scholarly journals What is the lived experience of anxiety for people with Parkinson’s? A phenomenological study

PLoS ONE ◽  
2021 ◽  
Vol 16 (4) ◽  
pp. e0249390
Author(s):  
Christopher J. Lovegrove ◽  
Katrina Bannigan
Keyword(s):  
Lived Experience ◽  
Thematic Analysis ◽  
Healthcare Professionals ◽  
Phenomenological Study ◽  
Sampling Strategy ◽  
Motor Symptom ◽  
Pharmacological Intervention ◽  
Pharmacological Interventions ◽  
Future Studies ◽  
Face To Face

Purpose Anxiety is a common non-motor symptom of Parkinson’s and there is no specific pharmacological intervention for people with Parkinson’s who experience anxiety. Yet there is little specific research documenting how individuals with this condition experience anxiety. It is important to explore the experiences of people with Parkinson’s to identify potential issues in developing future non-pharmacological interventions. This study explored the lived experience of anxiety for people with Parkinson’s. Materials and methods Six participants were recruited into a descriptive phenomenological study, through the charity Parkinson’s UK, using a maximum variation sampling strategy. Face to face interviews were conducted. Data analysis employed thematic analysis. Results Three key themes encapsulated the data: Finding ways to cope to “Try not to let it rule your life”, Amplifies symptoms “It’s emotionally draining it it’s also physically draining” and “Anxiety is a funny thing” experienced in myriad ways. A model of the experience of PWP experience of anxiety is proposed. Conclusions Anxiety is a complex experience constructed of interlinked parts affecting people with Parkinson’s in myriad ways. Researchers and healthcare professionals should take these findings into account when designing future studies and interventions.

scholarly journals Talking about smoking cessation with postnatal women: exploring midwives' experiences

2019 ◽  
Vol 27 (12) ◽  
pp. 760-766
Author(s):  
Rhona Reardon ◽  
Sarah Grogan
Keyword(s):  
Smoking Cessation ◽  
Thematic Analysis ◽  
Healthcare Professionals ◽  
Structured Interviews ◽  
Face To Face ◽  
Family Approach ◽  
Stop Smoking ◽  
Postnatal Women ◽  
The Uk

This study explores midwives' experiences of talking to postnatal women about smoking cessation. Face-to-face, semi-structured interviews were held with seven midwives based in the UK. Thematic analysis identified themes which provided understanding as to factors determining discussion of smoking cessation. Six themes were identified, namely postnatal women factors, midwife factors, providing information, involving others, priorities, and whole family approach. Implications for midwives working with postnatal women are discussed, including the need to increase the involvement of other healthcare professionals in supporting postnatal women to stop smoking.

A Phenomenological Study of the Lived Experience of Roman Catholic Sisters and Successful Aging

2020 ◽  
Vol 38 (4) ◽  
pp. 350-361
Author(s):  
Deborah McManus
Keyword(s):  
Lived Experience ◽  
Thematic Analysis ◽  
Successful Aging ◽  
Phenomenological Study ◽  
Roman Catholic ◽  
The Body ◽  
Spiritual Practices ◽  
Aging Research ◽  
Catholic Sisters

Purpose: To gain an understanding of how religious and spiritual practices might enable Catholic Sisters to age successfully. Design: A purposive sample of 12 retired Roman Catholic Sisters aged 75 years and older from two convent settings were interviewed. Method: Using a semistructured recorded interview, the Roman Catholic Sisters shared their lived experiences of aging, and practices of religion, spirituality, and meditation. Data analysis utilized thematic analysis of the interview texts. Findings: Thematic analysis identified the following themes: daily engagement in religious and spiritual practice and meditation; self-contentment and positivity regarding the meaning of successful aging; life acceptance; sense of faith and positivity regarding the afterlife; and intersection of meditation, prayer, spirituality, and cognitive engagement. Conclusion: This research contributes to the body of aging research and presents successful aging as understood and more specifically as experientially influenced. The findings of the study provided insight regarding the meaning and experience of successful aging, and the role of everyday religious and spiritual practices in the lives of the Catholic Sisters which influenced their individual life experiences as they age.

scholarly journals ‘Can you hear me?’: communication, relationship and ethics in video-based telepsychiatric consultations

2021 ◽  
pp. medethics-2021-107434
Author(s):  
Eva-Maria Frittgen ◽  
Joschka Haltaufderheide
Keyword(s):  
Patient Satisfaction ◽  
Lived Experience ◽  
Therapeutic Relationship ◽  
Treatment Results ◽  
Technical Aspects ◽  
Future Studies ◽  
Face To Face ◽  
Respect For Autonomy ◽  
Common Understanding ◽  
Ethical Significance

Telepsychiatry has long been discussed as a supplement to or substitute for face-to-face therapeutic consultations. The current pandemic crisis has fueled the development in an unprecedented way. More and more psychiatric consultations are now carried out online as video-based consultations. Treatment results appear to be comparable with those of face-to-face care in terms of clinical outcome, acceptance, adherence and patient satisfaction. However, evidence on videoconferencing in a variety of different fields indicates that there are extensive changes in the communication behaviour in online conversations. We hypothesise that this might impact ethically relevant aspects of the therapeutic relationship, which plays a prominent role in psychiatry. In this paper, we review effects of video-based consultations on communication between therapists and patients in psychiatry. Based on a common understanding of video-based consultations as changing the lived experience of communication, we categorise these effects according to sensory, spatial and technical aspects. Departing from a power-based model of therapeutic relationships, we then discuss the ethical significance of this changed communication situation, based on dimensions of respect for autonomy, lucidity, fidelity, justice and humanity. We conclude that there is evidence for ethically relevant changes of the therapeutic relationship in video-based telepsychiatric consultations. These changes need to be more carefully considered in psychiatric practice and future studies.

Equine-Assisted Activities and Therapies for Adolescents with Autism Spectrum Disorder: The Lived Experience

2021 ◽  
Vol 75 (Supplement_2) ◽  
pp. 7512505093p1-7512505093p1
Author(s):  
Emily Mahoney ◽  
Diane Long ◽  
Tina Caswell
Keyword(s):  
Autism Spectrum Disorder ◽  
Lived Experience ◽  
Thematic Analysis ◽  
Phenomenological Study ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Semistructured Interviews ◽  
Adolescents With Autism ◽  
Research Questions ◽  
Equine Assisted

Abstract Date Presented 04/13/21 The purpose of this phenomenological study was to highlight the lived experience of adolescents with autism spectrum disorder who participated in equine-assisted activities and therapies (EAA/T) using semistructured interviews and thematic analysis. Research questions explored the client's perception of skills learned and whether clients recognized the generalization of skills. Implications for OT and conceptualizing the links between OT and EAA/T will be presented. Primary Author and Speaker: Emily Mahoney Additional Authors and Speakers: Elizabeth Torrez, Mekenzie Keenportz, Kelly Maki, Tara Rudkoski, and Katie Hawk

The Lived Experience of Moral Distress: Nurses Who Assisted With Elective Abortions

2005 ◽  
Vol 19 (1) ◽  
pp. 95-124 ◽  
Author(s):  
Debra R. Hanna
Keyword(s):  
Lived Experience ◽  
Moral Distress ◽  
Phenomenological Study ◽  
Sampling Strategy ◽  
Moral Issue ◽  
Clinical Investigations ◽  
Content Domain ◽  
Final Sample ◽  
Universal Definition ◽  
Definition Of

The concept of moral distress has been studied mainly as an occupational issue and has not been developed for use in clinical practice. This study was designed to bridge prior studies of occupational moral distress with future clinical investigations of moral distress. Study aims were to discover the essence, properties, and full content domain of the concept of moral distress in order to develop a universal definition of the concept. A modified phenomenological study of nurses’ experience of a particular moral issue was conducted. A maximum variation sampling strategy was used to recruit a final sample of registered nurses (N= 10). Interior aversion is the essential act of moral distress. Five properties of the lived experience of moral distress were identified: perception, pain, valuing, altered participation, and perspective. Three types of moral distress identified in this study were: shocked, muted, and suppressed (persistent). Type of moral distress was related to situational conditions, recognition of moral ends, quality of coping processes, and temporal breadth. Negative outcomes of moral distress, which probably exist, were undetectable with this study design. The definition has been composed in universal terms, but remains tentative, since the full content domain of moral distress was largely but not definitively identified.

scholarly journals N09 Sexuality as lived incompleteness: exploring intimacy and sexuality experiences of people living with inflammatory bowel disease

2021 ◽  
Vol 15 (Supplement_1) ◽  
pp. S612-S613
Author(s):  
S Fourie ◽  
C Norton ◽  
D Jackson ◽  
W Czuber-Dochan
Keyword(s):  
Quality Of Life ◽  
Inflammatory Bowel Disease ◽  
Thematic Analysis ◽  
Bowel Disease ◽  
Healthcare Professionals ◽  
Phenomenological Study ◽  
Well Being ◽  
Negative Effects ◽  
Inflammatory Bowel

Abstract Background Sexual function in those living with Inflammatory Bowel Disease (IBD) is known to be affected by their condition, with impact on their psychosocial well-being. Little is known about the causality of low sexual functions scores and their contribution to low quality of life reports. The aim of this study was to explore how intimacy and sexuality is experienced in the context of IBD. Methods This was a phenomenological study guided by van Manen’s methodology. Data were collected from 43 participants from interviews and narrative accounts submitted via Google Forms. Reflection on four existential domains (body, relationships, space and time) and thematic analysis were used to interpret the data. Results Four themes were generated from data analysis: Otherness of the sick body, Interrupted connectedness, Missing out on life fullness and Fragmented openness. These led to the overarching theme Sexuality as lived incompleteness, which reflected the essence of the experiences described by participants. Their experiences were deeply embedded in everyday life, and the IBD posed an obstacle to intimacy and sexuality, negatively affecting their life, relationships, family planning and their social position, imposing limitations and isolation. Conclusion IBD has a significant impact on sexual well-being with negative effects on overall quality of life, which may be unknown to healthcare professionals, therefore remain unaddressed. A better understanding of the potential issues could help healthcare professionals identify and address concerns and worries related to sexual well-being, and approach them in a reflective, holistic manner in situations arising in practice.

scholarly journals Health professionals’ attitudes to patients’ use of wearable technology

2019 ◽  
Vol 5 ◽  
pp. 205520761984554
Author(s):  
Angus Watt ◽  
Katherine Swainston ◽  
Gemma Wilson
Keyword(s):  
Thematic Analysis ◽  
Health Professionals ◽  
Healthcare Professionals ◽  
Wearable Technology ◽  
Limited Evidence ◽  
Structured Interviews ◽  
Convenience Sample ◽  
Face To Face ◽  
Wearable Technologies ◽  
Telephone Interviews

Objective Wearable technologies for health monitoring are becoming increasingly mainstream. However, there is currently limited evidence exploring use from the perspective of healthcare professionals. This study aimed to explore health professionals’ attitudes toward their patients’ use of wearable technologies. Methods A convenience sample of health professionals was recruited to participate in this study. Qualitative semi-structured interviews were carried out either face-to-face, via Skype or telephone. Interviews were recorded using a Dictaphone, transcribed verbatim and analysed using thematic analysis. Results Four themes emerged from the qualitative findings: ‘opportunities for wearable technology’, ‘usability and understanding’, ‘privacy and surveillance’ and ‘cost’. Conclusions The findings portray health professionals’ ambivalence to the use of wearable technology, and it was apparent that whilst the participants considered the technology as being beneficial to patients, they still had concerns for its use.

The Lived Experience of Orchestral String Musicians with Playing Related Pain

2019 ◽  
Vol 34 (4) ◽  
pp. 198-204
Author(s):  
Deanna Bourne ◽  
Amy Hallaran ◽  
Jane Mackie
Keyword(s):  
Lived Experience ◽  
Thematic Analysis ◽  
Personal Growth ◽  
Healthcare Professionals ◽  
Healthcare Providers ◽  
Phenomenological Approach ◽  
The Body ◽  
University Level ◽  
Multiple Domains ◽  
Objective Rates

OBJECTIVE: Rates of pain are high among musicians, and string musicians may be particularly at risk. The aim of the study was to investigate the lived experience of orchestral string musicians with playing-related pain. METHODS: The study used a Heideggerian phenomenological approach. Five professional and university-level string musicians were interviewed about their experience of playing-related pain, and transcriptions of their interviews were analysed using thematic analysis. RESULTS: Participants engaged in a variety of types of musical performance, however they described orchestral playing as contributing the most to their pain. Pain led to increased focus on the body and less engagement in the music. They experienced a sense of loss in multiple domains of their lives, yet also described personal growth as a result of their pain. Participants were more likely to disclose their pain in student orchestras than in professional ones. CONCLUSION: Pain impacts multiple domains of musician’s lives, and therefore must be addressed holistically by healthcare providers. While musicians are finding that it is becoming more acceptable to discuss their pain, pain is still not adequately addressed. Understanding the experience of musicians with playing-related pain could help healthcare professionals to better serve this unique population.

scholarly journals Nurses and Stigma at the Time of COVID-19: A Phenomenological Study

Healthcare ◽  
2021 ◽  
Vol 10 (1) ◽  
pp. 25
Author(s):  
Silvio Simeone ◽  
Teresa Rea ◽  
Assunta Guillari ◽  
Ercole Vellone ◽  
Rosaria Alvaro ◽  
...  
Keyword(s):  
Mental Health ◽  
Lived Experience ◽  
Healthcare Professionals ◽  
Phenomenological Study ◽  
Stressful Events ◽  
Working Environment ◽  
Public Health Emergencies ◽  
Mental Health Interventions ◽  
Epidemic Diseases

The COVID-19 pandemic is putting strain on every country in the world and their health systems. Healthcare professionals struggle on the frontline and they can experience stigma, which can create difficulties in controlling epidemic diseases, influencing the mental health of healthcare professionals, caregivers, families, communities, and the provided quality of care. The aim of this study is to explore the lived experience of Italian nurses about perceived stigma during COVID-19 pandemic with the phenomenological Cohen method. The principal themes that emerged from data analysis were “stigma in the working environment” and “stigma in everyday life”. Each of these themes had subthemes: “looks like gun sights”, “avoiding closeness to others”, “nobody wants to touch you”, and “the fault of being your family members”. Public health emergencies, such as the COVID-19 pandemic, are stressful events for individuals and communities. Stigma can be more dangerous than the disease, and a major obstacle to appropriate medical and mental health interventions. Understanding how healthcare professionals experience stigma is essential to design and implement specific educational, psychological, and organisational programmes.

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