scholarly journals Evaluating the Implementation of Health Checks for Adults With Intellectual and Developmental Disabilities in Primary Care: The Importance of Organizational Context

2016 ◽  
Vol 54 (2) ◽  
pp. 136-150 ◽  
Author(s):  
Janet Durbin ◽  
Avra Selick ◽  
Ian Casson ◽  
Laurie Green ◽  
Natasha Spassiani ◽  
...  
Keyword(s):  
Primary Care ◽  
Developmental Disabilities ◽  
Organizational Context ◽  
Health Assessment ◽  
Health Check ◽  
Intellectual And Developmental Disabilities ◽  
Preventative Care ◽  
Sustainable Implementation ◽  
Comprehensive Health ◽  
Core Components

Abstract Compared to other adults, those with intellectual and developmental disabilities have more health issues, yet are less likely to receive preventative care. One strategy that has shown success in increasing prevention activities and early detection of illness is the periodic comprehensive health assessment (the health check). Effectively moving evidence into practice is a complex process that often receives inadequate attention. This qualitative study evaluates the implementation of the health check at two primary-care clinics in Ontario, Canada, and the influence of the clinic context on implementation decisions. Each clinic implemented the same core components; however, due to contextual differences, some components were operationalized differently. Adapting to the setting context is important to ensuring successful and sustainable implementation.

Technology Tools: Increasing Our Reach in National Surveillance of Intellectual and Developmental Disabilities

2019 ◽  
Vol 57 (5) ◽  
pp. 463-475 ◽  
Author(s):  
Jordan B. Wagner ◽  
Minje Kim ◽  
Marc J. Tassé
Keyword(s):  
Developmental Disabilities ◽  
Health Information ◽  
Smart Home ◽  
Intellectual And Developmental Disabilities ◽  
Special Issue ◽  
Health Records ◽  
Health Apps ◽  
Comprehensive Health ◽  
Health Surveillance Data ◽  
Medicare Database

Abstract Challenges in collecting comprehensive health surveillance data on people with intellectual and developmental disabilities (IDD) are numerous. A number of important issues and strategies are discussed in the articles contained in this special issue of Intellectual and Developmental Disabilities. In this article, we focus on the advances and tools available in the area of technology. We explore a number of possible sources including accessing big data such as analyzing health information contained in Medicaid and Medicare health databases. We also discuss some of the possibilities afforded to us by complementing Medicaid/Medicare database information with health information available in the myriad of electronic health records. Lastly, we explore other technologies available that might yield valuable health supports and information, including wearable devices, remote supports and other smart home technologies, telehealth and telepsychiatry, as well as looking at ways to access other technologies that collect health information (e.g., glucometer, health apps, connected exercise devices, etc.).

Postpartum emergency department use among women with intellectual and developmental disabilities: a retrospective cohort study

2019 ◽  
Vol 73 (6) ◽  
pp. 557-563 ◽  
Author(s):  
Monika Mitra ◽  
Ilhom Akobirshoev ◽  
Susan L Parish ◽  
Anne Valentine ◽  
Karen M Clements ◽  
...  
Keyword(s):  
Mental Health ◽  
Primary Care ◽  
Emergency Department ◽  
Developmental Disabilities ◽  
Postpartum Period ◽  
Post Partum ◽  
Population Based ◽  
Intellectual And Developmental Disabilities ◽  
Healthcare Needs ◽  
Ed Visits

BackgroundAn emerging body of evidence underscores the often-intensive perinatal healthcare needs of women with intellectual and developmental disabilities (IDD). However, population-based research examining postpartum experiences of US women with IDD is sparse. We examined emergency department (ED) use in the postpartum period among Massachusetts mothers with IDD.MethodsWe analysed 2002–2010 Massachusetts Pregnancy to Early Life Longitudinal data to compare any and ≥2 ED visits between mothers with and without IDD: within 1–42 days post partum, 1–90 days post partum and 1–365 days post partum. We also determined whether or not such ED use was non-urgent or primary-care sensitive.ResultsWe identified 776 births in women with IDD and 595 688 births in women without IDD. Across all three postpartum periods, women with IDD were vastly more likely to have any postpartum ED use, to have ≥2 ED visits and to have ED visits for mental health reasons. These findings persisted after controlling for numerous sociodemographic and clinical characteristics. Women with IDD were less likely to have non-urgent ED visits during the three postpartum periods and they were less likely to have primary-care sensitive ED visits during the postpartum period.ConclusionThese findings contribute to the emerging research on perinatal health and healthcare use among women with IDD. Further research examining potential mechanisms behind the observed ED visit use is warranted. High ED use for mental health reasons among women with IDD suggests that their mental health needs are not being adequately met.

scholarly journals Anti-Hypertensive Medication Use and Factors Related to Adherence Among Adults With Intellectual and Developmental Disabilities

2019 ◽  
Vol 124 (3) ◽  
pp. 248-262 ◽  
Author(s):  
Alissa C. Cyrus ◽  
Julie Royer ◽  
Dianna D. Carroll ◽  
Elizabeth A. Courtney-Long ◽  
Suzanne McDermott ◽  
...  
Keyword(s):  
Primary Care ◽  
South Carolina ◽  
Health Disparities ◽  
Medication Adherence ◽  
Developmental Disabilities ◽  
Medication Use ◽  
Study Cohort ◽  
Intellectual And Developmental Disabilities ◽  
Frequent Contact ◽  
Significant Health

Abstract Adults with intellectual and developmental disabilities (IDD) are known to experience significant health disparities; however, few studies have described anti-hypertensive medication adherence in this population. Using administrative data from South Carolina from 2000–2014, we evaluated the odds of adherence to anti-hypertensive medication among a cohort of adults with IDD and hypertension. Approximately half (49.5%) of the study cohort were adherent to anti-hypertensive medication. Those who lived in a supervised residence, had a Medicaid waiver, and had more frequent contact with a primary care provider were more likely to be adherent. Organizations that serve people with IDD have an opportunity to increase adherence by educating these individuals, their family members, and caregivers about the importance of adherence to anti-hypertensive medication.

Use of Transition Resources by Primary Care Providers for Youth With Intellectual and Developmental Disabilities

2018 ◽  
Vol 56 (1) ◽  
pp. 56-68
Author(s):  
Paul B. Dressler ◽  
Teresa K. Nguyen ◽  
Eric J. Moody ◽  
Sandra L. Friedman ◽  
Laura Pickler
Keyword(s):  
Primary Care ◽  
Developmental Disabilities ◽  
Transition Planning ◽  
Primary Care Providers ◽  
Intellectual And Developmental Disabilities ◽  
Care Providers ◽  
Improvement Project ◽  
Successful Transition ◽  
Transition Clinic ◽  
Systemic Barriers

Abstract Youth with intellectual and developmental disabilities (IDD) often experience difficulties with successful transition from pediatric to adult healthcare. A consultative Transition Clinic for youth with IDD was piloted as a quality improvement project, and assessed the engagement of primary care providers (PCPs) for transition planning after patients were seen in clinic. Although many PCPs found the clinic and resources useful, individual and systemic barriers often prohibited them from participating in transition planning for this patient population. These findings highlight systemic barriers that need to be addressed to ensure successful transition, as well as the need for a specialized Transition Clinic with involvement of specialists with expertise in IDD, such as Developmental-Behavioral Pediatrics, to assist throughout transition process.

scholarly journals Organizational attributes of interprofessional primary care for adults with intellectual and developmental disabilities in ontario, Canada: a multiple case study

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Nicole Bobbette ◽  
Rosemary Lysaght ◽  
Hélène Ouellette-Kuntz ◽  
Joan Tranmer ◽  
Catherine Donnelly
Keyword(s):  
Primary Care ◽  
Developmental Disabilities ◽  
Health Services ◽  
Multiple Case Study ◽  
Intellectual And Developmental Disabilities ◽  
Organizational Attributes ◽  
Primary Care Teams ◽  
Multiple Case ◽  
Team Based Care

Abstract Background Access to high-quality primary care has been identified as a pressing need for adults with intellectual and developmental disabilities (IDD). Adults with IDD live with complex physical and mental health conditions, use health services differently than the general population and continue to face challenges when accessing health services. Interprofessional primary care teams offer comprehensive and coordinated approaches to primary care delivery and are well-positioned to address the needs of adults with IDD and other vulnerable populations. Although interprofessional primary care teams are recommended, there is currently limited understanding of how interprofessional care is delivered and how access to a team of providers improves the health of this population. The aim of this paper is to describe the organizational attributes of interprofessional primary care for adults with IDD within and across models of team-based care in one local health service context. Methods A multiple case study was conducted with five interprofessional primary care teams in Ontario, Canada. Multiple methods were used to generate data including: a survey, document review, electronic medical record report and qualitative interviews. Pattern matching was the primary analytic approach for the within and across case analysis. Results Adults with IDD were found to be a small part of the patient population served and this group was poorly identified in three of five teams. Key organizational attributes that support the delivery of interprofessional primary care for adults with IDD were identified. Two examples of targeted programs of care for this group were also found. Despite the presence of interprofessional health providers in all teams, there were limited organizational processes to engage a wide-range of interprofessional services in the care of this group. There was no consistent reporting of outcomes or processes in place to measure the impact of interprofessional services for this population. Conclusions This study provides important insights into the current state of interprofessional primary care for adults with IDD in Ontario and highlight a critical need for further work in the field to develop organizational structures and processes to engage in team-based care and demonstrate the value of the approach for this population.

National Dementia Capable Care Training: A Model Implementation and Evaluation

2021 ◽  
Vol 59 (5) ◽  
pp. 422-435
Author(s):  
Yumi Shirai ◽  
Kathleen Bishop ◽  
Melissa Kushner
Keyword(s):  
Developmental Disabilities ◽  
Support Staff ◽  
Short Version ◽  
Intellectual And Developmental Disabilities ◽  
Specialized Training ◽  
Structured Interviews ◽  
National Task ◽  
Core Components ◽  
Care Training

Abstract With a growing need for specialized training for direct caregivers and support staff of persons with intellectual and developmental disabilities (IDD) affected by dementia, the National Task Group on Developmental Disabilities and Dementia Practices (NTG) developed a comprehensive evidence-informed Dementia Capable Care Training (DCCT). To overcome the challenge of the training length and cost, and to extend its dissemination, the Sonoran Center developed a shorter version of the NTG-DCCT while retaining its core components, and implemented it in seven cities in the U. S. Southwest (N = 368). The pre- and post-training evaluation (n =260) demonstrated that the short version of the NTG-DCCT is effective in significantly improving participants' knowledge and/or confidence in dementia capable care. The follow-up semi-structured interviews of participants (n = 7) provide some insights.

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