CHAOS: A Co-Creation

2020 ◽  
Vol 7 (1) ◽  
pp. 205-223
Author(s):  
Hannah Waldron ◽  
Steve Braund

This is a critical account of a year-long collaboration between MA Authorial Illustration students and service users of a social services organization and mental healthcare provider, The CHAOS Group (Community Helping All Of Society), with the aim of communicating the journey of those experiencing mental health issues and the efficacy of authorial illustration in promoting wellbeing. Central to the project was the production of the book CHAOS: A Co-Creation, and this article describes the book’s development and the experience of working in the co-creation mode. Drawing upon research methods in narrative and authorial illustration, the article explores the potential of authorial illustration to serve as a tool for benefitting mental health: could an illustrational mindset ‐ one rooted within personal authorship ‐ bring out those personal voices, rekindling a sense of worth and self-esteem? At the heart of the project was the concept of shared creative process, a ‘thinking-through-making’ in which weekly creative sessions allowed each of the participants’ individual voices to emerge and feel empowered through a gradual encouragement to author personal stories. Alongside the fostering of individual authorial voices through illustration, the article describes how, through a non-hierarchical co-creation process, we witnessed a collective empowerment. The article draws upon the recent research-based publication Co-Creation (in France) and draws on the notion from social psychology that there seems to be a sense in which narrative, rather than referring to ‘reality’, may in fact create or constitute it, as when ‘fiction’ creates a ‘world’ of its own: empowering each individual to author their own life-story (Jerome Bruner 1991: 1‐21).

2020 ◽  
Vol 9 (4) ◽  
pp. e001128
Author(s):  
Alexander Adams ◽  
Virginia Davies ◽  
Bethany Stubbs

IntroductionOnline resources are an important source of information about mental health issues and services for children and young people. Our service’s website had an out-of-date appearance and was aimed at professionals. More importantly, comments in our routinely collected patient experience data indicated that service users did not know what to expect when coming to our service.MethodsWe followed the model for improvement by testing out changes in plan, do, study and act cycles that included a review of recently updated child and adolescent mental health services’ and youth charities’ websites, designing a new web page for our service and then testing out the website in focus groups. We used routinely collected patient experience data to assess impact on wider patient satisfaction.ResultsFocus groups involving patients, parents and professionals judged the new website to be clearer, more attractive and easier to understand. Routine patient experience data did not reveal any website-specific feedback.ConclusionThis study demonstrates that it is easy and possible to create an attractive and accessible website for a mental health service using quality improvement methodology. In order to capture and integrate ongoing feedback about a service’s website from service users, routinely collected patient experience measures would need to ask specific questions related to this area. In this study, preproject and postproject patient experience data did not generate any specific comments.


BMJ Open ◽  
2021 ◽  
Vol 11 (4) ◽  
pp. e049210
Author(s):  
Elisa Liberati ◽  
Natalie Richards ◽  
Jennie Parker ◽  
Janet Willars ◽  
David Scott ◽  
...  

ObjectivesTo explore the experiences of service users, carers and staff seeking or providing secondary mental health services during the COVID-19 pandemic.DesignQualitative interview study, codesigned with mental health service users and carers.MethodsWe conducted semistructured, telephone or online interviews with a purposively constructed sample; a lived experience researcher conducted and analysed interviews with service users. Analysis was based on the constant comparison method.SettingNational Health Service (NHS) secondary mental health services in England between June and August 2020.ParticipantsOf 65 participants, 20 had either accessed or needed to access English secondary mental healthcare during the pandemic; 10 were carers of people with mental health difficulties; 35 were members of staff working in NHS secondary mental health services during the pandemic.ResultsExperiences of remote care were mixed. Some service users valued the convenience of remote methods in the context of maintaining contact with familiar clinicians. Most participants commented that a lack of non-verbal cues and the loss of a therapeutic ‘safe space’ challenged therapeutic relationship building, assessments and identification of deteriorating mental well-being. Some carers felt excluded from remote meetings and concerned that assessments were incomplete without their input. Like service users, remote methods posed challenges for clinicians who reported uncertainty about technical options and a lack of training. All groups expressed concern about intersectionality exacerbating inequalities and the exclusion of some service user groups if alternatives to remote care are lost.ConclusionsThough remote mental healthcare is likely to become increasingly widespread in secondary mental health services, our findings highlight the continued importance of a tailored, personal approach to decision making in this area. Further research should focus on which types of consultations best suit face-to-face interaction, and for whom and why, and which can be provided remotely and by which medium.


BJGP Open ◽  
2021 ◽  
pp. BJGPO.2021.0201
Author(s):  
Nancy Jennifer Sturman ◽  
Ryan Williams ◽  
Marianne Wyder ◽  
Johanna Lynch

BackgroundAlthough GPs provide care to many patients with severe and persistent mental illness, the role and skillset of the GP in this space are contested. Patients are less satisfied with GP care of mental health than physical health issues.AimTo explore patient expectations and experiences of GP roles in their mental health, and identify opportunities for improving mental health care in general practice.Design & settingPatient participants were recruited from community mental health clinics in Brisbane, Australia.MethodIndividual semi-structured interviews were conducted with a convenience sample of patients. Interviews were audio-recorded and transcribed professionally. The authors conducted an inductive thematic analysis, attending to participant vulnerability and reflexivity.Results16 interviews were conducted by one author (RW), average duration 29 minutes. Three overarching themes were identified: being heard; being known; and being safe. Participants greatly valued ‘good GPs’ who were able to detect early signs of relapse, and with whom they came to feel heard, known and safe over time. Experiences of perfunctory, hurried care and avoidance of mental health issues were also reported. Many participants were uncertain whether GP training in mental health was sufficient to keep them safe. Patients may suspect negative attitudes to mental illness in GPs who actively engage predominantly with their physical health.ConclusionSome GPs play central roles in patients’ mental healthcare. Barriers for others need further exploration, and may include time, confidence and/or expertise. Findings challenge GPs to engage more actively and effectively with these patients in theirgeneral practice consultations.


Author(s):  
Maya E. Lee

Mental health and wellness are integral parts to person’s overall health and happiness. Globally, there has been an increased initiative to treat and support people living with mental health issues and disease; the Balkan region of southeastern Europe is no exception. A literary review researching the background of mental health treatment and how it intersects with the unique history and current administrative environment within the nations of the former Yugoslav Republic was conducted. Existing literature about mental health prevalence and practices within the region was analyzed and contextualized with historical perspectives. Significant gaps in research literature were identified, including lack of research into everyday mental disorders in the region that are not to do with the recent civil war, a need for standardized data collection about where mental health infrastructure exists within the region and how effective it is in treating patients, and finally economic research to determine how and by which governing body national healthcare systems should be funded. Filling these gaps in knowledge would greatly reduce barriers to mental healthcare and overall wellness within the Balkans.


2020 ◽  
pp. 573-580
Author(s):  
Philippe Delespaul ◽  
Catherine van Zelst

This chapter is about a redesign of mental healthcare, as it evolves in a changing world. It focuses on digital transformations and their impact on social relationships, networks, and communities. It intends to demonstrate better responses to the needs of service users in society. It first defines terminologies to access the changing world and focus on how to understand health, recovery, and well-being in people with lived experience of psychosis. These central elements can be accessed or maintained using eHealth, including mHealth, virtual reality, and eCommunities. It also discuss strengths, challenges, and pitfalls in developing and applying innovative interventions in the context of daily life. It reviews these trends and how these relate to the therapeutic relationship in general, and the mental health practitioner’s role in particular.


1993 ◽  
Vol 21 (1) ◽  
pp. 9-17 ◽  
Author(s):  
James R. Beck

Biography has long served as an inspirational tool in the service of modern missions. But careful examination of past experiences with missionary pioneers can also yield valuable information about mental health issues that continue to have current relevance. The insanity of Dorothy Placket Carey (1756–1807) serves as such a lesson from history. This article will ask some “What if …?” questions regarding the story of Dorothy Carey followed by an exploration of some lessons of value that emerge from her life story. Finally the article will summarize the legacy Dorothy Carey has left us in the cause of mental health and missions.


2019 ◽  
Vol 27 (7) ◽  
pp. 706-711 ◽  
Author(s):  
LalithKumar K. Solai ◽  
Keerthana Kumar ◽  
Elizabeth Mulvaney ◽  
Daniel Rosen ◽  
Juleen Rodakowski ◽  
...  

2021 ◽  
Vol 1 ◽  
Author(s):  
Steven D. Brown ◽  
Paula Reavey

Abstract In this paper, we consider changes to memorial practices for mental health service users during the asylum period of the mid-nineteenth up to the end of the twentieth century and into the twenty-first century. The closing of large asylums in the UK has been largely welcomed by professionals and service-users alike, but their closure has led to a decrease in continuous and consistent care for those with enduring mental health challenges. Temporary and time-limited mental health services, largely dedicated to crisis management and risk reduction have failed to enable memory practices outside the therapy room. This is an unusual case of privatised memories being favoured over collective memorial activity. We argue that the collectivisation of service user memories, especially in institutions containing large numbers of long-stay patients, would benefit both staff and patients. The benefit would be in the development of awareness of how service users make sense of their past in relation to their present stay in hospital, how they might connect with others in similar positions and how they may connect with the world and others upon future release. This seems to us central to a project of recovery and yet is rarely practised in any mental health institution in the UK, despite being central to other forms of care provision, such as elderly and children's care services. We offer some suggestions on how collective models of memory in mental health might assist in this project of recovery and create greater visibility between past, present and future imaginings.


2021 ◽  
pp. 1-4
Author(s):  
Jude Mary Cénat ◽  
Boniface Harerimana ◽  
Guesly Michel ◽  
Sara-Emilie McIntee ◽  
Joana N. Mukunzi ◽  
...  

When people living in poverty are asked to describe their living conditions, mental health issues quickly come to mind (grief, sadness, anger, fear, bitterness, frustration, discontent, anxiety, and emotional damage consisting of low mood and depression, fatigue, hypersensitivity, sleep difficulties and physical pain). Although the association between poverty and mental health have been widely demonstrated in the literature, care must be taken to avoid the psychiatrization of poverty. However, how can healthcare be provided to people living in poverty when basic needs are not met? This article explores the global challenge of providing mental health services in impoverished populations, using the example of the poorest country in America: Haiti. It examines the availability of services offered through the Mental Health Centre at Morne Pelé, and the necessity for innovative and comprehensive approaches to provide culturally appropriate care that meets the real needs of populations. It highlights effective measures that policy makers should implement to develop an efficient mental healthcare system based on the lessons of the Mental Health Centre at Morne Pelé.


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