimal Quality of Life (QoL). Therefore, aims this study to assess the effectiveness of Prolanis services in improving the quality of life of JKN participants in Banyuasin District. Methodology: This study using a cross sectional design, data was taken in 2018. Population is people who suffer from chronic diseases (type 2 Diabetes Mellitus and Hypertension). Sample was pre-elderly dan elderly as Puskesmas visitors in Banyuasin District was chosen by proportional random sampling (n=250 people). Data collection used the WHOQOL-BREF questionnaire through direct interviews with respondents. Data analysis using bivariate and multivariate analysis. Main Findings: The respondents were most underage of 60 years (participants of 63.4% and non-participants of 74.1%). Most of respondents had moderate exercise habits (participants of 59.9% and non-participants of 51.9%), among others: walking, jogging, cycling, or other sports. Body Mass Index in normal category (participants of 62.0% and non-participants of 64.8%). It’s known that Prolanis participants (61.3%) and non-participants (53.7%) have majority perception of a good QoL. Respondents who are willing to become Prolanis participants are around 142 people (56.8%). Application: The Puskesmas can improve socialization and motivation for participants to use Prolanis services, and to increase the frequency of gymnastic club activities continuously so that there are many time choices. Novelty: Participants who used Prolanis services more often, will have a higher QoL score. Respondents who visited Prolanis services 3-4 times had a tendency to be 1.3 times more likely to have a good perception of QoL (RR:1.33; CI95%:0.71–2.49).

scholarly journals Interventions to Support Behavioral Self-Management of Chronic Diseases

2019 ◽  
Vol 40 (1) ◽  
pp. 127-146 ◽  
Author(s):  
John P. Allegrante ◽  
Martin T. Wells ◽  
Janey C. Peterson
Keyword(s):  
Quality Of Life ◽  
Health Care ◽  
Chronic Disease ◽  
Chronic Diseases ◽  
Chronic Conditions ◽  
Health Care Expenditures ◽  
Self Management ◽  
Management Interventions ◽  
Wide Range

A majority of the US adult population has one or more chronic conditions that require medical intervention and long-term self-management. Such conditions are among the 10 leading causes of mortality; an estimated 86% of the nation's $2.7 trillion in annual health care expenditures goes toward their treatment and management. Patient self-management of chronic diseases is increasingly essential to improve health behaviors, health outcomes, and quality of life and, in some cases, has demonstrated effectiveness for reducing health care utilization and the societal cost burden of chronic conditions. This review synthesizes the current state of the science of chronic disease self-management interventions and the evidence for their effectiveness, especially when applied with a systematic application of theories or models that account for a wide range of influences on behavior. Our analysis of selected outcomes from randomized controlled trials of chronic disease self-management interventions contained in 10 Cochrane systematic reviews provides additional evidence to demonstrate that self-management can improve quality of life and reduce utilization across several conditions.

The impact of a power mobility device on occupational participation and quality of life for people with chronic diseases: A scoping review

2021 ◽  
pp. 030802262110344
Author(s):  
Emma Kemmis ◽  
Samantha Ashby ◽  
Lesley MacDonald-Wicks
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Chronic Diseases ◽  
Social Participation ◽  
Scoping Review ◽  
Environmental Barriers ◽  
Occupational Participation ◽  
Mobility Device ◽  
The Impact

Introduction The aim was to explore occupational participation and quality of life (QoL) for power mobility device users with chronic disease. Methods Arksey and O’Malley’s framework for scoping reviews was used. Six data bases were searched using keywords: wheelchair, scooter, QoL and participation. Data were extracted with coding and thematic analysis performed. Results Forty-one articles met the inclusion criteria. An overarching theme of enhanced QoL was identified with subthemes of (i) independence, (ii) enabling participation in instrumental activities of daily living, (iii) enhanced social participation and leisure, (iv) environmental barriers to occupational participation, (vi) power mobility device (PMD) performance concerns impacting occupational participation and (vii) overcoming risk of harm through PMD training. Conclusion The scoping review identified a heterogeneity of study designs and outcome measures, which makes comparison between studies difficult. For people with chronic diseases, PMDs improve independence in occupational participation, particularly in IADL, social participation and leisure. Unfortunately, improved QoL was often inferred, without the use of an outcome measure. Areas which impacted occupational participation for PMD users were environmental barriers and a lack of PMD training. Further research is needed to understand the impact of a PMD on QoL and occupational participation for those with chronic disease.

scholarly journals Appraising the Impact of Hand and Knee Osteoarthritis on the Domains of Quality of Life among the Diabetic Patients - An Observational Research

2021 ◽  
Vol 10 (12) ◽  
pp. 894-898
Author(s):  
Barsha Pathak Gadapani ◽  
Rukman M. Manapurath
Keyword(s):  
Quality Of Life ◽  
Chronic Disease ◽  
Chronic Diseases ◽  
Care Center ◽  
Tertiary Care ◽  
Observational Research ◽  
Diabetic Patients ◽  
Cross Sectional ◽  
The Impact

BACKGROUND Quality of life (QOL) measures have become a vital and frequently essential fragments to appraise health-care outcomes and is a powerful tool to determine the impact of healthcare as well as personal care for the population who are surviving with chronic diseases especially when ultimate cure for that specific disease is not conceived. METHODS This is a cross-sectional study where consecutive random sampling was utilised to select 258 diabetics from the general outpatient department (OPD) of a tertiary care center and QOL was evaluated among the diabetics and diabetics with osteoarthritis (OA) using modified Flanagan’s QOL scale. RESULTS The mean QOL among diabetics was 88.28 (± 2.62), mean QOL among diabetics with OA (hand) was 87.26 (± 2.22), mean QOL among diabetics with OA (knee) was 85.37 (± 2.14), mean QOL among diabetics with OA (knee and hand) was 83 (± 2.33), mean QOL among diabetics with OA with radiological changes was 80.77 (± 2.9). CONCLUSIONS The presence of more than one chronic disease significantly deteriorates the QOL. The domains of QOL are further affected when the chronic disease progresses further. KEY WORDS Quality of Life (QOL), Diabetes, Osteoarthritis, Chronic Diseases

scholarly journals Reopening of Schools in the COVID-19 Pandemic: The Quality of Life of Teachers While Coping with This New Challenge in the North of Spain

2021 ◽  
Vol 18 (15) ◽  
pp. 7791
Author(s):  
Nahia Idoiaga Mondragon ◽  
Naiara Berasategi Sancho ◽  
Maria Dosil Santamaria ◽  
Naiara Ozamiz-Etxebarria
Keyword(s):  
Quality Of Life ◽  
Chronic Illness ◽  
Social Relations ◽  
Psychological Health ◽  
Job Insecurity ◽  
Preschool Education ◽  
Total Sample ◽  
Northern Spain ◽  
The North

Background: This study aims to analyze how teachers perceived their quality of life when coping with the reopening of schools after their closure due to the COVID-19 pandemic. Methods: This study was carried out with a total sample of 1633 teachers from the Department of Education of the Basque Autonomous Community (Northern Spain), all of the professionals working in different educational centers, from preschool education to university studies, with the average age of 42.02 years (SD = 10.40). Main Outcome Measures: For this purpose, the Spanish version of the WHOQOL-BREF was used. Results: The highest values of perceived quality of life were found in the dimension of psychological health, followed by the dimension of physical health, the social relations dimension, and finally, the environmental dimensions. The results also revealed significant differences depending on gender, age, having a chronic illness, or living with someone who has a chronic illness, employment security, and educational sector. Conclusion: The study shows that it is important to attend to teachers’ health and quality of life, especially older teachers, those with a chronic illness, caregivers, those with job insecurity, and those who teach in preschool education.

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